Most Recent Messages in Coping

New to the club; not a pacer, yet.

Greetings,

Have been lurking on the site and reading the forums for a couple days. 
I don't have my ICD yet but will likely be getting one in a month. 

A bit of backstory - I'm 42, was pretty active, then went to the ER last month with shortness of breath. 
Was admitted to the hospital where I was diagnosed with endocarditis and chronic heart failure. 
Ejection fraction was at 25%. 

My cardiologist has put me on several me...

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Pacemaker

Interested in the health of others with a long term history of pacing. I've  had a pacemaker since 29 due to brachycardia and now am 57. Daily fatigue has returned. You know the kind- not I'm tired - I'm so tired I can barely move. Had all the usual tests, blood, stress, heart efficiency.  I gave no other underlying health issues. Heck, this is why I got the pacemaker in the first place!

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For the females

I got the Pacer October 7 for second degree heart block. My question is ever since, every time my monthly cycle comes now I have weird PMS. I will get rib pains, increased anxiety, and just notice any little aches. My doctor says it's my body still adjusting to the foreign object. Thoughts?

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site discomfort

Had a St. Jude's dual lead pacemaker implanted in Feb. of 2017 due to a random and unexplained cardiac arrest at age 69. Now lately I have been having some site discomfort.  I don't do strenuous exercise anymore due to a rotator cuff tear in left shoulder, so that can't be it.  I do play drums in a rock band, but that doesn't pull on my chest muscles.  Anyone else have this?  I know that I overreact to stuff since this happened because I flatlined for 8+ se...

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Shoulder Pain

I had my pacemaker surgery on the 11th and have had shoulder pain off and on throughout the day and wondered if this is normal and if others have also experienced this..

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still tiredd just not feeling well

It has been 6 weeks since my pm implant and I'm still tired, and now very irritable and cranky and when I walk my breathing is labored I only have a few days with energy but those are far a few I just don't understand I thought I would be feeling better by now.

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Is Exhaustion normal after pacemaker

I am a 71 years old male and have had an active healthy life.  This past summer I was diagnosed with an auto immune disease called Sarcoidosis. This is a misunderstood disease that I won’t go into here, but it has no cure. It typically affects the lungs and can spread to other organs or lie dormant. In my case it affected my hearts electrical system by disrupting the pulse rhythm. My Symptoms were pulse in the low 30’s and exhaustion when doing just about anything. I had a 2...

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Pacemaker

I had a pacemakerfitted 2015 at Papworth,and since it has been fitted I’ve felt excruciatingly tired . I have AF and I only take 1.25 bisatrol to slow the heart rate down,the pacemaker isn’t I feel necessary what would happen if I asked at next weeks hospital appointment to take it out of me because I’m on warfarin the blood won’t clot and stop taking that 1.25 bisatrol . Before it was fitted I never knew my heart was racing it’s only that one morning in 2015 I h...

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Heartburn With A-Flutter

On Monday, 4/2/18, I had a scheduled check up for my PM....

I haven’t been feeling well for a few weeks and last month, out of nowhere, started getting insanely painful heartburn at night.

.... at my appointment, I’m explaining my symptoms while the machine is loading and my Doc says “well, here’s a problem.... you’re in atrial flutter... and it looks like you’ve been in it since the middle of March!”

So, this explains ALOT because I...

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New pacemaker

Today makes it 5 weeks since my implant.  I'm back driving, without any complications.   My implant, I have named her "Minnie" because she feels like a little mouse parked under my collarbone, and regularly gives me little bites.  I know, she's doing her job, and I'm especially grateful to her for keeping the pump going when I'm asleep.   The holter monitor told us the heartbeat gpt down to 28 when I slept.      My arm and shou...

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What is it like for those who don't know we exist?

Interesting questiion, stimulated by PM Writer & his poll.

My MD daughter has at least half a dozen PM hosts & one ICD Host in our 950+ patient panel.

The ICD host suffered at least 3 SCA's when he came into her ER several yrs ago.  50 + miles from the nearest hosp that can handle a major MCI, she saved his life three times & got him there in time for appropriate care.  Used Chopper medevac.  Point  being that if you get to an ER soon enough, if...

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N00b

Hey all

 

I'm  new. Was fitted with a PM last week after syncope at work and visit to the ER. Still feel shell shocked and weird. It's like - before it happened- I didn't know I was sick. Now I'm ultra aware that I have this problem and it's scary. Dr was all like "you'll bounce back to normal " but didn't counsel me beyond that. 

 

How normal? I was fairly active. 

 

Do o have to be super...

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Flutters and Pain

My symptoms were that sometimes I would feel like I was passing out but never fully did.  Would wake up suddenly in the middle of the night thinking I was passing out and having a hard time breathing and not throwing up.  Doctor suggested I wear a collar monitor for a couple of weeks.  She received the report and called to tell me to get to the ER immediately.  I guess I had pauses lasting up to 10 seconds a couple of times a day.  I had no idea I had a problem.  ...

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Feeling back to normal.

How long after implantation does it take before you feel back to normal? I still feel fatigue four weeks later. Randy 

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Dual chamber pacemaker

Hi,

My mom had a dual chamber pacemaker implanted in last December.  Since then she has been complaining stabbing pain in her chest area, but her doctor said everything was good and said my mom has low pain tolerance.  My mom still didn’t feel well and asked to move up her appointment back in early Jan.  the doctor said her device was shifted and had to have surgery right away.  The  next day after the 2nd surgery her doctor said one of the leads...

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7 weeks post implant

Thank you "Gotrhythm" for your post, very helpful. Thanks to all for comments. I am so grateful for this Club and for the community comments. One never hears tjese comments from EP doctor, only the numbers.

Rosalie "7 weeks living with pacemaker"

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10 yr old with pacemaker

Hi, my daughter is 10 yrs old and the cardiologist said that she needs a pacemaker to be implanted.  Anyone had experienced this pls at this age? How does children cope with it? Can they do sports, excersise continue with normal life? what about violin playing does it effect?

Thanks for any inforamtion you might give

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I'm in the clear, eh? Yabut watch out...

Tracey & Grateful:  Cleared, eh...

...it's only an evanescent figment of my imagination.  I'll be in deeper doo-doo before the day is out.

Just got another Whoops!  See, Tracey, I've been banned, I guess.  Does this ban incude Bahston, Mass?  If so, no big deal.  I've been banned in a lot less classier places than Beantown.  Or - maybe I've come up in the World?  Finaly Bahston recognized that I exist.  Gee, I ca...

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Brain fog, fatigue, dizziness, exercise intolerance, Depression 4 months post PM

Its been a great support reading other peoples experiences post PM. I am 53 years old and had a PM fitted 16th Nov 17. I had a loop recorder fitted in March 17 after experiencing palpitations and fatigue during exercise ( I was a runner) all was good until I woke early one morning with intense headache and vomited. I felt sick all day and literally could not get out of bed, I just slept for 24 hours. The next day I was able to get up but I was very confused and I felt like my b...

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Three more Whoops!

Grateful Heart:  while we are all being...
...cheeky - What the ^%$#@# is that mangy looking thing in your picture?

Looks like a cross between a squirrel & a rabbit sitting i the middle of your front lawn!

Don

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You know you're wired when...

You have a new body part.

Member Quotes

My ICD/pacer is not a burden. I still play tennis and golf.