Most Recent Messages

Battery life

how do you know when your battery is getting low what signs do I need to watch for 

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Medtronic Pacemaker Vibrated

My pacemaker just did a slight vibration. Does anyone know what that’s an indication of? I searched the internet and it’s confusing.

 

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YEAR AFTER PM AND MY LEFT SHOULDER, LEFT ARM, NECK HURT.

 A year later and having pains in my left side.  Cant even sleep on my left side. The pain radiates on occasion from the pacemaker area, to my neck, to my left arm.  Sometimes its just nuts.  Any on else??

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Needed help sleeping the first few weeks

So I'm 3 months post op and I was just remembering that on the first weeks after the surgery I had to put some show on netflix so I could go to sleep. To give a little background, I've never been someone to need a nightlight or sounds to fall asleep, but if I'm sleeping with someone and they wanna watch tv while I sleep I've never had an issue with it, even though I'm a relatively light sleeper. Also for the surgery I was extremely calm, despite everyone around me bei...

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Pacemaker protection

Has anyone tried the vital beat protector?

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CRT

3 months on LifeVest. Beginning 4th month. Awaiting nuclear scan, then to meet Cardiologist for decision. I have more frequent weakness, tiredness. Spend so much time having to lie down. HR very up and down, even low 30’s. BP very up and down, can go very low. EF mid 30’s varying. NICM. Subendocardial damage low to mid left ventricle, not transmural. Septum not squeezing, but hopefully, this is electrically correctable. PVC’s many, IVCD’s frequent, LBBB. 

...

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Are you being hacked ?

There is yet another hacking scare in the UK press this morning.  This one concerns a security flaw which affects 16 separate models of Medtronic defibrillators. It seems that these faults mean that the MYCareLink Monitor enables a hacker to intercept the radio frequency communication to your implanted device.

Nothing to worrry about though it only means that a hacker standing no more than 20ft from your home could give you electric shocks or drain your defibrillator battery ! &nbs...

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Overdrive pacing

Does anyone have overdrive pacing on their pacemaker and why should it be on? 

 

Liz

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ejection fraction

My latest news is a well connected and working CRT device BUT poor jection fraction still 25-30%...how should I interpret this..any views appreciated..?

 

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Micra Placement

Who out there has this device and what is your experience so far?

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ID card

I went on holiday to the Canary Islands recently, going out ok as I could passed through surcurity ok with no problem but coming back I had to show my pacemaker medical card which as you know  the uk is a dog eared card the longer you have it the more dog eared it becomes. Has anyone found a company that will produce a plastic I’d card for pacemakers

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Voltage on the leads

I had an AV block resulting in a low hearth rythme of 37 during sleep. I now have my two lead Medtronic pm for one month and everything seems fine. Today during my control visit however the doctor told me that the upper lead uses 1 volt and the lower lead is using 3 volts and that they prefer to move this lead into another place in my heart to get to a lower voltage. My question, is this really necessary? Is the lead not well attached or is it not my heart t...

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Ejection Fraction and Pacemaker/ICD

My cardiologist is concerned that my EF, over the past 5 years, has gone from 44 to 33 to 28. She talked about being on the downward slope and is talking about needing a transplant down the road, etc. Happy conversation (not).

I feel great, an considered Class 1 with no symptoms.I have a pacemaker/ICD in place, but it needs a third wire connected so it performs as a CRT.

Question for the group is if a pacemaker has inmproved EF in your case.  or if you have seen your EF incre...

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8 Days PM Postop, back in hospital with issues...

Hello, brand new here. I am 41 years old and have a history of syncope (and seizures in childhood). After many years of no real answers or drs really believing my random symptoms/issues I had a tilt table study to which I passed out and discovered my heart stops and pauses for long periods of time along with my blood pressure dropping drastically as well. Drs initially diagnosed me with neurocardiogenic syncope though my primary Dr says that diagnosis for me is understated and should be "...

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Medtronic vs Boston Scientific

I am hoping someone has some knowledge on this subject. I had a PM implanted in December. My EP/surgeon told me that it would sense my respiration and respond accordingly when exercising, which I do a lot of. Many types but swimming is a primary. Due to what I can only describe as a screwup on the hospitals part, my original doctor did not do the surgery. I was assured that I would get the device intended for me. I have a Medtronic PM which at least one device tech and others on this forum sa...

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Beta Blockers and the PM dependent

I'm an A-V Node ablated dude w/pacemaker.  My PM regulates my heart rate to the 84 - 90 range. Is adrenaline gonna effect the rate? Not that I've noticed. The fatigue effects I do notice. Is there more at play here? I also take Lisinopril, an ACE inhibitor whose function I understand. My BP is generally low - 105/62 ...........94/58 at times ----- I'll stop my beta blocker use for a few days to see how I feel. Am I playing with fire?

--Dave--

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Nuclear Stress test with imaging

I was told i have sick sinus syndrem and a 2 lead pace maker was put in me . With in 2 months my systems came back . A nuclear stress test was ordered the scans show low blood flow while resting but mostly normal while stressed . I wish I could load the scan for you to see because I can not find any scans showing what mine did.The dr has not got back to me yet so I have no clue what it means . I am concerned because at this point they dont believe what I am saying and at this point are sujest...

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Work

Is anyone an RN who works bedside?  Are there any considerations that I should be aware of?  I work in an ICU, so I'm curious.  I go back to work next week after getting my pacer placed.  Does anyone have advice, suggestions, or comments?

Thanks

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Need advice about needing pacemaker

I am a 60 year old lifetime amatuer endurance athlete.  Cycling is my main activity (about 50-100 mi per week, on hilly terrain), with some running and other activities.  Last year I had three episodes, the first was on an a treadmill, at about 8 minutes, still in warm-up doing a slow run I felt really dizzy so I backed down to a walk for a couple minutes, felt fine, then continued back to normal pace.  I have a heart rate monitor watch, so when I looked at what happened later...

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Questions and more questions

Hello to all. As others have said, finding this site 6 weeks ago, after that casual "complete-heartblock-you-need-a-pacemaker" day, has been so meaningful to feel, listen and learn from others.

I have an appointment with the cardiologist next week and I wondered if anyone had any suggestions as to what I should ask about. Sorry for the length of this message.

While I was in the hospital getting a dual chamber PM (3 leads), my bp continued to be higher. I'd...

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You know you're wired when...

Bad hair days can be blamed on your device shorting out.

Member Quotes

It may be the first time we've felt a normal heart rhythm in a long time, so of course it seems too fast and too strong.