Most Recent Messages in General Posting

Simple and safe to use

Hello Friends, I am Tamilian, 75,  just joined the club. Hope U R all doing well. I got my PM done on 5/28/19 and the Dr.put me on Paradaxa 150 mg twice a day. It is a blood thinner. Previously I have been getting occasional heavy nose bleeds and I never took any aspirin or other blood thinners. I am concerned about using such a heavy dose of Paradaxa daily as it may cause sudden heavy nose bleeds. Does anyone has similar situation, is there a less dosage. My BP is normal. If the PM is c...

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Relapse or Lead Dislodgement

Been posting and responding quiet frequently on here, but have a question on the after effects of surgery. I am on my 2nd devise. First was a dual chamber PM, and I had that for only 3 years. Now I have a BV / ICD and am on CRT continuosly. Was feeling pretty good until this morning when I almost blacked out at work. After that I was cold and tired the rest of the day, and looked visably tired when I looked in the mirror. I originally had byacardia for the first PM, and then went into cardiom...

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Palpatations

I had a St. Jude CRT-P implanted :March 2019. I’ve felt so much better. However about a week ago I started having occasional palpitations and shortness of breath.  No where as severe as prior to pacer. Is this unusual and should I be concerned?

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Pacemaker with CHF

Most all warning signs regarding CHF are weight gain and edema.  While cruzing the 'net this AM, I stumbled across info that no one else (including Doctors) has broached before: Weight loss with heart failure. A BAD, BAD thing!  Generally indicates the G.I. tract isn't getting the oxygenated blood flow that it requires to process the vitamins and minerals out of what one eats. Ones future with this condition is grim.

--Dave--

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Traveling with Lattitude monitor.

I''m fairly new (Apr 2019) to having PM--it's been an adjustment.  Have appreciated comments here.  I'm a Club Member now.  Do you take your monitor with you on short, i.e. 5 day trips?  If so, what is best way to pack and travel with it when flying?  

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How accurate are Apple Watches

I am wondering how much to trust the cardio readings on my new Apple Watch, but it does feel like it is right.

I am waiting to be scheduled in for a CRT-P sometime this summer.  My EP said I would not need the CRT-D because that was not my problem.  I have had palpitations for long before I got my Pacemaker 18 months ago, but never was caught in testing.  After Pacemaker I wasn’t aware of palpitations that much because of the much more aggressive thumps from PV...

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How accurate are Apple Watches

I am wondering how much to trust the cardio readings on my new Apple Watch, but it does feel like it is right.

I am waiting to be scheduled in for a CRT-P sometime this summer.  My EP said I would not need the CRT-D because that was not my problem.  I have had palpitations for long before I got my Pacemaker 18 months ago, but never was caught in testing.  After Pacemaker I wasn’t aware of palpitations that much because of the much more aggressive thumps from PV...

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Recent CRT-D implant and worried about visible lead

I am 5 weeks out from a CRT-D implant, and for the most part I am doing ok.  The incision area still hurts, especially with my bra strap rubbing against it, but hopefully that will go away with time.

My biggest concern is the lead that I can clearly see and feel right under the bottom of my incision. It sticks right out like a swollen vein. Its very close to my armpit, so every time I move my left arm it seems like the lead will just pop right thru my skin.  I'm worri...

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PM blues

 I have had my pacemaker for almost 2 weeks now. I am so so very sorry I had this put in. They said it would give me more energy to make me feel better but it’s not true. I  feel depressed I definitely have less energy than I had before and it hurts . My first check up with the doctor is in a few days and I want to tell them to take it out. I live alone and I could manage almost all the things that needed to be done . Now I struggle to get off the couch. Is this my life from n...

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Home sleep study

Hi all, for any of you who've had a home sleep study did the battery run machine have any affect or reaction on your pacemaker?

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Pipe organs & PM's

Just finished a 60th college class reunion.  Went to an organ recital in the chapel.  Organist was talking about the organ & told us about all its pipes & their sizes.  They run from the size of a stubby pencil up to 32 ft.  I told him about several discussions we had here in the PMC .  People have been near sub-woofers & felt a funny sensationion the chest & worried about it causig problems w/ their device.  There were about 25 of us gath...

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Riding in a Boat with an BV/ICD

Anyone have any difficulty while riding in a boat on rough water with a BV/ICD? Was interested in owning a boat for fishing, but since my diagnosis, I have not thought much about it. Thanks.

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Theme parks and rollercoasters

Hi all, I had an ICD upgrade earlier this year (January I think) and also have an inset wire left form my last device (NOT MRI safe) in a ventricle, I was wondering if anyone knew the limitations on theme parks.

I would not go on purely magnet propelled rollercoasters but would be interested to know the full limitations.

Thank you!

 

P.S. sorry I am new here not sure if my formatting is a good standard xx

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Lead Revision

My first PM implant on 5/13 had to be revised on 5/20 because of right atrial lead displacement that started becoming evident three days after surgery. For the second go-round, the surgeon said he was able to relocate the lead a bit higher in the atrium, avoiding suspected scar tissue from my CABG of 2007.

So far, so good. Back to work now, scrupulously wearing a sling during waking hours and an elaborate velcro belt rig at night (look like a sumo wrestler with it).

When can I fee...

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Anyone getting static hair :)

Bit random this and doesn’t really matter just curious - my hair is like a van de graff generator since implant.

anyone else?  I do have fine hair anyway.....

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intense arm pain since fitting

hi new here can anyone identify with intense severe permanent pain all down my left arm since the Op in2016? cannot use it for dressing makiig beds liftng carrying etc  was told the nerve endings were damage by the op, no cure can anyone help plz? thankyou Lesley

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Staying dry

I am just two weeks into having a pm and I am going on vacation in one week. I am trying to find a way to shower and go into the pool without wrapping myself in plastic wrap. So here is my idea: What if I put a small patch of plastic wrap over the stristrips and then cover the whole thing with a product called second skin. I am thinking the plastic wrap would keep the second skin from sticking to the strips and pulling them off when I remove it. I could really use some feed back on this idea...

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Pace maker discomfort

Just to say thanks for messages so far replying to my request for advice

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Icd with SS and LTD

New here and thanks. Drove a truck for the past 20+years. Had my CDL since i was 19yo, i will be 43 tomorrow. Back in July 2017 had an episode where i didn’t feel good at all. Called my boss and locked the truck up. AMR took me to the hospital and i haven’t worked since. EF at the time was 20%. Cardiomyopathy, severe heart arrhythmia, and diagnosed with CHF. My EF is now 55% with meds and the icd. Arrhythmia is still there but not near as bad as it used to be. My CDL is dust...

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Icd with SS and LTD

New here and thanks. Drove a truck for the past 20+years. Had my CDL since i was 19yo, i will be 43 tomorrow. Back in July 2017 had an episode where i didn’t feel good at all. Called my boss and locked the truck up. AMR took me to the hospital and i haven’t worked since. EF at the time was 20%. Cardiomyopathy, severe heat arrhythmia, and diagnosed with CHF. My EF is now 55% with meds and the icd. Arrhythmia is still there but not near as bad as it used to be. My CDL is dust in the...

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