Most Recent Messages in Coping

Anxiety

After being home 5 days I still have not had a full night sleep seems like I wake up about 3 a.m. anxious and when I check my blood pressure it's high at that point I normally take a Xanax and try and go back to sleep hopefully I'll adjust to this device sooner then later and get back to a more normal life.

Read More...

Breathless

Hello, my first post.. i had my pacemaker implanted 7months ago.. i had a near miss behind the wheel of a motorhome and blackouted..luckily my wife took over and steered us to safety...it then took another5months when i actually had to 'flatline' in hospital before i went to theatre to have mypacemaker. No more blackouts thankfully, however I get breathless and i don't know if it's anxiety or my heart? i have just been to the technician and he has adjusted it..he says the top...

Read More...

Bradycardia and associated symptoms

Good afternoon from the UK lovelies, 

I am sorry, it’s name again...I’m really struggling with the symptoms that come alongside the Bradycardia, I’m blessed that I have an appointment with the EP on the way, but how to cope in the meantime?

 

My heartrate doesn’t go much above the 40s/low 50s during my workday and I get more and more moments of feeling like I’m near passing out...how do you all cope/have been coping before the PM?

<...

Read More...

Defibrillator Turn Off

I wandered into my E.P.'s office today for my routine visit.  

Evidently my cardiac condition is changing in a negative way.  Not a big surprise, I have been extremely fortunate the past 14 years.

Here in Oregon we have a document called a P.O.L.S.T. Agreement (physician ordered life sustaining treatment).  POLST is enforceable under Oregon Law.  I have a DNR, P.O.L.S.T. and Living Will.

I had my CRT-D implanted because I hoped it would possibly...

Read More...

Can't sleep.

I had my pacemaker implant on November 2nd 2017. wondering has anyone else had problems sleeping? Ever since my pacemaker implant, I just cannot sleep. I get maybe 4hrs sleep a night. I've tried everything, nothing seems to help.

Read More...

New Pacemaker

Received my PM Jan 2018, immediately after surgery my coughing subsided, I ve had the cough for years. Was very surprised called for medical clearance for spinal surgery after echo. The next week it was put in. Had Sepsis August of 2017 and February of 2016 too. Told my 30% function could climb up to close to normal of maybe 50 to 60%, still so out of breath sooo tired, can anyone help me with time frame?

Read More...

Shoulder pain

Hey pacers! Happy valentine's day! I am needing some answers concerning shoulder pain.I stared having shoulder pain about 2 wk ago. It's some pretty bad pain, I was wondering if anyone knows anything I can do to make it better. Should I use heat or ice ? I try to move it as much as possible to keep from getting a frozen shoulder. Thanks in advance! 

Read More...

Pain in the middle of the chest

Hello everyone!

Had a pacemaker fitted three weeks ago, 

have strange pain episodes in the very middle of the chest, comes and goes, but quite strong. Anyone had any similar pain or any complicatoins with the leads going through the veins (Vena Cava)? 

Should I be concerned? 

Many Thanks 

 

Read More...

anxiety and panic attacks

Hi,  i am a 46 yo female and  I am about 19 weeks from getting a CRT for my 2nd degree heart block.  Back in July I stopped taking Paxil for history of panic attacks and anxiety... I was doing good without the med with increase in this after pacemaker that subsided, and now is back in full force.  I am seeing a counselor for this.  My question is, I have done some research on the Paxil and in the FDA labeling, there is a small section about in the cardiovascular secti...

Read More...

Sleepless

I am 13wks post implant, wondering is anyone else having trouble sleeping. I cannot get off to sleep . no matter how hard I try. My incession looks great. I have a lot of left arm pain. has anyone else had problems with this, got a lot of swelling in my left arm also. Is this normal? God bless stay well pacers! ❤ 

Read More...

Thank you everyone

Good evening. I am now five weeks out from an urgent pacemaker implantation for fainting. I had a slow heart rate develop, and I already had atrial fib which was not solved by cryoblation last year.

