Most Recent Messages in Coping

Should we have another baby post pacemaker surgery?

First of all thank you to everyone who responded to my last post. I wish the site allowed us to like, as well as respond to replies. Again I'm a 39 year old with third degree AV block, my pacemaker surgery was on 9/17/2018. 

My wife and I have been trying to have another baby for close to 3 years now. During our last check up our doctor told us our best option would be IVF which would be very expensive and still not guaranteed. Due to the cost alone we have been hesitant t...

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It’s not dying I’m talking about it’s living

A lot of times people including myself get caught up with the finality of have a pm well after getting the dr ok too occasionally get a little drunk for a brief moment of time last night I forgot all med issues and just drank and had fun something I need too focus on not just drinking but live not wait too die no one knows when there numbers up so you gots too live some 

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Exhaustion

Hello All,

I have been reading your posts on exhaustion or fatigue. My pacemaker was put in April 2018. I didn't feel up to par until about July of 2018. I have had it tweaked slightly as I was still experiencing some lightheadedness (which was happening before my pacemaker).

I am 49 and still very active. I own a dog walking compnay and two dogs of my own. So I am usually out walking from 10:30am to 4:30 pm. The average is 6-9 miles per day. yes, in the MN cold now, it can be...

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Depression

Hello everyone, this is my first post. I got my PM 10/01/2018 so today makes my 1 week. I am 31 years old. I was diagnosed with symptomatic bradycardia and it seemed like everything moved so fast. A few months ago I was enjoying my summer and all of a sudden I was passing out in the e.r. Adjusting and accepting this new life has been hard for me and it just barely started. I do some modeling, I'm used to getting overdressed and doing things with my friends and now I just feel ugly. Everyt...

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My Story ...living with a Pacer for nearly 54 years.

Hello There,

 

After posting up a message a few days back I thought I would post up a bit of my story and hopefully I hope it can help some of you.

I was born in 1956 by caesarin to a mum who was 43 years old.  She had many complications getting pregnant and finally fell while going in to menopause.  Doctors had picked up on my heart condition while listening to my heartbeat with one of those little horn things they used years ago.

In my mothers words I...

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Restitutions/ limitations with a pacemaker

Hello everyone,

Does anyone run into any limitations/restrictions with having a pacemaker? My electrophysiologist and my Medtronic owners manaual mention avoiding strong electric or magnetic fields, such as large electrical generators and radiofrequency. Also to avoid full contact activities— taking hits or falling can dislodge pacemaker or shift the wires in the heart. 

I’ve had mine for over a yr now with no issues but am in the Arm...

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How have others felt post surgery?

I’m confused, am I Neo From the Matrix?

Im a 39 year old that’s 3 weeks post pacemaker implant. Recently I have been on this Life Is Too Short (YOLO) mentality. Spending money, pushing the honesty boundary with friends and family, and creating a very aggressive bucket list. After all when we die does it really matter what our 401k balance is? 

This this is the the first time I have faced the reality, that we, truly don’t have control of when we leave this ea...

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How long have you had your pacer!

Ok. Apologies if you have seen this before but I couldn't find my email when I checked for any replies ( if any) 

Just curious to see how long people have had their pacers. I'm going into my 54th year.  Endless pacer changes and problems here and there.  However, I've managed to lead a normal life. I live in Sydney, have been married for 36 years and have 4 children. (All normal deliveries I might add)  I was 8 when I received my first and I'm 62 next...

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More tired than before implant

Hi I had a pacemaker implanted 8/28/18 so it’s only been about 5 wks.  I went for a 15 min walk to get lunch today and I am pooped now. I have also started taking 25mg metoprolol at bedtime. Not sure if it’s associated w my tiredness. I am pacing 97% lower chambers and 14% upper. All new to me. I go in for my 6 wk check up next wk and the surgeon will b there to make adjustments if necessary. He said @ surgery if I don’t feel any better (more energy) @ my 6 wk check up...

