Most Recent Messages

Dolphins, dolphins, dolphins

Hi All:

Couple months ago I asked the "dolphin" question.  There was quite a relay back and forth about different species of dolphins, and some of you actually gave me some good advice on whether I could or should swim with a dolphin. .  I went to the Dominican Republic in January of this year.  I kissed a dolphin.  I shook "hands/flippers" with a dolphin and I hugged a dolphin.  They said I couldn't swim with one, but I did what I though...

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My story/New device

Hello newbie here,

 Two weeks post op of CRT/ICD placement. The past 6 months have been a worldwind for my family and I. It began with vaca with the hubby. A 5 night cruise in which i was sick the whole time. Came home and went to the ER and was diagnosed with "travelers diahrrea" sent home on antibiotics which did not help. Went back and CT of abd done which revealed mass on uterus and ovary. Fast forward, had hysterectomy and my GYN found 500cc of fluid just hanging aro...

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IV Therapy

I got my PM on January 7, 2019. I’m wondering if it’s ok to get IV vitamin therapy tomorrow (3 weeks post PM)? I’ve been feeling dehydrated and want to get the basic IV (Meyers cocktail) added with gluthione. Feel like after all the blood work and xrays ive had the last few works could do with some IV vitamins, minerals and gluthione. Any thoughts would be most welcome. :)

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Improved Pacemaker Replacements

I'm on my forth pacemaker and it will need to be replaced in the next two years.  All previous paceamkers had a problem responidng to transients like running uphill.  My current minute ventilation two lead pacemaker will support constant exercise but responds slowly to abrupt demand changes.  In the last five years has anyone solved this generic problem?

Ideally what I'd want is a device that accelerated quickly to increases in breathing rate or G level and ever s...

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declining pacemaker

Thank you to the people who responded to my question about whether declining a pacemaker would lead to a pleasant quiet death.  One person warned me about driving, and I want to assure him that my vision is now too poor to drive, so I don't own a car.  

It seems that the pacemaker makes life better, but doesn't necessarily extend lifespan.  I'm on the hospital waiting list at present, so I have time to think about what to do.  Thanks again - it&...

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Extreme pain during surgery!!!

New to the forums and this is my first post!! I'm due to have some upcoming procedures that are normally done under local anesthesia and it's making me very anxious to relive what I went through with my pacemaker, while researching I came across the club here and thought I would share my experience and see if anyone had any advice.  

So my story goes something like this....

Endocarditis in August of 2017 caused me to have a tricuspid Valve replacement, during rep...

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One month follow up!

Bonjour fellow PCMs!

I had my one month follow-up today for my CRT-D...all went well and i also got my staples out...my bday was on the 22nd...so Happy birthday to me! Haha 

God is Good! 👍😁

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AFib

Hello,

I have had my pacemaker since 2010.  At my recent interogation, my cardiologist said he saw an episode of AFib from last March, so almost a year ago, and the weird thing is it happened on daylight savings day.  Before that, I had AFib in 2010 when I took a stress test before I had my pacemaker put in so I was out of breath on the treadmill.  No other AFib in 9 years.  Now my doctor wants to put me on Xarelto to prevent a stroke, but I'm so reluctant/scared...

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Protruding pacemaker

Hello everybody! I just want to say thanks in advance for any insights you're willing to share. It's comforting to know there's a community out there.

So, I just had surgery to replace my pacemaker for the second time (this is my third pacemaker) 11 days ago. My concern is that my pacemaker isn't fitting into my pocket the same way the other ones did?! This new pacemaker is the same model and size of my last one, but instead of laying flat it's protrud...

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declining pacemaker

I had triple bypass 2006, atrial fibrillation since then, prolonged QT, now very slow heart rate at times, and pacemaker advised.  I want to know this: if I decline the pacemaker, would I probebly die quietly either in my sleep or at some other time, perhaps suddenly.  I'm 78, life is difficult, I'd be quite happy to die.  Does anyone know the answer to this question, please

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Altered sleep

Has been 3 weeks since dual wire pacemaker implant. Main concern has been frequency of waking episodes at night time. Pacemaker had been set at 60 bpm, yet my normal sleeping heart beat is much lower. Due for first tune/up in 3 weeks. Would lowering the minimum rate improve sleeping or create other unwanted issues? Had been anxious about this early on with consequent bp elevations.

