Most Recent Messages

vtlaney

Hi....just to refresh your memory..72 year old very active woman...pacemaker inserted June 4th....am just not feeling quite right....head feels kind of foggy and at times I feel lightheaded but not to the point of passing out...my blood pressure has been higher since the pacemaker was implanted. Also get really tired very fast which is very much unlike me. Am still doing all I have to do and do work full time...any feedback would be so appreciated....thanks...vtlaney

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checkup by phone?

I have an appt. to have a checkup by phone next week. Since this is the 1st time ,I am not sure what it is that is being checked. The battery of the pacemaker or me ? If they are checking how I am pacing can they also change settings by phone? I am asking because I have been experiencing extra beats since my new lead was implanted on May 22. I had a holter monitor test about 10 days ago but so far have not gotten the results. The extra beats are annoying but I am not sure whether I shou...

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Thanks everyone

Hi Pals

I want to thank you all for answering my question about bBT and laptops. I think I will go ahead and get the HP with BT because it has a larger "guts" for storage of my work and writing.

I continually missed everyone in chat and I think the last few weeks suddenly caught up with me exacerbating my depression. As I sit and type this I have tears in my eyes because I am so touched at the caring messages I received when I said I felt down. I have never , in my lif...

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Chat??

Anyone??

Heading there now....for a little bit.

I'm all alone! lol


I feel fabulous!

Bionic Beat

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Computers and Bluetooth

I am looking to replace my computer probably getting a new laptop. The model I like - HP all have bluetooth. Is it true that those with a pm should not use anything with bluetooth. I am completely confused. May be there is someone out there who can help me. The Sanyo does not have blue tooth. which is the alternative brand. Thanks Billie

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New to group

Hello all,
I was recently diagnosed with diolated cardiomyopathy. After test after test, they decided I need an ICD. I have an ejection rate of about 25%. I had an electrophysiology study yesterday. They ended up shocking me after the heart went into ventricular fibrillation. They are also treating me with Coreg(beta blocker) and Lisop/Hctz for blood pressure, in hopes that the heart muscle will improve. I am still trying to reconcile all this in my head. I am 58 and in good health until t...

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SEX

I'm recently implanted with a pacemaker. As was, I enjoysex with my wife....How long after can I have sex?? Can I take Viagra???

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Chest pain while flying and lead extraction

hey everyone,
I have a couple of questions, 1. I have noticed since my replacement PM 2 yr.s ago that every time I fly on a jet I get intense pain over my PM, which is on the left side, which travels up my left neck to my head and also travels down between my shoulder blades. It truly hurts, it feels like I'm having a heart attack. It usually stops once on the ground or shortly thereafter , I saw my MD today for an interrogation and he said he had never heard of such a thing. He said th...

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help question

Hi
I am going to need a PM replacement in about a year but i have no insurance or enough money to pay for this,
is there any organizations that help with this sort of thing
i,m in fla. any info would be appres.
thank you
Rick

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thank 4 ur support

I just wanted to express gratitude to all those who read my depression message. I went to a therapist who put me on a mood stabilizer that actually appears to be working! I guess geting heart disease, a defibrilllator implant, getting dumped by an abusive boyfriend and recovering from alcoholism in the matter of months registers as "a major issue" LOL=) Thank you people for all your wonderful support..I am so greatful today=)

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Medic Alert ID

Hi everyone!
Someone had suggested that I should get a medic alert ID (bracelet).
I was wondering if any of you wonderful folks could give me some advice on whether it is necessary or not and whether you use an ID or not.
I have an ICD and I am also severely allergic to Penicillin and Codeine. I have never gotten a bracelet so far because neither of those drugs would typically be used in an emergency.
Thanks!
Candi

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Hello There - I'm New

Hi there all you pacemaker wearers out there.

I'm new to this site today. What an amazing site. I didn't appreciate that a site like this existed. I now don't feel alone.

