Most Recent Messages

Transmitter beeping

I had my pacemaker inserted in May this year.  The pacemaker was set up for me while in hospital and worked perfectly when I came home, until a few weeks ago it started beeping every hour on the hour, softly while in the bedroom and very loud if in another room.  I have rung the phone number concerned and was told  it was working perfectly but no comment on the beeping.  Any comment.

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surgery report

Had surgery early July ICD/CRT-D and all seems well. I have one question if anyone could answer. From my surgery report seems the first two leads implanted properly but this was the explanation for the third lead. The conclusion described as successful but wondered a little what this means.

The third pacing lead advanced into the CS through the atteans sheath into aposterolateral position having a good pacing threshold very limited anatomy midposterior branch to narrow pass a wire...

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What are some ways that someone with 3rd degree heart block can lower their resting heart rate without over the top exercise?

So I used to be a frequent runner and worked out a lot until I got sudden 3rd degree block almost 3 months ago now and got an emergency St. Jude pacemaker inserted. 
 

Before all this I had a resting heart rate of about 65. Now it goes as high as about 90. But generally between 78-90s. 
I haven't worked out much except for walking since my treadmill stress test determined that for now I can't really let myself go higher than 170bpm or I'll feel awful...

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Difference between Biotronik Edora/Evity/Enitra ProMRI Pacemakers?

New here - great to find this community. 

I'm scheduled for my first PM end of September.  At Kaiser (Northern CA) they appear to use only a "Biotronic Edora 8" - I'm getting the double lead, "DR-T".

I read the manual (142 pages) - but it's the same manual for what sound like three different models: Edora, Evity, and Enitra. I can't find anything in the manual that distinquishes between these three models. 

Is there any actu...

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Shoulder & arm pain

Here I am again--this is my go-to place whenever a question pops up. I know my doctor should be my first go-to, but sometimes I just want to know if anyone else has had a similar experience. So here goes: 

I've mentioned before that my pacemeker placement seems to me less than ideal, being so near my left armpit that I sometimes feel it when I move my arm in certain ways. There is something else that I have noticed but I'm not sure if I can blame the device. I get pain in m...

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Recent Pacemaker Insertion 3 weeks ago

Hope everyone is well. I'm 34 years old very active and in the military. I recently received my pacemaker 3 weeks ago due to an vasovagal syncope episode I had in the hospital while battling Covid in which I was found unresponsive and my heart stopped for 10 seconds. I had already had tests ran on my heart 2 weeks prior to hospitalization due to chest pain which consisted of an EKG, stress test, and ultrasound and they all came back clean. The Cardiologist checked the telem...

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Magnet placed on pacemaker due Direct Laryngoscopy procedure

I had a direct laryngoscopy (removal of a cyst on my throat).  The anesthesiologist placed a magnet on top of my pacemaker to allow the surgeon to work with her instruments.  The reason was the throat was too close to the the pacemaker.  After the surgery, I noticed my heart was very weak, and my pacemaker was pacing at a fast rate.  I then consulted with my pacemaker nurse who did a repacing to slow down the rate.  I noticed though after se did that, the nu...

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Recently wired

Am 41 in couple days and was wired 31aug 2021. Sick sinus with severe bracchy. After procedure few days ago ive been experiencing a kind of strange and sometimes painful sensation sort of in the centre of my chest where it meets bottom of my neck. Is this something any of my wired compadres has experienced? Is it normal? Thanks for the site by the way

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Post covid

I was recently diagnosed  with a severe episode of covid. Unfortunately, I did not take the vaccine beforehand and was hospital twice within the last mth. I received regen-con infusion, Dexamethason 6 mg, and remdesivir. I am currently on oxygen at home due to o2 dropping with any exertion. The problem I am having now since 8/5/2021 is my heart rate is running high with any mvmt. I have a dual chamber medtronic pacemaker and normally my rate would rarely go above 75. Could this just be a...

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Beats per minute after pacemaker change

Hi Guys I'm in the UK had my pacemaker changed on Tuesday , I feel fine although I'm a bit worried as my Heart rate with my new PM is a lot higher than it used to be always 90bpm or just under , was always 60-70bpm befour , the tech said she set the pm the same as befour , has anyone else had a higher rate with a PM change ? Only been a few days since the operation so thought it may be the stress etc , of course if this doesn't change I shall get in touch with hospital , just thou...

