Most Recent Messages

Pacemaker insertion with clotting disorder

Hello, new member here. I made a post sharing a little of my story but I was wondering if there is anyone else on here who has recieved a ppm with a clotting disorder that promotes clotting? I have something called prothrombin gene mutation. In March 2018 I had arthoscopic hip surgery. April 2018 I was diagnosed with a DVT/bilateral PE's. I completed a 3 month course of Eliquis and transitioned to Asprin 81mg. I did not have to stay on lifelong anticoagulation as my DVT/PE was consid...

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25 year old recovering from Medtronic Azure dual chamber ppm insertion for junctional rhythm. Sharing my journey.

Hi everyone! I'm a cardiothoracic critcal care nurse, I like to call myself recently nurse turned patient. I am 25 years old. Over the past year I have had some road bumps. I had arthoscopic hip surgery leading to a DVT/Bilateral PE's. Sometime after I developed junctional rhythm. Had an episode of pulmnonary edema leading to respiratory failure. I had Medtronic Azure dual chamber pacemaker inserted sub-pectoral on 02/05/2019 with a loop recorder removal. Previously I had a loop recor...

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CareLink Heart server down for maintenance

First, let me say how absolutely reassuring and supportive it's been to find this group. I'm almost 3 weeks from an afternoon visit (not urgent on my part) to my regular clinic doctor to discuss a slight lightheaded feeling at the top of stairs I thought was stress-related. Low heart rate was there too (&, in hindsight, maybe I wasn't feeling 100% but everyone has non-100% times, right?) but I could barely believe, after a quick EKG, that he (correctly) diagnose...

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Pacemaker to CRT-P Upgrade

I'll be getting an upgrade from a std dual lead pacemaker to a CRT-P in less than 2 weeks. EP believes my wide QRS (ventricle dyssyncrony) is causing a lowered ejection fraction. I have had 2 pacemakers in the same submucular pocket so this would be the 3rd device (I assume a larger one at that) in the same pocket. Aesthetically, previous EP did a great job with submuscular implant as there was no buldge at all after swelling went away and PM seated in pocket.

Couple of questions:

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Dentist

I have had a SEVERE toothache for days now and can no longer take it Can I get the X-ray needed for for extraction hoping it’s not abset but I know it has to go

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Just Feeling Strange

I have had my pacemaker implanted 3 weeks ago for stage 3 block after passing out at work. I am a soon to be 65 year old male in pretty good physical condition. I found out that my pacemaker is pacing 93% of the time for my ventricles. My comment or question is "How long until you get used to this?" My heart just feels so different. Sometime it feels like butterflies in my chest and other times it sems to take my breath away. Is this mormal and if so, will I ever get accustomed to i...

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Pacemaker now fitted

Well, I had the pacemaker implanted last Wednesday.  It was not as straightforward as I had anticipated as the cardio could not get the wires into the correct position because of scar tissue from my previous ablations.  He nearly gave up at one point and through the fog of morphine and sedative, I heard him say he was going to try the other side.  But he did not need to in the end.  It took 2 1/2  hours and I was given a lot of morphine and sedative.  Later, I fe...

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Head

  • by El
  • 2019-02-16 20:02:39
  • ICDs
  • 72 views
  • 1 comments

Feeling in head several times a day of movement that lasts a second or two. Not dizzy and not related to exertion.  Usually while sitting calmly reading or watching tv. Had daily episodes 2 weeks ago  went  now back daily    Biotronic defibrillator/ pacemaker.

 

 

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Pacemaker and the MRI

Evidently, the Medtronic series Claria MRI CRT-D SureScan is safe for use with an MRI.  Anyone here have experiences in this matter?

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Tune up

whenever it comes time for me too get my batteries recharged or however they do it how much down time is there? Is it similar to when it gets first installed or how’s that work?

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New Pacemaker for Second Degree Heart Block - Type II

Hello:  Just to introduce myself.  I'm aged 62, and I had a pacemaker installed 2 days ago for a Heart Block which had caused dizziness for a number of years.  I live in Cheshire in the UK.  Have been reading posts on here for a couple of weeks to get me into the flow of my new life with a pacemaker.  I am very optimistic that this is the new me and want to feel positive about it. I go back to the hospital (Wythenshawe) in 3 weeks for a pacemaker check.&...

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Iritation - tingling

I had a Biotrinik Eluna 8 DR-T installed Nov18 as precaution since there was no definitive diagnosis.

I frequently experience tingling around the  PM which I'm told it is nerves reacting or recovering from the PM.  Sometimes it appears my shirt may touch or rub and trigger the discomfort. But then  it will occur when I'm  shirtless  (advantage of working from home)  specifically to avoid  this issue.

There doesn't appear to...

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Medtronic Class I recall for dual chamber PM's

https://www.fda.gov/MedicalDevices/Safety/ListofRecalls/ucm631470.htm 

If you have not yet been notified by your physicians, contact your doctors if you have one of these devices. 

Grateful Heart

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Pacemaker and wearable

Hello,

    I would like to buya Xiaomi Mi band 2 and I am wondering if there is any complication with my pacemaker. 

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Pacemaker optimization

It's official: Prior to PM optimization, LVEF = 15 - 20%.   Post optimization: 35-40%. That's what optimization will do for one!

--Dave--

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BP NOT GOING DOWN

  • by GARYD
  • 2019-02-15 11:35:44
  • ICDs
  • 72 views
  • 2 comments

Hello,

I am new here, thank you for having me.  My ICD implant was done 01/18/2019. In brief, I had a heart attack 12/26/17, remained on Brilinta and associated stomach, HBP meds. Echo revealed the 30 % and ICD implant was the route.  Previous to the implant, I was at 12.5 MG of Metoprolol as the 25 was too high. My BP before the surgery was getting higher - Doc put me on 25 once a day. I had stability in my BP initially after the surgery but readings have been 165/117 and not...

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how remote interrogations are reviwed and reports to patients

I would be very interested in hearing how the remote interrogation reports are handled by your EP clinic. Are the reports screened and then sent to EP doc. Does EP doc see reports at all or is the scrednig the end of process. Do you have access to copies of reports with or without interpretations.

My PM clinic receives the the printout and a techncain reviews them and after EP Doc review AND sign off it becomes abailable on the paitents portal, often several months later. 

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Pm leads

I had my pm fitted 3 weeks ago and was told to take it easy with no excessive shoulder movements etc. I think I've succeeded on the whole, but how would I know if I have pulled a lead out of place?

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Help! Multiple perforations/multiple revisions/recurrent left sided muscle twitching with palps

Ok so I will try to make this brief. Medtronic pacer placed in 2011 perforated within 24 hours. Lead revised. 2016 small voltage setting change lead perforated again. Leads and generator replaced. 2018 small voltage change again and again perforation. Entire device including leads replaced May 2018. After all this having multiple episodes of left chest twitching with associated palp causing nausea and left sided pain. At 11:53 every night strong chest twitching. I’m sure this is pa...

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Pm pain in winter

I’m 10 months out from having my pm implanted. This is my first winter in Canada with my pm and I have noticed an aching around/ in my pacemaker during extremely cold days (  -20 degrees Celsius and below). It’s a dull ache but definitely noticeable. Wondering if anyone else has noticed this with theirs. When the weather warms up the discomfort goes away but returns when temps drops again. 

 

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You know you're wired when...

You have a 25 year mortgage on your device.

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