Most Recent Messages

Pace maker discomfort

Just to say thanks for messages so far replying to my request for advice

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Pacemaker discomfort

Hi everyone I had my pacemaker implanted on 03/04 2019 I’m in quite a bit of discomfort it feels heavy in the area it’s implanted I’m getting pain in my collarbone and left shoulder and sometimes the left side of my chin and my left arm feels stiff does anyone know if these are normal symptoms for the time I’ve had it done and if it will get any easier I would be grateful for any advice or tips that may help thanks in advance.

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Earbuds

I received an ICD ten days ago.  Can I use regular plain ear buds without interference?  Thank you.

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Icd with SS and LTD

New here and thanks. Drove a truck for the past 20+years. Had my CDL since i was 19yo, i will be 43 tomorrow. Back in July 2017 had an episode where i didn’t feel good at all. Called my boss and locked the truck up. AMR took me to the hospital and i haven’t worked since. EF at the time was 20%. Cardiomyopathy, severe heart arrhythmia, and diagnosed with CHF. My EF is now 55% with meds and the icd. Arrhythmia is still there but not near as bad as it used to be. My CDL is dust...

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Icd with SS and LTD

New here and thanks. Drove a truck for the past 20+years. Had my CDL since i was 19yo, i will be 43 tomorrow. Back in July 2017 had an episode where i didn’t feel good at all. Called my boss and locked the truck up. AMR took me to the hospital and i haven’t worked since. EF at the time was 20%. Cardiomyopathy, severe heat arrhythmia, and diagnosed with CHF. My EF is now 55% with meds and the icd. Arrhythmia is still there but not near as bad as it used to be. My CDL is dust in the...

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Negative Effect of Rate Response on someone with Pacemaker Syndrome

I've had my ICD now (on my third one now, a CRT-D) for 10 years.  It did it's job with a few shocks early on but VT is fortunately mostly a thing of the past.  However over the last 5 or so years I've become quite symptomatic (low blood pressure, syncope) when BiV paced during activity.   I thought is was just progression of cardiomyopathy but I couldn't get out of my mind that it was pacemaker induced (I had all  the classic symptoms of Pacemaker Synd...

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Error with transmission

Having trouble sending a transmission with Medtronic transmission device. Keeps giving error code 3230 and won't send. Never had a problem before. Did watch a youtube video on how to remedy this. Did as it said but it didn't work. Anyone had any problems with this?

 

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Breathing and bumps

Had my PM 10/19 and there are times it feels like I'm trying to catch my breath. It's not like grabbing my chest shortness, but just feels like I need an extra deep breath. Also I've noticed that my PM feels like it's more bumpy than before. When I had mine put in it didn't seem like it was so close to the surface. Now I can feel all the bumps and ridges of the PM and it's seems like there is a burning feeling every once in awhile. Not like fire burning but it's a...

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Skin Rash During Recovery?

Has anyone else been beset with an upper torso skin rash immediately after a PM implant?

I've actually had two implant ops, a week apart due to the first right atrial lead dislodging and pacing my diaphragm. Heart wise, Take 2 seems to be doing splendidly. But after this one I've had a spreading rash accross my upper torso including areas that no tape had touched.

Same prodedure, same materials, same drugs and only one week apart, yet I'm giving myself a Cortizone-10 c...

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32 and wired!

I’m 32 and 5 weeks ago after having my baby they found that a had ventricular tachycardia by coincidence. I had to have a c section so I was hooked up to a heart monitor and as I was laying with my baby in the hospital bed talking to the nurse machines started going off and the nurse kept asking if I were okay and or going to pass out? No, I’m fine was my response but the machines kept going off. Finally she called the on call doctor and she kept saying that she’s in vtach a...

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Throat Pressure/ difficultly breathing

Hello! ( Apologies for the lengthy post)

I’m  a 33year old  female. I had a PM implanted (for a completely AV Block) about 8 months ago and things have been pretty stable since then (asides the post-op pericarditis which cleared up quickly).

However after a few months I started experiencing a pressure in my throat which comes with some difficulty breathing (especially when eating). I have discussed this at my follow visits to my cardiologist and cardio Nurse but th...

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Fatigue

Between the effects of Bigeminy, low blood pressure (94/57) and the antidepressant drug, Zoloft - the only thing I feel like doing everyday is setting up camp on the couch due to fatigue. Any suggestions? Docs are all saying "hang in there!"

--Dave--

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Pain after surgery

I'm brand new to this group. I just turned 51 and was told 9 weeks ago i have cardiomyopathy. After several tests, angiogram, cardiac mri, chemical stress test etc they found i had a blockage in my circumflex artery. I was awaiting the stent procedure this month, was scheduled for May 9, 2019. On May 5th i passed out from Ventricular Tachycardia, was brought to hospital where 4 days later had an icd implanted. It is now approx 17 days later and i am in so much pain in my left shoulde...

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Pre pacemaker one week out

I am new to the group but love reading all of your stories.

i was told a week ago I need a pacemaker. I have bradycardia and or SSS.

i am 60 years old and usually pretty active. I work full time and enjoy life.

i find myself now sitting here waiting and the anxiety is real. I just want my normal back. I my bpm goes up and down lows 42 to 80's but when low just want to sleep or am so dizzy. Sometimes feel nauseous with this.

anyone out there that can share what I am...

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Lasik rejection due to ICD

Went to get evaluated for Lasik - but was rejected due to my ICD - was told that the laser equipment may interfere with my ICD (not the laser itself, obviously)

Anyone else experience this? Any alternatives or Opthalmologists that DO perform Lasik in an ICD friendly setup?

 

 

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Right side neck pain / difficulty breathing post PM

Hi all. Im 49 and just had a. PM placed 10 days ago as a result of syncope.  The PM site is now healing well in spite of a nasty staph infection post surgery. For about the past 5 days,I’ve been having right side neck pain every evening that remains throughout the night. The pain doesn’t worsen with movement and comes with severe difficulty in getting a full breath (almost like when you have to yawn but can’t). Weird I know but this has only been since the PM...

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New pacemaker

Hi ,i have just had a pace maker fitted and was told to limit left arm movement for three weeks but i see that some on the forum have been told six weeks. Does anyone know why the difference. By the way it’s easy to forget and raise the arm above the head eg dressing etc, so i use a trouser belt around the torso and upper arm which allows me to use my forearm but not my upper arm. Looking forward to your input.

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Pacemaker lead extraction

Hello all, my first post here on the pmc site.

I have been the lucky recipient of a dual chamber pacemaker since 2012 just after my second aorta valve replacement!  I am paced 40% on top and have a fully blocked AV node.   I was recently told after my pacer checks a few months back that battery life is starting to go down currently @ 2.89 and my upper lead the impedance number is changing and starting to go low if I understood that correctly, which they believe Is ca...

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Travel insurance

I wondered if any fellow pacemaker recipients could recommend any travel cover companies?  I know there are some pre existing condition policies out there....would be good to find a fair deal for a declared condition.

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PM Activity - More While Sick?

Has anyone noticed their pacemaker going off significantly more while sick?  I’ve had rather upset stomach this weekend, fatigue,  dizziness, etc. (maybe the flu?) and have noticed my pacemaker kicking on quite a bit more than usual.  Is that normal?  

I know most people can’t feel theirs “turning on” but I can most definitely feel mine and it’s adding to an already queasy feeling.

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