Most Recent Messages

Please post me a message

I posted the other day about my current problems and got a lovely response from a member. But I only got one response. Please read my post again and if you can give me any help, encouragement, etc. please do so.

I have felt really bad all week and just can't seem to get my strength back. Is is gone forever or what. I went up north to visit over the holidays and it was way too much for me. I just can't seem to bounce back. Not that I am expecting to go roller skating or anythin...

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New guy

Im new here and just wanted to introduce myself. I’m a 33 yo Marine that was diagnosed with Long QT Syndrome. I had an ICD implanted in Feb of 07. I found this site while doing some research for myself and have been on it for a few hours reading. It’s comforting to know that other people have had the same question, concerns and things that I have had. Most of the time I feel like I’m on my own. It’s been a long year adjusting to this. I have always been very active and involved in the outdoors....

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Again!

I passed out again today! I am so frustrated! I was doing so well...for the last 6 weeks - since my pacemaker was implanted, I have had hardly any problems...but now, it seems like everything is going down hill. I was having a hard enough time coping with the fact that I have a PM at 23, but now I am having all these issues, and I am having to continuously seek help from my EP. Don't get me wrong, she is an amazing doctor, and I love her, but I know that I must be driving her crazy! I have an ap...

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Genetic Testing

Hi my name is Debbie I have posted before. I have a ICD implanted in April 2007. I have Dilated Cardiomyopathy and Long Q T Syndrome. I just got my results from genetic testing yesterday, they found genetic mutation that has the potential to cause a familial arrhythmia-causing syndrome.(LQT1). I am still processing it all and not sure how to feel about it. I have 3 children that will be getting tested. My son is 17 and I have daughters 5 and 8 years old. Anyone else go through this testing ?...

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Smothering??

Hi. Around 7 yrs. ago I was diagnosed with AVNRT and had to have ablation done to correct arrithmias (sp?) that were crippling. The ablation went wrong so I was left with complete heart block and a pacemaker. Don't get me wrong, my pacemaker is my BEST friend! It's just, now when I thought of these fast heartbeats were gone, here they come again. The EP said that he didn't know why it was showing it's ugly head now. He said that if it gets any worse that he will put me on meds to try and contro...

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Racing Heart

Hi, I am new to the forum, I am 45 and had my pm for 5 years. Has anyone experienced a racing heart while driving? I guess it was like a panic attack and I it took a little while to calm down. Do you think I just need my pm adjusted? I have a checkup this week.
Shona

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About to lose my PM virginity

Hi Guys, well, been waiting 2 months, and I'm 21 hours away (can't stop clock watching) until I receive my first dual chamber PM for 3rd degree AV block at 29 years of age. Just wanted to thank all that have shared their experiences over the past few weeks with me, it really does help in giving you a base of information to move forward. Of course, as a human being with young children I am naturally terrified still but know exactly what is happening and why, which certainly out ways the operation...

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Members list.

Smitty is the Smitty you want.

~ Dominique ~

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Had adenosine stress test last 2 days

What an experience! I could not walk the treadmill because I have injured my right leg falling down some steps. The first day, Monday, they had me scheduled for a dobutamine test. A few minutes into the test, the nurse and I were just conversing about a few things, and I mentioned I had an ascending thoracic anerurysm at 5.0. She went pale, and went for the doctor. Apparently, a person with an aneurysm is not supposed to have a dobutamine stress test. SO, they stopped it and told me to come back...

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Hot tubs

I am having a my pacemaker changed next week and I was wondering how long I need to wait before I can use a hot tub. I planned a surprise vacation for my husband, and I paid more for a room with a balcolny and hot tub. I hope I didn't waste my money. Does anyone remember what their Dr's reccomendations were?

Thanks for you help!

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Phone Check?

I have my first 6 month phone check tomorrow and I was wanting to know if it feels the same as when you go to the office and the tech is there. I am nervous about it. Does it feel the same? I know this sounds dumb. Do they tell you anything after it is done or how do you now what is going on or should I say isn't? Thanks for any help.

Amy

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Suzy and Rach

A special thanks from me for being such fantastic support, you know who you are - Thanks!
Gary

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palpatations

Hi everyone .Can voltage cause a problem to pacemaker in a sign of a couple of palpatations Thank you all.

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anne8486

Please check your private messages. I sent you one...hope it went through!

Theresa

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over

Well I finally got my pm yesterday!!! Im so glad its over. I dont really feel up to typing a long post so I just wanted to let you know I was okay and I will get back with everyone later. I am in alot more pain then I thought I would be but I had the av node ablation. Which prolly wouldnt be so bad. One the other hand im "blessed" up top so it pulls on the site!!! Thanks to everyone who has been there for me!! It means more then you will ever know!

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Pre-PM Symptoms

The sypmtoms that I was experiancing pre-PM are starting to come back. The headaches, dizziness, fatigue - I was completely losing conciousness before the PM, but today I blacked out which has never happened before. I have also been feeling my heart beat very strong, and it feels like it is just sort of flopping around in my chest. Could it have something to do the the PM? I was having really bad chest pains over the weekend, then that finally stopped and now this. I feel horrible again, I am re...

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Does anyone...

Does anyone...
1- Occasionally want a completely and totally normal life?
2- Get treated at the University of Virginia Medical Center?
3- Have congenital heart block or got their PM @ 15 hours old?
4- Know how I get another PM ID card?!?! Mine went through the wash! >:)

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sauna/spa/jaccuzzi

does anyone know if having a sauna/spa/jaccuzzi is ok if you have a pacemaker?
also just to let those who were intereted know how the acupuncture went, i had it done yesterday the neck pain has started to ease already suprisingly and i feel much more relaxed in general which probably helps too, slept soundly afterwards for the first time in ages. i very much recommend it.

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Question

I enjoy this group a lot. I found you on a Google search for recovery from PM. I was feeling quite depressed and second guessing everything. I had my PM implanted on emergency basis and am 100% dependent on it as I have complete heart block.

I am 7 weeks from surgery and feel as if the pm is moving. I have had more discomfort the last few days but just finished driving from FL to MD (ep said it was okay). Have any of you ever heard of a PM dislodging and moving?

Kay

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I Need Some Feedback/Help

I have a St. Jude pacemaker with one lead. I got my original one in 2002 and in November 07 it was replaced with a new one as my battery had run out. My lead was not changed. At the end of September I got really low in strength, stamina, etc. When I was changed out, I noticed a difference right away. The technician told me I am 98% dependant on my PM and my new one should be good for 9-12 years. Another fact is that I am moderately overweight and need to drop some pounds. I will be 64 in...

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You know you're wired when...

A thirty-day guarantee is not good enough.

Member Quotes

But I think it will make me feel a lot better. My stamina to walk is already better, even right after surgery. They had me walk all around the floor before they would release me. I did so without being exhausted and winded the way I had been.