Most Recent Messages in General Posting

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Have you been getting any connection problems?

Hi everyone,

On all my devices this morning, I was again getting This Connection Is Not Private message.  This website may be impersonating "www.pacemakerclub.com" to steal your personal or financial information.  You should go back to the previous page.

Well I decided to press Show details and got a warning message that the website has an expired certificate, expiring 1 day ago.  Th...

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Very doubtful

So I've had my icd for a little over 4 years now and I just recently decided to have it turned off, it still monitors my heart but will no longer provide life saving therapy if my heart rate gets too high. I was still living in fear every day of being shocked (after being shocked 10 times in less than 3 years) which was not living to me. I'm 38, I've already had my living and last wills drawn up as well as a MPOA. I don't feel like things have gotten any better in the last 4 y...

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RSV vaccine update

So, Gemita, I went first! I received my RSV vaccine yesterday ( 21 hours ago) at my local pharmacy. 
I had my guy go along. I was chatting with the pharmacist as she prepared my shot. I barely felt a pinch. Later I asked my guy if he saw the needle go in, because it was hard to believe that she had already done it. He said he saw a long part of the needle go in. I honestly didn't notice. 🧐 Then again, I am known to chat with everyone and focus on the person with whom I'm tal...

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Palpitations and capturing/recording

Hello fellow paced friends!

I am curious if anyone has been successful recording palpitations/arrhythmias through an upload while they are happening.  I have a dual chamber medtronic pacemaker (almost 7 years) to treat complete heart block and recently experienced an event that felt like my heart rhythm was very chaotic and things were just very out of sync.  Honestly it felt like everything was misfiring!  I sent an upload the next morning but nothing showed up on t...

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Early Pacemakers

I've attached this link to a 2010 article that outlines the early history of the pacemaker.

https://www.ajconline.org/article/S0002-9149%2810%2901042-8/fulltext

It's extraordinary that the first device was developed as a result of choosing the wrong component in the circuit.

The first device ran on watch batteries (cells) connected in series to give about 8-volts.

if you include the battery, the circuit in the article has nine components, a transformer, two tra...

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Peacemaker life

Hello! I'm 24years now and a complete atrioventricular block so 2 years ago i needed a peacemaker. Now, i have 2 years with him but i have a question. How much can i live with this? With a peacemaker.. i mean, i will live a normal life and died at 70-80-90 years old or i will die in the next years?.. i mean, can i live a normal life or not..because i don t wanna die young. when I searched on the internet, the life expectancy of people with stimulators was 8-20 years

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Celery Juice

Hello all,

I was wondering if anyone drink celery juice or juices other kinds of juices whether vegetables or fruits?

I would like to start implementing this in my day to day diet but unsure if it's safe for us heart patients.

I plan to ask my cardiologist.. I'm not taking medication but I'm trying to naturally treat a gut bacteria. 
 

thanks all 

 

 

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Whom to Believe

As a curious 🤔 person I decided to attempt gathering information on possible treatment other than replacing my CRT-D. 

The fourth EP I interviewed seems to be a winner from my viewpoint.  No lecture, spoke appropriately to me.  As we discussed my situation the doctor confided he could not confirm my leads are compatible with the device he is considering as a replacement.  I pulled out my Medtronic ID Card with my Lead ID numbers.  The Lead ID numbers on my Medtr...

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Heart, blood pressure & sleep monitor

Hi I recently was diagnosed with sick sinus syndrom and received a pacemaker  August 12, 2024.

I am curious if others are using devices such as fitbits (anything really!) to monitor sleep, blood pressure and heart rate and if you hanve recpmendations on good devices. 

SSS deveolped as a result of failed sleep apnea treatment. There are times when it's been recomended to not use CPAP for a few days and I want to know whats happening.

Also I want to know blood pr...

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Pacemaker Mediated Tachycardia

A V node ablation and dual chamber pacemaker about two years ago. Due to my age (80) and being very active, it took ages to get settings which enabled me to lead my normal life. However after constantly pestering my pacing clinic and making modifications to my exercise program , a compromise was reached.

