Most Recent Messages

Smoker needs help to stop ...

Hello,
I'm new to this ~ have visited the site many times but could now do with some advice myself ~ I am a smoker and have tried very hard to stop (hypnosis, Allen Carr, patches, gum and inhalator, etc) nothing has worked. The doc said I had a good heart and that smoking isnt the reason for my pacemaker, however I'm not daft enough to think it doesn't affect things. I think I'm going t give hypnosis one mor go ~ tried the pills that are supposed to stop all cravings etc. but had very bad...

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Apical Hypertrophic Cardiomyopathy

  • by Leora
  • 2009-01-19 09:01:04
  • ICDs
  • 2042 views
  • 1 comments

Does anyone else out there have this particular heart disease? I know very little about it and was diagnosed with it a little under 2 years ago. I learn bits and pieces of information here and there, but am curious to know more. I have found out that it is 'supposedly' from the Asia side of our family and genetic. Any information would be most helpful.

Thanks!!

Leora

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QOTW (quote of the week)

I LOVE this one!!!

"A positive attitude may not solve all your problems, but it will annoy enough people to make it worth the effort."

- Herm Albright

P.S - I have a "You're Wired When"... "You had a Bionicle figurine named after you." :) This is my dream...

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Lasix Blues

I've got the Lasix blues.
Can't do what I wanna do.
Like a dog on a chain,
all this going's insane,
and my urine is losing it's hue.

LOL!

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Running and Max Rate

I recently had a PM installed and the rest rate is set at 50 and Max rate is at 155. I'm 49 and consider myself in good shape and have run one full marathon and numerous halves, 10k's etc. I have never given Max heart rate any thoughts and never worried about it till now. I took 2 months off of running and am now getting back into it and find my self like a beginner again and starting all over. Does the pacemaker slow a person down, make your heart weaker because its being helped or what seems l...

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I just joined the club in December...

Hello everyone.

Great forum, and very relevant to me now. I was out in DC in December (I had been prescribed beta blockers for some time, and also statins though I stupidly stopped taking the statins about a year ago) where I was staying with some friends. We had just finished dinner and were sitting down to watch a movie. The next thing I knew someone was shining a flashlight in my eyes and asked me if I knew where I was. Apparently I had gone into v-fib, and was dead for over a min...

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Snow!!!

It snowed today!!!! There was actually enough to make it look like winter!! My friend and I hung at the mall today, and I bought a shirt with a robot on it. It has a heart on its chest, so I thought it was appropriate. I don't like roller coasters, but the band is going to Orlando in March and I know at Hershey Park there were signs advising people with heart problems not to ride certain rides (which were virtually all of them). Do these apply? I went to HP with the 8th grade last year, and I fe...

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Taking the advice

Well Im sure most of you are pobably sick of hearing me compain But i just didnt think i would be back in this position again. I have been getting worse everyday. Every night i wake up several times a night with my heart in tachycardia. And now my tachycardia is back to were is was before my 3rd ablation. I went to my pcp today and i got a referral to a cardiologist so that i can start taking the advice and getting second opion. I have been feeling faint as well for days and my pressure today at...

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Sutures out tomorrow

Well it's been a week since my PM was put in and tomorrow I go back to have the sutures taken out. I reckon my incision has healed pretty well; the nurse drew an outline on the covering just after the surgery and the blood didn't go outside that area during the whole week so I'm pretty confident things are going well.

What I miss most though is driving. I can't wait until I'm able to do that again. I know legally my week is up but I'd rather wait on the doctors' opinion.

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Question

My doctor stopped my medication, Rythmol Sr, on Saturday because I am due to have my EP Study done Monday, Jan. 26th. I was wondering if stopping the meds can be making me feel bad? I mean, my pulse is going back up again and I got very weak last night. My belly is staying nauseated and I just feel crappy and tired. Is this because my meds are trying to work out of my system? Thanks for listening.

Pacie

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Pookie come chat

Hey girl and or anyone else fancy going to the chat room for a little natter?

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Who wrote it?

Does anyone know who wrote "You Know You're Pacing When......"?

Just wondering. I'm sure there's got to be somebody out there that has it.

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Update

I am just giving an update about my crazy heartrate. It has gotten so bad that it is in arrhythmia all day long and it has not let up. So i called my doctor again and he said its okay and nothing to worry about. So it got so uncomfortable that i ended up going to the E.R. And the nurse thought that i was in a-fib but when the doc came in he said that it was sinus arrhythmia. And that my natural heartrate and my pacemaker(rate responsive) are both trying to do the job and he said that possibly my...

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Interrogation of device (Latitude)

I have a Latitude Communicator from B/S that has to used weekly.
That was all well and good until I disconnected my landline. Has anyone figured out how to use the Communicator with a cell phone??? Their website says it is an analog device and won't work with a cell phone. I don't like the idea of finding a phone jack to plug into for 1 minute every Monday morning. Any ideas will be appreciated. Thanks.

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Now What?

Hello Pacemaker Pals! I hope that everyone is doing well.

I have been having some issues over the past couple of weeks, and I was wondering if any of you have any insight as to what might be going on.

Here's a quick up-date: I got my pacemaker a little over a year ago for NCS & SSS. I have had 4 ablations in the last 8 months to control SVT & IST...the last was in November and it was a complete sinus node ablation.

The ablation has taken care of my tachycardia...

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Question for Electric Frank

Hi Frank... just a question about my interrogation report on my pacemaker. It is a single lead to the right ventricular with a 3rd degree heart block. When showing a Ventricular High Rate Episode, is that the same as a VT? My first check showed 3 high rates, and the last check showed duration :04 Longest and MaxV 219 Pacing sensed 0.6% and paced 99.4% ....just want to learn all I can about this little device that is so amazing. Thanks...aldeer

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Any Cure for PVC's?

Hi,

I had my PM implanted last July because of slow heart rate after ablation for AFIB. Everything is fine, except my PVC's are getting more and more frequent; it's occurring now every day for many hours. My Cardiologist does not seem to be worried. But, I feel very uncomfortable when it comes, like "heart in the throat" and a nausea feeling.
Anybody experience this , and any cures?

thanks

Ken

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Cold Weather

I collapsed yesterday with an arrhythmia for no good reason at all! Usually my events happen only when my body is under moderate stress (I'm rushing, dehydrated, out of shape, etc.), but on this occasion I was simply walking down a city sidewalk. In this case, the weather was the only extreme element, and I am wondering if anyone else has difficulty breathing/functioning in the cold air. It was maybe 10°F at the time (if that). Anyone else? I just hate it when these things aren't explainable in...

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Heart Block Definition

Just thought this very LONG article may help someone out there....


The term 'heart block' refers to a delay or stoppage at some point of the electrical pathway of the heart, and is a medical diagnosis made on the basis of an electrocardiogram (ECG). Depending on the variety, heart blocks may produce slow heart rates leading to dizziness or blackouts, or may produce no symptoms at all.

The Heart's Conduction System

The heart consists of two separate pumping...

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Smile......

I used to be indecisive, now I'm not sure.
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If swimming is so good for your figure, how do you explain whales?
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Is Marx's tomb a Communist Plot?
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Is there another word for synonym?


Keep on laffin', miss you all.


Bionic Beat

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You know you're wired when...

You run like the bionic woman.

Member Quotes

I swim, scuba, garden, hike, climb, workout, play with the kids, play tennis, baseball, basket ball and rollerblade with mine with no problem.