Most Recent Messages in General Posting

AFib and Flutter

Hi, I had a pacemaker fitted last June to rectify an occasional heartbeat of around 29. All has been well since but pacemaker checks have revealed that I am still experiencing periods of flutter and AFIB lasting up to 20 minutes at longest. I suffer from ITP with a platelet count of around 30. One cardiologist wants to do and Ablation but will not do it unless my haematologist will give me medication to lift my platelet count to 70 and then give me anticoagulent treatment. My haematologist is...

Read More...

Frustrated

Hello,

I know I've searched and read posts regarding rate response, yet I'm so confused and with my appt tomorrow...in tears.

I've had my Medtronic pm-dual lead will be two years this May. Was suppose to have it many years ago but kept getting talked into ablations.

Anyway- Im 46.  History of ventricular tachycardia, SVT over 200, av node, sinus node issyes..extra pathway. Heart blocks 1st and 2nd degrees and bradycardias... 32 bpm which lead to finally plac...

Read More...

Forearm crutch use after PM implantation

I lost my right leg to cancer when I was 10. I'm 55 now, in good shape - aside from having been diagnosed with heart failure 2 1/2 years ago, partially thanks to heart damage from the chemo drugs back then. I'll be getting a pm or ICD soon, I use forearm crutches and my main concern is using crutches during the initial recovery. Although forearm crutches don't come up anywhere near where the pm will be implanted, several chest muscles are used when walking with them in the ar...

Read More...

EP wants to see me after reviewing my nuclear stress test

I posted last week about going for a nuclear study due to a 6 second episode of VT in Nov. My stress test was Thursday. Today my EP’s office called to see me within a few weeks. 

My appointment is for this Wednesday. All she could share with me was the fast beats that happened in Nov. She did share that perhaps my EP will discuss meds or changing meds with me.

I am on my 4th pacemaker over the last 28 years. Now, I am worried that they will want to change to a diffibula...

Read More...

Linq loop recorder

Just got the linq recorder taken out friday. I had it for 2 1/2 years to try and diagnose unexplaned fainting it didnt pick up anything so I decide to have it out but now Im kinda regretting it. So was wondering if anybody has a smart watch that records hr. Like does anyone have the apple watch series 4 i heard its fda approved?

Read More...

Refusal of PM

I am new here. On December 26th of 2018 I was told I have to have a pacemaker implanted at the end of January 2019. I am 39 years old I have 3rd degree AV block and the doctor says I have the heart of an 80 year old man. Apparently it looks genetic related. I am seriously debating if I am going to refuse the p.m. or follow through with it. There are many reasons I do not want to do it including the doctor doesn't have great reviews nor does the hospital that I am supposed to have it done...

Read More...

disney ride

does anyone know If toy story slinky dog dash had a magnet

Read More...

Paperwork by Soumiya

Back in Oct 18, a young Swiss woman named Soumiya posted  a request for folks to be interviewed for her major paper required  to graduate from their equivalent of high school.

Apparently she only had about 14 take her up on the request, I am one of those volunteers.

Today she sent me a copy of her paper - all 41 pages that she had permission from the interviewees to share.  

This young woman is not a n...

Read More...

Pm placement

It is now 5-6 weeks post pm under muscle, and although not doing too much lm finding when l raise my left arm slightly the pm feels a lot bigger than it actually is. I can feel the edge in my armpit. I understand it can take months for all the swelling to reduce to a new normal, but wondering if this will get better. It feels almost like when l try to do anything with my left arm the pm is in the way like a brick in my left armpit. I would have though placement under muscle to have allowed fo...

Read More...

Beats Headphones Anyone have issues with Metatronic PM

Happy New Year All! Have some fancy new Beats but just reading the leaflet in box which carries a warning. I’m guessing they are just covering themselves and it’s just like a mobile don’t place them over pacemaker or round neck? anyone have any issues? please let me know and I’ll send them back rather than waste money, I’ve dual Metatronic PM. Thanks x

Read More...

massage back cushion

I have a trapped nerve in my spine, thinking of getting a massage back cushion, are they safe to use with pm?

Read More...

Pacemaker

I’m in my 6th week post procedure for pacemaker implant. First week getting use to the bump under my collarbone and dressing that was on site. After 7 days removed dressing and saw the new cut and lump of my new electrical friend. The site is really sore and you’ll learn to protect it. After the 2nd week was given permission to drive, all was good except the seat belt was riding on top of surgical site. Did not feel good. After 5th week I have started to lift weight...

Read More...

wires? stitches? what?

Hello.  about 1 1/2 months ago I got a pacemaker.  I have healed well.  I noticed about 2 in apart i have 2 things protruding from my chest.  they look like wires to me or string?  just enough is out. they are perfectly the same. :/ I do not know what they are or what to do.  I just noticed them shiny in the mirror reflection when brushing teeth :/ 

Read More...

Anaplasmosis

I have had bradycardia for at least five years. Exercise HR did not get out of the 120s. In October 2017, I was hospitalized with Anaplasmosis, the other tick disease. My blood was a mess and I have been anemic ever since. All last year, I was thinking the anemia was the cause of my symptoms of exercise fatigue, pre-synchope and rapidly deteriorating performance levels. I have read that Lyme can affect the heart’s electrical system. I believe the I have had sick sinus syndrome for a whi...

Read More...

Interferances

My husband has informed me that the only solution for his low heart rate is a pacemaker. He has thus far refused to get one as he is of the impression that he will have to find a new career ( not an easy undertaking at 60 ) He is a welder by trade and personal experience told me a long time ago that that was a no-no. Since having my old unit replacec I donèt seem to have an issue with my ICD. I am wondering if there are people out there with pacemakers that are welders and if so what (...

Read More...

Can pacing percentage reduce?

Hi PM Clubbies

I have a PM to treat type 2 heart block (Mobitz T2). 

I have had the PM for a bit over 2 years. Initial pacing was 11% and it gradually increased to about 44%.

The latest remote transmission stated that it had dropped to <1%. I have no idea how this is possible. It is fantastic news for me as it is accompanied by great general wellbeing, increased energy and fitness levels. My Apple Watch is also telling me that my heart rate during exercise has droppe...

Read More...

Second opinion

So my husband wanted me to go see his cardiologist that he met on Monday for a second opinion.  We just didn't feel that wearing the 24-hour monitor was enough to go with a pacemaker.  I went this morning and this cardiologist said that is the fastest he's ever heard of someone getting a pacemaker for a 50-year-old otherwise healthy person.  Next week I'm having an echo, stress test and am going to wear a 21-day heart monitor.  The result may turn out the same,...

Read More...

Question

Anyone else getting fluttering 3 months after the pm implant ? 

Read More...

pacemaker for autonomic dysfunction

Hi! I am a 22 year old female diagnosed with “autonomic dysfunction”, for lack of a better term for my symptoms. For years I’ve been lightheaded, bradycardic (normal hr for me is about 35-45), and low BP, as well as the onset of Raynaud’s phenomenon. I’ve been dismissed by about 7 different doctors, and told I was making up the severity my symptoms. I finally got a new cardiologist to do a tilt table, where I went into asystole for 13 seconds- and...

Read More...

Pacemakers and Pregnancy

Hi, guys. I'm 29 and have been wired for 5 years. I recently found out I am 5 weeks pregnant. My pacemaker has been going off a lot more recently. Does anyone have any knowledge or experience with pregnanacy and pacemakers ? Thanks !

Read More...

You know you're wired when...

A thirty-day guarantee is not good enough.

Member Quotes

I can honestly say that I am feeling absolutely amazing!