Most Recent Messages

Breast screening.

Has any of our female members had breast screening , with pacemaker fitted.?

I wondered if their were any complications as    the screening itself usually pulls on the muscles around the pacemaker.

Thanks Jillygirl.

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Anyone in their 20s with a pacemaker?

24 year old male from Kenya fitted with a Medtronic Pacemaker. Would really appreciate interactiong with young people that have a pacemaker and share experiences.

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Anyone in their 20s with a pacemaker?

24 year old male from Kenya fitted with a Medtronic Pacemaker. Would really appreciate interactiong with young people that have a pacemaker and share experiences.

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Welding

Wondering if anyone out there is a welder and if they are still able to work with a PM. My husband may need one but is afraid he will have to change carrers at 57.

 

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Support Groups

Looking for possible help from another user of the club for steps on setting-up a support group in my area. This was suggested by the Drs and staff of our local PM clinic and I would like to run with it but could use some coaching!

You can respond to this or send a private message.

Thanks in advance

Deb

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3rd surgery. In 1 month

 I have my pacemaker implanted January 26 because my heart stopped. At my two week check up it was determined that my ventricular lead was not functioning properly. So I had to have another surgery and they replaced the lead with a new one and adjusted the atrial lead.  Two days after that surgery my heart was beating all over in my chest went to the doctor and it's determined the atrial lead doesn't work. So tomorrow I will be having my third surgery in one month!...

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MRI is safe for non-MRI PM and ICD's

"

Conclusions

In this study, device or lead failure did not occur in any patient with a non–MRI-conditional pacemaker or ICD who underwent clinically indicated nonthoracic MRI at 1.5 tesla, was appropriately screened, and had the device reprogrammed in accordance with the prespecified protocol."

 

http://www.nejm.org/doi/full/10.1056/NEJMoa1603265

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Zumba and bruising

So I started zumba yesterday and today around my scar is all bruised, it feels so sore today, can't even touch it. Only had my pacemaker fitted April 1st 2016, and still is really sore. Has anyone done zumba and is this normal? Please help? 

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Tattoos

Does anyone know how close to the crt I can get a tattoo?

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Anxiety

Quick question... Has anyone ever had Anxiety cause by settings that werent properly programmed? I just feel like I am going crazy. I had a battery replacement 2 1/2 years ago, I used to have a medtronics and now I currently have a St Judes. Life was great with my Medtronics, until I got my St Judes and everything went down hill from there. Immediately when I came out of surgery I felt totally different... heart pounding, felt pacing and just really really weird. I complained to my docto...

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Biotronik home monitoring system yellow

I was wondering if anyone else is having an issue with there home monitoring device from biotronik. The bottom light is staying yellow. We have never had any problems with this happening and have had the device for almost 3 years. I have called Biotronik and can't even get passed the operator who said many people are having this issue but the Drs. are still getting everything they need transmitted and took down my name and number.

3 weeks ago my husband received his f...

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SCUBA

Hey there,

I'm a new owner and an avid SCUBA diver. Doctor has assured me I have "cadillac" appliance and have nothing to worry about.

Are there any divers out there?

All best, Rico

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Can you feel it?

Hey there, I just got my pacer, a surprise to me!, in November. One day I'm feeling heart flutters, a stress test (gawd that was awful!!) later, and meds (they stopped that after I fluttered to 207 bpm, then stopped for three beats and crashed to 21 bpm), and a quick consult and I'm a new owner.

I named my pacer JPS.416 -- John Phillip Sousa at 50/120 (my beats/his beats).

Anyway, my question is this: I am still tender. It's been 3 months now. Most days it feels like a...

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feeling the pacemaker

As a new member and only just getting used to my p.m. which was fitted on 6/1/2017

I have had my first check up and all fine.

The other night I woke up with a start and out of breath for a couple of seconds, at the same time I thought I felt the pacemaker  pulsate a couple of times, this was where the p.m. was located.

Is this normal to feel it pulsate occasionally?

Thank you.  Jillygirl.

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In hospital just had it put in horrible back shoulder pain

HI has anyone had pain in left back between should blade and spine. I mean horrible no  stop? The nurse said I have knotted up muscles and that's why pain meds are not work so when the doc come in she is going to ask for muscle relaxers I have never ever had a muscle hurt this bad this is crazy it feels like someone has a drill bit running through me.... I am very small so he tried to fit it a couple place I was asleep thank god. They put mine under muscle to try to hide it better th...

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Another Newbie

Hi Everyone!!! I first joined the Zipper Club in 1969 at the tender age of 12 then joined the PaceMaker Club in 2015 at the tender age of 57. I am a CHD (congenital heart defect) Warrior born with Tetralogy of Fallot. The doctors found a murmur prior to me starting school and said I had a hole in my heart but I would outgrow it. HA!!

Not only did I NOT outgrow it, the Ventricular Septal Defect (hole) kept getting larger. In 1968, when it was finally decided that I needed to have that ho...

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Still have my back pain but now my pm having episodes of speeding up

I had my usual pm check up and they found one day last January (this year) my pm speeded up for some reason?? I was just sitting here and felt a speed up not sure if it was the pm or my heart?   I had to take a real deep breath thought I was going to pass out. Anyone else have this experience?

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faulty lead

Has anyone had a lead go bad?  I just found out, a lead in my PM may need to be replaced, or, more likely have another one inserted.  I got my PM and leads (duel) in 2009, so it is well implanted in the heart wall.

 

Thank you

 

Anthony Bowler

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New pacemaker

I had my PM (Sorin Kora 250 DR) fitted on January 5th this year. Needed it as my resting pulse was low 30’s but it went down to 16 at night. Was told I had Bradycardia and AV block. In the past I have done a number of marathons and they set the PM at 50. They have now activated the ‘Rate response’ as they say that my heart didn’t adjust to any exertion. The PM is limited to 130. I have been out running again and my HR watch shows a HR of 145 plus on most of the run. Th...

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Different pacemaker

Hi,

lts been a few years since l have been on here simply because things have been so good. Had my yearly check up & the doc seems to think l may benefit from a different type of pacemaker. The main problem l have is when l walk my heart feels very irregular & seems to be working against the PM if that makes sense?which then causes me to become breathless. Apart from that l feel pretty good, anyway l have a heart monitor on for 24 hrs to see what happens when l walk. My current...

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