Most Recent Messages in Coping

Support Groups

Looking for possible help from another user of the club for steps on setting-up a support group in my area. This was suggested by the Drs and staff of our local PM clinic and I would like to run with it but could use some coaching!

You can respond to this or send a private message.

Thanks in advance

Deb

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feeling the pacemaker

As a new member and only just getting used to my p.m. which was fitted on 6/1/2017

I have had my first check up and all fine.

The other night I woke up with a start and out of breath for a couple of seconds, at the same time I thought I felt the pacemaker  pulsate a couple of times, this was where the p.m. was located.

Is this normal to feel it pulsate occasionally?

Thank you.  Jillygirl.

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In hospital just had it put in horrible back shoulder pain

HI has anyone had pain in left back between should blade and spine. I mean horrible no  stop? The nurse said I have knotted up muscles and that's why pain meds are not work so when the doc come in she is going to ask for muscle relaxers I have never ever had a muscle hurt this bad this is crazy it feels like someone has a drill bit running through me.... I am very small so he tried to fit it a couple place I was asleep thank god. They put mine under muscle to try to hide it better th...

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airport

I am going tothe airport for the first time since getting a pacemaker.  How do I go thru the scanners? please help.

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New development

When I first got my pacemaker 5 1/2 years ago, except for SSS, my heart was perfectly healthy.

Since then I"ve developed a little of this, a little of that. A little mitral valve regurgitaion, a little pulmonary hypertension, a little micro vascular disease with Ranexa to relieve the symptoms. (no test for MVD so you can't know, you just guess.) And 6 months ago, near-syncope due to intermittent LBBB. 

So far, nothing so bad that something has to...

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Intro/Coping

Hi guys! This is a dual intro/coping post! I happened to stumble on this by sheer luck and I'm really surprised to have found it!  Anyway, my name is Megan , I'm 26 years old from NJ and had my pacemaker inserted in an emergency procedure January 25, 2017 (a Boston Scientific I think my model is Accolade)I was diagnosed with Inappropriate Sinus Tachycardia in Summer '16 after running in the 200s for several days straight. I totally flunked my stress test (walking a slow rate...

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Pulsating pain

The message below was posted about 6 weeks after PM implant.  I am now about 7 mos out and for the most part doing very well.  Still have the pulsating pains a few times through the day and night that are from very mild to mid range pain lasting 30 seconds to a minute.  Seem to feel it more when laying  on my right side.   I am no longer on a beta blocker.  It made me feel very bad and sluggish.    Lower hr is set at 45.   EP thinks I feel pain and...

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Left side sleeping

It's been about a month and a half since my boyfriend had his defibrillator implanted. He's always been a left side sleeper and is finding that he is no longer able to without feeling pain from the defibrillator pinching against his ribs. He's been losing so much sleep and I was wondering if anyone had any suggestions for how he can comfortably sleep on his left side again. One suggestion I've heard is memory pillow. I'll take any and all suggestions. Thanks!

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New pacemaker user

Husband is five days post op.  He had arrhythmia and blackouts pre op.  He also has an old back injury which was affected each time he blacked our and fell to the floor.   He is very anxious about walking unaided.   I am trying to chivvy him along.  His first pacing check was fine but even this has not helped.  He is nervous about the future.   Any advice or information would be welcome.   Thanks x

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Recovering

Just had a CRT-D put in on 1/16/17.  Very active before and did exercise class three times a week.  Now, I have trouble walking the dog.  The pain is still there and I've got thumping in my diaphram from the leads hitting some nerve.  They keep trying to adjust.

Wondering when the pain goes away, When the brusing goes away and if they can adjust the wires with the nerve. 

Still trying to figure it out.

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after surgery

Just like to thank everyone for their reassurance. 

Putting my mind at ease. 

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Racing heart when resting

It's been more than a year that I've had my sparky implanted at 29, Accepting that it was implanted overly eager by my previous cardiologist who never thought twice to do more tests,  I've just learnt to deal with sparky and living with it in my chest. Due for a check up in April who comes as a relief as my heart has been acting strange lately. Been having aches and cramps around my heart like it feels strangled for a few seconds and then starts racing for a couple of Beats....

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Sleep disturbances

Never had sleep disturbances. PM Installed two months ago.  No longer sleep through the night  Is this common.?

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Update on PM

Well, I was "soon to be wired " to WIRED.  I had my pacemaker placed on Friday, January 13th.  Of course, my pre-op room number was 13!  I had to laugh at my luck. Anyway, I was put under general anesthesia as I had the pacemaker placed under the pectoral muscle.  I did wake up with a great deal of swelling and pain and spent the night in the hospital. I was discharged on Saturday, taking Vicodin and using ice almost constantly.  Sunday I experienced severe...

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One Week with My PM

I've made it to the 1 week point and things are looking up. The first few days were tough. I was pretty much overwhelmed by it all. Couldn't sleep much, the incision hurt and I felt like my heart was out of control.

I nearly passed out a few times last Monday morning and had trouble breathing. Thought I was having a heart attack so went to the ER. They explained my problem with the electrical system in my heart and said they would do some blood tests but I might need a...

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Is or Has Anyone Blamed Themselves?

A month into this, I am getting caught up in the "Blame Game."  And I find that I am blaming myself for this predicament. Well, naturally, you cannot be healthy then be on a device like a PM, icd, etc., if you did everything correctly? Right? It has to be someone's fault. Of course not. But then who else is there? It's your body. Remember the expression: You are what you eat.  I sometimes feel that my body has betrayed me. After all I grow my own vegetables.  ...

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Who has had their pacemaker since they were a child?

Just curious to see how many of us have had their pacemaker since they were a child. I had mine put in when I was two years old, and back then it was the big old clunky ones that did not change pace except for set times.. so I had a daytime rate and a nighttime rate and that was it.. no fluxuation. 

It's like comparing and old rotary phone with an iPhone 7. The technology has come such a long way and I can do so much more than I could as a kid. I'm sure if you've clicke...

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How to remember not to raise your hand above your head

Hi,

I just got a pacemaker two days ago.  I am not supposed to raise my arm above my shoulder and find myself already forgetting and doing it.  Are there any tips or tricks to remind yourself not to raise the hand?

Thanks so much!

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?'a post pacemaker implant

Like I said in my bio I'm 23 and had a pacemaker implanted in august of 2015! I was wondering is it normal for it to be noticeable and the scar to look weird like some days it's more reddish pink than others! I can't hold things with that side for long periods of time, I can no longer sleep on my left side due to the pacemaker making it uncomfortable! I'm just now coming around to being comfortable enough to wear tank tops again bc I hated people asking me what happen when the...

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Just Got a Pacemaker

Just got a pacemaker yesterday. It was all very sudden and I apparently would have died if I didn't get it. So here I am the first night home trying to get to sleep but can't. My heart won't slow down. I'm sure I will fall asleep eventually but right now I'm not sure what I got myself into.

I'm alive so what am I complaining about? I really don't know but I sure hope I figure it out soon.

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You know you're wired when...

You trust technology more than your heart.

Member Quotes

I feel so blessed to have this little gem implanted in me. When I think of the alternative it is quite overwhelming sometimes.