Most Recent Messages in General Posting

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Ear buds

Is it generally safe to use wireless earbuds.?

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My upgrade from a dual chamber to a CRT

Finally have my upgrade to a CRT with a new lead (3-lead) on this Tuesday at the Cleveland Clinic Main Campus in Cleveland! Had my pre-op testing yesterday with all my results posted to my Chart within a couple hours. The people there for the testing are wonderful; especially the Pacer Tech. Probably the most knowledgeable and nicest that I've ever had. The way that I judge that is; I felt better (mentally) leaving her office than before I walked-in.

BTW: I am hoping...

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Patient App

Has anyone figured out how to get the Patient App to work?  I just get a message saying there's a problem with the connection.  I tried everything.  I would appreciate any help you can give me.  I have an iphone SE.

 

Thank you!

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And the Count Down Begins

  Finally have a date for my CRT-P placement:May 1.  Yep, only 8 weeks away.  *sigh*  That's soonest available (short of an emergency which to date I'm not).  But I will be very busy during these next 8 weeks still exploring other options. 

I need to get a second opinion from a different system with regards to pocket placement options actual device.  My EP is knowledgeable but really, really, really does not want to do anything other than...

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Tricuspid Valve repair/replacement

Does anyone have any suggeastions or experience in getting their tricuspid valve repaired or replaced?. What questions should be asked of the potential surgeons. I am seeing three different surgeon for opinions over the next two weeks and want to be informed as possible.

Tony

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You Can Prevent a Stroke Book by Joshua S. Yamamoto and Kristin E. Thomas

I couldn't find any references to this book on the site (I tried searching by author and by title). It's not about strokes, it's about the heart and the cardiovascular system; lead author is a cardiologist. It's short, very simple, easy reading and probably doesn't contain anything that people on this site don't know. I'd still recommend it because of the focus on the systemic plumbing rather than particular systems. I suspect it's mostly aimed at people who ar...

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Indigestion??

Many times I have had an uncomfortable episode, often after eating. My heartbeat is slightly irregular, my throat and upper chest are tight and heavy and I feel light headed. Afterwards I burp quite a lot and I have never been a burper.  I spoke to my Doctor about this and she prescribed 20mg Omeprazole once a day which helped as I was getting episodes much more often during the day. I think the pills have helped.

However, I am scared. I have to go to the hospital for my yearly&nbs...

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Gemita

Hello 👋🏻 Gemita

just read  FAQ you took time to write ✍🏼 ....wow,  I not only love it ❤️   But also like that all basic concerning information we all have is in one place !!

 Thank you 🙏🏻 

I will reread it ALL again ❤️ ....few times 🥰 

all the best

Michelle

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Can a Pacemaker Malfunction?

Hi everyone, I have done some work(!)

I have prepared a long document on Can a Pacemaker Malfunction, which I have placed in our FAQs if you go to Learn, then FAQs, then press the down or up arrow at Club Information, then scroll down to The Pacemaker/Defibrillator, then press Choose Category, where you will find the document in three parts.  I have provided a List of Contents for Pa...

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pace trigger

Had pacemaker put in in April of 2023 so I am a newbie so to speak.

I have an unusual expierience that I have mentioned to my Cardiologist as well as my PM technician with no real clear answer. I am scheduled to have a yearly pacemaker check on the device so maybe this situation will be resolved   At exactly the same time every night my pacemaker causes my heart rate to increase not drasticly, but it goes from 62 beats to about 78 for about a minute or less duration, It s...

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Advice and Wisdom for Newbie - CRT-P 101

Now for CRT-P 101 boot camp basics .....  

What advice would you share to help help the hospital / returning home process go smoothly?

1) What should I make sure I have available immediately after placement?  Seatbelt pad? Bra strap pad?  Front button down shirts?  Front closure bras?  I live about 40 miles from the "big city" where the docs and hospital and retails stores are located, so it will not easily convenient to run back and forth f...

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New Pacemaker

Just had a St Jude/Abbott Labs PM-2272 installed 3 weeks ago.

Since installation, I have been getting intermittent shock feelings in the area when the PM was installed.

They feel like a TENS pad type of shock.

Have Dr appt Feb 27

Any comments?

Thanks

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why do i continue to check this site

  Want to see if someone asks a question that i might know the answer.  I am not technical and do not take any prescribed medications, only practical knowledge.

new to pace

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Pacemaker self-test and voltage

Hello everyone! 

I have a question about the self-test voltage vs. manually programmed voltage. 

I have an Astra Sure Scan Medtronic pacemaker (Model X2DR01) to manage my LongQT (Type 2). I'm paced at 80 bpm all the time. I've had this particular pacemaker for 5 years (but have had a pacemaker for nearly 25 years). For the first 4 years of this pacemaker I couldn't feel the self-test and only in the past year started feeling it. This seems weird to...

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CRT Placement

Honestly not sure which group to post in so I'll start here.  I'm about to get my first CRT pacemaker sometime soon - waiting to hear about scheduling.  My concerns are about placement.  I do not want to "see" the pacemaker after it's been implanted. This is very important to me on both a mental and physical (esthetic) side.  I'm also a very active lady who likes to backpack / hike, wear strapless tops, and participates in sports like Pilates...

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Spirit World

I had a strange experience during what I assume was REM sleep recently and received what I can only describe as a 'visit' from a deceased relative. 

I don't (or didn't) believe in spirits and this is totally new to me.  It wasn't a relative I was super close to either. 

My heart was playing up and missing beats and as I walked up some steps (in a dream) and entered complete darkness, I thought my time was up! Then a luminescent and very real imag...

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Pacemaker Tapping - Left Side Sleeping

Hello, I've been reading older forum posts on this, it's a weird one and seems to be a few different takes on cause / resolution.

Anyway, it's now just over two weeks since I received my PM and life has changed for the better, I feel like I'm thirty again and not in my mid 40's.

The only thing I am experiencing, not overly concerning just odd, is a tapping in my PM if I lay either on my left side or front. It's not painful, but feels like a rhythmic finger...

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Patient app

Does anyone use the "Patient App"?  I tried putting it on my iphone through Biotronik, but it always says the server is having problems.  I would like to use it if it could help me.  I'm new to all this pacemaker that I had put in at the end of December.  Santa said I was naughty, so he gave me surgery for 2023.  Actually, I'm very thankful for this modern technology.  Does the Patient app only work on Android devices?  Thank you for your h...

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Interesting interview

Saw these two items on the news today about a footballer's experience of heart failure on the pitch.

https://www.bbc.co.uk/sport/av/football/68346705

https://www.bbc.co.uk/sport/av/football/68346337

I didn't catch if he was still playing though.

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not receiving email notifications

Now not recieving email notification's when someone posts an answer to my query.  Have to keep checking this site to see if any adds to my post.

Also only spell check in the subject line not in the message.

new to pace

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You know you're wired when...

You are always wired and full of energy.

Member Quotes

I am just now 40 but have had these blackouts all my life. I am thrilled with the pacer and would do it all over again.