Most Recent Messages in General Posting

Pre-Op anxiety and what to expect after ?

Hi Guys, 

I'm 27 years old and am due to have an ICD fitted in 48 hours. My anxiety levels are through the roof and made worse by the fact my farther passed away from the same condition at a young age. 

Does anyone have any advice for how to deal with this anxiety, perhaps subject focused books, videos etc ? 

Additional does anyone have any recommendations for the recovery period. I'm very active and would like to be out walking and perhaps on an exerc...

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Low heart rate

Posting much information to explain condition. Enter hospital three months ago. Low heart rate (30’s) 3.6sec.pause with pvc’s bradycardia.

I had surgery( electrophysioligist)does an ablation(pvc’s) and pacemaker same day. Pacemaker set for 80bpm . After three weeks, pulse reads 80 each early morn. And dropsto 50’s and stays there rest of day even when doing yard work. Why doesn’t pacemakerraise pulse to my working heart rate? Do you feel that pacemaker...

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Medic alert advice

I'm intending to get a medic alert 'thingie' -- I reckon the combination of 100% PM dependent + anaphylaxis of unknown origin with Epipen + rivaroxaban + Advance Decision makes it sensible. (Might also add in some stuff about MRI with the PM if I can ever get a straight answer about it... Yes/No/Maybe doesn't really cut it but I'll ask a separate question about that.)

My dilemma: I've been told that wearing the alert on the wrist is the best option and to be fran...

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death

I'm sure some others here have contemplated their eventual demise so maybe this will benefit others.

Since I have no prior experience with dying personally, a lot of questions about the forthcoming adventure are arising. Anybody have answers?

- how long do I have to live with dying

- will my Merlin monitor work from where I'm headed

- is this a one way ticket

- can I get an upgrade to first class

- is there a charge for being overweight

- what...

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Water softners

Ok have a question on water softeners. We need to get one due to hard water I hear these ore no good for someone watching their sodium intake. Does anyone have on to share their experiences with it ? Thanks

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Diuretics

As time winds down questions about death are popping into my head. Here's an important one

Does anybody know if there are rest stops on the way to the hereafter or should I forgo my diuretics (pee pills) on that fateful day?

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Toothbrush scare!

I have just bought a Philips Sonicare toothbrush. On reading the instructions I was startled discover that  I should cntact my 'physician' or the manufacturer before use.

This is because it has an elctromagnetic field. 

I am a bit annoyed that this was not mentioned on the website from which I bought it (Amazon) . 

Has anyone else got one of these items and  what  did your physician or manufacturer  say  if you contacted them?&...

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new pacemaker

hi, I have just had a pacemaker fitted on Tuesday and sent home yesterday.  It all happened very quickly as I was diagnosed with heart block and admitted urgently for this as I had 2 blackouts, dizzy every day and breathless.  I didn't know anything about pacemakers before and so don't know what is 'normal' after surgery, or something I need to call the doctor about.

In the past I suffered slightly from sleep apnea [not diagnosed but my husband noted the s...

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Pain in Pacemaker Area

Hi there, I got a pacemaker implanted when I was 18 due to complete heart block. I'm now 21 and after getting a few changes to the settings of the pacemaker, I've noticed I have a lot of pain around the pacemaker site, it feels like muscle pain but I'm not sure, why would this happen? 

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21 year old non-congenital heart block

Hello,

I am a new member and wanted to share my story for anyone who might relate or benefit from it. Last December of 2018, I was diagnosed with non-congenital complete heart block at the age of 20 with the only symptoms of extremely low heart rate and constant fatigue. By February of 2019 I underwent pacemaker implant surgery as symptoms were beginning become more severe. The cause of the heart block was never found byt since my surgery, I have felt 100% better with more energy and a...

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Newbie here PM install 4 days ago

Hi, all! Thought I would introduce myself.

I am 71 years old who started with afib, found I also had bradycardia and that my heart would stop for three second intervals from time to time.  Once that whole picture came to light my doctor scheduled me for a PM and here I am.

It has been an interesting experience thus far. Went into short, bouts of afib the day after surgery which sent me back to the ER, but all checked out fine net net. it returned to normal SR and tests were f...

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POCKET TENDERNESS

After 7 months, the device pocket is still quite tender.  I'm working out now, and it is more tender afterwards.  Is this common?

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Pacemaker install?

This is my first post ,first time with the club.  Basically I am trying to make the decision to get a pacemaker . I am coping daily with flutter and continuous a fib. Tired and breathless at times .  Finding it difficult to do what I have to here on the ranch . Any advice ? 

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Biventricular pacemaker

Greetings pacemaker friends,

I have had a dual lead Medtronic pacemaker for 8 years(brachardia, low heart rate, fainting).  It has worked well.  Over the past ten years my ejection fraction has been going down, now at 40%.  My cardiologist and pacemaker doctor have reviewed my results(echocardiogram) and have suggested that I have a biventricular pacemaker to help with heart failure and possible increase my ejection fraction.  They have scheduled me for a St. Judes b...

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Had my pm for 7yrs

Just wondering if it possible for someone to have kids with a pm

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ongoing pain after infection old site

Hi, I have had a pacemaker for 11 years and am on my 4th device. I developed a very nasty and serious pocket infection 18mths ago and had to have my device and leads removed. It was then re located to the other side of my chest. I have had no issues with the side where it is now located it healed well. However the site of the old device (this pocket had been operated on 5 times once was a revision) has caused me shocking pain ever since. The pain radiates directly behind into top shoulder bla...

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Pacemaker performance

I've sorta kinda posted a thingy similair to this in the past & here goes: I had an A-V Node ablation in 2012 preceeded by a four month period when the TCAI Ep who was treating me offerred no treatment for my Tachy condition. I was rewarded with a tachycardia induced cardiomyapathy. Current EP replaced the original PM with a PM/ICD unit in Jan '15. Year later, a heart failure Spec. performed a PM optimization, and I felt fine. My LVEF was at 20%. Then late 2018 rolled around. I pe...

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Low heartbeat

Had my St Jude’s PM installed 4 weeks ago. My heart rate has stayed at 60 until yesterday when it dropped to mid 5O’s. Bradycardia due to enlarged heart and weak heart muscles was diagnosed. Should I be concerned that the PM is not doing it’s jb properly?

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Pacemaker status info

Hears a newby question:  how are people getting so much info regarding what thier device is doing?  Is there a remote device that lets you see what HR its pacing to and what your actual HR is?  Can you query he device remotely when you feel like it?

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Whats it feel like when a PM is pacing?

I don't have a PM yet, I've seeen 2 EPs both suggested I should get one but neither would say it would actually make me feel better!   I'm tired all the time.   I'm wondering if people would be willing to share thier experience as far as what does it feel like when the device works?  I've searched this forum so I'm well informed about the issues re affected arm.  My resting HR has dropped from 60 to 40 in the past 6 months,and when sleepin...

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Your favorite poem is “Ode to a Cardiac Node”.

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