Most Recent Messages

Ablation question

Hi, it's me again...My EP told me that after my EP study (Jan. 26th) I will have to wait for approximately 4 to 6 weeks before I have the actual ablation. I understand him wanting to go in the first time and take a look around and then discuss it with me and my husband before he does anything but to wait THAT long before fixing the problem!!! I am awe struck! I have a lot of faith in my doctor and I try to remember that he knows what he is doing and why, but I have been waiting for almost 3 mont...

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HAPPY NEW YEAR - I'M BACK FROM U.S.!!!!

Hello everyone!!!! Hope you are all as well as you can be and behaving yourself.... or not...... !!!!

I have just got back from my hols to good ol Florida! and it was FAB!!!!!!!!! You americans are so gorgeous and wonderful and friendly and lovely etc etc!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

I MET TRACEY E !!!!!!! for those who have written to her or seen her replies to questions etc etc.... be assured she is one of the warmest, kindest people I have ever met!!! She is a...

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Sorry! I'm not "really" here

I have tried MANY times today to LOG OFF.
The site says I'm successfully logged off, but my name still appears in the "Who's Online?" box.
I guess I'm just here in spirit even when I'm not really here.
In the mean time, if you send me an email and I don't respond quickly, please understand that I might actually "not" be here.

I wouldn't ignore ya on purpose, I promise. Maybe the "Who's Online" box will get un-stuck soon.

Happy trails,
Angelie

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Atenolol

I had my ablation on the 5th and i have been on medication to keep my heartrate down for years. My doctor told me to try and stop taking my medication and i did yesterday but it did not go so well. I got a bad headache and heart felt so forceful and i was really dizzy so by the end of the day i ended up taking it againcuz i just did not feel right.
Has anyone just stopped taking atenolol one day?
If so how did it make you feel?
Im wondering if i should o...

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When to change

Hello
I’ve had a pacemaker now for six years and have regular test on the battery life etc.
What I hope somebody out there knows is?
How do they know when to change, what triggers the decision
And how long after do they actually change it
Being totally dependent on my PM I am obviously quit interested

Stuart

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Getting my pacemaker on 1/23/09

Hi All,

I am excited to stumble upon this website and wish you all well.

I've been dealing with Atrial Fibrillation for nearly four years. After 6 cardioversions and 2 catheter ablations, my doctor has decided that a pacemaker is the way to go. I'm both excited and nervous.

Any suggestions?

Thanks,

Dairyprincess

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when amiodarone fails

Thanks everyone for your replys. My husbands problem is not atrial but ventricular and he goes into V-fib. He has tried tikosen in the past without success. Plus a number of other rhythm drugs and none worked like amio. The problem now is, it is taking more and more amio to keep the V-fib under control. And as we all know amiodarone can be a dangerous drug...I have faith in his EP but I also know that we are getting close to the end of the drug list. He has another appointment on the 20th...hop...

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Quote of the week

As promised, here's the quote!

"There's nothing better than a good friend, except a good friend with chocolate."

-Linda Grayson

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A Flutter

I had a PM inplanted in August for Vaso Vagal Syncope.
Then in December I fall into AFIB for 16hours.
I converted on Flecainide.

The Doc sends me home taking 50mg twice a day.
After two weeks I started having Palps, frequent Palps!

I go into the Cardio's office today and does EKG which revealed A Flutter. What is that?

He tells me to increase Flecainide to 100mg twice daily.

I asked him where am I headed with this problem and said you'l...

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More on drug side effects

Something to think about when the docs just keep piling on meds. Of course killing the patient does reduce cost, pain, and other symptoms.

"Adverse Drug Effects, side effects and interactions, account for over 200,000 deaths each year in America alone, according to The Alliance for Aging Research's report to Congress in April 2001. These are from legally prescribed pharmaceutical drugs. Of these, 150,000 deaths are deemed to be preventable."

frank

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PM Site

New to site and just wondering if anyone has had the same symptoms. I had my PM installed in Sept 2008 and everything went ok untill 2 days after the install. I have developed I believe frozen shoulder and am in the process of getting this looked after I hope.
My question is when I go to bed and after a few hours it seems I roll over or move and I have this pain from the the PM site almost like when you have a cut and the scab forms and you tear the scab. Is this from some healing that is...

