Most Recent Messages in General Posting

why do they not have bio-powered, or AI. charger batteries yet

As I'm looking at battery life for one of these devices it struck me that they would be PERFECT for bio-powered, ie heat and/or natural body made electricity or a qi charger for wireless charging.

Get on it maker of devices!

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Is this normal?

I am going to have a PM implanted at the end of January for 3rd Degree AV Block. I wasnt feeling too bad when this all started, however I did occasionally feel like i might pass out. But, now for the past week I have been extremely run down and weak. I've been sleeping for almost 2 days straight. Is this normal?

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Boston Scientific - Minute Ventilation fix

Hi All, 
anyone knows if Boston Scientific have released their MV fix in the UK/Europe?
A while ago (October 2018) spoke to a Boston Scientific rep, who said the fix is out, however my hospital tech team sais it hasn't been rolled out in Europe/UK
Any news, please
Thanks Vassi

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Deciding what to do with old device!

Hey all! I got my old device back after my surgery on the 7th and I'm trying to decide what I want to do with it, any ideas? Part of me wants to keep it as a conversation piece but I also want to take it apart...

I've also got a demo version of my new device but not much to do with that as I'm pretty sure its hollow inside!

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Is a pacemaker right for me?

Hello, I am 27 years old. My story began in April 2018. At the time, I thought I just had nausea and vomiting, went to the ER, they said everything was fine and went home. Next episode happened in June/July. I completely passed out twice. Both times while sitting down. Second time I was sitting in bath tub, boyfriend found me passed out and lifted me up and was shaking me awake. He said he thought I was dead. He said there was no response. Called 911, sat in ER with monitoring. Told Dr. I was...

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AFib and Flutter

Hi, I had a pacemaker fitted last June to rectify an occasional heartbeat of around 29. All has been well since but pacemaker checks have revealed that I am still experiencing periods of flutter and AFIB lasting up to 20 minutes at longest. I suffer from ITP with a platelet count of around 30. One cardiologist wants to do and Ablation but will not do it unless my haematologist will give me medication to lift my platelet count to 70 and then give me anticoagulent treatment. My haematologist is...

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Frustrated

Hello,

I know I've searched and read posts regarding rate response, yet I'm so confused and with my appt tomorrow...in tears.

I've had my Medtronic pm-dual lead will be two years this May. Was suppose to have it many years ago but kept getting talked into ablations.

Anyway- Im 46.  History of ventricular tachycardia, SVT over 200, av node, sinus node issyes..extra pathway. Heart blocks 1st and 2nd degrees and bradycardias... 32 bpm which lead to finally plac...

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Forearm crutch use after PM implantation

I lost my right leg to cancer when I was 10. I'm 55 now, in good shape - aside from having been diagnosed with heart failure 2 1/2 years ago, partially thanks to heart damage from the chemo drugs back then. I'll be getting a pm or ICD soon, I use forearm crutches and my main concern is using crutches during the initial recovery. Although forearm crutches don't come up anywhere near where the pm will be implanted, several chest muscles are used when walking with them in the ar...

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EP wants to see me after reviewing my nuclear stress test

I posted last week about going for a nuclear study due to a 6 second episode of VT in Nov. My stress test was Thursday. Today my EP’s office called to see me within a few weeks. 

My appointment is for this Wednesday. All she could share with me was the fast beats that happened in Nov. She did share that perhaps my EP will discuss meds or changing meds with me.

I am on my 4th pacemaker over the last 28 years. Now, I am worried that they will want to change to a diffibula...

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Linq loop recorder

Just got the linq recorder taken out friday. I had it for 2 1/2 years to try and diagnose unexplaned fainting it didnt pick up anything so I decide to have it out but now Im kinda regretting it. So was wondering if anybody has a smart watch that records hr. Like does anyone have the apple watch series 4 i heard its fda approved?

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Refusal of PM

I am new here. On December 26th of 2018 I was told I have to have a pacemaker implanted at the end of January 2019. I am 39 years old I have 3rd degree AV block and the doctor says I have the heart of an 80 year old man. Apparently it looks genetic related. I am seriously debating if I am going to refuse the p.m. or follow through with it. There are many reasons I do not want to do it including the doctor doesn't have great reviews nor does the hospital that I am supposed to have it done...

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disney ride

does anyone know If toy story slinky dog dash had a magnet

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Paperwork by Soumiya

Back in Oct 18, a young Swiss woman named Soumiya posted  a request for folks to be interviewed for her major paper required  to graduate from their equivalent of high school.

Apparently she only had about 14 take her up on the request, I am one of those volunteers.

Today she sent me a copy of her paper - all 41 pages that she had permission from the interviewees to share.  

This young woman is not a n...

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Pm placement

It is now 5-6 weeks post pm under muscle, and although not doing too much lm finding when l raise my left arm slightly the pm feels a lot bigger than it actually is. I can feel the edge in my armpit. I understand it can take months for all the swelling to reduce to a new normal, but wondering if this will get better. It feels almost like when l try to do anything with my left arm the pm is in the way like a brick in my left armpit. I would have though placement under muscle to have allowed fo...

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Beats Headphones Anyone have issues with Metatronic PM

Happy New Year All! Have some fancy new Beats but just reading the leaflet in box which carries a warning. I’m guessing they are just covering themselves and it’s just like a mobile don’t place them over pacemaker or round neck? anyone have any issues? please let me know and I’ll send them back rather than waste money, I’ve dual Metatronic PM. Thanks x

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massage back cushion

I have a trapped nerve in my spine, thinking of getting a massage back cushion, are they safe to use with pm?

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Pacemaker

I’m in my 6th week post procedure for pacemaker implant. First week getting use to the bump under my collarbone and dressing that was on site. After 7 days removed dressing and saw the new cut and lump of my new electrical friend. The site is really sore and you’ll learn to protect it. After the 2nd week was given permission to drive, all was good except the seat belt was riding on top of surgical site. Did not feel good. After 5th week I have started to lift weight...

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wires? stitches? what?

Hello.  about 1 1/2 months ago I got a pacemaker.  I have healed well.  I noticed about 2 in apart i have 2 things protruding from my chest.  they look like wires to me or string?  just enough is out. they are perfectly the same. :/ I do not know what they are or what to do.  I just noticed them shiny in the mirror reflection when brushing teeth :/ 

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Anaplasmosis

I have had bradycardia for at least five years. Exercise HR did not get out of the 120s. In October 2017, I was hospitalized with Anaplasmosis, the other tick disease. My blood was a mess and I have been anemic ever since. All last year, I was thinking the anemia was the cause of my symptoms of exercise fatigue, pre-synchope and rapidly deteriorating performance levels. I have read that Lyme can affect the heart’s electrical system. I believe the I have had sick sinus syndrome for a whi...

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Interferances

My husband has informed me that the only solution for his low heart rate is a pacemaker. He has thus far refused to get one as he is of the impression that he will have to find a new career ( not an easy undertaking at 60 ) He is a welder by trade and personal experience told me a long time ago that that was a no-no. Since having my old unit replacec I donèt seem to have an issue with my ICD. I am wondering if there are people out there with pacemakers that are welders and if so what (...

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You know you're wired when...

You have a maintenance schedule just like your car.

Member Quotes

My pacemaker has ultimately saved mine and my unborn child’s life for which I am thankful.