Most Recent Messages in Conditions, Meds & Tests

Hello!

I'm new here!  I think I meet the requirements, I felt ill at work, dizzy, weak, you know, like I had too many imperial IPA's.  Went to the doctor, and within one hour, found myself on an operating table. Apparently, I had a very slow heart rate, like 30 beats per minute.  Didn't  think it was that bad..

I feel much better now. It's been about 48 hours, and the only discomfort now the the sore muscle tissue above my left nipple. Wearing a sling becaus...

Read More...

hypertrophic cardiomyopathy ( HC)

At last a diagnosis for my 'LVH' ( Left venticular hypertrophy)!  2% of the population have a hypertrophic cardiomyopathy. The obstructive form is associated with fatal arrhythmias from exercising. The condition runs in families. My children and siblings have to be screened  (echocardiogram/ECG).  There has been a lot of media exposure concerning HC this last week-  for screening and awareness.

Should I be reassured that my HC is said to be non...

Read More...

SACE Levels elevated - PET scan to be done

Good morning,

I trust all you lovely people are well.

My mom went for her follow up appointment after 3 months of receiving her pacemaker.

The doctor did bloods and found that her SACE levels were elevated and requested a PET scan to be done in the coming week. 

Can anyone shed some light on this topic, she is 60 years old and is hypertensive as well.

Any feedback would be highly appreciated.

Thank you

Read More...

I'm about ready to snap...

So...now that we have the pacemaker in place and I'm slowly getting used to all that comes with that, I'm dealing with my low blood pressure that just sent me to the ER by ambulance a few days ago because I bit it in my livingroom.  Passed right the hell out.

Tried Midodrine twice, and florinef.  I can't take either one.  Florinef made me homicidal, and yesterday's do-over of the midodrine was a nightmare.  I had every side effect imaginable.  Wo...

Read More...

Bradycardia - frustrated and so tired

This probably belongs in coping.

I am coming up on a one year anniversary of when my fatigue first started.  My quality of life has declined piece by piece over this year.

When I started, I was crossfitting 5-6 days a week, doing competitions, feeling fantastic.  At then 44 years old, I felt more fit than I have ever felt in my life.  Everything was fabulous.

Then I started feeling fatigued.  I took one day, then two, then three....  from crossfit to...

Read More...

Mammogram

Hi all

i have had a pacemaker since October 2016 and have recently been asked to attend a breast screening clinic for a mammogram. Can I ask if anyone else pou there has had a mammogram with a pacemaker??

the breast clinic says it's safe!

thanks in advance and best wishes to all ❤️

Read More...

Pulse Rate

I was in the hospital last week for a COPD flare up and pneumonia. My oxygen levels kept dropping below 90 but when I got home it was better. My question is that I thought a pacemaker keeps your pulse at a regular level. My pulse rate this morning is 138 and I am concerned. The pacemaker only kicks in if I have a pause. Any ideas would be appreciated.

Read More...

pacemaker and a-fib

Hello, I always come to you all with my pacing questions. I have a 3 lead pacemaker and a-fib. I've been in a fib daily and betapace has'nt helped me get back to normal. My EP suggested cardioversion, but I'm worried about what it will do to the pacemaker. I had an ablasion 18 months ago but was normal for about a year. Your input will be appreciated.

Read More...

Total heart block

On vacation in Florida, episode of syncope...call paramedics, rush me to the emergency room, 1 hour later they declare I am in total heart block and install a temporary pm in groin area, 3 hours later I get a st Jude dual lead PM. Travel home, get an appointment with local cardiologist..he check me, yep you have total heart block, pacing 33% in Atrium and greater than 99% in ventricle. Go back for a PM check 3 months later and ventricle is now pacing about 66%. Go back again in 3 months and v...

Read More...

Mitral valve replacement after getting a pacemak

I had a pacemaker inserted 5 days ago because I had an increasing bradycardia.  I am doing quite well with my recovery so far...better and better every day.  However my question is not about this recent surgery.  About a year ago, I was told by my cardiologist that I will soon need to have my mitral valve replaced due to mitral valve stenosis.  Have any of you had valve replacement with a pacemaker in place? How long after the pacemaker surgery did you have the valve...

Read More...

Atrial fibrillation and flutter and beta blockers. Selective thinking.

