Most Recent Messages

Outsourcing of Pacemaker Monitoring to Third Parties

I received a letter today informing me that my physican requested some "rhythm management" company "assist with the on-going management of your implanted cardiac device by using remote monitoring. ... If you have an automatic monitor, data received from your implanted cardiac device will automatically be sent to us on a routine basis."   

This is not the pacemaker clinic, nor my EP, nor even the manufacturer of my device and monitor.  Evidently, it is...

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Recurrent pericarditis

Does anyone here have experience with the biologic, Arcalyst, used to treat recurrent pericarditis? We are in the process of getting this approved by my insurance. My EP wasn't sure if I would have to have treatment or atleast consultation with an infectious disease doctor before starting it because I have latent TB (positive skin test but clear chest x-ray). His nurse called and said that the Arcalyst rep said that I was cleared to start the process because of this. I'm still a littl...

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Irregular beats

After being unwell with arrhythmias for several weeks, I had an echocardiogram and a 7 day monitor. As it happened, these two tests were done during a period of feeling well which I have been this month up until recently. The echocardiogram result said: LV non-dilated with mild concentric hypertrophy (1.3cm), Systolic function normal at 65%, Left atrium borderline dilated, No other significant valve abnormalities,

7 day report had lots of stuff I don't understand but the summary was...

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update to my question about wearing an emergency pendant

Thanks to everyone for letting me know it is ok.  Today the sales consulant said the same thing.  Did say they had one pacemaker user there with out any problems.  At this time after touring that location decided to keep looking  as it was built in 1988 and we have new ones just being built.   With better curb appeal.

  Athough they did say with my food sensitivites would have a hard time eating there.  Which i knew.

new to pace

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Atrial Amplitude/Capture Management problem conclusion - Will be fixed tomorrow

Just a quick follow-up on my problem. I spoke with the Nurse Supervisor in the PM Clinic at the CC this morning. Given it was a Monday morning and she was obviously very busy, I did not think it appropriate to take a lot of her time trying to get better educated on the Atrial Capture Management feature at her expense. Besides, I found a great explanation that helped on the Medtronic website (see note at the end with the URL). However, I did explain the problem and why it concerned me so much....

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Cardiac scardiosis

Hi, I'm new here. Dual lead Boston implanted Dec. 2023. 48 yr old w/Bradycardia. Just had cardiac MRI...it looks like I'm dealing with Cardiac scardiosis. Anyone here been diagnosed with that? Looking for information, encouragement, hope. Cardiologist thought I have pacemaker induced myocardial due to lower ef (40-45%) that wasn't present at implant 4 months ago. I felt better for a little bit after 1st surgery, then started not doing well with exertion and lots of "...

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New generator on May 2, 2024

Hi alll!

Time for a new model change !  I have had a CRTD since 2015. The new one will be a Medtronic CRTD, MRI approved with all the bells and whistles!!🤣🤣🤣They said it should be piece of cake!  We shall see on Thursday!  All three of my wires are good, thank God for that!  Wish me luck!

Debbie

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In-road vehicle charging

I wonder how this will affect us? The article is behind a paywall but there's sufficient to get the gist of it. https://www.transportxtra.com/publications/local-transport-today/news/75822/coventry-university-pioneers-electric-ve?etid=5958450&artid=75822

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New to Pacemaker Club

I had a pacemaker implanted on February 22 after having an ablation for afib and another for atrial flutter. While sitting, my heart rate is perfect--72-76 bpm. When I do something as simple as walking from den to kitchen, it may run to 88 bpm, sometimes in the 90's.  I had my first check with cardiologist Monday and he says all is fine, but this seems a little fast to me. My rate before surgery was 45--maybe I haven't adjusted to the faster rate. Is this normal? Thanks for...

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Atrial Lead Amplitude Update - Mystery Problem Solved

 

I've found the problem with the help from everyone - Thank you so much!!! There are likely a bunch of typos here, because I was up half the night thinking and working on this! Sorry for that!

