Most Recent Messages

coreg

I took it at all different levels finally they took me off all together because i ended up in the er each time.
Beth

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Update to when amiodarone fails

Hi everyone...Ok they added mexiletine to Bobs amiodarone and it made him deathly sick, woosy, confused. So that has been stopped. Friday he is going to have a doppler echo to see if he is a candidate for the third lead on his ICD. As of now he is on 400mg of amio a day and no more shocks, knock wood, but we don't know how long he can continue the 400 mg daily, amio is toxic in some people. Thats where we are at right now. He is feeling better, mexiletine did a number on him....Marilu

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arty

Arty if you are on line can you go to chat or read your private messages cheers Billie

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New pm tomorrow

Well my 7 year old Guidant gets replaced tomorrow. My hospital has switched to Medtronic. I was told they got a better contract, meaning lower price. Not to worry says the doc. The mew one will be better and more modern than the old one. So around 10:30 AM out goes the old and in goes the new. Speaking of new, I'm a newbie here. Nice site and wish I had found it sooner. I'm a cancer survivor too and enjoy a similar site for that. Its great to be able to share info and support with so many other...

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chat

Anyone care to chat this morn.

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AV NODE ABLASION

I have ICD and take heart medicine Digitek but I can't tolerate a therapeutic level so doc is talking about an ablasion has anyone had this and how are you doing? All the internet info is scary and doesnt recommend it.
thanks
Beth

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Going for a PET scan next Weds

I have been told to be there at 7:00am, and bring a good book because it takes 5 hours to complete.

I hope this will tell me if one area of my heart is truly necrotic or just dormant. If dormant, that makes me a bypass candidate.

Wish me luck,

Stumpy.

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coughing

it may seem a silly question but over the last few days my husband has had this very dry cough ,he has a merchanical mitral valve and a pm he hasnt had them that long so still getting used to it all and was just woundering if this cough can affect any of them or a sign of somthing ? silly question i no just me panicing as i carnt get him into see gp till next week thanx everyone dont no what id do with out you all

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Is this normal?

My ICD was implanted three years ago. I felt very secure knowing it was there to help me. At first I was concerned about what I might feel if the defibrillator fired. But as time went by I became even more comfortable with the idea that I had this wonderful device to help me. About a month ago however, the defibirillator fired when I was asleep. After I got to the ER, on my doctor's instructions, the device continued to fire 23 times. I was given additional medical to help regulate my heart r...

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LUNG CANCER AND TREAQTMEN WITH A PACEMAKER

Hi, I am new to this forum I just wanted to see if anyone could help me out. My mom has a pacemaker and was diagnosed with lung cancer. Her doctors told her they could not treat her with chemo or anything else because of the pacemaker, I was wondering if anyone had any info about this or could point me in the right direction of what I shoud do to get her treated. I am located in new york and am trying to get her into Sloan Kettering in the mean time. If anyone has any advice please let me know...

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New here...

Hi everyone,

I got a pacemaker yesterday (St Jude 5826), and spotted this site on the web this evening. I'm definitely a newbie at all of this - it's been a huge rollercoaster in the past 2 months.

I'm 42, totally healthy, never have had to take any medicines long-term or spend a night in the hospital.

December 2 I had a car wreck. I'm driving along, and the next thing I know I'm standing in the highway median with a guy who pulled me out of my car before it burn...

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Incision and creams

Hello All.... I had my pacemaker put in last Monday (Finally!). I had a post on here about local or general anistectics awhile ago with lots of responses and I decided to go local and was knocked out so good I don't remember a thing. It has only been 9 days since surgery and I am feeling great (VERY painful on day 3 - 5 though). I can't readily get ahold of my surgeon though and I just wanted to see what others were told about their incision care after surgery. I really want to start putting...

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transition to 100% paced

Are there any of you out there that had a pacer and then transitioned to 100% paced after AV Node ablation.
Can you tell a difference, or no?
I'm trying really hard to weigh my pros and cons, because I know once it's done- there's no going back.
It's a tough decision to be 100% paced, but I know that I can't keep going like I've been going. It's really a catch 22.

Any comments would be appreciated greatly. Going to see my EP in Atlanta soon.

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Rate Response settings wrong again

A big thanks to all for great communications in the past. Frank, Tracey,Patch and Smitty..... Met with cardio and complained of h/r not exceeding 118(with a heart monitor and a pulse monitor on the treadmill at my club) which was leading to syncope when playing tennis. Upon any exertion the symptoms would start. Doc says rate response will override my "natural pace maker" and they will not compete. The setting for my r/r is 150..........
Being confused, I called Medtronic and spoke wit...

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do i really need it????

OK..im 21 i have genetic long qt"s type 1 and recently went to my doctor cause of some pain i was having thinking my icd was just pacing extra hard,and my nurse told me the icd is just sitting there....sitting there? i mean im not anxious for a shock or anything but she then explained to me that i will not receive pacing until my heart rate goes up to 100 and that i will not get socked until it goes up to 200 and the usual they say and as it monitors goes only up to 80-90 when im walking althou...

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Its Only a Pacemaker Get on way It

Hi was at the doc today and got told this Its Only a Pacemaker Get on way It . I felt hurt am I to get over this in like 4 weeks?

.

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Stumpy Msg for you

Hi Stumpy,
I've left a private msg for you.

Lesley

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STICKY NOTES!!!

I'm playing with those accordian - style sticky notes on the computer desk right now... AREN'T THEY AMAZING?!?! My boyfriend and I broke up this morning, but it was mutal. We're still friends, though! :) Exams tomorrow and I'm terrified! At least we get out early... :) :) :) I should be studying my scales, but I don't really feel like it. Just want to chat here!

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Aussie Pals

Hi Pacers

I have just had a lovely phone conversation with Rewiredaussie
(Kay) We will be going to the mainland from Tasmania on 8 March for a week in Melbourne. Kay and I are meeting for a day in Melbourne. No fellas, just a gals day out. Look out Melbourne City!!!

In July we go back over again as it is lambing season and I just cannot take it any more. It breaks my heart if the weather turns rough and the little one's die in the night and are all over the paddoc...

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Thankyou

Just a BIG THANK YOU for my support today with you all here we will all get by the bad days .KPF

THANK YOU
X

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You know you're wired when...

You fondly named your implanted buddy.

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