Most Recent Messages in General Posting

Pacemaker

While checking my blood pressure .machine says irregular heartbeat it that normal as I've got pacemaker?

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Only a number, not a sentence

I just got a call from my cardiologist... my other message for today was somewhat of a vent session on my apparent lack of "care" with my current doctors. I had left a discouraged message for him after my last appointment when it was clear that he really wasn't feeling well and told me he had Covid the week before. Well... I guess he felt bad about that because he called me just now and said he wanted to talk over my concerns with medications and my EF. What I wrote in my messag...

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Solar Flares and Pacemakers

Question of the year for me... since solar flares have become a common topic lately.. I am beginning to wonder if anyone has information or wondered if solar flares can affect pacemakers? 
 

If solar flares can affect pacemakers or disrupt it... isn't this a conversation we should all be having with our doctors just incase? 

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Fear

I live with a sense of fear ever since a bypass 17! Years ago .

There isn't much time o don't think about and when I get little twinges I notice and wonder 

 

can I think into being what I fear most ?

 

does anyone else live with such fear ? How do you manage it ? 

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Here I am again ..

Well here I am again .... In 2007 bad a 5x bypass .44 years old .
2019 my AV node stopped working so I had a pacemaker installed .
This year i learned my EF rate was 30 - heart failure in April .

Now its 2024 and I just had a new PM installed with new wires - one is a "shocker " then other pacing the LV 

scares me to think where or how this all ends !

 

what brought me in this time is chest pressure that never went away - not pain but...

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Question about Carvedilol

I've been taking a relatively small dose of carvedilol for over a year, 6.5mg twice daily. Two weeks ago my cardiologist wanted me to go to 12.5mg twice daily of which I'm tolerating well so far, but I gradually got there instead of just doubling the dose. Now he wants to double it again and I'm nervous because a lot of people don't tolerate the higher doses. What are some of your thoughts and experiences with this drug? Did any of you tolerate it well in the beginning but hav...

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Is it the pacemaker?

While I was on, I figured I'd post my Bardy monitor results.. even though it leaves me with more questions than answers. In the summary it says "Although pacemaker indication states yes, there were no instances of pacemaker activity." The next line states "Symptom episodes of Ectopic Atrial Rhythm and AT may actually be atrial pacing." Maybe I'm not understanding correctly, but these seem like completely contradictory statements..  He did say in office th...

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Curious about young PM recipients.

I'm 35 and on week 6 of having a pacemaker and I'm just curious about how many other younger folks have a pacemaker or older folks that got theirs when they were my age. I'm also curious why you needed one so early in life, my circumstances are out of the norm since my heart is healthy but my nervous system is out of wack. I just ponder if my situation is as uncommon as I am led to believe. My doctor said besides a few babies who needed a pacemaker at infancy I'm his youngest...

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Leadless Pacemaker Opinions

Hey everyone,

If we haven't met I'm Abi and I am hoping to get some opinions about leadless pacemakers as I am likely going to be getting on on the 19th.

I need to get a new pacemaker and my cardiologist is suggesting I get a leadless one (the most recent medtronic). I was hoping to get some opinions from anyone who has one on how they like them. My cardiologist walked me through all the benefits and risks so I am really just looking for patient experience I have...

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Lump in the throat?

I'm on week 7 of having my pacemaker and recovery is going alright for the most part. The past 2 days though, my chest has been tight and I have a sensation I can only describe as a lump in my throat. It's right under my Adams Apple on the same horizontal as my collar bone. I felt fine for the past 3 weeks and this is new. I figure it might be normal so I thought asking around here would be a good idea before freaking out.

I have never had an ablation, I have no signs of any inf...

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New to me brands pacemakers CRT, but which one.?

My hospital cancel contract Biotronik pacemakers, I had two of these, all good.

My pacemaker technician say next one is choice of Boston Scientific, Abbott or Medtronik. I have now CRT pacemaker Eluna Biotronik since 2014.

Any idea which one to choose for my 3rd pacemaker replacement?

 

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Covid19

Has anyone with a pacemaker experienced palpatations after having Covid19

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iPhone 14 and magnet ? Old Phone not transmitting arrhythmias. Why?

I'm looking for a new cell phone. I have an older iPhone but it has never sent a transmission when I've had a bounding arrhythmia.I was looking at the IPhone 14s but it seems like they have a strong magnet on the back and we are asked to keep magnets away from the pacemaker. Do any of you pacemaker people have an iPhone 14 or 15 and does it interfer with your pacemaker ?

Has anyone else had problems with their phone not transmitting arrhythmias ? I'm wondering if the pr...

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Should I get a pacemaker? What is your experience with them

So I wore a heart monitor for two weeks and during that time had two heart pauses that lasted about 6 seconds each. I was slightly dizzy on one of those incedents but it passed quickly. The cardiologist claims I have sick sinus syndrom and wants to implant a pacemaker. I am not really sure if this is necessary and unsure whether to go forward with it. If I knew this was a persistant problem I would do it but I am not convinced, thinking that it may not happen again. It scares me that he said...

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Soon to have ICD

Hello everyone,

I am a career- paid firefighter. I have a genetic gene (long story) but did a blood test and confirms I have a gene that causes hypertrophic cardiomyopathy of the left ventrical. I am 39 and will be getting an ICD placed asap due to 20-25% scarring in my left ventricle. 
 

I am worried that my administration and city admin will not let me return to work. On that note, I cannot find any law that says I have to tell them and or them not allowing me bac...

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Medtronic home monitor

Looks as though another problem has developed with Medtronic MyCareLink home monitor.

This is type with hand held chest reader.

Display lit up, been on for too long now.

All three LEDs on the reader flashing. No idea what's wrong.

This is the second unit gone on the blink.

If it doesn't stop flashing, I'll pull the plug on it to see if it fixes it.

That's two problems in the space of three years. Not impressed.

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Advice for upcoming surgery

My daughter is 15 and will be having surgery in a couple days to implant a pace maker.  This is all very sudden for all of us and Im trying to learn as much as possible in a short time. 

She was diagnosed with third degree heart block last year after having Covid.  She has always had a normal heart rate in the past and now has complete heart block and her resting heart rate stays in the low 60’s.   At that time she was not experiencing any heart related sy...

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Not good, but not bad echo results

Hey ladies and gents... for anyone that was curious about my echo results from yesterday; it turns out that I'm still a 16. Not surprising considering my hurdles over the last 5 months. I thought I'd be really upset about it, but actually was grateful that it didn't go down. I'm sustaining...holding my own. That is good. 

The next step will be to up my Carvedilol to 12.5mg twice daily, as I'm on a pretty low dose right now. I'm not willing to experiment with...

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Medtronics

Just wondering if my Medtronics monitor needs to have anything done like being reset after it was done unplugged by accident?

Their website has very little information and they take weeks to respond to text messages...

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Organization for women with heart issues

Hi All, 

Want to share this organization for those ladies with heart issues and men who want to learn more about it for the women in their lifes.

 

https://www.womenheart.org/

 

 

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You know you're wired when...

You need to be re-booted each morning.

Member Quotes

I'm 44, active and have had my device for two years. I love it as I can run again and enjoy working out without feeling like I'm an old man.