Most Recent Messages

1st day of cardiac rehab

My mom: CRT-d implanted March 2018.  Being tested for heart transplant due to ef of 20% along with NYHA class iii symptoms. Cardiopulmonary stress test seems to indicate transplant is in the future. Let’s prove them wrong! 

Started cardiac rehab yesterday. Bp was a bit low 84/49. She felt fine so they let her start. 10 mins walking on treadmill. Kept her hr below 106bpm. She said afterward that she was disappointed in her performance - I reminded her that it was onl...

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Strange/Irregular/extra strong heartbeats with new PM

I'm a newbie here and would appreciate some input....I'm currently 66 years old and have a background of 30+ years of Atrial Tachycardia. It was mild at first and episodes were short in duration and most of the time the Vagal manuevers would stop them. In the past 6 months, the episodes had gotten progressively worse and lasted as long as 2 hours. I'd have heart rates of 180+ BPM long with light-headedness and difficulty breathing while simply sitting in my chair. We tried a numbe...

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Electrical Like Sensations

Good morning- Just wondering if anyone has experienced this. I have had this sensation awhile back and now am experiencing it again. It is like I am feeling some sort of electrical impulse in my heart. Scary feeling to say the least. I have PVC's at times but this is totally different. At times the sensation is mild and at other times quite strong. I have had a holter monitor on to try and catch these but you know how that goes....didn't have the sensations or when I did they didn'...

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just a bit of advice please

Morning all from Suth Africa. Had a dual paced pacemaker for just over a year and making a huge positive difference. Recetnly, not feeling so good - heart rate jumps from 52 to 130 and then back again, feelzing dizzy, have palpatations. no blood pressure issues, not on any Meds at all.

Had a full check-up at hospital - they found nothing, saw my cardilogist, nothing. Has anyone else had these kind of issues - no longer sure what i am feeling is real or in my head.

any advice would...

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Is what I'm feeling normal?

Today was my first day back to work after a 4 week break given to me by my Dr. after my pacemaker implant. I work in maintenance for an apartment community so Im moving arund all day doing all sorts of things, from cleaning grounds to fixing A/Cs and appliances, etc. All day was mostly good with some moments that I felt a lil tired. Im asuming it is because I havent lift a finger for what seem like forever, until I started working then felt like too short lol.  But my...

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PVCs and Incision site keloid

I am 49 years old and received a PM implant in January for SSS. During the process of diagnosis, I found out that I have irregular heartbeats (or extra heartbeats?) or PVCs. I am more aware of PVCs after the implant. Or now when I don't feel completely ok, I know I am having PVCs. I feel them almost every day for a little bit and they go away. Sometimes they last for a few days and make me feel uncomfortable. When they are more severe, I feel them in my throat. I have talked to my EP...

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Weak legs

I had pacemaker implant about 5 weeks ago because of low heart rate. Ever since then I have had extreme weakness in both legs every day while standing or walking. My quality of life has only gone downhill since then because of this problem. Has anyone else experienced this problem after pm implant.

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Regular Shocks

I suffered from consistent disturbing electrical shocks like clockwork daily and hourly at my sternum after the placement of my pacemaker in. ( lower heart area ) for more than a year. My cardiologist kept telling me throught the year that it is all in my head. I insisted on a check by the St Jude's tech. They found issues. To make a long story short, there are issues I am having due to sensitivity. I feel every pace, sometimes intensely. Since the leads have been in for more than a year...

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Swelling in left arm

Has anyone experienced slight swelling in their left arm ? I received my device 6 months ago.

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L311 pacemaker

I had the implant one year ago after valve repair.  For five months or so I was satisfied with the pacing it provided for walking and even hill climbing.  I never could bike, however.  I got no increase in heart rate even up hills that were dificult.  I left the country and after a month the pacing changed dramatically:  if I swung my arms at all my pulse jumped to 140 (max limit) after a short time of slow walking.  I determined after some experimentation that I...

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Pacemaker and contortion?

