Most Recent Messages

What To Do?

My Mom is 71,she has HBP,some cardiomyopathy and is a Diabetic,has been since 1993.She has A-Fib and was diagnosed in 1999 with it.

She was put on Betapace in 99 and then got a pacemaker 2002.Her heart was pausing and she passed out.

She did reasonably well on the Betapace and the pacer for several years.

She began having longer and very frequent spells of A-Fib she has the kind that comes and goes on its own.Her heart goes back to normal without being shocked.Th...

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Did I fire off or not

Hi there to all of us. I had an espisode last night and Im not sure if it was my tinker toy or just some bad food. I had felt fine and I have neve had my device fire off or at least not that I know of. But, last night I couldn't seem to catch my breath and then all of a sudden all of my skin felt "tingly" went to the bathroom with dry heves, then basically collapased back on the bed.

Woke up with every muscle in my chest and back aching like I had been beaten with an ugly stick. O...

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6 weeks post op....wondering about the recovery of a "side insertion" and any possible problems that might come from having this done?

Hi....
I'm 24 and have just received my 1st pacemaker, for Neurocardiogenic Syncope. I have been fainting regularly for the past 6 years, and after many years of tests, and different cardiologists i have hit last resort and now have a permanent pacemaker.

My surgery was also a little different to normal. I have two incisions, the top one for the leads, and a side one for the pacemaker - between my underarm and my breast. The pacemaker itself is above my 9th rib, and is total...

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Still tring to wrap my head around all this...

Well to start this Id like to introduce myself. My name is Christen and im 28. I just received my PM 3-5-09. I went in for an ablastion to help my SVT.I had a 5% chance to end up with a PM. While burning my slow pathway they hit my pathway i need to survive. I woke up up a battery opperated heart... Needless to say im still bitter and angry over it all. Im so freaked out!! I have a 2y/o and a 8y/o. Im a single mom ,I work full time and go to school full time. What do I do now??? I run, swim, c...

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Chat anyone

Ill wait in chat if anyone would like to chat

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Where to go for device checks

I've just had my second 3 month device check at my cardiologist office. Is there anywhere else we can go for these check-ups? Labs or other facilities?

jbl

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More News on the Medtronic Lead Problem

This may be worse than initially reported:

http://online.wsj.com/article/SB123697437188922919.html?mod=googlenews_wsj

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Rawr!

Sorry 'bout the title, I couldn't think of a better one! :) Anyhoos, I was wondering if there could be something called overpacing??? Would this maybe account for the "rush" feelings I get? I finally got one of those medical ID bracelets, and it is really the ugliest thing ever to be graced by my wrist. LOL! It did come in handy today in Latin when we were chatting about the gods and goddesses, though. If you want the full story, PM me; it's reeallyy long! Oh, and this Mondays quote will be the...

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Rate Response turned off........

Hello Pace People, I will be turning off my r/r on Mon. During a recent exercise test my h/r exceeded 135 in a 2 minute tread mill run with the r/r off. Doc wanted to keep it on anyway with some of his new settings. Long story short, the settings have caused a great deal more pvc.pac, than before and I am tired of going back.(3x in 2 weeks) I had the r/r off for 6 weeks last year but returned to r/r as my h/b would not increase with exercise. What no one would tell me is b/blockers will no...

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Heart failure or not??

2 weeks ago I was put in the hospital for an infected gallbladder that had to be removed. Before being able to do the surgery I had to be cleared by a cardiologist.Just to let you know what I am being treated for before I went into the hospital. I have a pacemaker for complete heart block, take medicine for afib and Wolff's Parkinson White Syndrone until ablation procedure scheduled for May that my EP said will leave me 100% dependent. They done an echo on me to discharge me for the surgery and...

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tee is praying

god grant me the serenity-to accept the thing i cant change the courage to change the things i can and the wisdom to know the difference amen

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Ventricle Pacing Pain

Has anyone here heard of any information which implies that there could be chest pain associated with right ventricle pacing? My doc is suggesting that perhaps my intermittent chest pain is caused by the pacing in the right ventricle. I pace 100% in the atrium and 40% in the ventricle. Pain feels about the size of a quarter and is kind of a "pinching" sensation. Could a lead placement problem cause this?

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Friday the 13th

Is it me, or does it seem to ya'll that Friday the 13th has come to this site a day early?

LOL!



Also hope ya'll haven't forgotten to set your pacers ahead one hour. I almost forgot this year. LOL!

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ASK what you dont understand

I just got home from my 60 day pacer check. Everything is perfect YAY!
I decided I really needed to know more about my pacer and this process so I went thru this forum and took notes before my appt today. WOW! Thanks everyone.
I ASKED what this test was about and what they looked for. I ASKED for a printout and ASKED them to explain what i all meant then wrote my own notes beside the medical jargon on printout. I ASKED them to explain my pacer card info. I ASKED about my battery life a...

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A.M.S

Hi everyone,
Just been for my 1st check-up, atrial pacing 2.4%, Ventricular pacing 99%.Can anyone xplain what an AMS log episode is? Apparently I had one on 20th Feb for 6 seconds!It says peak A rate 200 (min) and further along a graph showing V rate during AMS 100% of the time and along bottom line between 75 n 85 (min)!
Don't have a clue what all that means.

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Clothes

Just had my pacemaker implanted on 3/5/2009. What I am wondering is how noticeable this thing will be when summer comes around and I want to wear a sundress with thin straps or a tank top? I am not so worried about a slight scar, but more about the bump.

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hi

  • by tee
  • 2009-03-12 04:03:29
  • Coping
  • 1506 views
  • 3 comments

hi iam tee iam glad i found this group its been hard coping on my own ive been in need of lots of support and did not no what to do or where to go the inter net has helped that's how i stumbled upon this here group its the first time ive spoken to people like myself with a pacemaker thanks coolhandlule for your chat and kindness you make me wish i was 21.the next person i spoke to was jessie what a lovely person cant Waite till we chat again Ive had my pm for just over a year after my heart stop...

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Heart Rate Monitor

Does anyone use a heart rate monitor when exercising?
I've been thinking about getting one but was wondering if some were more accurate than others. I have just been using the RPE when exercising, but since I'm basically a lazy person. . .well, it might not be too accurate for me. Any suggestions or feedback?

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question for the veterans

For those of you who have been through multiple battery changes and new leads, did any of you have trouble getting a second set of leads in? And when you got your second leads, did you leave the pm on the same side? My impeded lead has gotten worse so I'm going to have to get it replaced when I do my next battery. She mentioned the possibility of extraction and/or going to the right side. I'm still on my first set of leads, I thought 2 sets pretty much always fit, and I definitely don't want to...

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When I can sleep on left side

Hello:
I have had my PM since Valentines Day and was wondering when I can sleep on my left side without worrying about
my leads? I have done my exercises from the start and have
almost no soreness now.

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You know you're wired when...

Bad hair days can be blamed on your device shorting out.

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