Most Recent Messages in General Posting

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The countdown has started

Had my second 3 monthly virtual clinic yesterday which is the run up to my second replacement.

Virtual clinic is upload pacemaker data and get a phone call.

Next appointment probably October face to face.

Estimated battery life 7 to 16 months.

Hoping that this time they get me in before the pacemaker does something unexpected like change mode.

The ectopics that plagued me last year seem to have stopped and it was suggested that I reduce the Bisoprolol dose to 5 m...

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Pacemaker

On my fifth PM for the last few days been having ribcage discomfort ,chest feels heavy ,just feeling unwell. 

 

Should I contact my doctor

 

 

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Stuffy noses

I wake-up with blocked nose every morning for the last 6 weeks, had my pacemaker 5 years ago, although this is hayfever season in uk and taking one 180mg  fexofenadine hydrochloride tablet daily, eased off total nose blockage allows me to breathe, but lots of mucus comes out of my noses before clearing up.

The following day the same problem repeatedly. 

Any advice would be appreciated 

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Introduction

My name is Tim and I had a Medtronic pacemaker inserted on February 20 for Congenital Progressive Heart Block. My mom has it and her mom had it. I have known since I had a heart block since I was 24 years old and am now 57. My cardiologist said I should ride my bicycle "as much as possible ". So that's what I have been doing.  My site itches like crazy and the seatbelt hurts. My pacemaker has needed some adjustments, but I feel great. Does anyone else have Congenital Progre...

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sending a PM and not getting an answer, or answer a query and not get a response

I sent a PM  to "admin"  "private message" and did not get a reponse.  About what is not happening on this site with the new owners.  Do not know  about you but to me that is quite rude.  Of course we deal most of the time with those who ponder their needs and when we respond they do not.

Do not know which is worse.

new to pace

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Fitness Watch HR below lower Tracking Rate Setting

I know that fitness watches are not the most reliable monitors for HR, but I have to ask.  

Since getting my PM two months ago, my Polar watch (which has optical HR tracking and is worn on my non-dominant wrist - left for me), has never gone below 60 which is where my lower tracking rate is set.  Makes sense.  However, these last 10 days or so, I'm seeing repeated HR's in the low 50's on my watch. The low rates come when I'm sitting or sleeping.  Is t...

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Aveir LPM implant two days ago

60M. Happy to have found this community. After months of dealing with chronotropic incompetence secondary to an ablation for afib, I had a pacemaker implanted yesterday morning (Aveir Leadless, Atrial). Other than my SA Node, which still produces a p-wave but stalls at around 120bpm, my conduction system is intact (multiple 12-lead ECGs are normal), so single chamber atrial pacing with rate response was recommended and was the approach taken.

The procedure took about 2 hours, a lit...

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June's remote quarterly transmission

I knew  my quartely remote tranmission was coming up , was not sure if it would be done before i left for a 10 day vacation.  Thank goodness it was done before.  I had notified my cardiologist  via the patient portal of my away dates.  Who then notified the pacemaker clinic.  When i returned did call the pacemaker clinic to ask for a copy of the log events and the summary page.  Not aware that the clinic is closed on Fridays.  She then called me on...

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Stinging

Hello everyone,

I've had my pacemaker for three years and no problems until this last few weeks. I get an awful stinging/burning sensation when moving my left arm across my body. Anyone else experienced this? 

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Recent change in heart rate after extended period with bradycardia

Early in 2023 my resting heart rate abruptly dropped to about 40 bpm (often falling to the mid/upper 30s overnight and sometimes during the day).  I’m currently 63, and for most of my adult life, I’ve had a resting rate in the low to mid 50s, as I’ve been a runner and cyclist since my teen years.

I was diagnosed with sinus node dysfunction, and along with bradycardia, I experienced chronotropic incompetence (heart rate wouldn’t go above 120 during vigorous e...

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PLSVC - Incidental-oma

During the placement of my PM about 2 months ago, one of the "complications" that they ran into is that apparently I have what is callled a redudant or Persistant Left Superior Vena Cava.  This was one of the main reasons that they were unable to successfully manipulate the leads for CRT device into place and instead went with Plan B of the CAP device that I have (and I'm very happy with -so far).  The EP mentioned it briefly in his brief mtg w/ my famil...

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Leaving comments in old threads

I am still finding members are leaving comments in very old threads - please see post below from member tuck3lin.

Our current computer system doesn’t automatically bump new comments to the top of the new message board, so any comments you leave in older posts or even add to posts that are more than say a month old, may not be seen, unless you create a new message.  Furthermore, we are still not receiving “notification” of comments or of private messages...

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Pacemaker home monitor

I have had a pacemaker for 13 years. The first one was 10 years and now my second one is 3 years. I have a StJude with Merlin home remote. It is still working on a landline which costs me $60 a month. They once before, about 5 years ago sent me the equipment to make it WiFi. It didn't work with our Wi-Fi for some reason so I just stayed with the landline 

Well my remote I have is beat. I'm getting calls asking if it's working because they haven't seen it. So today I...

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Why doesn't the auto mode switch of my pacemaker prevent all pacemaker medicated tachycardia episodes?

Why doesn't the auto mode switch of my pacemaker prevent all pacemaker medicated tachycardia episodes?

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Medical Bracelet

So I have been wondering if getting a medical bracelet is a good idea for those with pacemakers. 

anyone own one? 

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Paced percentages

Curious ...

what's the percentage of pacing for your artrial and ventricle?

 

my atrial is 100% paced 

ventricle 70% paced

 

i read that ventricle pacing over 40% increases your chance of heart failure... anyone have info on this?

for people that are 100% atrial and ventricle paced do they rely solely on rate response to help tell there heart how fast to beat?

 

thanks for all your answers and info!

alway...

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New pacemaker in 9 year old

Just wanted to put a little post on, my daughter, 9 years old, has just got her first pacemaker last week. The difference in her is incredible! All my fears since finding out about her heart block when I was 24 weeks pregnant until the moment she was in recovery after her operation have calmed and I just look at my amazing little girl quickly recovering being more funny vibrate and raring to go than ever before. What a magic machine she has inside of her and what a wonderful medical team she...

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Upon death - pacemaker donation

I'm in the process of redoing my Will and was wondering if anyone had experience with donating pacemakers after death.  I've read that they can be refurbished and used in dogs and that there is a program associated with the University of Michigan that sends them to impoverished countries.  I was wondering if anyone has any experience with setting up paperwork to assure this occurs and if it needs to be in my Will.  I'm a designated organ doner as well.

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CRT device when do I need one ?

Glad to have found this useful forum on pacemakers . I am 45 years old , I had a heart attack 2 years back  & had a CABG .

Currently my e.f is 32-33 % & am on heart failure medicines such as diuretic ,arni & ivabradine.

My e.f has remained the same since my surgery even after taking these meds .

I go for 25 minute walks in the morning & evening and am never breathless. If I exert myself by sweeping the floor ( vigorous hand activity) for say 10 minutes o...

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Feeling confused

I'm a 53 year old male and I've had my pacemaker for 2 weeks now. I was admitted to the hospital with critical Heart Block and I also have high blood pressure. All of this is brand new. Started passing out on March 1st of this year, where we found my BP at 210/115 and started BP meds. Brought my BP to 130/90 within 3 weeks but still passing out. After many tests cardiologist says to the hospital you need a pacemaker now and we need to monitor you 24/7. My heart was stopping multiple t...

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You know you're wired when...

You’re a battery-operated lover.

Member Quotes

My pacemaker has ultimately saved mine and my unborn child’s life for which I am thankful.