Most Recent Messages

Update on PM

Well, I was "soon to be wired " to WIRED.  I had my pacemaker placed on Friday, January 13th.  Of course, my pre-op room number was 13!  I had to laugh at my luck. Anyway, I was put under general anesthesia as I had the pacemaker placed under the pectoral muscle.  I did wake up with a great deal of swelling and pain and spent the night in the hospital. I was discharged on Saturday, taking Vicodin and using ice almost constantly.  Sunday I experienced severe...

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Recovery after Heart surgery

Dear Friends, It has been a while since I posted! As some of You may remember, I had a Triple By-Pass in Oct. I was doing Great and went back to work. I am a Pastor and a Contractor! The Contracting is what pays the Bills. About a month and a half after the surgery, I began working and feeling good as I had My Son to Help! I then began to get some pain in My shoulders. This I was told was due to the Surgery. I went to see the Cardiologist and He said it was also anxiety. He wants Me to have a...

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One week post op!

Hi Everyone,

My name is Megan and as of last week I am the proud new owner of a pacemaker. I don't know if proud is the right word actually with all of the anxiety and unknown feelings that have seemed to come up. I was rushed to the Emergency room on January 3rd by ambulance with a heart rate of 25, after figuring out that I was in a 3rd degree heart block that lasted approximately 48 minutes I was told I'd be receiving a pacemaker. Now for a little backstory! In September 2014...

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Backpacks!

Hi guys! I'm a college student, recently I got a pacemaker (Dec 30,2016)  it sits a few inches under my left collar bone. As I went back to classes this week I found it slightly painful to wear my left backpack strap, my backpack is generally heavy with my work load. Should I not worry about it for now until I heal up more or is it typically unconftable to wear a backpack with a pacemaker?

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Merlin@Home Security Flaw

Does anybody know details on the potential security flaw that's been identified in the Merlin@Home?

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Using arm

I am having a hard time not using my left arm.  I wore the sling a couple of days and that helped.  However since the site has quit hurting I forget and find myself doing things with my left arm I should not be doing!  Any suggestions on how to remind myself not to do this?  I can wear the sling again I suppose!  Has anyone on this forum had their leads come loose from overusing their arm?  Apparently that is the risk I am taking....

diana

 

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Swelling got a bit worse

Hi

So I had surgery 5 weeks ago. Afterwards I HD a bad haematoma which made the wound reopen and bleed for a week. It's healed now but the swelling which had just come down has for the past week felt bigger and tighter. Has anyone else had this? Had 3 courses of antibiotics in the time too to prevent infection of haematoma and treat a small wound infection but no redness or heat just a bit more tenderness.

 

Thank you

 

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One Week with My PM

I've made it to the 1 week point and things are looking up. The first few days were tough. I was pretty much overwhelmed by it all. Couldn't sleep much, the incision hurt and I felt like my heart was out of control.

I nearly passed out a few times last Monday morning and had trouble breathing. Thought I was having a heart attack so went to the ER. They explained my problem with the electrical system in my heart and said they would do some blood tests but I might need a...

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Is or Has Anyone Blamed Themselves?

A month into this, I am getting caught up in the "Blame Game."  And I find that I am blaming myself for this predicament. Well, naturally, you cannot be healthy then be on a device like a PM, icd, etc., if you did everything correctly? Right? It has to be someone's fault. Of course not. But then who else is there? It's your body. Remember the expression: You are what you eat.  I sometimes feel that my body has betrayed me. After all I grow my own vegetables.  ...

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Drag Racing

I have what some may consider an odd question. Has anyone in the club got into drag racing since they've had their pacemaker? 

I've had a pacemaker for 25 years now. I got my first one when I was 5. I'm not one to sit on the sidelines and watch life pass by. I have an interest in drag racing and am looking to connect with anyone who has a pm and still enjoys the hobby. My main question would be, has anyone taken the nhra license medical? 

 

&n...

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Weight gain

Does anyone feel like they need an adjustment when they gain weight? I gained 10 pounds in 6 months and I feel terrible. I'm working on losing it but I'd like to know if weight gain/loss plays a roll in pm function. I've had my pacemaker 2 years, I'm 34 years old and I have two kids to keep up with.

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Who has had their pacemaker since they were a child?

Just curious to see how many of us have had their pacemaker since they were a child. I had mine put in when I was two years old, and back then it was the big old clunky ones that did not change pace except for set times.. so I had a daytime rate and a nighttime rate and that was it.. no fluxuation. 

It's like comparing and old rotary phone with an iPhone 7. The technology has come such a long way and I can do so much more than I could as a kid. I'm sure if you've clicke...

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revision of left ventricle lead-3rd time

Due to my anatomy (few and very small tributaries) , it is hard to get a good placement for my left ventricle lead. I have had a pacemaker pocket infection 1 year ago, finally the "hole" of where the infection was has been covered via plastic surgery 7 months ago. My left lead dislodged 2 weeks post surgery last time. I usually work full time and was back to work 3 weeks post. This will be the 3rd time I have had this complication. My doctor usually places a 3 week off work ( I...

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Endurance exercise /research articles

It has been 6 months since I had a pacemaker for AV block. I was an endurance triathlete before my pacemaker and I have returned to my passion in life to its full extent once more. I am wondering if there are any triathletes on this forum who I can connect with? I am also wondering if anyone knows of any research articles regarding this sport and pacemakers? I  love being able to race again but not at the risk of my health long term. Thank you in advance.   

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Battery replacement for the Consulta CRT-D Defibrillator

Hi,

My device is 6-1/2 years old, and the device has just given me the characteristic warning sound (foreign ambulance sound) that it's time to replace the battery.  Today is Sunday, Jan. 15, 2017, and I will call my cardiologist tomorrow.  Does anyone know the "time-window" (following the warning) that I have before the battery runs too low?  Is the window about 30 days, approx?

Thanks!

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How to remember not to raise your hand above your head

Hi,

I just got a pacemaker two days ago.  I am not supposed to raise my arm above my shoulder and find myself already forgetting and doing it.  Are there any tips or tricks to remind yourself not to raise the hand?

Thanks so much!

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Feelings pre PM?

Can you guys explain how you felt before PM implantation? I see that many faints, but are there other things you all kinda have in common? Like a sensation etc?

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Coincidental? Lymphoma or sarcoidosis at same time as

Five days before my fainting and pm placement the retina specialist noticed a mass in my eye. I have had numerous negative blood tests since and negative brain scan. Getting a Ct scan tomorrow to check for lymphoma or sarcoidosis. Docs are uncertain if there is a connection. Any thoughts out there?  It's been a rough few weeks. So much for a happy new year lol

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Stairs

10 days out and back to exercising. Feeling good except short of breath on stairs so that I have to stop after about 15 steps. Walking about 15 min. I was walking several miles before pm and bounding up stairs.

Pm was needed due to fainting. No muscle disease. All diagnostics such as echo, X-ray were normal a week ago. 

Is this just being out of shape?

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Has anyone gone to the Aiguille du Midi or on the Jungfrau railway?

Hi everyone,

     I'd love to go to the Aiguille du Midi or ride the Jungfrau train, but the Aiguille du Midi says, "No pacemakers."  Taking the Jungfraubahn brings me to an altitude almost as great.  I'll be talking to my cardiologist about this, but I was wondering if anyone has been in altitudes of 11,000 feet or greater.  Please know that I'm not talking about in an airplane.  This means being out in the good ol...

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You know you're wired when...

Three months of free Internet comes with each device.

Member Quotes

My pacemaker was installed in 1998 and I have not felt better. The mental part is the toughest.