Most Recent Messages in General Posting

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Mechanical Valve Noise

While at Cardiac Reb for therapy due to a biological valve replacement, the supervisor was mentioning that some people with mechanical valve replacments in lieu of a biological valve, have experience constant noise or clicking from their valve. Some people expressed that it really disturbs their sleep or when being quiet to read. Has anyone here experienced this?  My tricuspiod valve was torn during Pacemaker lead removal and had to be replaced.  Note: Biologic valves have a 10 year...

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GOOD OLD FASHION GINGER

Just curious to see if taking ginger while being on blood thinners is ok to take. I love lemon and ginger in my tea and i've heard it does wonders for your digestion system and inflammation which i have.  thanks all

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Heartbeat felt in area of pacemaker.

Hi everyone, this is my first time posting.  I received my first pacemaker in April and my recovery has gone very well.  In the last few days I've been feeling strong heartbeats in the area of the pacemaker - not all the time but several times a day.  At first I thought it was muscle twitching and wondered if it was nerves regenerating but I'm now sure it's my actual heartbeat.  I plan on calling my cardiologist in the morning but just wondering if any of you h...

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Irregular heartbeat on my blood pressure machine

Is it normal to have irregular heartbeats even though I've got pacemaker,I've had ablation and I'm 100% paced 

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TV programme

Watched a UK documentary last night on heart transplants and a patient having a pacemaker replaced.

Unhelpfully, the surgeon doing the pacemaker talked about battery replacement but later corrected himself by changing that to generator.

A relative of mine whose mother had a PM always insisted it was a battery change.and it took 10 minutes to do. Holter monitor possibly. I don't bother arguing.

The girl was in her 20s, but surprisingly they gave her a general anesthetic....

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casino

Is it safe to be in a casino with my pacemaker? Slot machines?

 

Thanks in advance.

 

Caren

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May seem trivial, but it's so important

In this journey of heart failure, there are a multitude of learning lessons along the way. I have gleened so much from listening to others and hope to be a source of information myself. Some of the lessons I've learned seem rather trivial, but in all actuality, they are so very important. 

Lets start with water. It's VERY important that you get enough water daily. We all take medications, it's just part of the process. But until recently I didn't realize the importa...

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Weird symptom....maybe....or not

Good Day! So friday morning I received my 3 month interrogation report (have had my pm for almost 2yrs) for my biotronik edora 8 drt and it was great. Still pacing at around 68% with last event being in feb. So...then last night I was woken by this weird vibration in my chest. At first I thought I was dreaming, it felt like I was shaking,  but once I was settling back asleep I got another jolt. Anyways maybe it was a dream??? If not, anyone ever experienced this? I see my...

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Bipolar and alcohol ablation

Has anyone out there ever had a bipolar or alcohol ablation?  I had an ablation back in Dec23 for PVC burden but it was only partially successful.  My PVCs are back up to 30% burden and I am having a bipolar and possible alcohol ablation.  I understand alcohol ablations are not performed a lot.  My EP is getting special equipment to perform this procedure.  Anyone ever had one?  Thanks!

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Just a Tidbit

Yesterday I saw my EP/Cardiologist for a follow-up appointment.  All is good for the most part but I did mention how my everday walks include hills and how they completely zap my energy and cause me to be so short of breath.  I asked him how he felt about perhaps making an adjustment to my rate response.  He looked somewhat surprised and asked where I had learned about rate response.  I answered "oh I belong to the Pacemaker Club and that subject is frequently discuss...

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ubiquinol Form of CoQ10

Anyone heard any pros or cons on benefits or side effects of ubiquinol / form of CoQ10?

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A couple questions . . .

Hi, 
It's been a while since I've been on here. I had my first pacemaker / dual-chamber implanted at age 57 for Bradycardia w/ AV block, Mobitz 1 (Wenckebach). Also, diagnosed w/ HF. Then in 2020 I had it replaced with a CRT pacemaker. So.... my questions are:
1. If you have a CRT, how long have you had it?
2. If you have HF, how long have you had it? 
Thanks,
Damie

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How to Read Interrogation Report

Just received my interrorgation reports (all 25 pages in total) from my first two interrogations; Day after implant and 13 days after implant.  The Google U course for "Reading Interrogation Reports", doesn't start till next semester, so till then can anyone share the points I want to look at or pay attention to? I don't expect to find any smoking guns or surprises, but I do hope to get a feel for what's being measured and how this makes a difference to me. &nb...

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SVT and pacemaker

This past year I was diagnosed with supraventricular tachycardia.  My pacemaker was implanted in 2016  due to sinus node disease.  My Electrophysiologist won't even speak of an ablation.  Has anyone a similar situation?

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Boston Scientific Accolade MRI EL Model L331 undergo MRI scan

I have a referral from my neurosurgeon for an MRI cervical spine scan with my Pacemaker.

My Pacemaker is the Boston Scientific Accolade MRI EL Model L331, and was implanted on 15/03/2019. I am very concern regarding the impact of the MRI scan on my pacemaker. I read it has a MRI mode where they can adjust the impedance so that I can undergo a MRI, after which they will reset it back to normal. Can anyone please confirm this, and who sets my pacemaker? 

<...

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not what I expected

Good evening everyone,

I am new to this group and am hoping you will give me guidance and good advise.

I had a pacemaker inserted on the 13th.  I have sick sinus syndrome.  Which took the doctors at least three years to figure this out!.  I had been very fatiqued, short of breath, and had to sit down after any activity to catch my breath.

I have a apple watch so can monitor my heart rate.  The issue is I have had NO changes at all in my symptoms.  An...

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Pacemaker 101 - Great Resource

In my studies at the University of Google, I found this resource that explains pacemakers and all of their functions and jargon in a pretty user friend way.  It leans a bit towards the geeky side but not so much that an regular person without a tech or medical degree couldn't understand.  (full disclosure, I've got the tech degree... *haha*)

https://ecgwaves.com/topic/introduction-till-cardiac-devices-pacemaker-icd-crt/

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2 weeks+ post CSP Implant - and quite the ride

Starting out with the good news - I've had my 2 week Device Check-up, and all looks good.  It was a kinda weird experience watching as the RN tapped a few keys and I could feel my heart start to race (which I was told I might "feel").  I half expected the nurse to tap another button and then my feet would start dancing... *lol*   I had a lot of questions but no surprise the nurse was unable to answer.  I was told that at present the unit is set at 3.5 vo...

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Low pulse Rate

My resting pulse rate is regularly way below my set rate of 60.  At rest it is commonly in the 40s. This is confirmed by counting, Fitbit, oxyometerr and blood pressure cuff.  I do at times, have a large amount of ectopic beats when the rate goes down below 60.  I can make the ectopic beats go away by raising my HR with exercise.

Anyone else experienced sustained low hr? Do you think that it could be pacemaker malfunction?

 

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atrial fibrillation

I am now 7 months into  receiving my pacemaker . I really was hoping I would be so much better than before the procedure . Unfortunately I still find myself getting breathless on walking up inclines and experience chest pressure when I move fom a seated position quickly . I have also had one 3hr episode of atrial fibrillation. The ECG on my fitbit is always inconclusive only occaisionly showing normal sinus rhythm . I have been for checks  at the Pacemaker  clinic and I wa...

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You know you're wired when...

You have an excuse for being a couch potato.

Member Quotes

The experience of having a couple of lengths of wire fed into your heart muscle and an electronic 'box' tucked under the skin is not an insignificant event, but you will survive.