Most Recent Messages

Sports

I got my surgery when I was 14 years old (currently 19) and I used to play a lot of sports and be super active, but since I got my pacemaker I feel really bad when I run or try to do any type of cardio. I talked to my doctor and he didn't really pay attention to it. When I try doing cardio my body feels really weak and my heart starts pumping really really fast. Does this happened to anyone else? If it did, how did you fix it? I hate not being able to do any type of cardio.

Thank yo...

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Heart rate

I have a crazy heart rate where it will jump high like this morning was 161 then fall to 48. Does anyone else have this problem? It worries me! Nobody takes it serious but I believe it causes my dizziness. I have unexplained dizziness. It jumps so quick that the pacemaker doesn't catch it when they interrogate he pacemaker but the pulse recorder on my watch picks it up.

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no hugging

today decided it would be better for me not to hug.  As was having pain in spine on my right side.  Explained to others why i did not.  All were understanding.  Also did not want someone resting their hand on my right shoulder.  Causing pain there in the right side of the spine was enough.

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Sacred

There was post about getting HF and third lead.. 

I'm getting dual chamber pacemaker for complete Heart block...I'm sacred that thos will increase risk of HF..and need of third lead.. 

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Atrial fibrillation & pacemakers.

Hi Guys,

have’t posted for a while, thought this might be of some interest.

Had my pm since 2009, a St. Jude, Zephyr, for Sick Sinus Syndrome. No problems. 

I have had paroxsysmal AFib since I was 22, now 73.

Few years back, started asking for a copy of the PM printout at PM checks. Read it and noticed there was an algorythm for AFib. It was off.

Asked why?   Answer....... doesn’t make much difference to most people.

Me....

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To my ...new...friends

Just joined ...the club...oct 25fh...did my 1st post...I JUST WANT TO EXPRESS MY THANKS TO..SWANGIRL...RIVITHEAD....THEKNOTGUY...AND TRACE-E FOR  ANSWERING AND GIVING ME SOME GUIDANCE !   NEVER EXPECTED TO GET A RESPONSE SO FAST  AND INCISIVE !  I ALSO PICKED UP FROM THE COMMENTS ....THAT A REGULAR HEART DOCTOR IS NOT THE SAME AS A CE...AND ONE MUST BE CAREFUL IN FINDING THE ....RIGHT..ONE...I’M TRYING.  ITS NICE TO KNOW  ALL YOU FOLKS ARE OUT THERE....AND...

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Worried about AV Block Progression.

I am still very new to all this - only had my PM since 13 August 19.  I was diagnosed with Mobitz II, but I keep on reading that a Stage 2 block can rapidly progress to a complete block.  Does anyone know what the chances are of this happening and what the symptoms would be if it happened?

Graham.

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Is it true...

Hello! I read that after being diagnosed with HF that you only have about 5 years to go with your heart. Is this true? Should I be counting down for my heart transplant? I think I am in stage 3 HF. I have many health problems which are not on my side. I have had my pacemaker/defibrillator for almost 3 years now. Will this help extend the life of my heart? Any thoughts? Have a great day! 

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Pace maker syndrome

Just wondering if anybody knows what the chances are of developing pace maker syndrome. My dual chamber St Jude PM has been in 3 1/2 years. Everything is fine says the EP. At 73 years old my ejection fraction is 50 to 54%  according to the echo. I asked about installing a lead to the left ventricle to prevent pacemaker syndrome. Cardiologist says " don't poke a skunk". What percent of users of a dual chamber PM develope this condition? I have read anywhere from 5% to 8...

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Pacemaker

I bumped my pacemaker yesterday while hugging a friend and it hurt.  Now the site and everything around it hurts.  If I damaged the leads or anything how would I know?  And how much tylenol can I take for the pain?  I just received this 6 weeks ago so I'm totally new at this.  My arm pit hurts in the crease by my shoulder.  Is that normal too?  This is all new to me and pain is bad.  Will it get better or should i go to the urgent care?  I'...

