Most Recent Messages

My CRT-D went straight to EOL and skipped ERI completely

I wrestled with whether or not to post this, not wanting to frighten any newbies so I took the post down until I got more information.  Please keep in mind this is very, very rare. 

In April, the interrogation showed I had 7 months battery life left on my CRT-D.  2 months later in June, my device starting beeping every 6 hours (a red flag but who knew).  I went in to my Cardio's office and my nurse interrogated my device and it revealed I have < 3 months left...

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Day 15 exercises

Day 15 after my CRT-D implant and things feel pretty good...are there any exercises or movements that will help to loosen or help my shoulder stay loose?...I can move it pretty well but keeping it basically below my shoulder seems to have tightened it up...almost feels like it pulls when I move it too far...any help will be appreciated as I would like to get back to golf when I get past the 6 week or appropriate recovery period...

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Placement

If you are female, put your bra on in pre-surgery and make them mark where your PM will go to the inside of your strap. I have narrow shoulders and was worried to death about the strap going across my PM.  My EP said 'just wear a strapless bra'........ha, that' s a guy for you.  I told my PC and SHE told me to be firm and have it marked exactly where you want it to be.  I got some hassle but it was worth it as I'm sure if my strap went over my PM it would h...

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Settings

I got my BPM 5 years ago.  I felt terrible, could not get out of bed, and my blood pressure which is always low dipped to very low.  I kept calling my EP and he ignored me.  I finally raised a ruckus and he promised he would do something about it.  NADA!  Still no calls, no action.  I had  my yearly appt with my Cardiologist and told him how bad I felt and how my EP was doing nothing.  He did a ton of tests.  My EP's nurse called the very...

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Sick sinus syndrome and chronotropic incompetence

Im having a PM placed for SSS and chronotropic incompetence. 

With SSS does your heart rate always stay low? Or are there times it might be at a regular resting rate? I’ve noticed the last few days mine sits in the 50’s and 60’s but that’s regardless of what I do. 

I have to wait a month and my problem is, I can’t do anything without being so short of breath, dizzy,chest pain and sometimes near syncope. Anyone with this ever find away t...

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Problems with the Merlin@Home thing

Hi!  My husband has had an ICD for over ten years.  The battery was dying, and he got a replacement about two weeks ago.  They gave him one of these Merlin@Home transmitters and swore up and down that it would be easy to set up.  The one they gave him came with the USB cellular adapter, se he t4ried setting it up that way first.  Didn't work.  After the lights did the booting up thing, the transmitter started beeping and would not stop until it was unplugged....

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Exercise 6-Days Post Implant

Dual Chamber implanted 7-11-2018 for heart block/bracycardia.  I'm an active 71.5 male doing exercise that included 5 to 6 days per week spinning 45-55 minutes, HR average 120-122, HR max 162, resting HR 48.  HR now 60.

Can I safely start "light" spinning again, say 15-20 minutes with less exersion, no arm activity just legs and cardio?  Any thoughts are welcome.  The DRs said when I felt like starting up again.  I went thru 4 courses of chemo...

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Breaking leads

Hi, I'm Karin from Venezuela, ImI41 years old I just got my third pacemaker and as well as third pair of leads.

 

Does anyone has problems with breaking their leads? Mine take about 5 years to break and I'm not doing anything steange but going to the gym every now and then.

Sadly, doctor couldn't take the old leads out so now I have 3 pairs of leads.

I would appreciate any comments you may have. Thanks a lot.

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European PM ID card

Dear fellow European PM holders,

Is there anyone out there who has managed to somehow beat the system and get hold of a decent ID card (as opposed to the flimsy, long-enough-to-not-even-fit-world’s-largest wallet, thin cardboard monstrosity that hospitals claim to be “standard EU”)?

If you exist, please do come forth and illuminate us wretched souls who still have to carry that abomination along into the 21st century.

Mu...

