Most Recent Messages in General Posting

One month follow up!

Bonjour fellow PCMs!

I had my one month follow-up today for my CRT-D...all went well and i also got my staples out...my bday was on the 22nd...so Happy birthday to me! Haha 

God is Good! 👍😁

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declining pacemaker

I had triple bypass 2006, atrial fibrillation since then, prolonged QT, now very slow heart rate at times, and pacemaker advised.  I want to know this: if I decline the pacemaker, would I probebly die quietly either in my sleep or at some other time, perhaps suddenly.  I'm 78, life is difficult, I'd be quite happy to die.  Does anyone know the answer to this question, please

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Moving a pacemaker

I have had my pacemaker since October 2018. I have had increasing swelling of my left arm since the surgery. I initially though it was caused because I had breast cancer and lymph nodes removed 20 years ago. But it is because the PM lead is causing an obstruction in a vein. I had a vascular surgeon attempt to  increase the flow using a balloon procedure. This did not help. One option I have is to move the pacemaker to the right side. I would welcome any advice on the subject.

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Brugada Syndrome

I see very few posts related to Brugada Syndrome here. It must be a rare condition. Feeling pretty special now. 

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Pain Along Side of Left Breast post ICD

I just had my first ICD implanted almost a week ago and have down along the left side of the left breast. It feels like there’s something hard down along there, starting not to far under my armpit.  That breast is slightly swollen as well. I did get breast implants about 9 years ago. Anyway the device could have moved down along there?  Other than that I feel like recovery is going along beautifully. Waiting for a call back from the pacer clinic. 

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getting a bracelet

I want to get a medical braclet that stands up to a lot of potial damage, what company and/or the have people here gotten and how well do the stand up?

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Pacemaker

Has anybody out there gotten a pacemaker or know somebody that has gotten a pacemaker and was later told by a different cardiologist that you were misdiagnosed and didn't need one?  What did you or they do about it? I am more afraid of the surgery to remove it and the leads than I was of putting it in.

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Shoveling my stupid car out

Today was fun, the first real snow since I had my heart attack and I got to shovel snow around my car. Took 2 hours while it normally takes 20-30 minutes and despite a highish heart rate, 130, and some heavy breathing it wasnt that bad just slow. I'm counting that as my cardio today and they can fight me.

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2nd degree heart block type 1

Just found out I have 2nd degree heart block type 1 , does any one have experience with this or know how it will affect my millitary career? Have been in for a few years.

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The Hazards of Growing Old

Well, PM Friends, it finally caughht up with me.  I'm 82- 1/3 yrs old & my vision has been deteriorating for abot 10 yrs from Macular Degeneration.  For you youngsters in the clan, the Macula is the spot on the retina of the eyeball that defines The greatest detail.  W/o the macula, you cannot read very well because therre is a blank spot in your vision. If you want to examine what I can see now, close your right eye; look at the "G" key on your keyboard. ...

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Canceling Travel Because of Heart

I've always wanted to do some offbeat travel--go to Bhutan and to Burning Man in the desert. My husband wants to take me now, but I feel too afraid to do this kind of travel.  I have been having total loss of consciousness episodes about every 4 months for the last year -- always in the morning. Multiple factors seem to be involved. At the time I got my pacemaker, I had bradycardia and asystole heart pauses of up to 11 seconds. Then came pericarditis. Four months after I got the pace...

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Should I insist on getting a pacemaker?

I am 30 y.o. with bardycardia with a resting heart rate of 50 beat per minute.. At rest, it does on drops to 36-40 and occasionally I feel like I am out of breath and world is spinning when lying in bed. When I'm awake, it's around 60-70 best per minute. 

I did a 24hours holter and was diagnosed with sick sinus syndrome; total of 9 pauses with longest 3.1 second. When my heart stopped for 3.1seconds, I was wide awake and did...

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Feeling anxious

I just had my PM implanted 01/07/2019. The first week was horrible because they set it too high and my heart raced all the time and I couldn’t sleep. They dropped the setting and it’s been better but I still have trouble going to sleep as I feel like my heart is racing. It’s as if I feel my heart beating stronger than before. I also find if I eat a big meal my chest feels heavy after. Like harder to Breath deeper. I’m 52 female who’s always been super athletic wi...

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afib

got my pacemaker about 6 months ago and I just found out I have Afib.   Did the pacemaker cause this?  Any one else have this problem?

 

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Any skiers about?

We are shortly heading off for a week's skiing. I am wondering whether the electronic gates which read your lift pass work similarly to airport scanners. I know the usual advice at airports is  to ask to be excused going through, but  if not allowed,  provided you do not linger in the scanner they are harmless.

But that is just one scan. You can go through lift pass scanners countless times per day, and they are usually beamed so that they recogniz...

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New device and New member!

Hello fellow Pacers! I am a new member to this prestigious Club and a new ICD device patient...I am a 48 year-old male and single father of a 14 year old son. Just got my new CRT-D device on Dec. 26, 2018...Merry Christmas to me! Haha...I was diagnosed with dilated cardiomyopathy due to a viral infection which I also had as a child...Everything went well with my surgery and my 2 week checkup went great and I get my staples out in 2 weeks... I am blessed with a great team of Cardiologists...I...

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Pregnant!

Hey everyone, i am 24years old, and i have just found out that i am pregnant! I have been trying for a little while so i have had a chance to speak to the electrophysiologists when having a battery check for my PPM. Unfortunately the physiologist i had, had only experienced 2 other people with a pacemaker that were pregnant in his quite signifiicant career. I have recently had my care moved to a different hospital nearer to where i live, without asking me (NHS for you, love 'em or hate &#...

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Sunburnt Scar

Whilst on Holiday recently i had the misfortune of getting badly sunburnt including my PM scar... 

Its now very red and has clear fluid coming out of it... 

Question... am i at risk of infection of my PM pocket? mine is implanted under the muscle as i am very thin. 

Should i keep it covered with a dressing or let it dry out? 

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Seat Belts

In Australia the front seat passenger sits on the left,therefore the sash part of the belt sits over the left shoulder and right over the area where you have just had a PM fitted and you are on your way home in a friends pick up truck or as we call them a Ute.That area will be quite sensitive and its a 2hour drive got any thoughts anyone re this problem.We have to wear seat belts and its compulsory no dispen sations for PM wearers

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Info

I just found out what kind of PM I'm having put in. It's a st. Jude dual chamber I do not know what that means does anybody know about this type of pacemaker

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Member Quotes

But I think it will make me feel a lot better. My stamina to walk is already better, even right after surgery. They had me walk all around the floor before they would release me. I did so without being exhausted and winded the way I had been.