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Pacemaker "Timed Impulses"

I had a pacemaker implamted in early July.  Since implantation I've experienced strong electrical impulses on average at least once daily.  These "events" last for approx three minutes each.  The wierd thing is that they each only happen at five minutes after the hour.  I don't detect any pacing "events" at other times.  There is no pattern of the specific hour only at :05 after the hour.  These events will be strong enough to wake me...

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6month interrogation ...pacing %%%

My atrial has been pacing at 77%  and my ventricular 30% since implant Dec 17,2018. My latest check up..interrogation ..Sept. 12,2019 shows a dramatic increase in ventricular pacing...it jumped to 86%. My atrial remains the same.  77%. SHOULD I BE CONCERNED WITH THE INCREASE.  I know it can fluctuate .  My doctor did not mention this until I pointed it out. I am concerned that something is going on with my heart..when I asked him why it was happening ...and so...

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Upcoming Pacemaker and AV node ablation

Hello everyone. This is my first post. I'm hoping to get a positive response to my question. 
I have had persistent a fib on and off since 2007. Two ablations, numerous cardioversions, mitral valve repair 3 years ago. Some of you may know the drill.

I am scheduled for a pacemaker and AV node ablation in three weeks. 

My question is:  

Has anyone had this done, and what was the outcome?  I have read that some people still experience tiredness. &nb...

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hearing

Was wondering if anyone noticed that their hearing improved after PM implanted?

mary

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Energy

I’ve had my pm for five months and have had an issue of energy when playing Pickleball. I’m trying to determine if it’s old age (81), incorrect eating habits of low energy foods, physical conditioning, or needing pm recalibration. I play highly competitive three days a week and used to play 4/5 days a week before moving to current location. My issue I just seem to lose energy and get weakness after playing the first game and it gets worse the more I play. I seemed...

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Vo2 Max Test After ICD Adjustment

I am scheduled to have a Vo2 Max test (which I hate) 4 weeks after a third wire is going to be placed in my ICD. Do you think 4 weeks is too soon to have the test? Just not sure it will give me enought time to heal and to show any improvement of my heart function due to the third wire. The Vo2 test was scheduled prior to my third wire placement appointment.

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25, nervous, & 2 weeks away from surgery..

Hello all! This is my first post here so bare with me.. I'm struggling with accepting the fact that I'll be getting a pacemaker at only 25 years old. I have congenital heart disease.. more specifically born with an atrial septal defect which was surgically corrected via open heart surgery when I was 1 1/2 years old. Ever since then I've been dealing with symptoms resulting from bradycardia even when I do something simple such as walking.

 

I was so young when...

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LIght Therapy Treatment for Psoriasis

At about the time my pacemaker was implanted, I developed a bad flare of psoriasis on my legs and arms. The dermatologist has prescribed UVB Light Therapy 3 times a week - approximately 10 seconds of light per treatment. I know this light is far more intense than a standard tanning bed. Has anyone had experience with this? The dermatologist says that there is no interference between the pacemaker and the therapy, but I'm always a bit skeptical when one specialist talks about how her/...

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Defibrillator and ionic foot detox bath

Has anyone with a defibrillator ever used one of the foot detox baths? These are the foot baths with a metal array in the water. I checked with Medtronic, the manufacturer of my pacer, and they recommended that these foot baths not be used, the fear being that the defibrillator would discharge in response to the activity of the metal array.  The rep could not tell me if a defibrillator had discharged when a patient had used the bath.

Thank you.

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Recovery time

I am a 68 yr old female had a pacemaker put in 5 weeks ago I still don’t feel great   Just wondered how long is the average time to bounce back I had a full electrical heartblock

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You know you're wired when...

You have a T-shirt that reads “Wired4Sound”.

Member Quotes

To tell you the truth I never even give it a second thought. While growing up it never stopped me from doing anything and to this day my girlfriend or my kids need to remind me that I have one!