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New Memeber of the PM club

Hi Everyone, 

I am New to the PM world. Implant date 9/10/18.

I am still having some pain and discomfort around the implant area.  I have gone to my F/u and everything is normal but I am still feeling soreness around the area. Please tell me this is totally normal and it takes a few months for the muscle to heal. 

Thank you so much 

Monica 

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What to expect post operative for PPM placement

 Going in tomorrow for pacemaker placement. Curious what to might expect after the procedure. Would appreciate any comments in regards to recovery time, wound healing, any unusual sensations with device in place, frequency of pacemaker adjustments, activity restrictions, or any other thoughts. Thank you for any insight. 

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My body temperature

I received my pacemaker exactly 20 days ago.  Before then, I was always cold.  Now I can't get cool enough.   I flush just as if I'm going through menopause.  I get hot and sweaty, while my forehead still feels cool.  Has this happened to anyone else?

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19 with a pacemaker

Hi everyone, sorry if this is long but I need to let this out.

I’m 19 and have a hard time accepting my 1,5 month old pacemaker. I’ve been passing out 1-2 times a year from when i was maybe 10 but every time I went to the doctor for it they said it was because of my low blood pressure and iron levels, which I believed because they where both true. I work as a waitress and last year I passed out at my work after working insane hours and barely sleeping for 13 days a...

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Left Side Sleeping and Strange Clicking sensation

I had my pacemaker implanted 5 June of this year.  I'm still having difficulty sleeping on my left side because my pacemaker pushes into my collar bone and it's uncomfortable.  The other bazarre thing, is when I lay on my left side I can physically feel and hear a faint click with each heart beat.  It's like my heart is a mechanical device and I can 'feel' a metalic click of each beat.  When I roll onto my back or lay on my right side it is gone. ...

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New Member and CRT-D Implantee

Good evening. I am a 41 y.o. male. About 4 months ago I went into the hospital for an appendectomy and came out being told I needed to schedule an appointment with a cardiologist. The bright side is the appendectomy lead me to seeking the help I needed for my heart .

I was diagnosed with cardiomyopathy, LBBB, and EF of 20%. I've learned a bunch of new words:) My EP implanted a CRT-D seven days ago. Anyways that is where I am today. 

Beyond any physical issues, my biggest...

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Cogenital Heart Block

Hi there. So my husband and I recently had a son who was born at 24 weeks and 5 days. He is now 31 weeks gestation, but 6 weeks old. He has been diagnoised with full cogenital heart block. I'am diagnoised with sjogren's syndrome in which the doctors say that is what lead to the full heart block in my sons heart because of my antibodies. My son is tolerating his heart rate and has been since birth. His heart rate is anywhere from the 80's-100's. A normal prematur...

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pacemaker- Should I or Shouldn't I

I am told I need a pacemaker.  I experience mild to mod dizzy spells infrequently but I'm not passing out yet.  My resting heart rate is usually low 40s.  Should I wait?

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Pain

Hi everyone it's been awhile since I've been on here. I had my medtronic 2 lead pacemaker implanted November 2 of 2017 , I am still having a lot of burning pain, I can feel my pacemaker shocking me is this normal. when I bend over I have a lot of pain shocking sensation, can someone tell me is this normal or part of the recovery . when will I start to feel normal again. thanks in advance 

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ID Card Language

I have an EU ID card, in English only. Is it possible to get a multi-language or at least one in Mandarin? To avoid any difficulties in a small regional airport?

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Getting a Pacemaker

Hi everyone, my name is Lily and I’m 18 years old. I have Vasovagal syncope which means my blood pressure drops my heart rate slows and stops, I have a fit and then it starts again. This massively impacts my life, I’m constantly terrified of fainting, it happens badly (as in my heart stops) afew times a year maybe 3/4 times. ECG caught a 17 second cardiac arrest. But the dizziness and the fear of them is constant. I had to miss a month of school last year because my fainting...

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My pacemaker is intact and working great.