However, over the last six months i've had three occassions where my heart has raced so high to the point of my almost fainting. My wife called an ambulance on two occasions bu...

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MRI Fail (on me?)

Went to finally get my MRI of the heart Tuesday.   Full stop.   They realized new pacer had only been put in for 5 weeks and 5 days.   
 

came back at the 6 week mark two days later.   Got in the tube and found out in the first few seconds that I had forgotten about some shoulder surgery 30 years ago.  Apparently there was a small piece of metal about 2-3 inches away from my pacer that I was unaware of.   this is my guess.  I will pick u...

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Amiodarone and PVC and Alcohol Ablation

From: Gemita
Date/Time: 2024-08-20 13:05:56

Subject: In response to your message

Update to alcohol ablation

by Debs59 - 2024-08-09 16:36:50

Ok...here we go again!  My alcohol ablation that was performed for my extra PVCs, help with my EF and CRTD to work better was once again partially successful.  The doc tried his best to get rid of the alpha PVC that causes all the problems BUT it did not work.  I stayed in hospital for two days an...

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ICD improvement timeline

Hi, I'm new to the group and would appreciate some information. I received my biventricular ICD three months ago. Heart failure most likely caused by Covid, or I believe it was the vaccine. I've had three adjustments so far. This week I had a pulmonary stress test, no results yet, and an echocardiogram which did show my EF has increased from 30, before ICD, to 40. I do feel somewhat better, good days and then a bad day but still having shortness of breath more often tha...

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Left Bundle Branch Pacemaker vs. Traditional Biventricular Pacemaker

I'm overdue for a pacemaker and now I'm getting a bit of a runaround from my EP.  I'm 58 and pretty active.  My EP has been involved in a trial for a "traditional" pacemaker compared to an LBB Pacemaker.  He initially talked about the trial but then told me he'd do the newer LBB pacemaker because he thought it would be best for my situation.  Now, as I try to schedule my implant, the EP is back to telling me I need to be in the trial and will rand...

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30 year old leads

Has anyone had their leads replaced? I need to replace them because I need a MRI. I was told my by my Pacemaker tech about 10 years ago that they would heat up durning a MRI.I got a new pacer in Jan this year and it is MRI compatable. My new pacermaker tech told me that if there were placed by U of Mich (which they were) they are probably ok for a MRI. I have tried to out what model my type and model number but my new pacer card on has BSX and no model number. U of Mich has been no help....

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Dual lead implant 12 days ago

Successful implant 12 days ago - no subsequent pain and healing well. Wound check in 2 days time.

Had a mechanical mitral replacement 16 years ago - went well, but have to take warfarin - joy!!

I'm a left hander and had the implant is on the left side (no one asked if I was left or right handed prior to surgery). Is that an issue for me going forward? Anyone in the same boat?

Thanks

 

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Syncope

Can the term "syncope" mean just "faintness and dizziness", or does it always imply complete loss of consciousness? I would be grateful for guidance on this.

After my recent (self-requested) review, I jumped through all the necessary hoops to obtain a copy of my review report from the NHS. I noted in two places that they had recorded my initial symptoms as "syncope", whereas my GP referral letter stated "faintness and SOB on exertion".

Other...

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bpm faster than pacemaker setting

Today my husband was feeling somewhat poorly. After a nap we took his blood pressure, which was slighlty elevated for him(140/85), but his heart rate was 66 bpm. His pacemaker is set at 60 bpm and we have never had it elevated like this before. 

He took a dose of bloodpressure medication and it brought it down. But his heart rate was 68. 

Is this a concern? He is feeling better even though his heart rate is still higher than normal for him. His medtronic pacemaker is a t...

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Concerned

Is it safe to have endoscopy worried it will affect my pacemaker as I'm 100% paced ?

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My 96 year old parent

Hello all I am new to the club. I am writing here in the group to ask has anyone 96 or older had a pacemaker put in? And if so can you give me info on how you are doing. The doc recommended my 96 year old dad to get a pacemaker do to his heart rate being 40 most of the time. He has been diagnosed with Bradycardia. We are skeptical because of his age and appreciate any suggestions that could help us. Thanks also for accepting me in club. Best wishes to all.

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