Most Recent Messages

Irregular heart beats

Hi pacers, I am still having irregular heart beats, yesterday I had 4 episode of trying to black out I can't figure out what is going on, the whole purpose of getting pm was for the bradycardia. For the last few days my blood pressure has been low80/59 yesterday even lower. Wandering has anyone else had this problem? Still having shortness of breath, fatigue. 

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Happy Holidays

Hi everyone. New member. I have been seeking a support group for so long. Well, since August 2016. I found this because of a Google Search. I inadvertently walked through a medical detector upon exiting abuilding yesterday and panicked. 

I did feel the effects, too. Better now. But wow was that scary. Anyway, so happy to find this group and look forward to the community. 

Wishing all a wonderful holiday season! 

Merry Christmas,

Ruth

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MRI

Thanks to Pacemum and island girl for your help. Thought centres for MRI's are few and far between, especially as I don't live near a big city.

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Tired

Why i feel tierd when i watch some thing like football game its make me felt like the first time when i felt the bradycardia signs and symptomps , what should i do ? Is this normal ? With known that i have pacemaker implant before a year ago 

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Heart Rate

I was placed on November 7th of this year. On November 20th, I had a lead revision and removal of badly infected tissue in my original pocket. 

I have noticed a sudden increase in my resting heart rate especially this past week and I am wondering if this is just a normal part of the healing process. I could not sleep last night because I think my body thought it was at the gym! My resting heart rates at 2am were 118!!! 

I do not want to call the on-call doctor since it i...

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MRI

Forgot to say in recent post re MRI scan. I live in UK

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MRI

I have a MRI compliant pacemaker. I need an MRI for a lower back problem but  my GP is having a problem finding a local hospital prepared to do this. Has anyone else encountered this problem or have heard of a hospital that will do a MRI for pacemaker patients.

 

Thanks

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Pacemaker blackouts

Hi my names Arye I’m 22 and I’ve had a pacemaker for 2 years. I’m bradycardia(spelled wrong i believe) anyways, every so often i feel “funny” almost dizzy like, last night i took a simple drink of water and started to fade in and out of a black out. In my mind this isn’t normal, do i need to be concerned? Any advice would be appreciated as I’m a little freaked out

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three lead difib

How long untill I can use my upper body to work or excercise at a good level.

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Drone operation

First post, 24 hours out of pacemaker installation!  Had less time to wrap my brain around having it done, this was a complete shock to me.  Anyone have any information about Drone use?  Since my phone hooks up to my remote control and they both interact wirelessly with each other along with multiple satellite use....anyone have any negative physical experiences?  (Mavic Pro).  Suggestions?

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St. Jude ICD Pacemaker Defib

Anyone out there had problems with St Jude ICD unit battery corrosion and leakage ?

Everything I find on the internet has to to with the Battery Leads.

Thanks

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Article on nanostim removal statistics

http://www.heartrhythmjournal.com/article/S1547-5271(17)30846-9/fulltext

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Running Post Extraction and Reimplant?

Hi all, VT four years ago, undiagnosed to this day.  Had a scar causing VT. Docs think old viral infection or bacterial infection/  Had ICD implanted four years ago and had a successful ablation two years ago.  Have been off meds and VT free ever since and running alot since.  I still have an ICD. Had an explant due to my ventricular lead malfunctioning 1.5 weeks ago, they think scar tissue started causing it to malfunction. The whole thing was explanted and the new one im...

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POTS

Any one else on here have POTS? I was just diagnosed last Thursday after 21 years of a long list of symptoms. Although ive had 3 ablations and a pacemaker implanted around 13 years ago what really made me search for answers was when my face started turning half red and half white so I really started to do my research and convinced my doctor to do a tilt table test and it was a definite positive for POTS. 

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Pain killers

Can I take Voltaren Rapid 25 . If I have a pacemaker.

 

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Anyone experience pregnancy with an ICD or Pacemaker?

I just got my 1st ICD pacemaker for Polymorphic VT & Sinus Pauses October this year.  Before that all happened my partner & I were going to try for a baby (his 1st, I've 2 children from a previous marriage). Obviously we have put this on hold for now but I was wondering if any of you here have got pregnant whilst also having a device? ...what concerns me more is I've been put on statins and aspirin, as well as betabblocker, as I suffered 2 TIAs after my ICD. Statins espec...

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Swelling in left foot

I had a pacemaker put in three weeks ago and I have had some swelling in my left foot it doesn't have the symptoms of a blood clot the swelling seems worse at the end of the day they tell me that this will get better with time. But I don't know? Any one else ever had this problem?

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Pacemaker being removed due to misdiagnosis

Hi, I've had my Heart Monitor for 7 months and my Pacemaker for 6. I switched from a Cardiologist to a Electrophysiologist when things just seemed to keep going from bad to worse. The whole 'better' feeling just never happened. Instead I felt more and more tired, often sleeping through an entire day and getting winded climbing a set of stairs. If I push myself to try and do something, anything, like wash dishes, I get a feeling very much like a baby twisting and kicking under my l...

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Ventricular tachycardia

Good Morning!

It has been 1 1/2 years since I received my pacer and I have really felt great since then until about 2 months ago.  I have had some fatigue and breathing issues, much like I experienced before my pacer.  I went for my regular checkup yesterday and to my surprise, my doctor told me that they have seen on my remote, that I have ventricular tachycardia and that I am now having to go to the physician that placed the pacer (they are in the same office).  My doct...

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Turn it off

  • by Nunya
  • 2017-12-08 03:34:33
  • ICDs
  • 83 views
  • 1 comments

Has anyone had their ICD deactivated? I've had mine since 2012 and it has never done anything or recorded any events. 

I want it deactivated. What's the process?

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