Most Recent Messages

Wireless VHF Microphone

dear members.

I hope that all who read this are doing well.

I am doing quite well myself and my heart failure issues seem completely stabilized.

(CRT-D and Bisoprolol/Epleronone)

Im writing this post today, because I had some strange episodes I think might be related to my new Seinheiser VHF Wireless microphone. I am a part time singer.

I THINK I had palpitations during  different gigs

(Not sure what is was, I had while being on stage, and  I had...

Read More...

Digoxin

Hello guys, 

I was wondering what side effects you've had while on digoxin. I started it today and I started having some GI issues. Does anyone have any tips on how to help feel better? Does it get better as time goes on? 

Thanks! 

Read More...

Atrial Lead Amplitude

Those of you that are familiar with my story are aware that last month I underwent an unsuccessful attempt to implant a CRT. In an effort to avoid extraction of my old leads (37 years old & 29 yrs. old) we decided to simply change-out the generator. That decision was based primarily on the fact that My EF is low, but stable and I am non-symptomatic. Additionally, the existing leads although very old, were functionally normal. My previous battery life was about 9 years and my new battery l...

Read More...

wearing a help i have fallen pendant

Is it ok to wear a "help i have fallen pendant" for  someone who is a pacemaker user.   I am thinking of moving to an Independent Living  facility and they provide an Emergency Pendant.  Have asked the sales consultent to check for me.

new to pace

Read More...

Surprise Fine During 3D Heart Scan

On 02/05/2024 I had my annual pacer exam.  The tech made a mistake as I am 100% pace and turned me off.  I went into cardiac arrest and it took the ER department to revive and restart my pacer after a reset.

 Because of the CPR, and cracked ribs, my doctor ordered a 3D scan of my heart.  The heart turned out fine and my leads are still intact.  However, they scanned my thyroid gland and found a 4.5 cm nodule.  The doctor ordered blood tests, an ultrasound,...

Read More...

Update on Pacemaker Mediated Tachycardia

Hello Fellow Pacers,

I had previously posted about a report I received that indicated I experience an average of two episdoes of pacemaker mediated tachycardia daily. Since I had never heard of that term before, I asked for advice from this group. It was suggested that I contact my EP Clinic about getting my settings changed.

I had my clinic appointment yesterday and the tech adjusted the PVR from 225 to 325 and I had a positive retrograde test at 286 milliseconds. Hopefully this...

Read More...

Pulsing Feeling in Chest

Has anyone had the feeling of a intermittent pulsing feeling or that something is bouncing in your chest? It sometimes happens while just sitting or brushing my teeth, or walking sometimes. My pacemaker was inserted 4 weeks ago.

Read More...

Pacemaker replacement

Had my pacemaker replacement on 3/10/24. Still having what I consider a lot of pain when walking around.  Not much pain first thing in the morning when I first get up. Is it normal or should I give them a call my next visit not till 20 May.

Read More...

Blink cameras

Today my guy brought some Blink cameras into the house to learn about setting them up to monitor his mom at her house.  
 

As soon as both were plugged in, I got a weird feeling sort of like when a lead is tested at interrogation. I immediately left the room and called Boston Scientific to ask about interference with my CRT-P. The gal I spoke with said that anything that uses Bluetooth or wifi can potentially interfere but just stay six inches away. I was probably five&nb...

Read More...

Outgrowth of leads

Hello everyone! Im new to this club, but I already found it very helpful, so I decided to ask some questions about leads. Firstly, I will quickly sum up my situation. At age of 10 I had implanted my first ICD. Now I am 18 years old, and a about year ago, I noticed my leads to be pinched under my clavicle; it is annoying and sometimes painful, especially when I move my arm. Device and leads are otherwise working correctly. I wonder, if anyone else has same situati...

Read More...

Feel sick on slightly bumpy road

I've only had the atrial lead in my pacemaker for a week and in a car on a normal road I get a lump in my throat and mild nausea. On a bumpy road I feel very close to being sick with that nauseous feeling on the sides of the jaw and under the tongue as well as throat pressure.
The specialist says there are only two settings, and the other setting is for old people. I'm guessing that means they turn down the maximum rate from the current 130bpm to 100bpm....