Another 24 hours in acute coronary care this Monday ! Having stopped Flecainide ( I had a 90% stenosis of my coronary artery stented the other week) as it is contraindicated in coronary disease, I went back to exercise. Seemingly it was the Viennese Waltz that led me a bit of a song and a dance into the coronary care unit with atrial flutter. ( in spite of having had an ablation a couple of years ago).[ there was some debate amongst the medics as to whether it was flutter or fibrillation...

Read More...

Valve Regurgitation

I just got back from my Cardiologist follow up appointment and I am so excited!  I was told that the echo that they did 4 days post pacemaker implant showed NO valve leakage!!! My mitral & tri-cuspid valves were both mild to moderately leaking/regurgitating before my pacemaker implant.  

Pacemaker Implant was 8-2-16.  A complication resulted in an echo being done 8-6-16.  My follow up was today, 6-22-17 with the wonderful news that no follow up care on my valves...

Read More...

MIDODRINE for low bp

Hello. I was wondering if anyone has experienced any effects to their pacemaker when taking Midodrine to stabilize orthostatic hypotension.  I read that the medication often speeds up the hr and should  not be taken 3-4 hours before bedtime.  Thanks!

Read More...

Concerned about my body

 It will be great if someone who has experienced pre-wedding cosmetic procedures share your experience here. Any insight on this would be great. Thanks in advance.

Read More...

Beta blockers after a heart attack ( and no heart failure)

Ref.Article: β-Blockers and Mortality After Acute Myocardial Infarction in Patients Without Heart Failure or Ventricular Dysfunction, Chris P. Gale et al., Journal of the American College of Cardiology, doi: 10.1016/j.jacc.2017.03.578, published online 29 May 2017

This interesting large study ( looking at 179000 patients) comes to the conclusion that at the 1 year review there is no survival advantage in taking beta blockers  after having had a myocardial infarction that has n...

Read More...

How to evaluate prophylactic pacing in order to take a beta blocker

Thanks to all of you who make this site possible and share your knowledge and experiences,  

I am trying to make a good and informed decision about whether to accept an S-ICD or an ICD.

I am comfortable with the S-ICD to guard against a SCA following a massive MI 2 years ago which left me with an ejection fraction holding at 30%.  Although I have a heart failure diagnosis, I am asymptomatic, feel wonderful and can do anything I want to do.  (I was told not to shovel...

Read More...

Fludrocortisone

I want off this devil drug.  I am swelling up like a balloon.  The EP put me on it to help keep my BP up "for a bit", and then just do it naturally with salt but my hands are like sausages, Ive gained a bunch of weight in a crazy short amount of time, my stomach is bloated out a mile.  Has anyone tapered off this stuff?  I contacted the doc but of course they arent in on sundays.  Its not even doing much for the BP that I can tell....  How should I...

Read More...

Life is full of surprises

I have never really had raised cholesterol. I have taken a statin for over 10 years to keep my cholesterol as low as possible.  I exercise regularly ( swimming miles, table tennis, dancing etc.). I am thin. I have never smoked. 

My cardioversion for atrial flutter in November sent me on a path to speak to a cardiologist ( the first I have spoken with for about 7 years). My apical left ventricular hypertrophy previously being put down to exercise. I asked how do you know t...

Read More...

Passing out with pacemaker

My mom recently had a pacemaker put in because she was passing out due to low heart rate. She was diagnosed a couple of weeks ago when she ended up in the hospital after passing out while driving. Today, we went in for her wound check. All of her vitals were good, pacemaker check and tests looked good. Out of nowhere she passed out again. Has this happened to anyone else? We're waiting for the doctor to review everything and hopefully call us back. Being new to this I wasn't sure if t...

Read More...

Feeling Yuck!

In two days, it will be my seventh anniversary with my little friend. The relationship has been pretty good until the last month. For a while now, I had been experiencing shortness of breath and brief (a few seconds) episodes of severe general weakness. My heartbeat was all over the place. In late March, my cardiologist put me on Atenolol, figuring that it would take care of the tachycardia while my pacemaker would handle the bradycardia.

That didn't work out so well. In the past, I...

Read More...

You know you're wired when...

Your old device becomes a paper weight for your desk.

Member Quotes

I'm a runner, mountain climber, kayaker, snow skier, bicycler and scuba diver. The only activity among those that I'm not yet cleared to do is scuba diving, and when I am cleared, I'll be limited to diving to 50 feet.