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I am so glad to have found this club!

I have had my pacemaker for 22 years. I always thought that this was something I would just have to deal with on my own. I never dreamed there would be forums for those of us who have pacemakers.
I was diagnosed with a second degree heart block when I was 15. Being so young I was confused, scared and didn't understand much of what was going on.
The doctors told me nothing and it was hard for my parents to explain things to me. I'm not even sure how well things were explained to the...

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Hey, can you answer these questions?

three weeks after surgery, I finally went to an aerobics class (kept my left arm down ?That did feel great!1
But it still feels as if it (pacemaker is right under my collarbone) is "pushing" out..bulging...it hurts then!
also, this isn't as chronic, but i still feel very strange feelings behind my knees, and sometimes in my left elbow (nerve type irritations) Was a nerve damaged in the installation of the pc?

When can we "lift' the left arm? do regular stretches???

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2 'shocks'.

Hello everyone
It's not been a good weekend.I got 'shocked' twice Saturday night.I spent the last 12 hours getting tested.The doctor could not find anything .
Now at home I'm waiting for'it' too happen again.I guess I have too stop worrying about it.


Take care everyone

seeker581

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SVT post PM

Hey everyone,

just had my medtronic adapta implanted last Thursday and all is well with the bradycardardia but now I'm having recurrent (what feels like) SVT. I had SVT in the past which was ablated and only had a few episodes in the past 8 years but now I'm having it multiple times/day. I'm contacting my electrophysiologist tomorrow morning but was just wondering if anyone else had a similar situation.

thanks!

Bob

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New Member/New Parent

Hey....

I do not have a PM but my daughter (Lola) was born 6.5 weeks ago and was implanted with a pacemaker after six hours of life ...she has transposition of the great arteries and complete heart block..she was very unstable at birth and even had to have the crash cart used =0( .....I did know about her condition during my pregnancy (at 15 weeks) and as planned out as it all was there are still things I am learning.....Lola is still in the NICU ....she has had a tough time bottle f...

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Embarrassed to ask......

I got my 2nd PM this past Thursday. I have an appt this Thursday to remove staples. I have reread the hospital instructions for wound care, but it was left blank. I don't know if I am supposed to remove the dressing and change it myself daily or wait until the appointment? It seems like good hygiene would be to change it daily, but I also got the impression in my post sedated state that I leave it on - no bathing - until my appt?
Thanks for any info!

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Help me with my anxiety

Ok, Ashley got her pacemaker the day after Christmas. I am still freaking out on a daily basis, hourly basis even about her passing out. I am so scared it is going to happen again. I am afraid it is going to affect my work if I don't stop worring about it 24/7. I feel anxious to spend every minute with her afraid it might be the last one. Has anyone else gone through this when their kids first got their pacemakers or do I need to go get help with this?

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CRT-P

Hi to all who read this:

I'm new to this site. Have spent the last couple of hours reading posts before deciding to join. Glad to be a member and hope I can contribute at least as much as I take from others.

I had a St. Jude CRT-P (biventricular pacemaker, 3 leads) implanted December 1st 2008 electively after failing antiarrthymic drug trials in hospital to treat highly symptomatic afib, high frequency palpations and nearly constant sinus tachycardia. These drugs put me...

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Drug side effects and interactions

I've been attending the big Consumer Electronics Show Las Vegas and ran across an interesting free site that lets you specify the meds you are taking and then give a list of interactions and side effects. They are rated by frequency of occurrence and severity. I talked with one of the sites developers and they seem very competent. Try:

http://www.pharmasurveyor.com/

Keep in mind that the data is the "official" information supplied by the drug companies so there can be other...

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You know you're wired when...

You fondly named your implanted buddy.

Member Quotes

I can't wait to give my son a run for his money again in the park again.