Hi! Im only 20 and ive been implanted with a pacemaker two weeks ago. I was looking for opinions on if i can do things like contortion, gymnastics, etc once im fully healed? I will be asking my doctors their opinions as well but wanted the opinion from other pacemaker patients as well. Thank you!

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Thanks for everyone's help!

I got my PM last July and I have been doing well, so when it came time for me to get my yearly mammogram I didn't give it a second thought I've had a few and it wasn't too bad so this shouldn't be any different. I really do forget that I have a PM until I'm bathing or changing clothes. Well just as I'm falling asleep I remember that I have a PM and that I have no idea if it's dangerous for me to have it done. I'm supposed to have it done tomorrow morning a...

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New fitting next week

Hello everyone!

I’m very new to this. My doctor recommended dual chamber PM because of sinus node dysfunction.  Have pauses that were linked to symptoms. While I don’t feel them anymore and I felt the symptoms were related to something else, I did finally decide to go ahead with the device because my heart rate is very low - usually in the low 40s or high 30s during the day. I don’t feel fatigued at all. Can go from 6am - midnight without feeling tired or resting....

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defib going off?

Well today is m daugter's 29th birthday and I tink I experienced my first shock,  last Wenesday and Tursday I had to be interrogated.  Still can't drive my car or go sopping in mall or go near some electrical appliances without problems,  Yesterday I can swear I was shocked when i went to turn off light.  I've been having multiple pvc's and today while resting i felt beep beep beep beep then after te third beep 4 zzzz. no pain just slight zap. Called EP he...

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A Newbie from the UK.

I found this club a couple of days ago, and already a couple of questions have been answered. I now know that the rather lumpy  area over my PM  will probably get much flatter, also it is quite normal to still feel pretty tired  12 days after the implant - being 74 next month cannot help!  Grateful thanks to the  founder and the members of the club.

Typical story here - I felt dizzy, husband realised my pulse was  very slow, spoke to emergency services...

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After procedure

I am 35 years old and up to a year ago everithing seem to be fine with me. Even though Ive always been a lil on the over weigh side... well maybe a lil more than a lil, Ive always been generaly healthy. All of a sudden last year the dizziness and chest pains started, usualy when I was resting. My heart wasnt beating fast enough causing me to be tired all the time and feeling dizzy and having really weird and irregular heartbeats. I was going to Drs back and forth to try and find out...

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Memorial Day Rememberence

I would like to offer to place roses on grave markers at Willamette National Cemetary, in Portland, Oregon.

Just send me the name and date of loss.

I will be going up to Willamette National in 3 hours and again early Monday morning.

I have lots of roses, peonies and rhodies.

Sorry this offer is so late this year, I seem to have a flu bug that is being difficult. The only good thing is my CRT is working great.

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Heart block

New member

Any one been given diagnosis of ideopathic low adenosine heart block (child) ? Apparently it’s rare, don’t know much more than that,  so any help greatly appreciated.  

I’m a parent of a child, soon to be fitted with pacemaker. Curious to hear from other parents, especially in terms of how much restrictions are on them playing in playground and activities. Can children still do dancing, gymnastics, press-ups,  cl...

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incision site care

Hi. I’m fairly new at this. I had HIS BUNDLE, 2 lead pacemaker implanted just 4 weeks ago. 

I had the glue over my incision instead of bandages and I did leave on for over a week. 

My question is, how soon can I start to use Mederma or silicone patches. The area is still very sensitive and sore. I find myself using gauze w loose fitting bandaid to keep some clothing from irritating it. Seatbelt is still a problem and use towel to cushion.

Any suggestions woul...

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still fainting

I am x4 week in and have fainted twice post pacemaker.  I have had it tested once and was told was working ok but very little information.  I have to get it tested again next week.  I am still passing out and because they took the cardiac loop out when they put the pacemaker in  I seem to get very little information re these recent fainting episodes.  They do not seem able to connect time and dates etc.

I am very worried that I went through my procedure for...

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You know you're wired when...

The mortgage on your device is more than your house.

Member Quotes

This is my second Christmas with my pacemaker and I am so happy to be with my family.