Most Recent Messages

Water on incision

Not sure if I should post this on surgery and recovery or exercise and sports but here goes!

I'm about 3 weeks post implant and feeling great. However I haven't taken a shower without covering my incision site yet. I had internal stitches and that surgical glue to close it so it looks nice and there's only a tiny scab left, but I've just been afraid it's going to sting when the water finally hits it. My doctor advised me that before getting it wet I should use alcoho...

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MICRA AV LEADLESS PM

Hey new member here! I'm 27 years of age and currently running on St Jude 2162 (DDDR) AV block 3rd degree. 

Had my 1st PM-lead at the age of 7. Second lead sometime after that. 
Had my 2nd lead broken within 6 months. 
Now running on 3rd lead. 

I'm looking into Micra AV and other options on the market, any information and experiences would be beneficial!

Personal experience living with PM - 
Had a first surgery in 200...

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Displaced lead immediately after implant

Recently got an Abbott 2 wire PM implanted. The wound was closed and it was immediately discovered that the atrial wire was dislodged. The beat was reset to 40 using tne lower wire. The surgeon refused to fix the lead and told us we had to wait 6 weeks for healing. The surgery report does not mention this situation.  Later the recheck visit notes added that a lead revision surgery was necessary because "unfortunately the lead is now disconnected". My research never mentions a w...

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Running with a Pacemaker

It has been suggested by my physician that I should seriously consider a pacemaker as I have the onset of Sick Sinus Syndrome. It's not critical at this stage but it could progressively get worse in the months or years ahead.

I am a 75 year old avid runner and have noticed that during my run my heart skips beats every few seconds which makes it very difficult to keep my energy level up.

I live in Canada and sometimes the new technology takes it's time to work it's way...

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Sleep problems?

Just checking if anyone is or has had a problem sleeping after the procedure? I have been having hard time sleeping, I sleep about 2 to 3 hours a night, and then after two or three nights like that, I sleep 6 to 7 hours. It is a vicious cycle, I feel tired and in need of rest due to lack of sleep.

Anyone else experienced this? I am also experiencing fast heart rate and I read that Plavix (blood thinner) can cause that, anyone else is experiencing this?

I appreciate any comments of...

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Watchman Device

I am wondering if anyone here has had the Watchman implanted, and if so how did it go? Developed Afib and flutter after sepsis and endocditis however some docs feel I won't meet criteria for implant due to valvular disease (I have mitral valve implant). FDA covers non valvular only at this time. I am not a candidate for blood thinners due to history of bleeds so there is that issue. 

Did anyone come across this issue of have valve disorders and still get the implant? 

<...

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Apple Watch ECG/AirPod issues

I have noticed that since my PM implant on 04/01/21 I can no longer get an ECG on my Apple Watch 5. I was able to do this before and wonder if it is because with my cardiomyopathy I am pacing at 99%.  I also am having an issue with my AirPods. After about 15 seconds my left AirPod stops working. I have verified that they are charged.  I could find nothing about this on the Apple website. 
 

Maybe it's just coincidence but just curious 🙂

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Armpit pain/left side pain

Hi everyone,

SSS, pm implant on 1/29/2021. Left side.

About a month into my procedure being done ,I developed some pretty intense pain/swelling from my site going into armpit, pain going down and turning right along my left breast,along with pain down a part of rib cage.

 Some numbness left arm just above elbow. No redness,fever.  Thought I had infection ,but blood test negitive. PM Doc said I was fine. Lasted a few weeks,resolved on its own.

Its back ag...

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First outing alone

Hello again, I seem to be on here every other day asking advice . I felt brave   enough to attempt a bus ride to local shops as a step forward and gain confidence. All ok for around 30 minutes then I was very conscious of my heart pounding hard and felt ridiculously hot and Clammy ..... no pain ,no dizziness but I felt quite vulnerable . Just wondering at what point do I check this out the ,number I've been given is contactable Mon to Friday, Drs are not open and...

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Switching my PM to an MVP mode

Hello. My EP has determined that I developed pacemaker mediated syndrome and need to consider a biventricular pacer upgrade.

Before having that procedure I had inquired about reprogramming my device to see if more pacing can be helpful,  he thought it may not be a bad idea to switch my PM to an MVP mode.

 

Has anyone had these procedures and seen benefits or problems with them, thanks in advance for your advice and thoughts.

