Most Recent Messages

Boston Scientific Accolade L331

Does anyone else have this device? It looks like it must be brand-new because I can't even find any information on the Boston Scientific website.

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av node ablation

After 24/7 high heart rate due to AFib - rate not controllable with meds - my cardiologist suggested AV Node Ablation with pacemaker which I had several months ago. Has anyone had this procedure and, if so, what has been your experience? Thanks. Juanito

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

&nb...

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Cell phones

Does anyone have the moto z cell phone? I read that it has a magnet in it for these things called mods. I figured that wouldn't be good for me. I have a St Judes pacemaker and am 100% dependent. Anyone know what cell phones are safest for us? 

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Post Op

I had my pacemaker fitted and developed a sort of pericarditis from the leads. The pain was excruciating. I spent 3 days in high care.   I have just got home and still feeling pain from the inflammation.   Just want to heal so I can get back in my horse.   Has anybody experienced this?  

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Dancing pacemaker

So tonight my pacemaker decided to dance around. It has done this before, but never while I was with someone. Well, tonight I have four witnesses. I was not moving and I softly said to my husband "watch my pacer" and there it went, it danced, up and down and side to side, small motions. Our friends cought on to my husband watching it and saw it as well. It went on for an hour off and on. It's the strangest feeling. Anyone else? I have mentioned it to the EP, but n...

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1 day post op and going home.

I did it!  Man, I was scared. I got a Boston  Scientific Accolade L331 dual chamber. Thank you for all of your help.

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Low Heart Rate

I had a dual lead PM inserted in 2010.  Lately, I've been wearing a Fitbit while exercising and have noticed many instances of my heart rate dropping down as low as 34 even though the pacer is set with a lower rate of 60.  This has caused me enough concern to make 2 trips to emergency.  Each time I've been told everything is fine.  I do have a lot of PVC's.  Could this be causing the readings to be so low?  I am travelling from Canada to France in abo...

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Feeling each pace of the heart??

Hi Everyone,

When my pacemaker kicks in I can feel it. everysingle time., only in the bottom chamber though.

Is this normal? anyone else experienced this?

Im 34, 2.5 months post op with dual chamber pacemaker.

Thank you

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Offer

Memorial Day is coming up quickly.  I will be going up to Willamette National Cemetary,  I will be placing Roses from my yard on family member's grave sites.

If any one from PaceMaker Club would like me to place flowers for their family member or someone they loved grave site I will be more than happy to do so, just contact me.

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Feeling pacemaker working

I had a  St Jude dual lead pacemaker put in on March 5th for 3rd degree heart block. I had no symptoms until the day it was installed. My anxiety level has been crazy ever sense. I was put on zoloft for the anxiety and that made my very sick. I am finally off all drugs. I know I am still having some anxiety and I thank this site for helping me feel more normal.

All along I have had some feeling of dizziness or swaying. For the last couple of weeks I am feeling what I think are feel...

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Having pacemaker surgery whilst breastfeeding

Hi there

has anyone continued breastfeeding whilst having a pacemaker put in?

i have a 5 month old baby and may need my first pacemaker in the next few weeks. 

My baby is currently exclusively breastfeed, although will take a bottle if needed.  

Has anyone managed to continue breastfeeding post surgery?  If so, any tips on how to do this as smoothly as possible.

also, for those of you will little ones, how did you go with lifting/caring for your ch...

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First symptomatic vtach experience

I received my ICD at 8 weeks pregnant after surviving SCA.  I'm now 34 weeks pregnant!!!  I've been told I have been having regular small runs of Nonsustained vtach since my SCA event but I have never felt any side effects from them--- until today.  Today I got to experience my first symptomatic vtach and it definitely scared me.  I was actually sitting in the waiting room at my OB appt and got tunnel vision like I was going to black out.  Since I wo...

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Pacemaker and pack shoulder straps

If you are considering getting a pacemaker I encourage you to work with your surgeon to ensure that you'll still be able to carry a pack without having the strap rub on your pacer site.    

In the month prior to getting my pacemaker I heard warnings about the potential for rubbing and/or pressure due to pack straps over the pacemaker site. Because I didn't want to sacrifice my mountain time I asked my surgeon to place the pacer so it wouldn't be right under a pack...

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sewing machines

Hi all,

Today I have had to see occy health at work, they recently had a technician in to have a look at my industrial sewing machine, which I use everday.

The report came back to say I was ok to use it as long as I was 2feet away from the motor due to my pacemaker.

The occy health wasn't convinced by this and sending off for more reports, I also have to visit their Doctor.

Had my pacemaker 20yrs ago and never had a problem, does anyone think she is going a bit ove...

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Can I travel

I was told 2 weeks ago that I needed a pacemaker as my heart was stopping for 6 seconds at a time, I was also told that it would be fitted within a couple of weeks unless I had a syncope episode and to go straight to A&E I had just booked a surprise holiday for my husband in September told the doctor this and his reply was as it was being done so soon that wouldn't be a problem, I have just been told that my pacemaker is scheduled for 25th July so 7 weeks before I fly is that enough t...

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Consultant appointments post op UK

   Am I supposed to have an appointment with a consultant every six months here in the UK? I am 7 months nearly 8 post op and have not heard anything. I thought I was told every six months when I was awaiting the op but may be wrong?  

 

 Thanks,

             Phil

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Tattoos

I'm considering getting my first tattoo, it would not be near my Pacemaker site, but I'm just wondering about possible complications or risks that may occur. Any input? 

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Feeling Yuck!

In two days, it will be my seventh anniversary with my little friend. The relationship has been pretty good until the last month. For a while now, I had been experiencing shortness of breath and brief (a few seconds) episodes of severe general weakness. My heartbeat was all over the place. In late March, my cardiologist put me on Atenolol, figuring that it would take care of the tachycardia while my pacemaker would handle the bradycardia.

That didn't work out so well. In the past, I...

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Hi

Hi everybody, 

Im new here, 4 weeks post pm implantation. Feeling a little alone, I hate having to have this and Im struggling with having my insurance cancelled 2 weeks after my implant. Trying not to freak with a brand bew device and NO Dr. care. I appealed and I was denied. Now I dont know if my imagination is going nuts or Im just going nuts anyway. Im scared that a lead will come loose, or it will fail and on and on. Im driving myself crazy, this isnt like me at all!!!&nb...

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Who is sorry they got the CRT-D?

Just wondering who is worse and wish they NEVER had a CRT-D?  The 66% success rate is terrible.

I have complete LBBB, EF of 10%.(was 20% in September 2016) ...never told I had Heart Failure until last month when I was sent to a HF Clinic. Just told I had a "weak heart." by local cardiologist for over 20 years. 

Can't take Beta Blockers or Spironolactone & many others.  

Doing OK on Lisinopril and Lasix (was taken off Maxide after 39...

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You know you're wired when...

Airport security gives you free massages.

Member Quotes

I have had my pacer since 2005. At first it ruled my life. It took some time to calm down and make the mental adjustment. I had trouble sleeping and I worried a lot about pulling wires. Now I just live my life as I wish.