Most Recent Messages in General Posting

Junctional Ectopic Tachycardiac

Hello I am new to this Club! After many months of experiencing very debilitating symptoms and undergoing various monitoring and a reveal device, my cardiologist had an unsuccessful attempt to ablate the ultimately diagnosed Tachycardia. However it did lead to him specifically identifying my condition as Junctional Ectopic Tachycardia (JET).

He appears unsure how to treat it and in themjeantime has prescribesd a very low Bisopolo lmedication which has worsened my symptoms, possibly as I...

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merlin home monitor 1150

i have a model 1150 home monitor connected to a phone line.what do i need for wireless hookup

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Dual pacemaker

My husband had a dual pacemaker implanted in July 2019 an has had issues with shortness of breath and blacking out/ falling spells he was always up and going before all of this an he is starting to blame me for him feeling like this because I talked him into getting the pacemaker for the better ....and now he has been back to the hospital several times but nothing is showing up on the test and is getting aggravated but I feel I'm the blame for it all... has anyone else have or had any of...

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Heart block

Hi guys,

 

I went to a&e yesterday as I was worried I had damaged leads by lifting weights. They said they'll think I'll be fine and all looks ok and to just get checked at my next pacing app however the first ECG they did in a&e showed second degree heart block and supraventricular premature complexes... the second they did showed sinus rhythm with sinus tachycardia.. the a&e doctor said to ignore the first ECG and said go with the second and discharged m...

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Has anyone had a cryoablation?

I have SSS, so five months after my pacemaker implant, I had a catheter ablation.  The doctor couldn't get me into tachycardia during the surgery, so I didn't get many burns.  He said there was a 50/50 chance it worked.  I was fine for three years, but now the SVT episodes are back.  He suggested we'd have to do cryoablation.  I think the success rate is pretty good on that.  Anyone want to share their experience with cryo?

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Just saying hello

26 here... got my PM 10 months ago now when I was 25. Can’t express how grateful I am I will be able to watch my daughter grow up. 

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autoimmune disorders

this is just a general question, has anyone out there had an autoimmune disorder first and then developed a heart block that required a pacemaker?

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nurses and assaultive patients

hi, i am new to this site and have yet to have a pacemaker 

but I love my job. and am worried that I am going to be told I can't workd due to the assaultiveness of the patients

are there any RN's out there who work in an "intensive care" psych unit  or ER and is having a pacemaker a worry  or have you been told you can't work your unit  due to the assaultiveness of the patients??

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Experiencing weird symptoms

I wanted to post here and seen if anyone had or has similar symptoms to mine. I keep thinking it’s stress (I’m almost 3 weeks post PM), but not sure. 

Im a 30 year old male and consider myself pretty healthy. Pre pacemaker I started having these wave of doom feelings come over me, and I would almost passout. Went to the ER and they found nothing. My primary care recommended a Holter monitor, and they ended up seeing a 5 second complete av node block. 

...

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Cornea transplant

A bit OT - but for anyone interested/involved - Wife of 60+ yrs suffers a genetic problem called "Fuch's Dystrophy."   It's a corneal inherited problem where the rear layer of cornea goes south on you, making the world look to you like it is on the other side of a jellyfish (Wife's descriptiion).   It starts at about 30 years, but does not become a real nuisance till you are about 60. 

Until about 2011, the only so...

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Cellulitis

My doctor "thinks" I may have cellulitis in a toe adjoining another that has athlete's foot in the toe cleft they share. I have peripheral neuropathy so I never felt the athlete's foot in the cleft (normally I inspect the spaces between my toes daily but I've had a bad case of sciatica and bending my leg is very painful) of my toe. My first notice there was a problem is the second toe was red half way down and swollen. I treated the athlete's foot and it was healing...

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DIY analysis

Hi Everyone,

New to the group. I’ve had a Medtronic pacemaker for a couple of years which was fitted in Japan to control rhythm and suppress arrhythmias. In general all good. However, on occasion I get a low level atrial fibrillation which the pacemaker cannot stop. Unfortunately the only way I can detect it is by noticing weight gain and a general “feeling” at which point I go to my doctor and they read the pacemaker and congratulate me on detecting it. Then we go thr...

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email verification does not work

I signed up as a member yesterday. Today I tried to answer an email from you asking me to verify my email address. When I clicked on the response buton, I got an error message from my web browser saying only "something went wrong." I don't know how to verify my email, and I'm afraid I won't be able to join your clup. Can anyone help me?

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PM dependent expectancy

Sinus node bradycardia. When I got the pm 3 years ago, my natural heartbeat was working 60% of the time. Yesterday I learned from the interrogation that my natural heartbeat is now working 20% of the time.  What’s next?

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Anyone else with Predominantly cardioinhibitory automically mediated syncope

Hi I had a pm op last Thursday and was just wondering if there are other people out there with a pacemaker for the same condition as I have? Would be good to know how it’s helped. Feeling quite down at the mo and just wanted to focus on future a bit. 

 

Thanks

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Introducing Myself. Glad to be in this club

Hi. I'm Susan. I just got my pacemaker five days ago.I had Rhematic Fever when I was 10 years old and was aware that there was some scarring in my heart and that if could cause me some trouble as I aged. I tried not to think about that much and essentially lived my life as if there was no potential probles associated with this. I partied (not too much), worked. got married, had three kids, worked some more, got my black belt in Taekwondo, started a business (which I still run), had m...

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PM/ICD's

You'd think by now, some ICD device maker would use this video in their advertising.   Guess Mick wants too much $$$!   

https://www.youtube.com/watch?v=SGyOaCXr8Lw

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Years of Service

So I just received my seventh pacemaker,and was curious as to if there was anyone that lived with a pacemaker as long as I have. Was surprised to find this club and see so many people like me. Still looking for who has lived with pacemaker longer than 45. But then again I'm only reaching people in this club. How is there not information out there that covers things like this?

 

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Effect of weight loss

I read somewhere that if one loses too much weight, the PM can fall out of its "pocket."  Is this true? I've lost 30 pounds, and am planning to lose more (hoping). I could stand to lose 30-50 more pounds (and I'll still be heavy after that, but I don't want to go too low). I've been making my docs happy, but they didn't mention this potential problem!

Just to elaborate:  losing a lot of weight takes hard work, focus, and determination--something I...

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Back spasms

Have pm 2 days and have spasms while in certain positions in bed or in a chair. They go away when I change positions. Feel like someone inside poking me. Should I inform my physician immediately or at my two week checkup?

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