Most Recent Messages

High bp

As I have stated I just had my PM put in 10/2, had to have a revision on 10/9 @the time of admission to the er on 10/8, they said I had high BP, I get this tight/ache feeling in my chest that will go into my neck that feels like a stiff neck. They put me on BP medication. Tonight I want doing anything and notice the feeling coming back and I checked my BP and it is again 142/101. Has anyone else had this happen?

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Mitral Prolapse

Hello all. 

I wanted to pass along what I think is very important information to consider when getting a pacemaker. Apparently the primary way doctors attach leads for dual chamber pacemakers and/or ICDs can, in some patients, cause mitral prolapse or mitral regurgitation. This is significant because if you’re one of them, you will begin exhibiting signs of heart failure.

i began researching this because over the past two weeks my breath has diminished and seems to...

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Anxiety

Hi everyone. I just joined and am thankful for this forum. I had my pm implanted a month ago, Sep 12,2018. Everything went smoothly, and I have high confidence in my surgeon. But I'm experiencing some symptoms that are hard to explain.

The primary functions I needed was pacing to keep my heart rate above a minimum of 50 bpm, and for intermittent 3rd degree heart block. I went back once and asked them to turn off the CLS setting as I felt it was unnecessary and creating issues. I def...

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New Car with keyless entry, push button start

I was most curious about this as we have just purchased a new car for our retirement!  I was thinking maybe it wasn't such a good idea because it may interfere with my PM!   However after doing some research this is what I found. :) I have a St. Jude PM

EFFECTS OF HYBRID/ELECTRIC CARS AND KEYLESS ENTRY SYSTEMS ON IMPLANTABLE CARDIAC RHYTHM DEVICES

BACKGROUND

The following information discusses the use of hybrid electric vehicles (HEVs) or electric veh...

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insomnia, vomiting dizzy spells very weak and tired all the time after pacemaker installation

I have been dealing with heart failure for a year now since Oct 2017.   I have had 2 previous open heart surgeries. a pig valve was installed in 1992 and than a mechanical heart valve was installed in 2009. I started having heart failure that started as a cold than recently at age 39.  I just got really sick here in Regina Saskatchewan Canada. It was deemed heart failure with my heart rate dropping to the 20's and 30's often. The Doctors decided to put in the first...

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Hiccups!

I had my PM on 10/2 then a revision on 10/9 due to a lead came loose. Now I'm having an occasional hiccup. I'm not a person who hiccups but I have had them.

Also on 10/8 when I was admitted to hospital, I had a high BP 150/121 they put me on BP meds, has anyone else had anything up with their BP. I've never had high BP before and I had a really bad headache. 

I'm just really nervous of a lead coming loose again. Even though they dont really know why it di...

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Accerlated Junctionel rythm

Hello everybody ,i m sorry by the way i speak a little english,last month afer i have spontoneous pneumorhorax i develop junctionel rythm its been now 2 months i m very tired i feel dizzy all the time sometimes short of breath and pain in my chest my plumonolgist say that my pneumothorax  resolve ,but i m still suffering from junctionel rythm  its so bad that i cant back to work i spend all day sleeping palpitation dizzness all the time ,after holter monitor for 14 days my card...

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billing

so i am wondering if anyone else is paying more for their remote interrogations than what they may pay as their copay for an in office/clinic visit. my remotes are every 90 days and i am being billed by the hospital and the physician each time but  when i go into the office/clinic for my annual visits i  just pay my flat copay. it seems that it should be the same amount because it is the same thing, just one is face to face. i am paying more for the hospitals convenience of not havi...

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Broadband wifi kit

I have been looking for the Broadband kit that I need to hook up to my Merlin@ Home Transmitter. I have called the company that St. Jude or Abbott suggested I call to get one but they don't have any. If someone knows where else you can get them please drop me a message.

Thanks

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EP Study question

Doctor is considering an electrical study of my heart (EP study?).  He is also suggesting I may need an ablation and then maybe a second lead and a CRT-D.  So my question is this, do they do the study first, then go back in several weeks later and put in the CRT-D and then go back again several weeks later and do the ablation?   Just trying to get a feel for what I might be expecting.

Thanks for any insight you can provide!

