Most Recent Messages

Looking For Someone Like Me....

Hi! My name is Julia. I'm 14 years old, but I have had a pacemaker since I was 4 months old. I've never met someone who is around my age and also has a pacemaker. I got my first pacemaker in 2003 and my newest one in 2017. I just wanted to see if any one would was around my age talk with me! Please respond to this message with anything from a short note to a little but about themselves! Thank you!

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radio on my cap

Will a clip-on radio on my hat while swimming interfere with my Biotronik pacemaker?

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Considering Pacemaker

I am a 66 year old who was a runner for 41 years until Afib ruined the party 13 months ago. I have had two ablations, and while the afib is now fairly minimal, I just cant run again because one of two things happen. My HR stays between 160-180 the entire time, or it returns to a normal area of 115-125 during a run, but then plumits to the low thirties in the hour after exercise. My EP has me considering a pacemaker. He has discussed single and dual chamber pacers. Has anyone chosen to have a...

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Move’n More FB Group

Have found that walking is my best tool to keeping myself healthy.  If you would like accountability to keep inspired and motivated to “Move’n More” everyday.  Send me a PM through PMC that you would like to connect on FB and join our Group. Will hook you up :)

Would love to connect with you and have you join my “Get Move’n Together” SECRET FB Group, where we encourage each other to move just a little more than the day before....

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Migrating ICD

Hello Everyone, 

New to the group - First ICD installed 2004 - On my third device. 
This third device has been nothing but trouble since it’s change out in May 2014.  

The silly thing keeps migrating around - The first was immediate after the change out. Kept telling the Device Techs that something was not right, they kept telling me, it just needs time to heal. October 2014, insisted that Doc look at it and here it was just days away from break...

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Lump on left side 1 month post PM surgery

I had a pacemaker implanted 1 month ago, but there’s an area near the implant site that has grown really stiff. I notice it mostly if I raise my left arm. It’s right below my arm pit on my left side. It feels pretty normal except for its much stiffer in comparison to my right side and the area is about two inches big.

Is this normal, or has anyone else experienced anything similar? 

Also,  I was originally supposed to have a follow-up appointment with my doct...

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Lead Extraction after 20 years

New to this forum. Nervous about upcoming lead extraction for 2 leads that have been in place for >20 years. I am 42 years old. Leads implanted in 1997. Anyone care to comment on their experience under similar circumstances? It seems like the right thing to do to have them removed, but the risks of the procedure are weighing heavy on the mind of this father of four.

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Feeling stressed

Today makes 7 weeks since my pacemaker implant. has it ever been a rough 7 weeks, I've been admitted twice during the last seven weeks, went into Afib a week ago today , almost had a heart attack, they had to give me morphine to relax my heart to keep me from having a heart attack. spent 6 days in the hospital trying to get my heart regalated ,my doctor took me off Cardizem and started me on rythomol boy has this been one rough medication. I feel like I am spinning out of control. I stres...

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USING SEX TOYS!!!!!!!

Hi. Ny name is Jim and i have a CRT. I was wondering if using a device for self pleasure would interfer with my device. Sound answers would be greatlty appreciated. Thanks in advance.

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PVC's

I have talked with someone on this message board and would like to hear from others. I am suffering (since I had a revision done on the atrial leads - yes I have two leads now in the atrium) from such a high number of pvc's. They were documented on an event recorder so I know what they are. I feel every single one of them and have been told by my EP they are harmless.  I know some have tried various diets as well as vitamins to lessen or put an end to these. 

Does any...

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My first PM device check. What questions should I ask?

So I got my PM on December 1.   From my point of view all is going well with the healing and lots more energy.    It seems my doctors' advice for the last two years to have this done were right. 

I am going in for my first device check in a week.   I am not worried but have no idea what questions I should be asking.   With all the experience and excellent prior advice from this group I thought I might get a step ahead of the gam...

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Exercising heart goes up and down

Hi All,

  I have a St Jude Pacemaker that is set 60 to 140, new to this got my pacer in May 2017,  I never knew I had a problem with my heart until I fainted, had 3rd degree Av, Before I would go for long walks starting at 5377 ft elevation and end at 6000 ft. 2.5 miles was trying to get in some kinda shape,not monitoring ,my heart or pulse just would go on time how long it took to get up there.  About 1 hour.  rocky and dirt trail, now I am afraid to try doing it.&n...

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ejection fraction

hello,

i had ablation 4 months ago my ef went from 25% to 30%, they were expecting 40%. so got icd last week. has anyone been able to raise ef with diet and exercise?

thanks

ron

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Self Testing

 Anyone else feel their PM self testing? Mine does this at least once a day. Strong pulsing sensation from the Pacemaker itself. Mine is a Boston scientific essentio dual lead. 

 

 

 Is it really just mine?

 Phil

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5 1/2 months post surgery... still painful

Hi all,

     I’m sure some of you have seem my posts before. I️ was born with a complete heart block and have had a pacemaker my whole life... last year when I️ was 20, I️ started having pain around the pacemaker site. Doctors didn’t really know why but after I️ came back from studying abroad we decided to do surgery. They took the battery out, removed the pocket, cut my pec, made a new pocket, and finally put a new battery in there. I’m coming up on 6mo...

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Pacemaker set at 60, pulse 40?

I'm 70 and am very athletic, (well, I was in the past).  Got my PM in 8/17/17 and an ablation on 11/14 for AF and flutter. Why is my heart rate so slow still?  Are there undetectable beats occuring?   The PM is set at 60 but my pulse is 40 to to 44 much of the time.  Today I walked a brisk 1/4 mile and it the pulse was 48.  Then I ran 2 miles in 20:30; it wasn't easy. After the run it was about 100 and quickly dropped to 60.   I w...

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Drinking beer

Thinking of having a few beers for new years just had a PM installed 6 week's ago seems to be working well just nervous on how I would feel after drinking a few beers?

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Lightheaded on my first real uphill.

Have acclimated fairly well to the PM (St Jude) in nine weeks. Inserted for afib so I could tolerate medication, but asthma ruled out meds. Had ablation three weeks ago. Just did a half mile uphill walk requiring me to stop numerous times with lightheadedness. Had PM tuned and all is well on the flat. Anyone have anything similar?

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Smow machine

Anyone with a pacemaker using a snowmachine? Any problem with the electromagnitic energy coming from the machine?

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AFIB

My merlin recorded an afib event of over 2 hours one time, they are telling me I need two very costly medications. My question, I had an echo optimization one month prior to this event could the adjustment to the ICD create afib? 

I have had a ICD since 2011. 

 

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