Most Recent Messages in Coping

New to this PM community

Hi everyone!

I am really new to this PM thing and hope to find some advice from this great community.

My story is quite short and started on the 3rd of November this year.

On this day I fainted the first time and had no idea why...

5 days later I already received a PM due to 3rd degree av block.

I am 33yrs old and was very active (Crossfit, mountain biking) before this heart block thing happened.

Since today I lost the trust in my body and have problems to...

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Fed up

Hello all.... This sounds stupid, but I am fed up right now.  I have the stupid recalled St Jude unit that my doctor would not replace until it started vibrating.  Well, saturday night it vibrated, and it is probably due to a need for replacement.

It vibrated Sat night, twice on Sunday, so I thought I would wait until Monday and see if they contact me to ensure Merlin works the way it is suppose to.

Monday - no vibrations - I suspect the vibration part was turned off at...

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Feeling like I need a boost

Hi there,

I’ve just discovered this site so hello everybody and hope you are all doing well !

I have had a pacemaker since the age of 12 and I am now 37 ! Looking back I think I was unfazed by the news that I had to have a pacemaker fitted and lived a very normal life. Last year however I suffered a heart attack completely out of the blue. This was caused by two blood clots in one of the main arteries entering my heart. I was hospitalised twice after this...

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1 year with PM

Hello!

It's been over a year since I got my PM, following which I joined this online club. I read this site a lot and I wanted to thank everyone in this club. I've learnt a lot and have sort (& continue to seek) comfort and peace of mind from this club.

Champak

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Newbee

Hi

Found out this week are 20+ years of complaining of werid symptoms that it is heart related. I am in utter shock and really struggling to come to terms with it. I have been told it is really uncommon for my age group (20s)

Quite curious about how a pacemaker feels when things are fine? Do you notice it much? Also what does it feel like if it has to kick in? Is there much that having a pacemaker has stopped you doing? 

Seeking some reassurance 

T

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8 weeks post op - new pain

I just passed my first 8 weeks since my PM implant. I am on Pradaxa and Metropolol. I do not take these at the same time every day, but I do manage to get them taken twice a day. 

I have resumed normal activities, including my favorite exercise in a golf game (9 holes last week-plan on 18 Monday).

So today a new pain started bothering me and thought I would get some input from the group. I have a checkup Dec 4, and I will discuss it then too. But this pain is about a 6 (I hav...

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Worried and scared

Don’t have a PM yet, but looks like I’m headed in that direction, still trying to wrap my head around it, no heart issues other what looks like Sick Sinus Syndrome. Any words of advice, thinking about this is really starting to affect me, symptoms are scaring the hell out of me and are making me feel terrible. I keep thinking about, my kids, 14, 15 and 18. They would be financially set but I’m having these crazy thoughts like if I’ll be around to walk my daughters...

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Pace maker

Hey everyone, i need to remove my pm , i want to give it back to the doctors, i cant afgord the device reads and Doctor Vists,  i have no insurance and i know it runs 73 percent of my heart, but i dont want to owe something i cant afford. Its like a car that you cant aford. I told them before they did this to me that if it took money to survive i could not do it. But no one listens to the patient. I have tried to find out how to get it out. My question is can i just cut the wires off it...

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Help

Can anyone tell me if its normal to still be getting some fluttering and sick feeling a month after my pm implant any advice would be great iv been told that many diff things i dont no weather im coming or going 

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Local support groups?

Wondering if anyone knows of any local support groups for pacemaker patients with complications in the Lakeland/Orlando/Tampa area of FL?  Therapy isn't cutting it and would rather work with people/therapists who can relate to what I'm going through.

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Not seeing the light at the end of the tunnel

Background:
Began experiencing "odd" symptoms EOY 2015, slow, thunderous heartbeats, occasional almost passing out. EKG and blood tests from new primary care dr in Jan 2016.  Was told nothing was wrong other than very low iron, take iron supplements.  Symptoms worsened, primary care kept saying just iron related.  Went to urgent care in Feb 2016 and was told I was in complete heart block and had been even in Jan (primary care missed it on EKG).  Rushed over...

