Most Recent Messages in General Posting

CRT-P

I have three questions:  I received my CRT-P on 3/13.  I had severe shortness of breath before but still have it although with less frequency and intensity.  Anyone experience the same and what was done.

I also want to know if I can drink white wine 

I have never gone to bed with an un-named heart beat.  Therefore, I feel my CRT-P should have a name.  Any suggestions?

 

 

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I have arrived!

Well, somehow I woke up this morning feeling very happy!  I was sitting in my recliner with my pug sleeping on my lap as I sipping my hot coffee.  I came to realize why I was feeling so happy.  I'm getting a new PM on April 22 because this one is running out of juice a year early. I've been scared and worried and well, feeling sad.  Today, it's the old me back again! hahahha, I'm getting a new PM! I'm not going to die, I'm not going to be sad,...

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AFIB

Pacemaker implanted feb 13, 2019. Minor short 2 hours of AFIB three times until Friday March 22, 2019. Have been in and out of AFIB with probably 98% in AFIB. Heart rate has been 100+ at rest. Prior since feb 13 rate has been 60-70 at rest. Taking rate reduction meds. Pacemaker set at 60 bpm. 

Any experiences with this. 

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Medtronic Pacemaker Vibrated

My pacemaker just did a slight vibration. Does anyone know what that’s an indication of? I searched the internet and it’s confusing.

 

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Pacemaker protection

Has anyone tried the vital beat protector?

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CRT

3 months on LifeVest. Beginning 4th month. Awaiting nuclear scan, then to meet Cardiologist for decision. I have more frequent weakness, tiredness. Spend so much time having to lie down. HR very up and down, even low 30’s. BP very up and down, can go very low. EF mid 30’s varying. NICM. Subendocardial damage low to mid left ventricle, not transmural. Septum not squeezing, but hopefully, this is electrically correctable. PVC’s many, IVCD’s frequent, LBBB. 

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Are you being hacked ?

There is yet another hacking scare in the UK press this morning.  This one concerns a security flaw which affects 16 separate models of Medtronic defibrillators. It seems that these faults mean that the MYCareLink Monitor enables a hacker to intercept the radio frequency communication to your implanted device.

Nothing to worrry about though it only means that a hacker standing no more than 20ft from your home could give you electric shocks or drain your defibrillator battery ! &nbs...

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Micra Placement

Who out there has this device and what is your experience so far?

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ID card

I went on holiday to the Canary Islands recently, going out ok as I could passed through surcurity ok with no problem but coming back I had to show my pacemaker medical card which as you know  the uk is a dog eared card the longer you have it the more dog eared it becomes. Has anyone found a company that will produce a plastic I’d card for pacemakers

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Beta Blockers and the PM dependent

I'm an A-V Node ablated dude w/pacemaker.  My PM regulates my heart rate to the 84 - 90 range. Is adrenaline gonna effect the rate? Not that I've noticed. The fatigue effects I do notice. Is there more at play here? I also take Lisinopril, an ACE inhibitor whose function I understand. My BP is generally low - 105/62 ...........94/58 at times ----- I'll stop my beta blocker use for a few days to see how I feel. Am I playing with fire?

--Dave--

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Work

Is anyone an RN who works bedside?  Are there any considerations that I should be aware of?  I work in an ICU, so I'm curious.  I go back to work next week after getting my pacer placed.  Does anyone have advice, suggestions, or comments?

Thanks

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Need advice about needing pacemaker

I am a 60 year old lifetime amatuer endurance athlete.  Cycling is my main activity (about 50-100 mi per week, on hilly terrain), with some running and other activities.  Last year I had three episodes, the first was on an a treadmill, at about 8 minutes, still in warm-up doing a slow run I felt really dizzy so I backed down to a walk for a couple minutes, felt fine, then continued back to normal pace.  I have a heart rate monitor watch, so when I looked at what happened later...

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Pacemaker safe ear buds

Hi all I’m new to this forum and new to living with a pacemaker, I only had it fitted three months ago , the thing I noticed immediately is that the pacemaker interfears with earphone or ear buds when listening to music and that they can cause the pacemaker to have problems ,so I looked everywhere for a set that were pacemaker safe and I mean everywhere, with no luck so I dicided to adapted my own after a lot of research and trial and error I have done it completely pacemaker safe...

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Leadless Pacemakers

Hello all, new to the site. 27 years old with complete heart block as a result of a cardiac ablation done roughly 12 years ago as I was in high school. I've been without a pacemaker and have had a low heart rate (usually in the 40s at rest) pretty much ever since then. My current cardiologist is pointing me toward having a leadless pacemaker implanted (mostly as a backup, since I have not had any fainting episodes or other symptoms along those lines in the past 12 years). He told me that...

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Private Message Glitch

Anybody else have a problem with their private messages? 

I lost all of mine in the inbox earlier today and now all but 5 in the sent box.

Grateful Heart 

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Helloooooo :) 3rd pacemaker coming up soon

Hello everyone - I've been off the grid for awhile now but that seems to be changing for me. I have a dual St. Jude pacemaker. Has a 10 year plan they said. That was in 2010. Well seems that my heart ahs decided to stop working all togehter. Nothing. I have no natural beating of my heart anymore. I learned this a few weeks ago. I went into a "What in the heck" kind of thinking. It has really taken me by surprise. I have gone through the total denial thing, the now what do I do t...

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Frustrated with heart

I had my pacemaker implanted on March 8, 2019, so I am a bit new here. My settings are 60 - 130 for my SSS. My problem is that I have still been having pauses which is the whole reason I got the pacemaker. I went in for my 1 week check and they said that I had no pauses. I am wondering how this very accurate machine could not pick these pauses up. It is not a small amount of pauses either, about 10-20 per minute. They can happen at anytime and last as long as they want. The other problem...

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Informing school/college

Hi everyone!

I’m 25 and approaching my 5year anniversary with my first Medtronic, Rate drop response pacemaker for Vasovagal syncope which results in asystole. Recently discovered that my atrium lead is not working and have to go in for a replacement...

Anyway, I have just started a 8 week pastry course in a France (foreign country, foreign language) where i’ll be on my feet for a large portion of the day. I’m certain I’ll be absolutely fine but I’m j...

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New Pacemaker

Hi. Just wanted to give thanks to everybody here.  Aside from the doctor,  this is really the only place that has helped with advice and perspective throughout all of this. 

Just a small background.  I'm 29 years old and just had a single-chambered pacemaker implanted.  It was implanted due to having bradycardia but my AV node was really just mis-firing and throwing the whole thing out of sorts. I was passed from doctor to doctor with each telling me mo...

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Crt-p

I had a CRT-P installed a little over 2 weeks ago for pacemaker induced cardiomyopathy due to ventricle dyssyncrony. Other than some mild water retention in the abdomen, I have had no real symptoms. EF had dipped to around 40% (12/18 echo) with the dual lead PM I previouly had. 

A couple of questions:

1) Is loss of water weight one of the signs that the therapy is most likely working? I ask as I’ve started to notice some positive changes with weight loss (3-4...

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You know you're wired when...

Your electric tooth brush interferes with your device.

Member Quotes

I wouldn't be alive if it wasn't for pacemakers. I've had mine for 35+ years. I was fainting all of the time and had flat-lined also. I feel very blessed to live in this time of technology.