I am an optimist about many things but an unresolved "thumping" produced by my PM has been distressing and recalibration does not end this. It was hard to get my doctor's office to address this - I ended up feeling I was the ONLY one who had ever complained of this.

...

Read More...

Anxiety after Pacemaker

Hi, I’m a 37 year old who had a pacemaker implanted 20 months ago. Since then I’ve had near constant chest pain that radiates into my left arm and up to my jaw. I’ve had all the tests done and they say nothing is wrong and that I have anxiety. The problem is that when I was having the problems that led to getting my pacemaker I had doctor after doctor tell me I had anxiety and dismiss me. It wasn’t until I landed in the ER with a heart beat of 28 bpm that any...

Read More...

Pain and PM moved

I have had my Pacemaker since 2011 first it took a year for the site to heal then I have had pain and shocks since getting my PM. Talked to my Dr all I was told is that my Pacemaker can't shock me and that it is working fine. No one will tell me why I have this pain they finally change my pace to 90 and said they will set it to 110 soon but still no relief of this shocks and pain anyone else have this problem, plus now my PM is moving but they say that's ok to it happens sometimes

Read More...

Coping

Hi everybody.. I am 21, got my pm at 20, and I was wondering if anyone else on here got one at my age, or even at a younger age and has some advice? I am having trouble accepting it and having to explain to my friends and new people why I cant do certain things that they can do..thank yall

Read More...

Pacemaker removel

I hope I am not totally told I am crazy here,  My doctor (from emergency) declared that I needed a pacemaker,  He did order a 30 day holter and said my heart paused?.... He then declared I needed a pace maker.  He is my husbands cardiologist so he thinks he is God.  Okay.  I have it.  I HATE IT! It was not my decision and I can not tell you how many nights I have sat up hating it!!!  What can I do?   I want it gone!

 

Read More...

Anyone else with Peripartum Cardiomyopathy?

Hello! 

I'm 26 years old with heart failure that I developed during my 3rd trimester of my first pregnancy. I wanted to see if there was anyone else raising a new baby while simultaneously dealing with heart failure and a pacemaker like I am. It would be great to see how you're coping because I feel major anxiety over the future.

 

Thanks!

Kriselda

Read More...

Pacing and PVC's

8 months post Sparky and have a question. Is there a correlation between pacing and PVC's?

I'm set at 55 BPM and when sitting quietly my heart rate can get to 55 or below and sometimes I can feel a PVC.

Any thoughts?

Read More...

I Feel Like I Have PTSD

I'm 3-months post pacemaker implantation. My heart block was discovered after I collapsed at work and was taken to the emergency room, where I passed out two more times and my heart stopped both times. 

Now I have a dual-lead pacemaker and, by all accounts, everything is going well. The pacemaker is only having to pace about 10% of the time, and I have had no significant events since the pacemaker was put in.

Mentally though, I'm a mess. A certain sound or smell or ac...

Read More...

Post implantation heart rate

My wife (age 76) has just had a pacemaker fitted. Before the pacemaker and before the episode which preciptated it, her heart rate was normally in the region of 65 bpm. She is now concerned that it may not be functioning properly because her heart rate goes up to 70 - 80+ bpm although at total rest it's nearer 60. We cannot access professional help at the weeknd so wondered if anyone has expereince of this and if there is anything I can say to her to reassure her. We are both suffering fr...

Read More...

New Pcemacker

I am a 52 year old male thar two years ago thought he was healthy till feb 9, 2016. Since then I have had 5 Catheterization’s and 4 stents implanted in my  mid LAD. I’ve had 3 blockages over 80% due to scar tissue restenosis. During the last 20 months I have had an irregular heart beat that dr thought were due to blockages or medicine. After my last stent on dec 22. They implanted a loop monitor. Two weeks later they decided to give me a dua...

Read More...

You know you're wired when...

You need to be re-booted each morning.

Member Quotes

Without this little machine, we would not be here.