 

 

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Lightheadedness

I'm 7 months out and having periods of lightheadedness. My BP is always around 114/70. Tried to do a 2 mile hike yesterday and once I got started, my pulse got up to 115. Varied between 115-90. I am set at 60 bpm. I try to keep from being dehydrated, but the fluids don't seem to stay with me. Is there any secret to staying hydrated? I called the device clinic to see if they could tweak my adjustments and they said there wasn't one for lightheadedness. Told me to go back to the EP...

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Fast heart beats

Two weeks in from having Pacemaker .past couple of days I have been experiencing being very conscious of my heart beating quite fast this settles  after a short time then   reoccurs . Unsure if it's because I'm anxious about the Pacemaker working properly or is this what is suppose to happen when heart beat goes too slow and Pacemaker kicks in.  Wondering if anyone else has this. Trying to stay positive and take it all in my stride .... but  emotions are takin...

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Alternate ectopics with paced beat

For the past few days I have been getting long periods of  alternating ectopic and paced beat.  As I have had an AV node ablation I am paced 100%, and my rate is set at 80. But when these ectopics start it means that of the 80 bpm I am only getting 40 effectual ones as the ectopics do not pump blood properly. It is very stressful as I feel quite breathless and cannot do anything. The pacing clinic have looked at a download and said there is nothing they can do and my heart...

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The longest working pacemaker

The longest working pacemaker (present day) belongs to Randy Kasberg (USA) which has been working for 36 years and 337 days, after it was fitted on 30 September 1977 in Gainsville, Florida, USA, as verified on 2 September 2014.Sep 2, 2014

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Signs of low cardiac output?

Hey all,

I go for right heart catheterization on the 18th to check my cardiac output and other values.  Doc says if it is below 2 he will start me on inpatient inotropes.  I don't have signs of congestion except very mild lower extremity edema (but I am heavily diuresed).  So far my lab values aren't bad, creatine is 1.00 up from 0.7 3 months ago, and mildly low potassium.  Other than that everything is in normal limits.  I am curious if anyone has perso...

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Sub-pectoral PM Recovery

I am due to have my first replacement PM in 3 weeks, the first one was placed sub-pectoral and lasted 12 years with no problems. 

As it was so long since I had the inital implantation, my memory of the recovery is a little hazy. I was 15 years old and a competitive gymnast at the time and I remember it taking around 6 weeks to lift my arm up above my head and even longer to hang off a bar and pull up etc. 

I am incredibly fit and active and...

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Newbie

Hi am a Newbie as only had my PM 1 week. Advised due to SS Sydrome .        
After I 'crashed' on a short training run 1 month ago. Also as well as pausing 3 seconds at 40 bpm they identified  fibrillation at the top end.   Cardiologist strongly recommended I start taking Blood Thinning drugs.  As I am not on any drugs I am hoping there might be other more 'natural methods' which might be an alternative to drugs...

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1 lead not working, doctor suggesting adding a 4th lead (patient already has 3 leads)

Hi, My father has had his pacemaker for over 10 years now, he is 66 now. We just learned that 1 of the leads that goes in the right heart chamber is not working properly and has to be replaced. The doctor is suggesting not to remove the lead but rather add a new one. My biggest concern is that he already has 3 leads passing through the vane (1 lead to the right, one to the left chamber, and a defibrillator), and adding a 4th one might cause issues with the circulation in that vane if it...

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BREAKING LEADS SO EASILY

I'm 44 years old. I got my 1st pacemaker when I was 24 years old. Since then, I habe broken my leads 3 times and no doctor know why. 

I got my last pair almost 3 years ago, they are still holding but I can feel them pushing my skin above by scar. I just hope they will last a little bit more as this surgeries are so painful due to the pushing and probing trying to get the old leads out.

No surgeon has being able to take 3 of my old broken leads. They are impossible to take...

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Coping

Hello Again, I am 12 days from receiving my Pacemaker and still trying to process all the information and mostly trying to absorb the news that my condition prior to operation was much more serious than I knew . I believe I am recovering ok but have very little energy ,today especially .Promised myself I would have a walk but just cannot muster up any enthusiasm ,wondering if this is just me or am I expecting too much . 
    Maggie 

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Member Quotes

I consider my device to be so reliable, that I never think about a failure.