Most Recent Messages

Still sore after 18 months

Hi Im a newbie from England. I had a st Jude fitted 18 months ago,  I suffer from fibromyalgia and although I told the surgeon that, he still insisted I didn’t need a general anaesthetic so it was done by local anaesthetic and I felt some of the surgery,  The pacer and area around it is still sore after 18 months, and I don’t think they pushed it in far enough as the surgeon realised I was in pain during the procedure, but on repeated appoin...

Read More...

Recovery - still short of breath

Hi everyone,  I am a newbie.  I had my pacemaker put in on July 24th.  Just to give a little background - I have a rare disease called TTR Amyloidosis. It's where amyloids attack my heart and stiffen it, thereby making pumping of the heart an issue.  As a result I am in a clinical trial study for my disease.  I have been experiencing a lot of shortness of breath of late and the usual symptoms of congestive heart failure, bloating, etc..  My doctor suggested t...

Read More...

Can I take the stairs in my apartment and office after my pacemaker inplantation?

Can I take the stairs in my apartment and office after two weeks my pacemaker inplantation?

Can someone help me with their experience. How long should I avoid these things and all.

Read More...

Is the pacemaker extraction procedure done in India?

Is the pacemaker extraction procedure done anywhere in India?

Specially the one using laser?

Read More...

Simple question

Can anyone tell me if that is a magnet they lay over your pacer when they interrogate?  Mine in a St Judes. 

Read More...

Incidence of lead fracture for pacemaker recipients who row

Aloha, all!

I was wondering if anyone has found data on incidence of lead fracture for pacemaker recipeints who row.  I just had a pacemaker implanted a week ago (subclavian placement) and my EP indicated returning to rowing would not be a problem.  However, it seems like many professionals recommend against rowing.

I am a single sculler, and a typical practice schedule for me is 25k-30k, 6 days a week.  I love rowing and hate the thought or reducing training volume...

Read More...

Bras after getting a pacemaker

I am very large chested and am worried about disturbing the placement of my pacemaker and leads once i put a bra back on for the first time as I have heavy breasts and the placement of them is much higher on my chest when wearing a bra. Im not sure if the dr took this into account since i was braless at the hospital and they were much lower and out of the way during surgery. Please let me know if you have any experience from this dilemma. Ty

Read More...

Hello

Hello everyone. My Name is Tess. I am 47 yrs and just got my double chamber pacemaker in on July 24 2019. I have sick sinus syndrome due to sa node dysfunction wich made my heart rate stay around 30's - 40's. I am enjoying being a new member.

Read More...

New Pace Maker

Hi...I will be getting a new dual chamber pace maker Wednesday.  What changes should I expect immediately ?  Hopefully more energy, less shortness of breath??   My current heart rate  is 48 to 51 average... Holter showed range of 39 to 100..Am I expecting too much??

Read More...

Leaving Work

My primary care physician said that I work too hard and might consider disability.

I have had my device for 4 months today. I returned to my job  2 months after implant and ablation. I am working full-time but by Friday I am exhausted. I spend Saturday in bed giving my body the rest it seems to crave. Episodes of PTSD still exist but lessened. Though I am acutely aware of my heart beat. Because my issue appears to be genetic it's not going away, prompting me to dance between &q...

Read More...

Aggressive heartbeat feeling in stomach 3 days post op. PM.

Hello,

First time biven pm patient here due to a left bundle branch block, pvc's, history of heart failure and cardiomyopathy. I am very sore due to placement on a left frozen shoulder and finding recovery a bit overwhelming. My newest symptom is a very disturbing pulsing in my stomach which I'm guessing is diaphragmatic pacing but I have only heard this in people who have pm's placed behind their stomach so I am perplexed. I have them 4-5 x/daily and sometimes it pulses so...

Read More...

Left breast cancer and radiation with PM

I have read a few posts asking for experiences with radiation on the left breast after a lumpectomy, but have not seen many actual experiences of people who did have the radiation. Can anyone tell me if they had it without moving the PM, and if they did move the PM where did they put it and was is unaffected by the radiation? I will be meeting with the radiologist oncologist this week, but would love to hear personal experiences.

Thank you. 

Read More...

pacemaker

If a pacemaker with intermittent faults - eg intermittent spurious pulses, mark space ratio variation, amplitude variation etc and / or intermittent lead problems - is it possible that this could  trigger atrial fibrillation and other heart beat irregularities.

Read More...

Pacemaker side affects

I need the wealth of all this pacer experience. I have had a pacemaker/ICD for about 18 months. I’ve never felt whole with it, but I kept a good attitude and resumed my life. 

That is until last Monday. I recorded multiple VTs that almost caused me to faint. Ac

companying this is a tiredness, weakness, and shortness of breath I had not experienced before. I  checked into the ER where they conducted tests and released me with a clean cardiac bill of h...

Read More...

New tachy-brady diagnosis

Hi all,

I don't really know what to say, I feel a bit overwhelemed.  I was just diagnosed with tach-brady syndrome which was a shock.  I've had heart palpatations since my mid teens, I'm 37 now.  I just mentioned the palpitations to my pcp because I've lost a lot of weight and have been feeling anxious lately. The weight loss was intentional, I was 460 pounds now to 260. I wore an event monitor for a month but the cardiologists office called after a week t...

Read More...

squishy lump

I recieved a new pacemaker last week because my previous one (of 10 yrs.) was just too irritating. I'm thin and the connectors ends would feel like they were poking through my skin. It was implanted slightly higher than normal. My new Dr. agreed to replant a new one, slightly smaller than the current one and put it a bit further down and also suggested using a pouch to pad it since I am thin. OK, its only been 11 days but this thing is so bulky. I think he implanted on...

Read More...

Auto lead testing

I have an ICD and have had 15+ shocks, and am nearly 100% paced.  During check ups when they test my leads, i am very sensitive and feel as though i am about to pass out or get a shock (because during the test, they turn off my pacing and i can feel loss of blood in my head quite quickly).

For years i would randomly feel as though i was about to get a shock, but wouldnt and nothing would show up as an episode on my interogations at the time i documented the event.  

Read More...

Ejection Fraction

Thank-you for your information. It's greatly appreciated!  The cardiologist is telling me that my ejection fraction is lower-he never once has mentioned circulation.  This is so confusing to me.  He makes me feel like he just wants to make money.  They are also saying that my afib is making my heart weaker.  I have had Afib since 2003 and an Electrophysiologist at Johns Hopkins said I can't have an ablation.  I have a CRT-pacemaker.  I was alway...

Read More...

Rate responder

i got my PM 5 years ago at age of 46 for slow heart rate. I’m a runner and have had the rate responder adjusted three times because about 8 mos after an adjustment I begin to feel gassed out during my workouts. Last week the tech told me she adjusted the rate responder to its max setting. I am still feeling winded during slight exertions. Anyone else experienced similar condition? Also, read a posting about thumping the PM to make the accelerometer more responsive during workouts....

Read More...

Pacemaker

Just had my 3rd pacemaker put in on 7/17/19. All has been going well. The last two days, left arm, shoulder aching. Some nausea, and lightheaded. Pain in chest 3 times during night that woke me up. Anyone else experience this??

Read More...

You know you're wired when...

You have a shocking personality.

Member Quotes

It's much better to live with a pacemaker than to risk your life without one.