Most Recent Messages in Coping

So that's it...

So it is going to happen... the pacemaker. I'm 33 yo, my dad was 42 when he had is first device. I have WPW with SSS and having now frequent episodes of AF at 200 BPM. Had one cardioversion 1 months ago. In ordrer to give me appropriate medication (like BetaBlockers) I need a pacemaker, so my doctor says for the past 6 months. I can't find the words to say how sad it makes me feel. I feel broken. Has anyone felt like this? I'm scared, angry... bi...

Read More...

Ventricular-Pacing symptoms

Hi!

I just had a dual-lead Boston Scientific pacemaker installed about a month ago.  I have Bradycardia and 'Sick Sinus Syndrome', and my heart stopped for about 10 seconds while in the hospital for A-Flutter.  They did an A-Flutter ablation, then installed the pacemaker.

Most of the time I am not even aware of it, other than the lump on my left shoulder.  But I get periods of 'tightness' (not pain) in my chest and neck/throat (occasionally a little...

Read More...

Airport Secuity checks

I have been on two holidays with my pacemaker and I am struggling to cope with the intrusive physical body search - from the security staff - leaving no part of my body un touched, my breasts, crutch and even examining between my toes, hands around my waist belt down my trousers and swabs from my hands. 

 

I am begining to really dread  my next holiday . 

 

Is this normal or have I been unlucky? 

Read More...

SPOOKED!

I'm an A-V Node ablated dude and I've been unnerved a couple three  times over the past year or so regarding this situation: I'm sitting, relaxed, reading and suddenly, a he-man tachycardia event erupts. After 5 seconds or so, I brace myself, waiting for my pacemakers CRT-D to fire. Another 5 - 10 seconds pass, and the tachy event stops (no CRT-D involvement). Anything to worry about?

--Dave--

Read More...

Angry sparrow

Hi All, 

No questions about pacemaker, just wanted to know how is angrysparrow. Can I contact her, wanted to talk her and wanted to ask how she is doing. 

Can anyone help me.? 

Read More...

80 yr old

Today I was shocked to know that tomorrow my mother will get a pacmaker. Just about 3 1/2 months after I got mines. Don't know yet the exact specifics on why and what type of pacemaker.

I am worried because she is 80 yrs old. Does anyone know or has heard of someone getting a pacemaker at 80? Please let me know.

Read More...

Pre surgery worries

Hi I have had AV block related problems since pregnancy. Ectopcs tackycardia and now bradycardic and on sotolol   Had a VSD closure in 1993. Been told today that a pacemaker, defib, is going to be needed. Feeling so worried for myself especially as my baby is only 8 weeks old. Please can I have some advice/reassurence as to what to expect. Thank you x

Read More...

Pacemaker heart block

Hi my name is Alain pronounced (Allen) I'm 28 from Wisconsin recently I've been diagnosed with complete heart block. When I'm sleeping my heart rate drops to about 30 beats per min and my resting heart rate is about 57 beats per min. The thing is I really only have symptoms when I workout, I get very dizzy but I have never passed out. My doctor doesn't want to put a pacemaker in he said because of my age. But if it's the only way I can workout I think I want it done. Don&#...

Read More...

My New Friend's Name

Hi Everyone!

As a Newbie and scared I read a post that said it helped to name your device...So that is what I did; or rather what my family did.

My son created a spreadsheet and sent a group text to my immediate family telling them of a contest to name Mom's new best friend.  Each one got to submit 3 names and after all were submitted he shared with them the results at which time everyone voted on the name they liked best.  (You were not allo...

Read More...

How to cope

Hi I am new to the forum and have found this site useful since having my pacemaker fitted. 

I suppose I am writing this for abit of support.  I am 39 and had appendicitis in march 2017 whilst under the anaesthetic they noticed a heart problem.  I was sent for routine tests and after dropping a 48hr tape test off at hospital on a Sunday afternoon I reciever a telephone call from the hospital on the Monday (the day after dropping the tape off) to say I needed to come in imm...

Read More...

CRT

hi I posted about 3 months ago about my mum who had a CRT pacemaker. Unfortunately it hasn’t been very successful. Life is pretty frustrating for her. They have tried adjusting the setting but then it just pounds which is very uncomfortable. I know there is probably nothing more that can be done but I thought I would post again in case anyone has some suggestions. She is a very special mum. 

