Most Recent Messages in Coping

Concerned - pacing, tired, high blood pressure,

I'm 72.  I've had the Medtronics 2 lead PM in since May 29th.  After a few early concerns, all seemed well.  This past Monday I had a Lexiscan Stress Test and all was normal.  On Tuesday, when I took my bllod pressure is was higher than normal.  Early Thursday morning at around 1:00 AM I felt my heart POUNDING and went to the emergency room at the hospital.  They took EKG's, blood work and checked the pacemaker and all was OK and we&nbs...

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Back pain

Hi all -

I have had a pacemaker since September of last year. Often when I awaken during the night and/or in the morning, I have a great deal of pain and lack of mobility in my shoulders and upper arms.  Also, over the last few months I have been experiencing back pain.  I have been calling it "back spasms," which is something I have struggled with in the past.  However, it seems to have become chronic and is interfering with my abilirty to live life "norma...

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When can I wear a regular bra?

I'm 7 weeks out and been wearing sports bras. Last night I went a wedding and had to wear a regular bra. By the end of the night I was in pain, not sore, pain. When will it not hurt anymore? When I "forget" it's there?

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New sensations

I am 1 week out of pacemaker implantation.  Before surgery, I was not aware of "feeling" my heart. I now am quite aware of noticing my heart rate, rhythm, etc.

Additionally, I do not feel "quite right." (Whatever that may mean!)  I have a follow-up appointment this coming Friday for "wound check."  I will let the person know how I am feeling, but can any of you identify with these sensations?

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SPELLS OF FATIGUE AND MALAISE AFTER 10 WEEKS

I got my pacemaker 10 weekends ago. As I have said in another posting it was a shock. I have coped extremely well and many times forget it is even there. Many days I feel better than I have in a long time and then suddenly I have what I have coined "spell days" when I feel almost debilitated with fatigue. It is like having a bad feeling in your gut .... nervous, tired, feel like I just can't get going ...

usually when I rest ... the next day I am fine. Tons of energy ... a...

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New

I had a St.Jude Bi- v pacemaker put in yesterday. I am really sore, which I'm sure was to be expected.  My question is, should I be feeling a quivering in my stomach at times? It was prevelant right before I went home yesterday and agan today around dinner. Is this noreal and does it go away or is it a setting issue. I never thought in a million years I would need a pacemaker, but after open heart surgery for an aortic aneurysm repair a block occured.. So I am new to all of this..

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Your advice/input please

Just yesterday I was told that I would need pacemaker implant surgery next week. I fainted once last week, was hospitalized overnight, monitored, and observed. I was told all tests were normal.  Doc told to wear a loop heart monitor for a month and not drive. Got the monitor the beginning of this week. Three days into wearing it, cardiologist contacted me that it reflected an "event" where my heart stopped for 4 seconds. She said I have "High Grade AV Block". Tha...

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The Unknown

I go in for my surgery on Friday June 30th and I'm trying to stay positive, but there are times over the past week that I have broke down.  I'm 38, very active and I want to get back into a normal routine, whatever the new normal will be, as soon as possible.

I need my PM due to BRADY as I have had two syncopal events with the last one being while driving on the interstate.  My EP feels this is the route that is needed to keep me profused so I stay upright.  My wi...

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Coping

I am 53 and runner.  I had my pacemaker put in june14TH due to episodes of complete heart block.  I work in the medical field.  I questioned doc about procedure as i am a no cpr no defib person.  I was assured not an issue.  Reading post op report i see i had vfib and was defibrillated. I am bothered by this.  I understand the alternative but i would not have had it if i knew this was going to occur.  Anyone else wigged out by this?

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Remove dressing

i had my pm installed on the 14/6/17 had my dressing changed recently wondering when I should remove the dressing it seems to be mostly healing with a little red on the right hand side of the wound ?

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I'm scared

I am taking my dressing off of my incision area tomorrow and I am really nervous about it.  Any suggestions?  Or encouragement?  I also have not driven anywhere in over a week and I know I need to get in the car and make myself go somewhere tomorrow.  Gotta get over this hump!

