Most Recent Messages in Conditions, Meds & Tests

Vagal Atrial Fibrillation

I've been struggling with some night time symptoms for a few months now and I really can't work out what's going on. 

They only come on at rest and normally in bed at night or when watching TV and lying on the sofa. They may be positional as they sometimes go away if I move my sleeping position. They're worst when lying on my back and feel like a shaky feeling in my chest. It's a distinct cardiac sensation and can go on for quite some time.  The sensat...

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Three month appointment intervals

Hi friends, 

I have a Medtronic Azure, dual lead pacemaker.  It's been implanted for almost three years now.  I'm copying the notes from my last appointment a couple of weeks ago.  Some of you have fairly deep knowledge of what the notes below might indicate.  I'd appreciate your comments, particularly on what may be causing the 'noise'.  Many thanks.

 

Routine pacemaker follow-up intensified for RV lead watch. Devic...

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Pacing-induced Cardiomyopathy

On a recent visit regarding one of my leads that they think is fractured as it's readings are too high,  they decided to update my echocardiogram before they replace my lead and found that I have a lowered ejection fraction @ 40% , great! I would have never have known if not for the echo as I have no symptoms. Anyone have any experience with this condition?

I have to see the EP doctor this week to discuss CRT. From what I've read it sounds promising.

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Inherited heart problems

Hello everyone and hope you are all as well as can be.
This is my second post. I  received a pacemaker in November 2022 and had a complicated recovery because of pacemaker site issues such as haematomas and a related skin tear to the original incision. Have to say follow ups have been very positive in terms of resolving those early problems, and all this in the U.K!

 My cardiac consultant has even said he will resite my pacemaker if I’m still unhappy with its positi...

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PH and Manometry Testing

Hi I'm looking for advice on testing for gastro/lpr issues please. I have a Vitatron G20A2 device fitted. Does anyone know if Ph and Manometry testing is safe for me to undergo. Obviously I would presume the hospital would check with device manufacturers but wanted a heads up from the group.  TIA

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Pacemaker after Covid

I had Covid (Omicron) in January 22. Started fainting two weeks later. Ended up with a complete AV block and pacemaker a few months later. My doctor wants to do a possibly risky MRI to test for an uncommon disease Sarcoid. I don't understand why he doesn't think it was caused by Covid. I see a lot of research/reports about Covid being a cause. 

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update to my resolutions and blood test

Because of the cooler temperatures in Florida this morning.  Was unable to get the Reuben i wanted.  Instead went to a local deli and purchased Ratatouille( a stack of slices of tomato, yellow squash, zucchinni, and eggplant in a tomato sauce).  Which i then put a couple of slices of each on rye bread with swiss cheese and saurkraut.  warmed in oven, quite testy. First time in 15 days that i have eaten any of this. Will see if this has affected the A-Fi...

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Weird zap sensation

Hello I never ever experience this before ..I was driving and I felt this 2 or 3 short sensation inside my heart like a zap sensation like sharp pain felt like palpitations hope you can understand me ..could it be my pacemaker working wires ? Or ?? I had ablation study a few weeks ago can cables get damage 

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Xarelto

Thank you soooo much Gemita and Old male.  Your feedback truly helps to calm my jittery nerves.  New medication makes me antsy.

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XARELTO

Happy New Year to all.  Another happy pacemaker year has passed and more happy ones are to come.

I had my first battery change in May 2022, Biotronik.  I found out the battery and leads do not have to match.  My leads are from St Jude's inserted in 2011.  The Biotronik "sales rep" who was very nice, mentioned in the operating room he was surprised I was not on a blood thinner.  I have rapid heartbeat since the battery change.  I went...

