I sit here reading your messages everyday and wish I could do more to help everybody including my hubby He also gets very down and I am trying my hardest to motivate him. It is now 5 weeks since he is had is difib/pacemaker fitted. Perhaps I am expecting too much - I try to get him walking a little bit everyday but I can tell he is worried about his difib firing. Any suggestions????

Sally

 

Hi fellow pacers.... Just feeling a bit down today and thought I would tell you guys how much it means to be able to read of the good news, the showing of support for one another and general feeling of good will that I find here.
Some days just seem to be difficult . Just when I think things are working out.... life just kicks me in the seat of the pants again. So sorry to be so down.... this will pass, I hope and I hope it is sooner than later. Somehow I keep thinking if I didn't have this darn damaged heart I could do something to make things better.
Thank you for listening....

 

Hi there, first - I would like to apologize because of my English - I hope that you will underestand me... I am from the Czech Republic (Europe), I am 22 years old. I had many (5) ablation of sinus node. Each ablation took a lot of hours (from 6 till 9 hours). First I had 2 normal (endocardial) ablation of SA node, then 1 endocardial and epicardial ablation of SA node too, then 1 surgical (thoracoscopical) ablation with take away the phrenicus nerve, because I had the nerve really very near the sinus node. I had inappropriate sinus tachycardia with average heart beat about 130-140/min (during 24 hours holter monitoring) and then I had multifocal SV tachycardia (from 180 till 250/min) and onetime I had ventricular arythmia as well. And then...

 

Hey, it's me again! This year, I am going to attempt to raise all sorts of hullabaloo about CHD awareness. We'll see how it turns out... I am shooting to raise at least $5,000 for various CHD organizations and to go around and speak at local schools. Maybe I'm going too far with plans, but you've got to, right? Anyway, wish me luck!

P.S. CHD Awareness Week is February 7-14!! I know it's a bit early, but you know...

 

I was diagnosed with endocarditis and was wondering if anyone with the same complication would share their exp. with me.

Thanks!

 

Hi there
my 2yr old has just had her 1st pacemaker fitted (she has complete heart block amongst other things). we are taking her to meet mickey mouse as a reward for being so brave. does anyone know how i can judge if the rides are safe for her/her pacemaker.

Many thanks

Emma

 

Hey guys!!!! OMG I missed everyone here sooooo much! I am like so hyper right now! I can't wait to apply to Camp Odayin to actually really truly physically meet other kids JUST LIKE ME!!!!!!!!!!!!!!!!!!!!!!! Oh, I was reading one of my brother's church magazines and I FOUND A GIRL ONLY 2 YEARS YOUNGER THAN ME WITH A PM! OMG HOW COOL IS THAT!?! Now the only question is, how to contact her... Anyway, thought I would check back and get some steam out.

P.S.- Go to YouTube and check out the CHD section. Sad and empowering, yet it really hits home for me (since I could've been a poster child for them!)

 

Hello
Because of my blood pressure being totally irregular, one minute normal then the next minute out of control, i have not been fitted with a 24 hour blood pressure monitor. Before this was put on i was asked what side is my pacemaker in. The nurse has put it on the opposite side. Any reason why this should be? I should of asked really.
On the opposite side there is the old lead still insitu from my old pm.
Regards Fluzy Suzy

 

i had long awaited surgery four days ago to have old pm removed and new one put in deeper into the muscle. i have the expected soreness around the wound but unexpected shoulder problems almost like a severe muscle spasm stopping me putting my shoulder in a comfortable position does anyone know what position your arm is in when they do the surgery as i was well sedated and dont remember anything thanks

 

Hello everyone!

It's been a while, so I will give you a recap. I had my pacemaker implanted in November for NCS and SSS, since then I have developed IST (inappropriate sinus tachycardia) and have had two SA node modifications. I was told after the last modification that I would have a hard time getting my heart rate above 80, but that sure hasn't been the case.
I am still experiancing episodes of tachy at rest where my heart rate will get up into the 160's. When my rate gets that fast, the signal to my ventricles is lost and I start to skip beats. The skipped beats are causing me to faint. Has anyone had any experiance with this issue?

Thanks,
Amanda