Most Recent Messages

3rd degree Heart bock pacer implanted 12/19/22

Since the pace has been implanted , I've noticed a progression of weird palps and missed beats on occasion. When I go to sleep  I can feel my heart beating a bit more and feel it in my head too. I was attributing it to anxiety and an occasional Xanax helps, but I can fall asleep sitting more upright and it helps a bit.  I spoke with the EP doc and the transmission did not show any arrithmia, just an occasional missed beat. Curious if anyone else has experienced th...

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No strenuous exercise…

Unsure if this post makes any sense to post but I will out of curiousity to know if anyone else has been told the same thing...

I have a complete heart block with some history of AF and some fast he at racing beats in the past. My first AF was because of a thyroid issue that got healed naturally ironically. And the second issue with my heart rate was due to Lyme disease which was treated and I no longer have those symptoms. It's been almost 1 1/2 years... 

and my cardiolo...

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Vagal Atrial Fibrillation

I've been struggling with some night time symptoms for a few months now and I really can't work out what's going on. 

They only come on at rest and normally in bed at night or when watching TV and lying on the sofa. They may be positional as they sometimes go away if I move my sleeping position. They're worst when lying on my back and feel like a shaky feeling in my chest. It's a distinct cardiac sensation and can go on for quite some time.  The sensat...

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Changing placement of pacer

Hi there - My doctor (who is my cardiologist, ep, and surgeon) recently called me to tell me that I have a broken lead, which is an issue b/c I'm 100% paced (I have an underlying rhythm of ~33 bpm). He said I may need surgery to put in a new lead. I also will likely need my battery replaced in 1-2 years, and so we'll likely be changing settings to muddle through with the broken lead for a year, and then surgery to replace everything all at once. My question:

...

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How long before I feel more energetic

Hello I have had my pacemaker (single wire) fitted four days ago.  Im wondering two things:  how long before I feel more energetic? And also my cardiologist has given me beta blockers for my current low blood pressure but could my readings of approx 90/60 stop me regaining my energy?

(I had tachy and bradycardia....fluctuating heart rates hence the pacemaker)

many thanks

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Leadless pacemaker

Hi, I had a leadless pacemaker (Micra) fitted on 18 January this year.

Am just wondering if anyone else has had one and how they are finding it? I seem to be ok, taking things slowly and doing a little more each day, but didn't really get much info from the hospital (had my PM fitted within 3 weeks of being told I needed it), so sort of feel in the dark a bit and a little alone at times. 

Thanks

James

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Armpit Swetting/Rash

Hi Everyone,

 I am two weeks post surgery for my first device.  Like others have mentioned, I am trying to use my left arm a little to keep it from freezing up.  However, it does hurt.  My biggest problem is keeping my armpit "aired out".  Sweat keeps building up.  I am keeping it clean and trying to keep it propped up so it breathes, but I am getting what looks like a yeast rash under my arm.  It is really uncomfortable.  Did anyone els...

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Wear something red day

The first Friday in February is wear something red day.

It's to bring attention to heart disease. 
 

❤️❤️❤️
 

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65 y/o Woman

Hello everyone,

I am a 65 year old woman. Last week I was diagnosed with Bradycardia and had a pacemaker implanted. Came as a complete surprise to me, as I was active and otherwise healthy.

I do feel better now, going on daily short walks.

 

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Pacemaker decision appointment

 

Hello everyone,

I've posted a few posts here before. I am 30 years old and It's related to my 3rd degree heart block. It was discovered by chance a few months ago that I probably have congenital 3rd degree heart block and no major structural problems were seen in the MRI, echo and treadmill tests. Holter tests revealed 3-5 second pauses and 3rd degree block. I lead a completely asymptomatic life. I got opinions from a few drs. There were doctors who s...

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Motorcycle

Hi. Have had my 6 week check up, all was good. I am very lucky I am not on any medication. I would like to know if anyone else on here has ridden after they received a pacemaker. I was told That I could but would still like to hear if anyone has had any problems riding. Thanks. 

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Pace maker effect on afib/flutter

Hello. I'm brand new to this forum and have recently been advised that I should  have a p.m implanted. 

Question: will the p.m have a positive effect on afib? Will it eliminate episodes? Or will it have no effect at all?

Background: have had afib for 12 years. Also had an ablation in late '18 which made a positive diff for a year or two after which frequency and duration went right back to where it was prior. 
In last 6 months, frequency has b...

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Biotronik Rate Response (Acclerometer) vs. CLS (Closed Loop Stimulation)

I asked a question in another post about bumpy roads affecting my Biotronik pm.  I was confused about the difference between the Biotronik CLS setting and the rate response setting.  Penguin provided a link that explained a lot.  Adding here in case anyone else may find it helpful.  It seems especially relevant to those like me who exercise a lot.  Looks like there are a lot of previous posts about having difficulties getting the settings right and it may be because t...

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Still progressing well with my Pacemaker and heart block

My pacemaker was fitted after discovering I had a 2:1 AV block. That was in November 2020.

I have had a few changes to the pacemaker settings since then but now on a setting of VVI40 (which only kicks in if my ventricles drop below a rate of 40bpm.

I am now pacing in the ventricles 1.3% of the time.

A very small amount. 

I am able to exercise and go about my daily business without worrying about overusing the pacemaker but at the same time not worrying if i w...

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Three month appointment intervals

Hi friends, 

I have a Medtronic Azure, dual lead pacemaker.  It's been implanted for almost three years now.  I'm copying the notes from my last appointment a couple of weeks ago.  Some of you have fairly deep knowledge of what the notes below might indicate.  I'd appreciate your comments, particularly on what may be causing the 'noise'.  Many thanks.

 

Routine pacemaker follow-up intensified for RV lead watch. Devic...

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nightly checks

Biotronik Pacemaker placed 1/18/23 after botched ablation for SVT. 100% ventricular pacing. Last night around 11:20 I felt a quick buzz at the pm site and then several minutes of weird heart rate changes. Is this something I will feel every night if I'm awake when it happens? I got no information about what to expect at hospital discharge.  

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After the pacemaker has been installed

Hi all. Just wondering if anyone still felt like they may pass out but don't after pacemaker has been installed.mine was put in 3 weeks ago and twice I have felt the symptoms.last one was today. Feel gutted as I was going back to work next week

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Bumpy Roads--should I change my vacation plans?

I have a Biotronic pm with CLS and just recently noticed minor discomfort on bumpy roads.  I see there are lots of posts with people experiencing similar issues with the pm unnecessarily raising the heartrate.  Our daughter in stationed with the army in Alaska and we were planning to go with her to Wrangell-St. Elias National Park this summer.  The primary destination is the town of McCarthy, the old Kennicott mine, and the Root Glacier, reached by 90 miles of rough a...

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Tomorrow is the day

Getting my ICD implant tomorrow. Did all the research I could but would love to hear from anyone with direct experience as to their procedure and recovery. 

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update to my tests for ferritin and C-reactive Protein cardiac

The doctor recommends green veggies and lean protein.  which means i have to leave my veggie lifestyle after 30+ years.  Thank goodness hopefully will be for only 3 months.

I got back the results from the Food Sensivity test, which showed me why i reacted to some of the foods that have been eating.

She did say i need to  take EPH/DHA a fish oil or Algae Oil.  Said i read online that fish oil can cause A-Fib.  Since i do not need that, will try the Alg...

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You know you're wired when...

You read consumer reports before upgrading to a new model.

Member Quotes

I wouldn't be alive if it wasn't for pacemakers. I've had mine for 35+ years. I was fainting all of the time and had flat-lined also. I feel very blessed to live in this time of technology.