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exercise with pacemaker?

I belong to Curves and want to know if I can continue with their program?  I have had my pacemaker for 2 weeks.

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Backup to pacemaker battery life?

Since August 2018 I have had 2 check ups and both times was told I had 9 months left on the current pacemaker battery. In November they went as far as to tell me that I would be called in for a replacement either just before Christmas or in the New Year. Beginning of December I rang as I had not heard anything and was told another checkup was scheduled for end of January and "not to worry as the pacemaker has a guaranteed back up of 3 more months when the battery ends". I rang again...

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statistics on ICDs

How come there seems to be no statistics on al things related to heart conditions and ICD stuff? Almost every question I asked specialist and cardiologist  was answered with there are no statistics yet. With computers and new ways of compiling data, how could there not be more info on numbers on this topic?  Perhaps all medicine is like that?

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Improving Scarring

I had my third pacemaker implant surgery about a week ago. The first was when I was 2, again at and twelve and then now at 22. 

The past ten years I have worked very hard at healing my scar and not being affected by it. I got to a point where it didn’t bother or I hinder me in anyway, sometimes I even forgot it was there until someone asked me about it. But now I have a new scar and it’s bringing me back to how I felt at 13. My new pacemaker is also...

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Help with VT

Good Morning. I’m writing this from the hospital and need some help. I received my Dual Chamber PM 7/26/18 and had no issues whatsoever until 1/05/19. While drying off my dog I stood up and went into VT. It was prolonged (30+ minutes) resulting in a trip to the ER and overnight stay. I was discharged and had a subsequent VT about two weeks later while putting my duvet cover on my duvet  

EP has just told me he thinks my lead may have punctured my septum but says that is not t...

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Moving a pacemaker

I have had my pacemaker since October 2018. I have had increasing swelling of my left arm since the surgery. I initially though it was caused because I had breast cancer and lymph nodes removed 20 years ago. But it is because the PM lead is causing an obstruction in a vein. I had a vascular surgeon attempt to  increase the flow using a balloon procedure. This did not help. One option I have is to move the pacemaker to the right side. I would welcome any advice on the subject.

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Heartburn lasting days

Hi all, I've seen a lot about heartburn on here but still had some questions I was hoping might be answered. I've had my PM since I was 6 months old, now I'm 20. I had a bicycle stress test about a week ago and a check up, I am due for a new unit in Feb. Three days after this I got bad heart burn that has consistantly lasted the past four days, pain that gets worse when I take a deep breath to the point where it wakes me up and I'm taking very shallow breaths cause it'...

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Training with a pacemaker

I am 65 year old a competitive masters rower, with 2nd degree AV block, had a pacemaker for 5 months. HR max is set at 170, the max I could get to prior to AV block. 

The HR max I can get to so far is 156, so it must be physiological not pacemaker limited. The odd thing is that when I do  aerobic limit training 40 mins at HR <145 3 times a week, I am not seeing any improvement in performance over 1 month. Prior to pacemaker I would see clear incremental impro...

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Swallow Syncope, Deglutition Syncope anyone?

My doctor gave me the choice of getting a pacemaker or not (but says he recommends me getting one). (I am also going for a 2nd opinion). Apparently I have a rare condition called "Swallow Syncope". (Essentially, this is not a "heart" condition, but the vagus nerve is over stimulated upon swallowing solid food which leads to complete AV block and occasional syncope.) I want to know if anyone has a pacemaker due to this condition and if so, do you notice you have more e...

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You know you're wired when...

The mortgage on your device is more than your house.

Member Quotes

I finished 29th in London in 2 hours 20 minutes 30 seconds which is my fastest with or without a device so clearly it didn’t slow me down ! I had no problems apart from some slight chaffing on my scar - more Vaseline next time.