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My Pacemaker details❤️

First thank you  🙏 Gemita and Lavender for your interest and welcome 🤗 

 I will add a bit more information about my device and while I live in Australia over 50 years I was born and raised in Slovenia 🇸🇮...Europe 
I am not on any medications and I was fitted with  Medtronic:Ensura DR MRI SureScan Pacemaker....Model: EN1DR01 on 22/04/2016. But on 27/04/2016 ; while still in hospital they find out one of the leads did not function,so in we go again🤔 I am pace...

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Up date with the results from pet scan and last remote transmission

Pet Scan was advised by the Cardio Doctor after a surprise remote transmission from Nov 27.  Not the regular one that was at that time scheduled for Dec 20th.   Was on shedule.   Because at that time was reported that i had 2 Ventricluar high rate episodes.  Thought maybe an artery was blocked going to the heart.

  Was surprised that i received the results so fast. When i was leaving after the scan asked the tech when i would hear the results, was told...

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Tinnitus

I was diagnosed with tinnitus last year! The sound I heard was a cricket noise! Just last week I developed another different noise in my ear, a heartbeat sound, it's a low whistling sound.  My ENT said it wasn't pulsitile  tinnitus and wants me to do a sleep study and allergy testing? My family doctor wants me to repeat carotid artery tests, I have an appointment on Jan 6 for carotid artery test.   Last year the same test said I was at less than 50% blockage a...

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Anyone else here experience Cold drink heart?

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9037514/

I have only been shocked 2 times and both times I went into ventricular tachycardia I had extremely cold beverage in my hand.  

The first episode I ever had of vtach was at 28 pre icd was while drinking a Jamba juice smoothie.  After that episode is when I was first implanted. 

Over the years I have noticed that for me that cold drinks trigger my arrhythmia and I am wondering if anyone else experience...

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High BP after implant - does it go back down?

I had a Boston Scientific PM implant 3 days ago.  61 yrs old.  Sick Sinus Syndrom.  Otherwise good health.  Have my whole life had good BP - always around 120/80.  Never any BP issues.  Since implant surgery 3 days ago, my BP is spiking to 170/100.  Doctor has prescribed lisinopril.  Has anyone who has experienced a post implant BP spike found that it returns back to normal and they can get off BP meds?  I don't want to be on BP meds unless I h...

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Radiation therapy

I have a St Jude's PM implanted right side.  Recently diagnosed with breast cancer in right breast. Treatment involves surgery for tumor removal followed by radiation therapy every day for 5-6 weeks. Surgeon says radiation not possible due to  PM.  

Has anyone had radiation therapy with PM  and how did it affect PM ? 

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Recovery

It has been 3 weeks since my implant and I am still always tired.  Not as tired as before but still very tired.  

Has anyone else experienced this type of recovery?

 

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Grapefruit

Well, I'm back (of course!). Don't think this is serious enough to call my doc, but I was dumb. I take tikosyn (dofetilide) and this morning I enjoyed a large glass of "mixed citrus" juice. Didn't know that grapefruit was one of them--duh--until my daughter turned down a serving saying she doesn't care for grapefruit. How bad is the interaction with the drug? No info on how much of the mix is grapefruit, but after it was pointed out, I can definitely taste it. Yikes....

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update number 1 on ventricular tachycardia

In todays Stamped mail recieved the information for Pet Cardiac Scan for Dec 22.  Wrote to the Dr. via the portal for the site.  Asked if that was the earlierest.  She wrote back they are really busy and if someone cancels.   They will let me know.

Guess i will glow in the dark after this scan. 

new to pace

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ventricular tachycardia

Today through the heart centers portal recieved an email notice that  cardiologist recived a message from their device clinic.  They stated that they are picking up some VT on my device.  The Dr. is recommending that i have a stress test.  She would like to determine if there are any concerns with obstructive disease that may be hindering blood flow to my heart.

Did think yesterday morning might have something around 8am.  Was getting ready to hea...

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You know you're wired when...

You forecast electrical storms better than the weather network.

Member Quotes

Life does not stop with a pacemaker, even though it caught me off guard.