Most Recent Messages in General Posting

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Outsourcing of Pacemaker Monitoring to Third Parties

I received a letter today informing me that my physican requested some "rhythm management" company "assist with the on-going management of your implanted cardiac device by using remote monitoring. ... If you have an automatic monitor, data received from your implanted cardiac device will automatically be sent to us on a routine basis."   

This is not the pacemaker clinic, nor my EP, nor even the manufacturer of my device and monitor.  Evidently, it is...

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Recurrent pericarditis

Does anyone here have experience with the biologic, Arcalyst, used to treat recurrent pericarditis? We are in the process of getting this approved by my insurance. My EP wasn't sure if I would have to have treatment or atleast consultation with an infectious disease doctor before starting it because I have latent TB (positive skin test but clear chest x-ray). His nurse called and said that the Arcalyst rep said that I was cleared to start the process because of this. I'm still a littl...

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update to my question about wearing an emergency pendant

Thanks to everyone for letting me know it is ok.  Today the sales consulant said the same thing.  Did say they had one pacemaker user there with out any problems.  At this time after touring that location decided to keep looking  as it was built in 1988 and we have new ones just being built.   With better curb appeal.

  Athough they did say with my food sensitivites would have a hard time eating there.  Which i knew.

new to pace

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Cardiac scardiosis

Hi, I'm new here. Dual lead Boston implanted Dec. 2023. 48 yr old w/Bradycardia. Just had cardiac MRI...it looks like I'm dealing with Cardiac scardiosis. Anyone here been diagnosed with that? Looking for information, encouragement, hope. Cardiologist thought I have pacemaker induced myocardial due to lower ef (40-45%) that wasn't present at implant 4 months ago. I felt better for a little bit after 1st surgery, then started not doing well with exertion and lots of "...

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In-road vehicle charging

I wonder how this will affect us? The article is behind a paywall but there's sufficient to get the gist of it. https://www.transportxtra.com/publications/local-transport-today/news/75822/coventry-university-pioneers-electric-ve?etid=5958450&artid=75822

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Changing Password

I've very recently had to delete part of one of my posts on Good Dog's recent thread.  This was to remove words / sentences / changes that I did not write or make.  Somebody had accessed my account. 

I decided to change my password immediately and could not do so, because the system wouldn't allow it.  

Clearly, this means that we cannot use our usual means of deterring hackers on this site. 

I have written to the administrators...

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Wireless VHF Microphone

dear members.

I hope that all who read this are doing well.

I am doing quite well myself and my heart failure issues seem completely stabilized.

(CRT-D and Bisoprolol/Epleronone)

Im writing this post today, because I had some strange episodes I think might be related to my new Seinheiser VHF Wireless microphone. I am a part time singer.

I THINK I had palpitations during  different gigs

(Not sure what is was, I had while being on stage, and  I had...

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wearing a help i have fallen pendant

Is it ok to wear a "help i have fallen pendant" for  someone who is a pacemaker user.   I am thinking of moving to an Independent Living  facility and they provide an Emergency Pendant.  Have asked the sales consultent to check for me.

new to pace

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Blink cameras

Today my guy brought some Blink cameras into the house to learn about setting them up 
 

As soon as both were plugged in, I got a weird feeling sort of like when a lead is tested at interrogation. I immediately left the room and called Boston Scientific to ask about interference with my CRT-P. The gal I spoke with said that anything that uses Bluetooth or wifi can potentially interfere but just stay six inches away. I was probably five feet from the cameras. She had...

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Spring Covid-19 booster dose

Hubby and I have been offered a Covid-19 Spring booster vaccine because we fall into the vulnerable group:  People aged 75 years and older, residents in care homes for older people, and those aged 6 months and over with a weakened immune system will be offered a dose of Covid-19 vaccine this Spring, 2024 in the UK.

I know the Covid vaccine has been discussed over and over again on this site, but it just never gets any easier to know what to do for the best, es...

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Verification of Email Address

Hi, How do I get my email verified? On initially joining I seem to be logged in, when I log out it will not let me back in because the email is not verified. Sent two emails to info@pacemaker and had no reply, I have to change my username and password each time I log in which is not great.              Thanks Frustrated Nearly A Member

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AV Junctinal Ablation Procedure

Has anyone had an av junctional ablation procedure in conjunction with insertion of a pacemaker?  How did it go?  DId you have to stay on meds after procedures?  

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PaceMaker Club Forum Suggestion

The "New Comments!" notice doesn't seem to be helpful for me. I stay logged in and it always says New Comments! even though I clicked on the post last time and saw them.  Logging out wasn't helpful either because if I am not logged in, there is no notice, and logging back in no notice either, assuming I saw them all last time.  It would be great if there was a link for "Today's Comments" or "Last 7 Days Comments" because somet...

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Recycling pacemakers

I had made an appointment with the funeral home to prepay my own funeral. Mom had done so decades ago, and it really made it nice on us kids to have it already lined up how she wanted. 

Today I went and settled my funeral arrangements. I'm so glad that it's done. I even wrote and turned in my own obituary for future use. 

I asked about my pacemaker. The funeral director said they remove the pacemakers and donate them to a company who picks them up and sends...

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Medication mishaps in the USA

Have you ever wondered if what your doctor is prescribing you is the best combination and the right amounts? For instance, the last time I tried to take Entresto, it didn't work out because my doctor forgot to tell me to quit taking Losartan, so my blood pressure bottomed out and I almost went to the hospital. Then he decided I didn't "tolerate" it well... but didn't bother to investigate further. As a result, I missed an earlier opportunity to get better. 

Th...

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Interesting question about forcing your heart out of PVC's

Okay... I've got an interesting question, something that seems logical to me, but that I've not heard anything about.

I get PVC's a LOT. Several times a day at least and sometimes they last for an hour or more, other times it's just a few minutes. But it's irritating because the longer they last, the more weak I feel as well as just icky feeling. Everyone here probably knows the feeling. Anyway, I figured that since my heart rate was too slow, and I was missing beats...

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Lead voltage

I was in for my six month pacemaker check today. The cardiologist had said six months ago that my right lead isn't optimally placed.  Today he turned up the voltage from 4 to 4.5. He said it's an extra safety measure due to the lead. He said that I will need a lead replacement when the box is replaced. He said they may also add a new lead and leave the old one in place. He also said this voltage increase will use my battery quicker. I have 3.5 years left at the moment. 

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AV Node Ablation

Hi,  I had my 4th ablation, AV Node, in March of 2023.   While I feel better and am no longer bothered by Afib, I am still short of breath after exertion and sometimes no exertion.   I use a CPAP at night and some mornings after walking out to get the paper my oxygen is 94 (we live at 7500') and other times it's 84, 86.  I don't understand the swings but can't get anyone to explain what's up.  The cardiologist says, see your pulmonologist, and the...

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Electric car chargers and pacemakers

Hello, I read in The Sunday Times at the weekend that one day wireless car charging *plates in the ground* "may be commonplace".

I think this is something the pacemaker community needs to be aware of. As far as I know there is nothing to worry about with ordinary charges beside the road or in parking bays but wireless charging plates might be a different matter.

 

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Pacing

Hi, 

I got a message after my quarterly download that I am pacing 100% BIV.  No explanation.  What does it mean?  Is it OK?  Should I be worried:?

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You know you're wired when...

The dog’s invisible fence prevents you from leaving the backyard.

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