Most Recent Messages

Weight control while taking beta blockers

Has anyone found a beta blocker that doesn’t cause weight gain or make you feel lethargic and wanting to rest all the time?  If so I would like to know the name of your beta blocker and dosage?

I have read that beta blockers lower metabolic rates, which means that we burn fewer calories.  Beta blockers calm my body but they certainly reduce my desire to move around.  Is it the same for you?  With the increased health risks that accompany weight gain,...

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Arrhythmias - what can your pacemaker do to help?

Hi everyone, 

The most common indications for permanent pacemaker implantation are Sinus Node dysfunction and high-grade atrioventricular block, both of which I believe are classified as disorders of heart rhythm.  Our pacemakers manage to treat these conditions successfully, but what can a pacemaker realistically do to control other heart rhythm problems like Atrial Fibrillation or even perhaps simple, benign ectopic beats which can cause such havoc inside our hearts?

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Crippling anxiety

Since my pace maker install 6 weeks ago I have had crippling anxiety. It made me feel sick. I went back for a checkup, but the Dr said everything looks great. I feel tired, and it feels like my heart is in my throat. It feels like im suffocating. 

It is slowly getting better, and I have so much appreciation for everyone that has posted here. It is amazing reading all of your stories and advise. I no longer feel alone. 

I have second degree heart block, and therr was only...

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Biotronic dual lead PM and Messenger home monitor

I had a Biotronik pm implanted 3 years ago with the intention of ablating my AV node. After a few weeks i was placed into the care of another cardioligist who decided to cancel the ablation and keep trying with drugs but i have been back and forth continually to my GP. She now wants me to keep a diary of how i feel and get data fro my PM in order to get a case for node ablation  which i might add they decided on over 3 years ago after a long period of misery. AF ablation wont work as i h...

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Use of Portable ECG Monitors

This week I went to my GP to discuss the two recent Holter tests. One was a 7 day and the other a 2 day. Nothing really unusual was found. I wasn't surprised as a felt okay during these periods. In between and after the second test, I have had lots of palpitations and ectopic beats which leaves me unwell. My doctor suggested getting a home ECG device. Today I got a KardiaMobile 6 lead device and when using for the first time, it would only work on the one lead setting. It said possible AF...

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Just a Tidbit

Yesterday I saw my EP/Cardiologist for a follow-up appointment.  All is good for the most part but I did mention how my everday walks include hills and how they completely zap my energy and cause me to be so short of breath.  I asked him how he felt about perhaps making an adjustment to my rate response.  He looked somewhat surprised and asked where I had learned about rate response.  I answered "oh I belong to the Pacemaker Club and that subject is frequently discuss...

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Thanks

Thanks for the responses to my previous comment. They were very helpful and appreciated. 

Monty

 

 

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ubiquinol Form of CoQ10

Anyone heard any pros or cons on benefits or side effects of ubiquinol / form of CoQ10?

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New Implantee

I've been implanted 17 days ... After surgery I had so much pain breathing while lying down I had to attempt sleeping propped up. This improved to the point that after 10 days the pain was barely noticeable. However I still experience so much coughing during the day and and night my abdominal muscles are sore. Has anyone else experienced this? I related all this to my cardiologist and he said the catheter may have "Irritated" my lung and it will resolve itself in time. I would a...

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A couple questions . . .

Hi, 
It's been a while since I've been on here. I had my first pacemaker / dual-chamber implanted at age 57 for Bradycardia w/ AV block, Mobitz 1 (Wenckebach). Also, diagnosed w/ HF. Then in 2020 I had it replaced with a CRT pacemaker. So.... my questions are:
1. If you have a CRT, how long have you had it?
2. If you have HF, how long have you had it? 
Thanks,
Damie

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How to Read Interrogation Report

Just received my interrorgation reports (all 25 pages in total) from my first two interrogations; Day after implant and 13 days after implant.  The Google U course for "Reading Interrogation Reports", doesn't start till next semester, so till then can anyone share the points I want to look at or pay attention to? I don't expect to find any smoking guns or surprises, but I do hope to get a feel for what's being measured and how this makes a difference to me. &nb...

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Settings

Got settings changed on my biotronic every 8 yesterday not to sure about CLS setting think it's making me lightheaded and dizzy, anyone else had this problem ,?

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Tick tock

I've had my bi-ventricle PM / ICD implanted for about 5 weeks now, after some serious sustained VT's. Everything seems to be going well but I am specifically but not consistently experiencing times when I can distinctly feel my heart beating. It seems to only happen in bed. And if my arm is laying across my chest, I can feel the beating into my arm. 
Anyone else experiencing this? 

I have a fu appointment on the 29th of the month.

thank you 

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SVT and pacemaker

This past year I was diagnosed with supraventricular tachycardia.  My pacemaker was implanted in 2016  due to sinus node disease.  My Electrophysiologist won't even speak of an ablation.  Has anyone a similar situation?

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Settings

Can anyone tell me if VVI -CLS settings on biotronic evity 8 pacemaker same as VVIR settings 

 

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Boston Scientific Accolade MRI EL Model L331 undergo MRI scan

I have a referral from my neurosurgeon for an MRI cervical spine scan with my Pacemaker.

My Pacemaker is the Boston Scientific Accolade MRI EL Model L331, and was implanted on 15/03/2019. I am very concern regarding the impact of the MRI scan on my pacemaker. I read it has a MRI mode where they can adjust the impedance so that I can undergo a MRI, after which they will reset it back to normal. Can anyone please confirm this, and who sets my pacemaker? 

<...

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Pacer setting is set very high....

Need some advise please if anyone has dealt with this issue:

Medtronic Azure XT dual chamber pacer implanted June 2022 for Mobitz II and LBBB, but only at high exercise > 140 bpm (minimum setting is 40 bpm bc I am normally in 30's).  55 year old male, avid runner and triathlete and no heart muscle issues... all conduction, and no clue what caused it.   Running was still awful in July 2022 and discovered pacer was only programmed to work <1% of the time.&nbs...

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QRSD & Dyssynchony Optimization

Going to my device clinic where a specialist is going to optimize my QRS duration on the 28th. They noted on my recent ECHO - "Abnormal septal motion is present, consistent with the presence of left bundle branch block." 

I interpret that as a septal flash and a clear indication of dyssynchony. All they told me is they want to narrow my QRSD as much as possible. From what I read, they are more than likely related. I have no idea what they are going to do as far as te...

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Battery gauge indicator

I was curious if anyone with a boston scientific device knows how long is left on your device when it gets to the yellow section on the battery gauge indicator?  Mine is almost to the yellow section, and then after that there is a very thin  red section near the end, which I assume is end of life (eol) and definite explant and replacement time.  Was wondering if the yellow section represents 6 months left on the battery?  Thanks!

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MRI with Pacemaker and leads?

I have had a pacemaker for almost 30 Years. 100% dependent. They just replace my last PM (my fifth) with a new one last Jan.

I have since then been diagonosed with Parkingston desease. I want to join a study that requires two MRI's. The PM tech said the new pacer is safe to have MRI. However my 30 year old leads have never been replaced. The tech was not sure even though I have model numbers for the leads. Any suggestions?

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You know you're wired when...

You participate in the Pacer Olympics.

Member Quotes

I'm 43 and have had my pacemaker four weeks today. I'm looking forward to living another 50 years and this marvelous device inside me will help me do that.