I have sifted through all my previous interrogations for my atrial lead going back 5 years. I built a spreadsheet so that I can cover all the bases. I appreciate all the help including Piglet that I have yet to respond to. Thanks! Actually, agentX86 was correct. The problem for the...

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Changing Password

I've very recently had to delete part of one of my posts on Good Dog's recent thread.  This was to remove words / sentences / changes that I did not write or make.  Somebody had accessed my account. 

I decided to change my password immediately and could not do so, because the system wouldn't allow it.  

Clearly, this means that we cannot use our usual means of deterring hackers on this site. 

I have written to the administrators...

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Wireless VHF Microphone

dear members.

I hope that all who read this are doing well.

I am doing quite well myself and my heart failure issues seem completely stabilized.

(CRT-D and Bisoprolol/Epleronone)

Im writing this post today, because I had some strange episodes I think might be related to my new Seinheiser VHF Wireless microphone. I am a part time singer.

I THINK I had palpitations during  different gigs

(Not sure what is was, I had while being on stage, and  I had...

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Digoxin

Hello guys, 

I was wondering what side effects you've had while on digoxin. I started it today and I started having some GI issues. Does anyone have any tips on how to help feel better? Does it get better as time goes on? 

Thanks! 

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Atrial Lead Amplitude

Those of you that are familiar with my story are aware that last month I underwent an unsuccessful attempt to implant a CRT. In an effort to avoid extraction of my old leads (37 years old & 29 yrs. old) we decided to simply change-out the generator. That decision was based primarily on the fact that My EF is low, but stable and I am non-symptomatic. Additionally, the existing leads although very old, were functionally normal. My previous battery life was about 9 years and my new battery l...

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wearing a help i have fallen pendant

Is it ok to wear a "help i have fallen pendant" for  someone who is a pacemaker user.   I am thinking of moving to an Independent Living  facility and they provide an Emergency Pendant.  Have asked the sales consultent to check for me.

new to pace

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Surprise Fine During 3D Heart Scan

On 02/05/2024 I had my annual pacer exam.  The tech made a mistake as I am 100% pace and turned me off.  I went into cardiac arrest and it took the ER department to revive and restart my pacer after a reset.

 Because of the CPR, and cracked ribs, my doctor ordered a 3D scan of my heart.  The heart turned out fine and my leads are still intact.  However, they scanned my thyroid gland and found a 4.5 cm nodule.  The doctor ordered blood tests, an ultrasound,...

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Update on Pacemaker Mediated Tachycardia

Hello Fellow Pacers,

I had previously posted about a report I received that indicated I experience an average of two episdoes of pacemaker mediated tachycardia daily. Since I had never heard of that term before, I asked for advice from this group. It was suggested that I contact my EP Clinic about getting my settings changed.

I had my clinic appointment yesterday and the tech adjusted the PVR from 225 to 325 and I had a positive retrograde test at 286 milliseconds. Hopefully this...

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Pulsing Feeling in Chest

Has anyone had the feeling of a intermittent pulsing feeling or that something is bouncing in your chest? It sometimes happens while just sitting or brushing my teeth, or walking sometimes. My pacemaker was inserted 4 weeks ago.

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Pacemaker replacement

Had my pacemaker replacement on 3/10/24. Still having what I consider a lot of pain when walking around.  Not much pain first thing in the morning when I first get up. Is it normal or should I give them a call my next visit not till 20 May.

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Blink cameras

Today my guy brought some Blink cameras into the house to learn about setting them up 
 

As soon as both were plugged in, I got a weird feeling sort of like when a lead is tested at interrogation. I immediately left the room and called Boston Scientific to ask about interference with my CRT-P. The gal I spoke with said that anything that uses Bluetooth or wifi can potentially interfere but just stay six inches away. I was probably five feet from the cameras. She had...

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You know you're wired when...

Bad hair days can be blamed on your device shorting out.

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It made a HUGE difference in my life. Once I got it, I was finally able to run, and ride my bike long distances.