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New pacemaker

I’ve recently had a pacemaker fitted 12 nov had my first check at hospital all is well back in a month this happened really quickly in my case saw cardiologist on 8 nov told I needed a pacemaker had it done 12 haven’t had time to think ask questions research I’m a week in with no idea what has just happened to me  I live in South Yorkshire  uk I’m 48 and I don’t know how I feel it feels like a have a large rock in my chest and I’m c...

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Still dealing with anxiety

Almost four years since my pacemaker has been implanted for a complete AV block. I work in a cardiac specialized hospital (yes I know, very lucky) and my cardiac arrest happened while I was working in a very traumatic way.

After that episod, I dealt with anxiety, panic attacks and hypervigilence. Four years later, I rationaly know that my heart is fine, even better, but I am still dealing with anxiety and fears concerning my health, especially my heart. I’m still af...

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Pregnant with an icd

Im 13 weeks pregnant with my 4th pregnancy but 1st time with an ICD i suffered my 1st cardiac arrest 3yrs ago and 2nd shortly after nothing since though icd has paced a few times no shocks.

How have your pregnancies gone was you and baby ok, did u have to take new meds? 

Thanks for reading 

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Post surgery symptoms

It’s been 6 weeks since my PM implant due to bradycardia. I’m 59 yrs old and very active before surgery.  I actually feel worse than begs the discovery that I needed a PM.  Every single day I experience Ringing in both ears, light heart burn (NEVER had that before), light chest pressure and a general feeling of feeling lightheaded.  Pacemaker technician has made couple of adjustments but symptoms still happening.  Very frustrating!  Have Any of you ex...

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10 year pacing anniversary

Wow!  The site has really changed since tha last time I logged in.  Ten years ago today I was rushed to hospital blue lights flashing with 3rd degree heart block.  I was terrified!  I was fitted with a pacemaker and joined this club shortly afterwards.  I can never thank you all enough for all the support, encouragement and information you gave me.  In time I stopped being anxious about pacing and am now a fit, healthy, retired - well semi retired lol, mum, nan a...

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Difficulty Sleeping - Adjustments

I had my first pacemaker implanted 09/25/18. Suffered from Bachycardia way too long, Im 58 years old, and have my vitals recorded twice daily for the last year now. My doctors greatly appreciate is, as I show them each appointment. I was lucky if my pulse hit 55 before surgery, usually 40s. I was having dizzy spells, especially when it hit the 30s. As it turns out, 48 hr heart monitor showed it dropping down to 23 several times during sleeping hrs. I had the surgery on a tuesday and returned...

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Implanted 5 days ago - words of wisdom please

Please tell me it gets better. I’ve read many of the good posts on coping. I thought this was a simple procedure no big deal you’ll be better in 48 hours ? Trying to get out of my own head. I’ve been through worse ? My house was a total loss in the Ventura Fire in Dec 2017 - at least I still had my health- not . I have hypertrophic cardiomyopathy genetic. I was without symptoms for 50 years. I’m 51. After the fire had AFib was corrected with ablation then my gradient i...

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Sharp pain after 1 week of pacemaker implant

Hello all, It’s my first time here at the Forum.

I just have may implant last 10/19/18 and about to see the Dr today. Does anyone have this sharp/ shock pain around left chest that last for a few second and is this normal?

What are the things I need to find out and ask the Dr?

it makes me feel so anxious that i took Ativan to relieve my anxiety.

any comment/ experience shared is deeply appreciated

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Pacemaker surgery last week

I'm 48m and had a complete av block stemming from a heart attack I had 2 months ago. I'm one week out from the implant. I've never been part of an online support group and thought I should give it a try.

I'm having a hard time coming to grips with the heart attack and now with the pacer. I have been fairly active but now can't seem to get out of bed and am constantly checking my HR to be sure the pacer is working.

 

 

 

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Member Quotes

I am not planning on letting any of this shorten my life. I am planning on living a long happy battery operated life. You never know maybe it will keep me alive longer. I sure know one thing I would have been dead before starting school without it.