Most Recent Messages

Bipolar and alcohol ablation

Has anyone out there ever had a bipolar or alcohol ablation?  I had an ablation back in Dec23 for PVC burden but it was only partially successful.  My PVCs are back up to 30% burden and I am having a bipolar and possible alcohol ablation.  I understand alcohol ablations are not performed a lot.  My EP is getting special equipment to perform this procedure.  Anyone ever had one?  Thanks!

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Update From My Previous QRSD Post..

So the Advanced NP did another ECG and this time my QRSD was 122ms. She has no idea why it was higher before other than a defective machine. Anyway, she decided it was best to leave well enough alone where I feel so well and with no symptoms. 

All my AV and VV settings are being managed by Medtronics AdaptiveCRT and she didn't recommend me going down the rabbit hole of making all those changes only to get a few more ms off of my QRSD.

As far as the Septal motion from the...

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Heart rate dropping at night

This is (I hope) more curoiosity than anthing else... but whatever. There are some heart rhythm experts here that I hope can provide insight.

Background: after years of adventures with drug resistant AF, pace-and-ablate, then diagnosed with diastolic heart failure (should have been diagnosed10 years before but hey), having an SCA and then an ICD, I had a heart transplant in 2022.  Life was (and continues to be) good (we wil not dwell on drug side effects because honestly...

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Pacemaker question

Hi everyone.

I had a pacemaker put in last August.  I'm due for a pace check soon and a Electrocardiogram. 

My question is, at times I feel tiny pains that come and go around the heart muscel not the battery.  It must be the leads.  It doesn't happen often.  Is this normal?

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Atrial fibrillation ablation results

INFORMATION:

https://www.heartrhythmjournal.com/article/S1547-5271(24)02524-4/abstract

Real-world data of radiofrequency catheter ablation in paroxysmal atrial fibrillation: Short- and long-term clinical outcomes from the prospective multicenter REAL-AF Registry ( Published 18th May 2024)

What did they do, and what did they find?.....

A total of 2470 patients undergoing catheter ablation from January 2018 to December 2022 were included. Mean age w...

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Pacemaker and side effects

Hi since i had a new pacemaker in Jan this year, i have been experiencing chronic back pain, it is destroying my quality of life, does anyone identify , if so would you please post a solution, if you can, regards Joseph.

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Weight control while taking beta blockers

Has anyone found a beta blocker that doesn’t cause weight gain or make you feel lethargic and wanting to rest all the time?  If so I would like to know the name of your beta blocker and dosage?

I have read that beta blockers lower metabolic rates, which means that we burn fewer calories.  Beta blockers calm my body but they certainly reduce my desire to move around.  Is it the same for you?  With the increased health risks that accompany weight gain,...

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Arrhythmias - what can your pacemaker do to help?

Hi everyone, 

The most common indications for permanent pacemaker implantation are Sinus Node dysfunction and high-grade atrioventricular block, both of which I believe are classified as disorders of heart rhythm.  Our pacemakers manage to treat these conditions successfully, but what can a pacemaker realistically do to control other heart rhythm problems like Atrial Fibrillation or even perhaps simple, benign ectopic beats which can cause such havoc inside our hearts?

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Crippling anxiety

Since my pace maker install 6 weeks ago I have had crippling anxiety. It made me feel sick. I went back for a checkup, but the Dr said everything looks great. I feel tired, and it feels like my heart is in my throat. It feels like im suffocating. 

It is slowly getting better, and I have so much appreciation for everyone that has posted here. It is amazing reading all of your stories and advise. I no longer feel alone. 

I have second degree heart block, and therr was only...

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Biotronic dual lead PM and Messenger home monitor

I had a Biotronik pm implanted 3 years ago with the intention of ablating my AV node. After a few weeks i was placed into the care of another cardioligist who decided to cancel the ablation and keep trying with drugs but i have been back and forth continually to my GP. She now wants me to keep a diary of how i feel and get data fro my PM in order to get a case for node ablation  which i might add they decided on over 3 years ago after a long period of misery. AF ablation wont work as i h...

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Use of Portable ECG Monitors

This week I went to my GP to discuss the two recent Holter tests. One was a 7 day and the other a 2 day. Nothing really unusual was found. I wasn't surprised as a felt okay during these periods. In between and after the second test, I have had lots of palpitations and ectopic beats which leaves me unwell. My doctor suggested getting a home ECG device. Today I got a KardiaMobile 6 lead device and when using for the first time, it would only work on the one lead setting. It said possible AF...

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Just a Tidbit

Yesterday I saw my EP/Cardiologist for a follow-up appointment.  All is good for the most part but I did mention how my everday walks include hills and how they completely zap my energy and cause me to be so short of breath.  I asked him how he felt about perhaps making an adjustment to my rate response.  He looked somewhat surprised and asked where I had learned about rate response.  I answered "oh I belong to the Pacemaker Club and that subject is frequently discuss...

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Thanks

Thanks for the responses to my previous comment. They were very helpful and appreciated. 

Monty

 

 

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ubiquinol Form of CoQ10

Anyone heard any pros or cons on benefits or side effects of ubiquinol / form of CoQ10?

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New Implantee

I've been implanted 17 days ... After surgery I had so much pain breathing while lying down I had to attempt sleeping propped up. This improved to the point that after 10 days the pain was barely noticeable. However I still experience so much coughing during the day and and night my abdominal muscles are sore. Has anyone else experienced this? I related all this to my cardiologist and he said the catheter may have "Irritated" my lung and it will resolve itself in time. I would a...

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Off Subject

My garden is full to bursting with flowers, Roses, Rhodies, Iris, Peonies, Lavender, etc.

My very modest payback to our Military is  take flowers up to Willamette National Cemetery, in Portland, Oregon. My time zone Pacific Daylight Time.

I am more than pleased to place 🌺 🌹 on your loved ones memorial.

The offer is valid until Saturday May 25 @1800 hrs. PDST

Send me a PM with the particulars, name, date of death, plus any other identifying information.  I do...

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A couple questions . . .

Hi, 
It's been a while since I've been on here. I had my first pacemaker / dual-chamber implanted at age 57 for Bradycardia w/ AV block, Mobitz 1 (Wenckebach). Also, diagnosed w/ HF. Then in 2020 I had it replaced with a CRT pacemaker. So.... my questions are:
1. If you have a CRT, how long have you had it?
2. If you have HF, how long have you had it? 
Thanks,
Damie

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How to Read Interrogation Report

Just received my interrorgation reports (all 25 pages in total) from my first two interrogations; Day after implant and 13 days after implant.  The Google U course for "Reading Interrogation Reports", doesn't start till next semester, so till then can anyone share the points I want to look at or pay attention to? I don't expect to find any smoking guns or surprises, but I do hope to get a feel for what's being measured and how this makes a difference to me. &nb...

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Settings

Got settings changed on my biotronic every 8 yesterday not to sure about CLS setting think it's making me lightheaded and dizzy, anyone else had this problem ,?

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Tick tock

I've had my bi-ventricle PM / ICD implanted for about 5 weeks now, after some serious sustained VT's. Everything seems to be going well but I am specifically but not consistently experiencing times when I can distinctly feel my heart beating. It seems to only happen in bed. And if my arm is laying across my chest, I can feel the beating into my arm. 
Anyone else experiencing this? 

I have a fu appointment on the 29th of the month.

thank you 

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You know you're wired when...

You always run anti-virus software.

Member Quotes

I’m healthy as a horse because of the pacemaker.