Most Recent Messages

Brugada Syndrome

I see very few posts related to Brugada Syndrome here. It must be a rare condition. Feeling pretty special now. 

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Pain Along Side of Left Breast post ICD

I just had my first ICD implanted almost a week ago and have down along the left side of the left breast. It feels like there’s something hard down along there, starting not to far under my armpit.  That breast is slightly swollen as well. I did get breast implants about 9 years ago. Anyway the device could have moved down along there?  Other than that I feel like recovery is going along beautifully. Waiting for a call back from the pacer clinic. 

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Best Cardiologist and Hospital for battery change in Kuwait

I have dual chamber Medtronic pacemaker implanted in 2005. I would like to know the best hospital & doctor in Kuwait to have the battery change of my pacemaker. It is more than 13 years living with my pacemaker and the change of the battery is due is next 6 months. Please share your experience. Many thanks.

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Are all pacemaker defibrillators the same size?

Obviously the smaller the better?

 

Has anyone researched what is the best thinnest smallest high end unit on the market in 2019?  I am only putting in one and I want it to be the best. How do I know my cardiologist is not contracted to a certain brand of ICD that might not be the absolute best? 

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Shocks and babies

Getting an ICD as soon as I decide the time is right - next week or in 3 months. 

 

I survived until now I figure I will last a while longer. 

 

QUESTION

If I have the ICD in and for whatever reason it gives me a shock and I am holding a child or a baby, is it strong enough to harm the baby or child I have contact with?

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getting a bracelet

I want to get a medical braclet that stands up to a lot of potial damage, what company and/or the have people here gotten and how well do the stand up?

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Pacemaker

Has anybody out there gotten a pacemaker or know somebody that has gotten a pacemaker and was later told by a different cardiologist that you were misdiagnosed and didn't need one?  What did you or they do about it? I am more afraid of the surgery to remove it and the leads than I was of putting it in.

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Irregular after Pacemaker

I had a pacemaker and an AV node ablation four years ago and have had a lovely trouble free time ever since..... until a couple of weeks ago, when I suddenly felt faint, my legs went jelly and I just made it back to the car where I was short of breath and had some chest pains.  Both my husband and self felt an irregular pulse - not fast but stopping and double beat starting type.  This lasted a couple of hours before normality.  I previously had a few years of trouble with atri...

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noise picked up 677 times?

Hi ,just wondering if anyone has had noise picked up from their leads inside their pacemaker? I was told I had 677 recorded events of noise in the last year. The tech said it could be a lead worn out or rubbing in my chest,not sure what caused this.

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Shoveling my stupid car out

Today was fun, the first real snow since I had my heart attack and I got to shovel snow around my car. Took 2 hours while it normally takes 20-30 minutes and despite a highish heart rate, 130, and some heavy breathing it wasnt that bad just slow. I'm counting that as my cardio today and they can fight me.

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New pace maker

I had my pacemaker implanted 3 days ago I'm quite anxious about it anyway but the pain around the wound seems to be getting better but I'm feeling breathless and have alot of intergestion has anyone else felt like this? 

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Long stretch in swimming

It has been recommended that I get an implantable cardioverter defibrillator (ICD) because tests show i have a mutation sometimes associated with  "Brugada syndrome" but not actual Brugada syndrome.

("Brugada syndrome (BrS) is a genetic disorder in which the electrical activity within the heart is abnormal. It increases the risk of abnormal heart rhythms and sudden cardiac death.")

SWIMMING:  I swim in a 25m poo...

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When will I feel improvement?

Had a loop recorder installed 8.5months ago after syncope and dizziness. It showed the bradychardia immediately, and over time heart block.Had bradychardia- down to 37 bpm at rest, and pauses (2.5-6 seconds). Had a PM installed 9 Jan 2019.

I've had CFS for years, and am hoping it was actually the bradychardia, and I'll feel better. I have been a bit less breathless (my breathlessness is usually at rest- when my HR falls), and am less tired after meals,  but am still ge...

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Pain

Had my PM surgery 10 days ago. The intermittent pain is getting to me. Mostly during the night, or after rising. I feel the PM all the time- either pressing, shoulder pain or a burning pain at the place of the PM. How long does this last?

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Hiking with a pace maker

I have to get a pace maker installed this year.    We have planned on hiking the Camino in France and Spain this fall.  the hike is approx 900K.

How long after having a pace maker installed can you hike that distance.  I would also need time for some training.

Thanks

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What to expect?

I have a Medtronic 2 lead pacemaker.  It was implanted in November but the lead pulled loose and a second surgery was done in December.  Medtronic has a mobile app to monitor the pacemaker. Sounds great but the doctor office doesn’t schedule any requests to transmit data.  What is the point of the monitor if it isn’t used?  Is it just my doctor or is the common practice?  First visit with doctor is 3 months after surgery.  Saw staff for incision follo...

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2nd degree heart block type 1

Just found out I have 2nd degree heart block type 1 , does any one have experience with this or know how it will affect my millitary career? Have been in for a few years.

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ICD moved?

So I just noticed it seems like my ICD has moved a bit south.  Wondering if it's okay to wait until the next business day to call my doctor?  

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Still Anxious

Well, I am into my 7 th week of post pacemaker and still feeling odd. I am also doing PT who comes to my home. Doctor has decreased blood pressure omens over the next two weeks. 

I am seeing a therapist and taking Lexapro and one half tab of Xanax two times a day. Helps a little, but still anxious, not sure over what though. I want to get back to work, at least part time. I had a caregiver for a week, because I was so dizzy and it was bad. Wondering if this is just going to take mo...

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The Hazards of Growing Old

Well, PM Friends, it finally caughht up with me.  I'm 82- 1/3 yrs old & my vision has been deteriorating for abot 10 yrs from Macular Degeneration.  For you youngsters in the clan, the Macula is the spot on the retina of the eyeball that defines The greatest detail.  W/o the macula, you cannot read very well because therre is a blank spot in your vision. If you want to examine what I can see now, close your right eye; look at the "G" key on your keyboard. ...

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You know you're wired when...

You invested in the Energizer battery company.

Member Quotes

A pacemaker suddenly quitting is no more likely to happen than you are to be struck by lightening.