Read More...

Anxiety and depression

In January a PM was inserted after rescue run to ER. I'd been having sporadic feelings of faintness, and at the hospital they were attributed to pauses. The heart stopping. it came out of the blue. Before that I could walk six miles easily, spent 90 minutes 4x a week at the gym, my weight, BP, cholesterol are great, I don't drink, smoke. There are no structural, pump, arterial troubles. 

I am 74 and very lively.

But had a slew of unpleasant symptoms after th...

Read More...

Strange/Irregular/extra strong heartbeats with new PM

I'm a newbie here and would appreciate some input....I'm currently 66 years old and have a background of 30+ years of Atrial Tachycardia. It was mild at first and episodes were short in duration and most of the time the Vagal manuevers would stop them. In the past 6 months, the episodes had gotten progressively worse and lasted as long as 2 hours. I'd have heart rates of 180+ BPM long with light-headedness and difficulty breathing while simply sitting in my chair. We tried a numbe...

Read More...

defib going off?

Well today is m daugter's 29th birthday and I tink I experienced my first shock,  last Wenesday and Tursday I had to be interrogated.  Still can't drive my car or go sopping in mall or go near some electrical appliances without problems,  Yesterday I can swear I was shocked when i went to turn off light.  I've been having multiple pvc's and today while resting i felt beep beep beep beep then after te third beep 4 zzzz. no pain just slight zap. Called EP he...

Read More...

After procedure

I am 35 years old and up to a year ago everithing seem to be fine with me. Even though Ive always been a lil on the over weigh side... well maybe a lil more than a lil, Ive always been generaly healthy. All of a sudden last year the dizziness and chest pains started, usualy when I was resting. My heart wasnt beating fast enough causing me to be tired all the time and feeling dizzy and having really weird and irregular heartbeats. I was going to Drs back and forth to try and find out...

Read More...

still fainting

I am x4 week in and have fainted twice post pacemaker.  I have had it tested once and was told was working ok but very little information.  I have to get it tested again next week.  I am still passing out and because they took the cardiac loop out when they put the pacemaker in  I seem to get very little information re these recent fainting episodes.  They do not seem able to connect time and dates etc.

I am very worried that I went through my procedure for...

Read More...

Entresto

I have had congestive heart failure for years and suffered a cardiac arrest in 2008, when I got my pacemaker.  My ejection fraction increased but early this year it became so low I had to wear a life vest until I couldn have my upgrade to an ICD.  I was put on Entresto twice a day before my implant.  I was very excited at the prospect of having some energy and being able to do more.  However it has been 2 months since and I have become even more exhausted and sleepy than I...

Read More...

New to pacemaker

Im trying to wrap my head around ever thing still.i was having light headness about 1.5 months ago so my dr sent me to a heart surgeon he put a 2 week holter on me then a loop recorder. Had that for 1.5 weeks.went to the er for a cold i couldn't stop  coughing. I have copd i used oxygen daily of course the hospital ran a EkG on me  then the dr comes in and say we are going to admitted because i had a copd flare up plus i was sick plus i told the dr on call i had a loop recorder...

Read More...

Heart Escape Rhythm & Asystole

Hello

Heart Escape Rhythm & Asystole
I am pacemaker dependent with no underlying escape rhythm. I was in hospital 18 months ago for 2-3 days and went from stage 1 or 2 to stage 3 Heart block and had an asystole of 12s. I am paced 100% ventricle and a small percentage atria with an apparently normal heart pre-device. I am accepting what happened to me by facing straight on what did happen. I am looking for  final clear accurate information on 4 questions 1. Does an asystole...

Read More...

It's been a year since Sparky came along and now and then I "post" what I've learned

Every now and then I update something I call lessons learned and have posted it here in hope that it can help some of the newer members who have so many questions and are looking for answers.

If you have suggestions to add to the list, please add a note or send me a note, and I'll include it in the next version. I hope this helps and doesn't add to any concerns you have.

So I’m a 73 year old male in reasonably good health and this is was first major health “epi...

Read More...

You know you're wired when...

Friends call you the bionic woman.

Member Quotes

I’m healthy as a horse because of the pacemaker.