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Site tender, left upper arm has dull muscle pain. Still very tired :-(

I am 54 yrs old and had a pacemaker placed 5 weeks ago today. I have tenderness at the incision site also upper left arm dull pain. Also tired still! I am planning to go back to work my fear is it's not healed enough and being tired won't be good either. I am also on Sotalol a low dose. Monitoring my heart rate and I am at 60-61 but I have gone down to 52 then up to 56-58 then 60 is this a normal way this pacemaker should work? this is not all the time just now and then.

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leads

had a great Doctor Garvey at St Vincent Portland OR. burn out the two leads and set in two new ones, I feel great and have to see him in another week at the incision, Took 3 hours hardly any scar tissue around the leads and was in for 8 years. using a restraining belt to keep left arm to be raised about the shoulder so electrodes can build scar tissue to build up around them. He used the old 2 year device which has over 8 years of battery life and it operates great, no more dizziness from lay...

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Normal to feel wires under left clavicle?

4 days post op. Chest sore but improving. Noticing  tugging sensation, pulling sensation under the left clavicle. Can feel wire under the skin both under the clavicle and  under the clavicle superiorly. I assume this is normal routing. Almost feels like someone has their finger on my neck or throat to a certain extent. Not sure if this is normal or something that you get used to. Any thoughts appreciated thanks 

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Metal detectors in shopping malls, schools

I am pacemaker dependent and cringe evrytime I approach the metal detectors in public access buildings. I am uncertain if airport security metal detectors are more or less likely to affect my pacemaker. Are the metal detectors in shopping center, schools, municipality and govt. buildings a threat to my ICD? I have a card that I can show, to circumvent the detectors, but do I need to avoid these devices and be subjected to near strip searches every time I go through the front door of a public...

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Exhaustion

Hello All,

I have been reading your posts on exhaustion or fatigue. My pacemaker was put in April 2018. I didn't feel up to par until about July of 2018. I have had it tweaked slightly as I was still experiencing some lightheadedness (which was happening before my pacemaker).

I am 49 and still very active. I own a dog walking compnay and two dogs of my own. So I am usually out walking from 10:30am to 4:30 pm. The average is 6-9 miles per day. yes, in the MN cold now, it can be...

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Why can't patients have ongoing access to their pacemaker reports?

I don't understand why patients cannot access a report on their pacemaker activities to determine if anything out of the ordinary is going on.

I bet more people would live if this kind of medical monopoly that excludes the patient was changed.

I hesitate to call my doctor when I feel lightheaded because I know how long I'll have to wait to get through the switchboard. Then, I have to wait for someone else to respond. The whole process can take days.

If it's nothi...

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Which blood thinner do I choose?

After syncopal episodes caused by asystole accompanied by bradycardia I got an emergency pacemaker Aug. 1. Two weeks later I was in the hospital for pericarditis. This week I learned that now I've started having afib for up to 4 hours at a time, with 11 episodes over two days. My doctor gave me 3 booklets and said I should choose which blood thinner to take: Warfarin, Apixaban, or Rivaroxaban. I also have Stage 3 kidney disease caused by hyperoxaluria so I asked my nephrologist and he sai...

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Getting your wires crossed

About 6 months ago,  I was at work and kept feeling a little itching feeling where my pm is (I have mine on my rightside) I kept working I work as a cook,  anyway,  it kept itching then it started shocking me so I told my boss that you need to call 911 something is going on with my pm,  I get to er,  they admit me in hospital, a tech came in to check.my pm he said my pm was up higher then normal,  and was causing the little shocks,  tthey had to callobrate m...

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Tattoo

Does anyone know I want to get a tattoo by my pm where the scar is the red part of a lightsaber would that be possible anyone know

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Holy pain

I am a 52 year old woman and just recently got an icd implant. I cant believe how much pain I am in. Is this normal? I feel like every chest muscle is torn. Cant lift my arm at all and my back hurts. Sleeping upright is the only way to be semi confortable. Someone please tell me how long this lasts.  Bonzai

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You know you're wired when...

You have an excuse for being a couch potato.

Member Quotes

Today I explained everything to my doctor, he set my lower rate back to 80 and I felt an immediate improvement.