I was feeling a bit low and deflatted today, after having a pacing check with my team in Dorset. They informed me today that my battery needs replacing again. The pacing team in Dorchester are totally fab and we've had a good chat today and I feel at ease again.

I had my first pacemaker put...

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Lead placement

Hello,

I posted a response in answer to the lead placement question and my post went really wonky.... sorry.

The leads do wind around in places before they get to our heart. I would click images on a google search and key in pacemaker placement and you should find some web sites that explain the leads, etc.

The Cleveland Clinic used to have a really good image and information about lead placement and pacemaker placement, but they have completely redesigned their...

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""""Pace Making""""

Perhaps our Members gallery could do with a pacemaker??? or would and ICD be a better fix???
Sorry Blake (only kidding) but it still has a few glitches... it has been flatlined for a few days Peter.N

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New Pacer - Adapta DR

My 22 month old son, Max, got his new generator and leads last week plus they repaired a hernia caused by the first implant at 1 day old. His new pacer is an Adapta DR model (epicardial/abdominal) and I am excited to read about it's stated ability to reduce the impact of long term pacing on the ventrical. He also got 35 cm leads to replace his 15 cm leads that had stretched too short from growth. He is 100% dependant. He is doing very well and though clingy and uncomfortable, he is well mana...

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CA Regulations re: ICD

The requirement in CA has been for many years that a physician report any patient who has lost consciousness regardless of the reason. A form is available just for this. There is no specifc disease or condition stated other than "loss of consciousness", epilepsy. An ICD is never mentioned in the regulations. A person who is rendered unconscious may have sustained brain damage - lack of oxygen to the brain - and can possibly no longer be safe behind the wheel. In the hospital setting we see man...

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OUR DAD

- HELLO EVERYONE,

WELL ITS BE SOMETIME SINCE BECKY AND I HAVE POSTED ABOUT DAD (BOOG). WELL HE IS DOING SOOOO MUCH BETTER! WE HAVE GOTTEN IN HIS NEW ICD AND DOING SO MUCH BETTER! I CANNOT NOT THANK YA'LL ENOUGH FOR ALL THE PRAYERS AND EXSPECIAL POOKIE, HARLEY, MARRYANNE FOR ALL THE LONG TALKS! WE HAVE HAD SUCH A JOURNEY WITH DAD , BUT I THANK GOD EVERYDAY THAT BOTH BECKY AND I AND MOM WAS ABLE TO WALK WITH DAD THROUGH IT. THIS YEAR WELL TODAY FATHERS DAY WAS VERY SP...

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Pacemaker bulging out!

My son is 21 months. He has had his pacemaker since he was 2 months. At 5 months it was moved from his left side to his right to make room for a g-tube.

I noticed this winter that it was bulging out. But, now it is WAY out there. It looks like he has a tangerine under the skin. It has changed. I called this morning and now we have an appointment with a surgeon tomorrow afternoon. It doesn't seem to bother him. But it is really soft?

What do you think? And do y...

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wondering about lead placement

i assumed that the leads would go from PM basically straight into the heart but i had a peek at my x-ray which was recently done because, believe it or not they may have placed the lead in the wrong spot-i swear i'll give them a good......- anyway the leads went from the PM far over into my right chest cavity and looped back to the heart(i have about 2 feet of wire in there) Is this the way its supposed to be?
thanks

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Pacer Birthday

Today is my 2 year pacer anniversay! Hard to believe it's been two years. :-)

Tomorrow I go see the Cardiologist. Hopefully I will have some news about correcting the anuerism and replacing the Pulmonic valve. The waiting game is getting so tiresome!

Theresa

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You know you're wired when...

You participate in the Pacer Olympics.

Member Quotes

I have had my pacer since 2005. At first it ruled my life. It took some time to calm down and make the mental adjustment. I had trouble sleeping and I worried a lot about pulling wires. Now I just live my life as I wish.