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Exercise

Hi after six weeks post pacemaker I am told by the technician that I can do light breast stroke swimming and gentle jogginng, not cycling yet as where I live is full of very long steep hills. Is there any guidance on exercise regimes for people who like to exercise and keep fit at this stage in my recovery. I used to do yoga with lots of upper body stretching etc - I am guessing this is out of the question and if so, is it for ever?

 

Peter (Bondy)

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In the club

Hi all:

I just had my device implanted a few days ago. Everything was fine and I am recovering well. This afternoon I noticed a lot of palpitations and I was wondering if this is common after getting a device. Any feedback is appreciated.I don't know if pain medicine is causing it, not sleeping enough or the device. It seems to be tapering off a little bit. Might even be dehydration. Thank you for letting me ramble.

Kris

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Single Lead for Intermittent AV Block

Hi again, high-anxiety soon-to-be-implanted pacemaker patient here.

I had a cardiac MRI done last week that confirmed mild LV noncompaction, QRS ~ 140ms. My doctor saw 3 long pauses on my Zio monitor over two weeks: 10s, 8s, and 7s. "High grade AV block". During waking hours I have 1st degree AV block with no pauses, been that way for 5 years. Asymptomatic but he wants to give me a PM to reduce my risk...

I talked with this doctor yesterday, and he recommended a sin...

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Cardiac Sarcoidosis

If I was to ask a cardiologist at the hospital whether they ruled out the possibility I have Cardiac Sarcoidosis what answer would I be expecting to hear to confirm they had?

In other words what test is done to rule it out completely?

Thanks

quikjraw

 

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Low crcl; further investigation?

I was seen on the 19th for my follow up. I received a mostly good report. I am only being paced 7% in the atrium, but he still insists the pacemaker was an absolute necessity. I am having bouts of fast rates (somewhere in the 200 range), but am assuming it is a regular rhythm or not much he is concerned with as he still wants to hold off on meds.

This past weekend I was at a community fun day at the firehouse and had an episode. The heat most likely was the biggest factor, but I had dra...

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NEWBIE

Introducing myself having had a pacemaker fitted on Thursday last. 79 years old and a lifetime of abusing the body physical from icy wastes, to deserts and jungle climes.  [ex RN and Army - Para trained Commando, Army Diver etc., serving around the world and as a civilan and only came back to the UK to live 2 years ago]   I look forward to perusing posts in this club from you pacemaker wearing old sweats.

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Anyone on the fence about the vaccines ......

https://www.bmj.com/content/374/bmj.n1931

"Conclusion Increased risks of haematological and vascular events that led to hospital admission or death were observed for short time intervals after first doses of the ChAdOx1 nCoV-19 [Astrazeneca] and BNT162b2 [Pfizer] mRNA vaccines. The risks of most of these events were substantially higher and more prolonged after SARS-CoV-2 infection than after vaccination in the same population."

The study size was staggeringly high due t...

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Message for ASully

Dear ASully,

Hopefully you will see this message.  I have received so many private messages from members wanting to know how you are and hoping that you stay safe while you wait for a new heart.  No need to respond but we want you to know that we are thinking about you and wishing you well.  You know where we are if you need any support.  We send you lots of strength while you wait for surgery.  

Gemita and your Pacemaker Club friends

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Non Healing Pacemaker Wound

Hi everyone,

I wonder if anyone ever had any experience with their pacemaker wound taking an extremely long period of time to close up and heal.
 

I had my first pacemaker implanted when I was 10 years due to frequent syncopal attack after which I diagnosed with complete heart block. I had VSD repair when I was 4 years old which the cardiologist is likely a complication following the initial open heart surgery. Fast forward, I am 30 years old now with no regular med...

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recent pacemaker insertion

I was recently diagnosed with sick sinus syndrome based on EKG and 30 day event monitor. I am a long term endurance athelete. My heart rate dropped down to 29 BPM, though I felt no symptoms. I saught consult as my heart rate stopped going to target rates while running and biking and having to back off of my workouts. It seems that things happened very quickly and before I knew it, I was having a medtronic PPM implanted. I did not know that it was reactive to motion and not my b...

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You know you're wired when...

The dog’s invisible fence prevents you from leaving the backyard.

Member Quotes

Yesterday I moved to a new place in my mind and realized how bad I felt 'before' and the difference my pacemaker has made.