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Floridian?

Hi

im new to a pacemaker and to this forum.  I live in Jupiter and wonder if there are any Floridian that are interested in forming a face to face support group? Im still in disbelief that I have a pacemaker and overwhelmed. Online forum is great in person group even better!

thanks

eliza

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Fast / Pounding Heart Rate - Coffee ? Salt ??

Good Morning !!

So my standard morning breakfast has always been an everything bagel (poppies, sesame, onions, salt) with a cup of regular coffee.  Since my PM about 4 weeks ago, I've been having sort of pounding heart beats in the mornings (today 143/78 80 BPM) that last for about 2+ hours. After about the 2+ hours, it calms down to about 133/80 61 (BPM).

The heart beat also goed up at night with my nightime cup of coffee.

Am I seeing a pettern here?

My...

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Brits on this site?

Hi everyone,

I am a Brit aged 73 and I had a two chamber pacemaker fitted in Kings College Hospital London in Sept 2015.  It is set to kick in if my pulse rate drops below 50x per minute.  Initially I was told that it was only operating about 5% of the time and then mainly at night.  Recently I have felt that the device has operated more frequently than this and I have brought my next check forward to early next month to verify.

Has anyone elsehad this experience an...

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PM Sensations?

Being a new recepient of a Biotroniks dual chamber pm, are there sensations or feelings to expect? My EP and pm tech told me the pm has to learn the heart even though the pm has been programed at implant time. Ever since the implant, 6 weeks ago today, I get these on/off bursts of fast hr that last 30 seconds to 3 or 4 minutes, sometimes several times a day. Never did these tachy things till the pm was implanted. Just wondering what I might expect to show up from time to time. Anyone els...

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Turning pacemaker off for surgery

I'm about to have a prophylactic mastectomy on July 12th. I am about to go get cardiac clearance but I'm just curious if any of u are 100% pacer dependant and have had your pacemaker turned completely off for up to 8 hours for a surgery. My breast surgeon says that is what has to be done. I'm worried that my heart Drs won't allow it.

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Hello

  • by Caz
  • 2017-06-05 07:24:12
  • Coping
  • 340 views
  • 6 comments

Hi everybody,

I am from the UK but I guess the shared heart problems we have don't care where you come from!

I had a pacemaker fitted last week and was expecting to feel better.  No chance!  If someone had told me how utterly awful I would feel post-op I would have had second thoughts.  I have had two ablations, medication for af and episodes of blackouts.  I have had concussion and stitches in my head.  Finally, the cardiologist said the only way for...

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Recovery - how long will it take to get used to the PM

On Friday May 26, 2017 I received a Medtronics 2 lead PM.  The reason was a 31 second pause - luckily I was in the hospital - it happened at 6:30 AM and the PM was put in at 10:30 AM.  I did go back to the doctor on Tuesday as it didn't seem right and it was reprogrammed to just pace the top lead; 60 was the set point.

It's now Sunday and I'm a little scared as I do detect an arritymia (don't think I had it before) and rising and lower BPM's and blood press...

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Confidence gone

I am new to the club and need some support. I have had a pacemaker for 22 years and live life to the full. 6 weeks ago I had a box change. Things did not go to plan with poor positioning / lead issues. I have just had operation number 4 following ventricular lead being dislodged. Complete collapse and blue lights as I am 100% paced. I work full time / have a 13 year old son / help run a 10 team football club normally. At the moment I am walking around waiting for the pacemaker to fail. How do...

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feeling "normal"

Hi,

It is my second week with my pacemaker. I have Bradychardia and High Grade Second Degree AV block. I had a check up this week and they set the top pace to 60 and the bottom to dovetail. Not a complete pacer. 

My question is, how long until I feel "normal?" In my head I am still struggling with that I have a pacemaker at 52 years young. I was a runner, a tennis player, and now I get a little dizzy yet and actually sad. I don't want to die young. People tell m...

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You know you're wired when...

You have a 25 year mortgage on your device.

Member Quotes

Good luck with your surgery. It will improve life amazingly.