Most Recent Messages in General Posting

Remote Device check

Does anyone else feel terrible after a remote device check? I had my first remote one this morning and I have felt so exhausted and weak since they did it. My pulse is at 66, Oxygen at 96% and BP is 117/79.

My pulse will go up to 105 if I walk around, but as soon as I sit, it drops to the 60's. Feels like the top left front quadrant of my head is in a fog. Maybe 60 is too low of a pulse set?

I'm 67 and normally very active. Yesterday, Tuesday, I felt great and we hike...

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pacemaker and desktop computer tower

  I have a pacemaker (Aug 2019). 

I am having  a problem with the fan not cooling in my computer tower.  The repair shop said to bring it in to them.  In speaking with a friend yesterday.  She mentioned that she thought the tower might have magnets, in the tower.  Of course that means i should not carry it in.  Is that true?

thanks for your help.

new to pace..

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Two devices?

Has anyone made the switch from one type of device to another and been told they wanted to leave the first device in as a backup?  This seems odd to me, and perhaps a coverup of them not wanting to take the time to extract the first device;  I could be totally wrong and this might be totally logical, maybe y'all can help me out with this one?

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pm device

does anyone else has a monitor you keep at your bedside. and they aytomatic read it no sending report

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anxiety

Had my pacemaker two days ago.  Had a good first day home but today I feel so anxious again.  Anyone else newly paced and can compare notes.   Was not feeling ill before procedure but bought myself an Optimeter and discovered my heart was beating so slow.  Within three weeks I had received wonderful treatment from Royal Bournemouth Hospital and a two lead pacemaker fitted.  Was supposed to have three leads, but after three hours they gave up trying to fit th...

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Sick sinus syndrome

Hello everyone I posted before about how my heart is not fully using my pacemaker and that it only uses 2% I've had it for 5 months now, a week ago my doctor told me that I have sick sinus syndrome I guess my diagnosis with AV block wasn't accurate this is disappointing going through all of that for nothing... any ideas if my pacemaker will help me in this syndrome?

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non pacemaker person

I am not going to help those anymore who say they  did not want a pacemaker along with their phamton problem's.  They have wasted my time and yours.

  This website does need some type of upgrade so we do not have to be subjected to this abuse.  I know spammers can get around this, but we should make it harder for them to do so.  Such as you must  confirm to the email when it is sent to us, when that is back up.  Before you can post.  Or y...

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Co-vid vaccine

Has anyone had a reaction to the second Co-vid vaccine? I had a PM adjustment on Friday, turning on my Rate Respnse and lowering my pulse to 50 at night and 60 during the day. Saturday I had my second Co-vid vaccine. Since both, I have had a light headed feeling. My BP is 103/73 and my pulse is 80 sitting here at the computer. I did run a fever of 101 over the weekend and I know that was due to the vaccine. I tried a 2 mile walk yesterday and at the 1 mile point my pulse was 60 and...

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Do I need to see an Electrophysiologist?

My resting heart rate was in the low 50's for over 15 years.  But, I was always told that it was ok for it to be low, so long as the heart rate goes up appropriately during the day. (I had several occasions of wearing holster monitors, etc... over the years). 
 

My cardiologist implanted a loop recorder, this past September, and based on it's readings, said that my HR was not going up like it should during the day. So, less than two months afte...

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Joining

I joined and was told I needed to reply to an email to be a member, but I never got that email. It also says that when someone replies to my post, I will get an email alerting me and I never have gotten anything. Am I a member?

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CRT vs His Bundle

Anyone have some real life expierience with this?  Also, if someone already has found some papers on this topic you could save me some research time ;)

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Bi-V and heart function

Its been 6 days I had my ICD with Bi-V pacing and I went on couple of walks around my house (roughly 2.5 miles in 40 mins). There was a slight incline along the path and  my apple watch used to show  around 120 BPM once I get to the top of it.Now it shows just 100. I know its not a lot of data and I kept the same speed.It seems like with Bi-V my heart is able to accomplish more output at less BPM. Anyone experiece something similar? 

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T-shirt ideas

So the second year I had my pacemaker I had a friend with a print shop make me a bunch of tank tops for the gym that said "battery operated" on them.  They became some of my favorite wardrobe staples and now are disintegrating.  I am planning on making some new ones but thought I should come up with some new ideas.  I can't think of a better group to ask than all of you, I am sure you all have some great funny ideas for me!

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His bundle pacing?

The EP wants to try his bundle pacing one me.  Anyone with HFrEF make the switch?  If so did you get any significant improvements in cardiac function? A more difficult question would be did you get a mortality benefit from it or just an improvement in symptoms, or both?

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pacemaker moving?

I've lost 70 pounds in the last 6 months and have started exercising.    I'm getting pain at the location of my pacemaker when I move my arms sometimes. .  It's not my heart, it feels like the devise itself might be moving around some.   Has anyone experienced this?  I will call my doctor in a few days if it doesn't improve.   It's fine when I sit and do nothing.

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Coffee and alcohol effect

I used to be a tea drinker and switched to coffee during the pandemic. I also drink alcohol may be couple of times a month which I have stopped totally since 2021.When I asked my EP about the arrythmias produced by these 2 beverages he said if they cause anything bad  it would be consistent each and every time.Just wondering whats the best course going forward regarding coffee. I already had my last drink.

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Do you ever forget you have a pacer?

I have been thinking about something a pacemaker nurse said when I continued to have pain at 4 months after insertion. She said many people forget they even have a pacer. I didn't believe it then, and I don't believe it now. 

I still feel the pacer every day, especially if I do something strenuous, sleep wrong, or get too cold. I see the big lump on my chest every morning, I see the visible veins across one side of my chest, and can see that my arms are different sizes and...

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picking the right cardiologist

Hello everyone ive had a pacemaker for nearly two years and ive had my struggles, anxiety, panic attaks, palpitations, ect. Ive been through at least 4 cardioliogist who really didnt make me feel better about my concerns especially concerning my heart palpitations that i was recieving from time to time. I know i have anxiety and that might be a contributing factor but i wanted to be sure and the other drs would just brush me off. I met this one EP who i was referred to and turned out to be fa...

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After surgery hint

After my PM implantation, I was told to keep my left arm down for 6 weeks, but not to not use it or it would result in a frozen shoulder.  I was concerned for when I slept as I sometimes sleep with my arm behind my head. I came up with a solution. I had a wrist band that I put on my left wrist, then took a bathrobe belt and put it through the wristband, then around my waist. I tied the belt very loose, but it kept me from being able to lift my left arm, but I could move it enou...

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where did they go

Was wondering  wether  the 2 who were struggleing with copping with getting a pacemaker/icd.  Removed themselves or were dropped  by this forum.  As i wanted to sleep on my answer before writing to them. 

New to Pace

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Member Quotes

I just want to share about the quality of life after my pacemaker, and hopefully increase awareness that lifestyles do not have to be drastically modified just because we are pacemaker recipients.