Most Recent Messages

Post Message!

Can anyone else feel their pacemaker wires under their skin

Helloooo! Question, I can feel one of my pacemaker leads under where my scar is and can feel it travel up towards my clavicle. It’s very easy to feel, it even rubs on clothing. This is my second pacemaker and it has been this way for 2 years now. Was just wondering if anyone else has this as it was not like this with my first pacemaker. 

 

Eilish :) 

Read More...

Hello There!

Just wanted to introduce myself.  I'm a musician who joined the "Cardiac Arrest Club" in late Jan. of this year and am currently fitted w/ an S-ICD.  I was wondering if there are any drummers +/or guitarists (electric) here at Pacemaker Club who have been living w/ an S-ICD or ICD.  Just wondering about your experiences since device implantation.

Thanks!

Read More...

Risk Information

I sincerly hope your doctors told you aboiut risk factors. <https://www.heartrhythmjournal.com/article/S1547-5271(19)30295-4/fulltext> 

Google His bundle pacing, or see www.His-pacing.org

Terry

Read More...

Rate response

Thanks Ian. I’ll see how it is and see my GP - Cardiologist if no better.  I have no confidence at all in the pacemaker technician in our area.  However I have an excellent GP and cardiologist. 

Read More...

New to this pacemaker life

Hi, l had one put in 2 weeks ago, after a fluke finding when l was having seizures, l feeling lost and useless, lm a casual worker so l have no money coming in and dont know what my future holds. am l  the only one that feels this way or is it normal

Read More...

SUDDEN BPM INCREASE

I had a duel lead pacemaker fitted in 2006, replaced in 2012, and now has 15 months battery life left. Since 2017 I have suffered with AF controlled by medication.

After feeling unwell for sometime and a pacemaker check up I have now been told that between 2nd February, 2019 and 24th March, 2019, my pacemaker intervened due to detecting a reaction bewtween my two upper heart chambers and set my resting pace at 120 BPM.

I naturally felt dreadful due to the fixed setting,...

Read More...

Being Medicated to raise platelet level in order to give anti-coagulents for afib

Hi, My cardiologist is adamant that I need to anti coagulate for modest afib in order to reduce stroke risk. apparently I am at risk level 3. I am a long term suffer from ITP with a count around 30. My haematologist has been asked to use medication, tablets or injection regularly to increase the platelets to around 50-70 and then give an anti-coagulent. I am not sure if this route will improve my situation or make me at greater risk from bleeding. Antbody any ideas>

Read More...

Pacemaker Lump

I had my pacemaker installed on February 23, 2019. Two months later, I am still seeing a bulge from the device in my chest. It was implanted on the right side due to a vein on my left side not able to be used from past procedures when I was younger. I’m not a very big person, I only weigh about 121 pounds and I’m 22 years old. Any hope that the bulge will go away at all?

Read More...

The struggle is real...

 OK this may sound really odd but I was curious to know if there’s anyone out there like me. I got my pacemaker December 16, 2016, making it now more than two years ago. I do not have any issues, and completely healthy and for the most part I forget  I even have it    But then there are times when I am very aware of it!   I am a very queasy person who has a very weak stomach.  I have a very difficult time touching it and honestly it creeps me out! &nbs...

Read More...

Recedo Scar Topical Gel Review, new medication

Hi all, can't believe I'm post-op week 11 here. I'm a strong believer in being proud of our scars, they tell a story and show how we persevered. Although with this in mind, as a young female I did seek out options as ways to lighten/decrease the elevation of my scar. 

I was introduced to a new perscritpion scar treatment called Recedo Topical Gel. I have been using it since week 2 when my incisons started to heal over. I never heard of this product until my de...

Read More...

I Am Newly Charged!

Hello everyone, I am happy to announce that I am the "most proud" new owner of a brand new 2019 St. Jude model Pacemaker!  It appears that the 9 year old model had come to the end of it's days.  The exsisting leads are of the 2005 model year and are still working well.  The leads appear to have a longer running life than the 2 previous pacemaker models.  So... in 7 years or so we will be upgrading the leads as well. &n...

Read More...

Very odd feeling 6 months post insertion

The past 10 days I have this odd, scary, new symptom mostly when I’m on my Left side plus the now everyday jolts on my R chest 

I have Medtronic Azure put in October last year with the nightly recalibration turned off 

1) at the end of my inspiratory phase I have had pressure on my mid chest 2) every now and then there’s a sensation on  posterior R side or something way deep that something is being plucked out of my chest . 

Im seeing my...

Read More...

welcome to the club you didn't want to belong to

THE COMMENT, 'WELCOME TO THE CLUB YOU DIDN'T WANT TO BELONG TO' MADE ME LAUGH OUT LOUD.  ISN'T THAT THE TRUTH!

I NEEDED A LAUGH TODAY. TIRED OF DOCTOR'S APPTS, TIRED OF MEDS/COSTS/MANAGEMENT, TIRED OF NEGATIVE RESULTS/DECLINES, JUST PLAIN TIRED.

Read More...

Scar tissue

Is it normal for scar tissue around the pacemaker pocket to continue to grow (or begin growing again) almost eight years post implant?

About six months ago I noticed that my bra strap had begun to irritate the spot. Until then, my bra strap had never been a problem because the strap didn't touch the pacemaker. Feeling around, I realized the strap wasn't over the pacemaker. It was rubbing a raised area just to the left of the device.

I saw my EP about it...

Read More...

DO I need EP Study?

Hello everyone,

First post from a newbie so please be gentle on me, lol.

History

I have been a distance runner for last 12+ years and ran 10+ marathons and numerous half marathons.

Couple of years ago I was diagnosed with CHD and had 3 stents implanted. Subsequently suffered a silent HA which left scarring consequently developed Arrythmia. Couple of months ago during my usual 10K run I suffered syncope out of nowhere and ended up face down first, got some facial scarin...

Read More...

Pacemaker and car remote not locking?

Hi all. I have a Dual lead pm, 2,5 yrs already. Is it possible that a car remote can jam, meaning not lock due to my pacemaker? Do my pm signals jam the remote? Car beeps and says “Key not detected”.... and I changed the batteries of both the remotes but still it happens when I try locking the car. Weird. It only happens with me, but no one else that drives the car. Sounds crazy hey. Anyone else experience it? 😊

Read More...

Rate response setting

 I recently had my rate response setting changed as my heart rate Has not exceeded 100 bpm on exertion. I was last checked a year ago.  Since the change I am suffering from fatigue and exhaustion I’m not able to go for my usual walks. At times I also feel as though I have a sort of ache in my heart not really chest pain this is new. Has anyone else had a similar experience ? I am thinking of ringing the technician so that I can be seen again is that appropriate?...

Read More...

Active Triathlete with 3rd Degree Heart Block

I just got my PM on March 29th, 2019.  I was feeling dizzy on the morning of Mar 26, went to work and just blacked out.  My co-worker told me my head hit the concrete and my safety glasses were 5' behind me when I work up.  At the ER, my EKG heart strip showed a 15-20 sec. 3rd Degree Heart Block episode.  They immediately put on pacer pads and told me I will need a PM and I thought they were out of their minds!

After I was admitted to the Cardio Clinic, all the s...

Read More...

USB Adapter

Are there other, less expensive USB adapters that work with the Merlin Home Transmitter. The St. Jude option seems somewhat expensive.

Read More...

Battery life

I just got my Medtronic pm this month and I'm wondeing how long do these things last?

Read More...

You know you're wired when...

You can proudly say youÂ’re energy efficient.

Member Quotes

A lot of people are and live normal lives with no problems whatsoever.