Most Recent Messages in General Posting

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Alternate lead placement

I'm curious how many of you have alternate lead placement, not in the typical RAA and RV apex.

I will be having a double lead extraction and replacement as well as pocket revision (I believe we are moving it to the axillary fossa region) on August 13th.

Since switching from the EP who did my implantation, my current one has said that my leads were not optimally placed. He said that he rarely uses the conventional placement. After some research, I'm hopeful that h...

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Pacemaker Club website updates

As per the facebook page, it looks like updates won't be here for a couple months. They are saying "fall", which to me means September:

Big changes are coming to PacemakerClub.com, and we can't wait to share them with you! Our new website will be packed with powerful features to elevate your Pacemaker Club experience and strengthen connections within our community.

• Enhanced Member Profiles • Connect with others through detailed profil...

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New member

Thanks for allowing me to become a member. Receiving a pacemaker is very new to me....one week today! My heart went into afib and I had, over a 24 hour period around 15 episodes of syncope due to around 10 second pauses which lead to an urgent pacemaker placement.  Doing well at home and processing all that's happened.  Looking forward to reading about how others have adjusted to their new normal. 

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Virtual vs Real

Rather than highjack an existing thread, I though I might air the Virtual vs Real clinic issue.

I’m old enough to have seen the NHS start, see it evolve, go beyond family doctor to robotic surgery.

My mother probably had to pay the midwife and she related the awful reality of healthcare before the NHS when at 21-years old, she had a mouthful of healthy teeth removed, a sort of insurance against dentist fees she couldn’t afford.

I’m grateful for the care I h...

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Connecting

Any one from Edmonton, Alberta Canada?

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Annual review - positive experience

Contacted my NHS hospital yesterday, leaving a message on their recorder to broach the subject of upping my Maximum Tracking Rate. I have been having problems of breathlessness with vigorous exercise and have monitor evidence of exceeding current maximum and provoking 2:1 block.

They called me back within 45 minutes and gave me an apppointment for this morning.

I have a Biotronik Enitra 8 DR-T. They accessed the online data that my bedside box has been transmitting nightly for a y...

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Arm movement impeded

Hello,

My 14 year old son had his pacemaker implanted at 11. He has grown a lot since then, and especially lately. His pacemaker is now somewhat impeding his arm movement in that he cannot lift his arm more than 90 degrees up towards the front without great discomfort. When trying to lift it all the way up, the pacemaker bulges and looks as if it's close to the armpit. Moving the arm out to the side is fine. Do you think this kind of movement is normal with growth? 

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ICD

Has anyone tried these for welding 

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Facebook

Is there a active pacemaker site on Facebook?

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Where is everyone from…..

Where is everyone from?

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Gerry and the Pacemakers

I saw this quote on here from someone else and now of course it has a completely different context.

I wonder if Gerry was thinking about IPGs when he or his group came up with that name?

I doubt it.

In my imagination, I can see Gerry belting out You'll never walk alone with his backing group of two lead pacemakers strumming their guitars and bashing the drums at 60 BPM.

Gerry could always get together with the Mersybeats.

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Website update

Like Newtopace, I privately messaged admin yesterday with concerns about security here. No response. 

I am not a Facebook user, but I do see on pacemakerclub Facebook site that they're announcing a new site.  

~~~~~~~~~
Posted yesterday , it depicts a megaphone with the words: Pacemaker Club Members- we heard you!  

Coming Soon: A New PacemakerClub.com

We're committed to creating a supportive, engaging, and dynamic forum for everyone. Stay t...

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The countdown has started

Had my second 3 monthly virtual clinic yesterday which is the run up to my second replacement.

Virtual clinic is upload pacemaker data and get a phone call.

Next appointment probably October face to face.

Estimated battery life 7 to 16 months.

Hoping that this time they get me in before the pacemaker does something unexpected like change mode.

The ectopics that plagued me last year seem to have stopped and it was suggested that I reduce the Bisoprolol dose to 5 m...

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Pacemaker

On my fifth PM for the last few days been having ribcage discomfort ,chest feels heavy ,just feeling unwell. 

 

Should I contact my doctor

 

 

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Stuffy noses

I wake-up with blocked nose every morning for the last 6 weeks, had my pacemaker 5 years ago, although this is hayfever season in uk and taking one 180mg  fexofenadine hydrochloride tablet daily, eased off total nose blockage allows me to breathe, but lots of mucus comes out of my noses before clearing up.

The following day the same problem repeatedly. 

Any advice would be appreciated 

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Introduction

My name is Tim and I had a Medtronic pacemaker inserted on February 20 for Congenital Progressive Heart Block. My mom has it and her mom had it. I have known since I had a heart block since I was 24 years old and am now 57. My cardiologist said I should ride my bicycle "as much as possible ". So that's what I have been doing.  My site itches like crazy and the seatbelt hurts. My pacemaker has needed some adjustments, but I feel great. Does anyone else have Congenital Progre...

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sending a PM and not getting an answer, or answer a query and not get a response

I sent a PM  to "admin"  "private message" and did not get a reponse.  About what is not happening on this site with the new owners.  Do not know  about you but to me that is quite rude.  Of course we deal most of the time with those who ponder their needs and when we respond they do not.

Do not know which is worse.

new to pace

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Fitness Watch HR below lower Tracking Rate Setting

I know that fitness watches are not the most reliable monitors for HR, but I have to ask.  

Since getting my PM two months ago, my Polar watch (which has optical HR tracking and is worn on my non-dominant wrist - left for me), has never gone below 60 which is where my lower tracking rate is set.  Makes sense.  However, these last 10 days or so, I'm seeing repeated HR's in the low 50's on my watch. The low rates come when I'm sitting or sleeping.  Is t...

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Aveir LPM implant two days ago

60M. Happy to have found this community. After months of dealing with chronotropic incompetence secondary to an ablation for afib, I had a pacemaker implanted yesterday morning (Aveir Leadless, Atrial). Other than my SA Node, which still produces a p-wave but stalls at around 120bpm, my conduction system is intact (multiple 12-lead ECGs are normal), so single chamber atrial pacing with rate response was recommended and was the approach taken.

The procedure took about 2 hours, a lit...

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June's remote quarterly transmission

I knew  my quartely remote tranmission was coming up , was not sure if it would be done before i left for a 10 day vacation.  Thank goodness it was done before.  I had notified my cardiologist  via the patient portal of my away dates.  Who then notified the pacemaker clinic.  When i returned did call the pacemaker clinic to ask for a copy of the log events and the summary page.  Not aware that the clinic is closed on Fridays.  She then called me on...

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You have a T-shirt that reads “Wired4Sound”.

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