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two wire to 3 wire pacemaker

I'm scheduled to get 3 wire pacemaker this week. I'm wondering if Surgeon will remove all wires and replace with new? Also wondering if 3 wire pacemaker batteries last as long as 2 wire? 

I am still a little in shock from finding out after only 3 years I need a new improved pacemaker. I did not ask enough questions when told of the need to update.

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Getting my ICD...

Hey All, 

Posted about 4 months ago when I was diagnosed with endocarditis and was informed I'd likely need an implant... Had a follow-up Echo and Nuclear Stress Test last week. Echo showed I still have a low ejection rate of 20. Stress test showed no signs of heart disease. 

I see the Electrophysiologist this coming Tuesday. 

Anyone have suggestions of things I should ask the doctor?  

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Grateful PM newbie

Just wanted to say a quick hello to my new online family! 

I had my first PM implanted last week and I admit I’ve been browsing the forums weeks before - and after - without actually participating. Not to sound creepy haha, I just think it took longer than I expected to admit to myself that “this is actually happening” and to simply get used to the tremendous change in my life. 

Without your even knowing it, you have all helped me with the mes...

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My Story and how it led to my Invention

I had my heart attack on Christmas eve, had a temporary pacemaker put in Christmas morning and had my permament Pacmeaker inserted on  December 26, and was home that evening. 

Read my story and see my Pacemaker Incision Pad at www.Pipspetals.com

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Post Surgery Pain

Hi,

I got a dual chamber pacemaker less than a week ago on the upper left side of my chest. I’m 23. Since then, I’ve been unable to sleep on either side and have to lay straight on my back at all times. As a result, my back is sore, my neck stiff and I can’t sleep well because it’s uncomfortable and my back hurts all the time.

Is this normal post surgery? How long until you can sleep on your sides again? Even the right side, if left still needs time until s...

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family support

Is there anywhere on this website with information to enlighten family members who need to understand what having a pacemaker means both physically and emotionally?  I thought there was one, but I see nothing at the moment. My own explanations seem to be not enough. Thanks! 

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Short of breath and weird feeling

I went into ER 3 days ago and ended up having a pacemaker put in last night. I am home now and have really strange fluttering/thumping in my chest and I am very easily winded. I am so new to this and still can't even wrap my head around it. Are these things normal?

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My Pacemaker/Defibrillators Song

I've been experienceing my body having weakness throughout, and joint pain.

I heard a noise coming from my chest area and thought it was coming from my fitbit watch, unfortunately for me I ignored it for over a three week period.

I took my watch off last night to charge it and this morning I heard the same sound, my watch was in another room on the opposite side of the house. This time there was no doubt that that my pacemaker/defbrillator was making the warning sound.

L...

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Arm usage while having a pm.

I had a pm put in in May 2017. Im curios whether using a pull rope starter on my power washer is something to worry about since it has been a year since pm implant. Can I still damage or cause any problem with the leads after this 1 year of implantation? Thanks for your input...

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Left ventricle pacing

Hi.. My LV ejection fraction is 20% and RV is in normal range, is there any pacemaker for LV pacing only? Some doctors are recommending me CRT-D but some are saying that it will not help to improve LV specifically. 

Please guide me which pacemaker would be better for me, waiting for your opinions. Thanks

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Contraindications

Seems to me, some Docs are just wanting to perform "procedures."  For me, a urologist I began seeing wants to do the Prolieve System to address my BPH.  Reading the Prolieve brochure, the procedure is contraindicated for those with an implanted pacemaker along with coagulation issues (that's me! - LAC & APS). My Medtronic  User Guide also stresses to avoid Diathermy treatment andTransurethral needle ablation. As usual, the contraindications are never addressed...

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You know you're wired when...

Your ICD has a better memory than you.

Member Quotes

My eight year old son had a pacemaker since he was 6 months old. He does very well, plays soccer, baseball, and rides his bike. I am so glad he is not ashamed of his pacemaker. He will proudly show his "battery" to anyone.