Read More...

New Pacemaker

Hi all I had a dual pacemaker inserted for 2 to 1 block. Procedure 4 weeks ago.

I was lifting barbells compound exercises squats bench deadlifts rows military press before proceure  (3 days a week) 

I have been walking 3 miles every second day the last 10 days.

I hope to start running on the road as weights are not allowed by consultant.

I walk 1.5 miles up a 45 % gradient and heartrate stays 85-90 beats.

Yesterday I started jogging downhill and could o...

Read More...

Spring Covid-19 booster dose

Hubby and I have been offered a Covid-19 Spring booster vaccine because we fall into the vulnerable group:  People aged 75 years and older, residents in care homes for older people, and those aged 6 months and over with a weakened immune system will be offered a dose of Covid-19 vaccine this Spring, 2024 in the UK.

I know the Covid vaccine has been discussed over and over again on this site, but it just never gets any easier to know what to do for the best, es...

Read More...

Verification of Email Address

Hi, How do I get my email verified? On initially joining I seem to be logged in, when I log out it will not let me back in because the email is not verified. Sent two emails to info@pacemaker and had no reply, I have to change my username and password each time I log in which is not great.              Thanks Frustrated Nearly A Member

Read More...

AV Junctinal Ablation Procedure

Has anyone had an av junctional ablation procedure in conjunction with insertion of a pacemaker?  How did it go?  DId you have to stay on meds after procedures?  

Read More...

Endurance Heart causes collapsed lung

Hi everyone. I am new to this forum. On Wednesday I had a Medtronic Azure pacemaker implanted. I requested they place the pacemaker under my pectoral muscle so that it didn't interfere with swimming and also requested the pace me at 50 while resting and 170 for the high with an aggressive response rate (4 on the scale of 1 to 5) for running. My pre pacemaker healthy resting heart rate was 48 prior to dropping to the mid 30s. They also set my sleep heart rate to 40 between 10p and 5a.

<...

Read More...

Syncope with a pace maker

Passed out last May and my heart stopped for 14 seconds. Was diagnosed with sick sinus.  Around the winter months of last year I started having syncope episodes again. I started tracking them in January and have had six episodes. All of them are between 7:43am and 12:01pm.  I no longer pass out but depending on the sererity of the episode it can take 30 minutes to recover.  My Cardiologist had me wear a monitor for two weeks and I had an episode, My blood pressure dropped to 89...

Read More...

Entresto update...

Well... it's still going REALLY well after almost two weeks, I am feeling much better than I was, with more energy than I've had since before the pacemaker. So far, I've noticed there are NO new side effects with the added Entresto, which is a huge relief! It's frustrating that thanks to someone's error, I wasn't able to take this medication a year ago when I first tried. It would have been great to feel better a year ago. But there's nothing I can do about that no...

Read More...

PaceMaker Club Forum Suggestion

The "New Comments!" notice doesn't seem to be helpful for me. I stay logged in and it always says New Comments! even though I clicked on the post last time and saw them.  Logging out wasn't helpful either because if I am not logged in, there is no notice, and logging back in no notice either, assuming I saw them all last time.  It would be great if there was a link for "Today's Comments" or "Last 7 Days Comments" because somet...

Read More...

Automatic safety switch from bipolar to unipolar

An automatic safety switch from bipolar to unipolar occurred on Feb 22, 2024 due to an RV Pace Impedance measurement of >3000 Ω.

Anyone have this?  Do you know is it temporary or does it switch back automatically?  Boston Sci showed a procedure for the tech to test, so guessing maybe it stays this way until they interrogate it.

Granted this is my May 1987 lead, it will be 37 years old next month.  Sounds like I am getting leads removed and/or moving over to...

Read More...

You know you're wired when...

You forecast electrical storms better than the weather network.

Member Quotes

My pacemaker was installed in 1998 and I have not felt better. The mental part is the toughest.