Most Recent Messages

In Memory of Peter Nash

I have just been reading through the many posts on here about my late Uncle, Peter Nash. When I had my ICD implanted in Feb 2005, Peter suggested this site to me. At the time I avoided the site, probably when I could have used it the most, but I was worried that reading about other peoples fear would only fuel my own. However, I can see that for Pete and you all, it is actually a source of great reassurance. I also read the member spotlight profile on Pete .. and as I read it I could hear Pet...

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PVC's

I am a 40 year old healthy BOY! I was implanted with a dual boston scientific Pacemaker on August 20th 2008 for a failed tilt table tests which revealed a 5 second pause. All was great post PM until January when I went into A Fib for the first time. That was a crazy feeling. My Cardiologist converted me on a Blast Dose of Flecainide, and sent me home on a small 50mg dose twice a day. That worked for about 3 weeks and then I started having PVC's in mass quantity. Cardiologist uped the dose to 100...

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Martial Arts and a PM

I am a 34 year old male who has been in martial arts for the last 20+ years. I have recently been having some pretty bad problems and have been hospitalized three times in last two months due to my heart. First two times were with A-Fib and last time was with wide complex tachy. I have been wearing a halter monitor for two weeks and it has recorded my heart dropping to around 12 bpm (5 second pause) so the doc's say I need a pacemaker. I am VERY concerned about what this means for what has b...

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side effects of meds

i was having a lot of side effects to tikosyn and did not feel like the med was helping my a fib concented to a pm and was told would be taken off the tikosyn. after pm inserted was told by dr that he was keeping me on tikosyn after all . i stilll have the same side effects and am so dissapointed. he spends about 3 minutes at the bedside. he also placed me on cardizem. i am thinking about seeing another cardiologist

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Very Interesting...

http://health.usnews.com/articles/health/healthday/2009/03/28/new-device-treats-common-heart-rhythm-disorder.html

(Copy & Paste to your Browser)

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I AM SO UPSET!

Hello, people. I have both sinus tachycardia (Afib) and bradycardia so I had my pacemaker put in in October (13th)for the bradycardia. I had complications of a collapsed lung so was in the hospital 9 days. About 2 weeks after I got home, I felt like a shocking sensation one night and the next day I bent to reach over the side of the chair and felt a worse shock. I suddenly saw my pulse that was usually in the 60's go into the high 80's and 90's. Apparently, I pulled out my lead, but no one seeme...

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I AM SO UPSET!

Hello, people. I have both sinus tachycardia (Afib) and bradycardia so I had my pacemaker put in in October (13th)for the bradycardia. I had complications of a collapsed lung so was in the hospital 9 days. About 2 weeks after I got home, I felt like a shocking sensation one night and the next day I bent to reach over the side of the chair and felt a worse shock. I suddenly saw my pulse that was usually in the 60's go into the high 80's and 90's. Apparently, I pulled out my lead, but no one seeme...

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I AM SO UPSET!

Hello, people. I have both sinus tachycardia (Afib) and bradycardia so I had my pacemaker put in in October (13th)for the bradycardia. I had complications of a collapsed lung so was in the hospital 9 days. About 2 weeks after I got home, I felt like a shocking sensation one night and the next day I bent to reach over the side of the chair and felt a worse shock. I suddenly saw my pulse that was usually in the 60's go into the high 80's and 90's. Apparently, I pulled out my lead, but no one seeme...

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No Promise of Tomorrow




A friend of mine opened his wife's underwear drawer and picked up a silk paper wrapped package:

'This, - he said - Isn't any ordinary package.'

He unwrapped the box and stared at both the silk paper and the box.

'She got this the first time we went to New York , 8 or 9 years ago. She has never put it on , was saving it for a special occasion.

Well, I guess this is it. He got near the bed and placed the gift box next to the other...

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Update

I posted a message a couple of days ago expressing my concern about chest pain and tachy.

I ended up going to our local hospital, and was then transfered to a larger hospital where my doctor is located.

That was Thursday, and I have been here ever since!

We are trying different meds and pacer settings. Hopefully something can be figured out soon so I can get outta here!

Amanda

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weakness fatigue fainting feeling

i was told i would feel 100% BETTER after i had a pm inserted but some times i feel as bad as i did before. i am on tikosyn 500 mcq twice a day, coumadin 2.5 nitely, lanoxin .25mg daily and adenosine 180 sr daily. i feel so weak and sob sometimes i wonder if it was worth the trouble. my kids treat me different and almost avoid me i think they are trying to detatch themselves so it want hurt so bad if i die i need them now more than ever im usually alone most of the time except for a short visi...

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chat

anyone what to chat

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OMG...the WRONG pacer!

Hi all! I went on March 27th for a new pacemaker finally after 11 years. I was so excited because the ones of today are so advanced over the ones 11 years ago... Well, my Dr. and I decided on a Medtronic, I did have a St. Jude "recalled" pacemaker so getting the Medtronic was exciting for me lol. Anyway, she was not doing surgery the day I was to get my new one so another Dr. did the surgery. Come to find out he put a Boston Scientific in instead of the Medtronic! I was livid to say the least. I...

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Pookie Update

In my last post (in response to a post by Arabella, my dear friend) I explained why I went to the ER on Wednesday and what was done (and not done) and what was promised.

WELL...the pain down my arm got worse, the numbness spread into my entire right side of my face, so I ended back in the ER again yesterday!! This time is was from 8pm last night until 9am this morning. BUT...this time I got a doctor who did blood tests, which are all fine, and he did a CT scan of my head....which is...

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Anyone being woke up with head rush things?

Hello,
Ever since an adenosine stress test after my pacemaker I have these strange electrical surge feelings and head rush things at night. Has anyone else had the same experience? The cardiologist says the pacemaker is fine and the adenosine goes out of you fast but I know what it feels like and it feels like the painful electical rush of the drug opening all the bloodvessels at once. I have not felt normal since the test Feb. 11th. If anyone else has had a similar experience I would l...

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Dinner for Peter

I will be having dinner in memory of Peter on Wednesday. My husband and I are not people that go out much. So, I am going to set the table and make a nice dinner for us and set a place for all my pacemaker friends and Peter, Nina and daughter. Anyone who wants to join us is welcome. We will hold our glasses in a toast to a wonderful friend.

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electric toothbrush

Hi All

Does anyone use an electric toothbrush? I was using one for a while and wondered why my heart always jumped about while brushing my teeth - I then realised it could be the toothbrush interfering with my pacer. I hate using a manual brush but am a bit concerned now, are electric toothbrushes safe to use?

thanks

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sinus node syndrome

Hi All

I was diagnosed with sick sinus node syndrome and had a pacer fitted - does anyone know if this develops into (CHF) or if it is something that gets progressively worse? I have been feeling a lot of pauses lateley and am a bit worried.

Thanks

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ONLY A YEAR LEFT

I went for my pacemaker clinic this week. The nurses told me I have one year left on my pacemaker. So exactly, what does that mean ? I am confused. Does the whole pacemaker get replaced or just the battery ?? I have had mine since 2002. Could someone explain, one pacemaker club member to another what happens...... thanks

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Just Checking

Nothing has changed on the site is several hours and I am just checking to see if it is still active.

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You know you're wired when...

Your electric tooth brush interferes with your device.

Member Quotes

I have an ICD which is both a pacer/defib. I have no problems with mine and it has saved my life.