Most Recent Messages

HOCM & ICD

I was diagnosed with HOCM and had surgery in 2016. In March, 2017, I received an ICD implant. Recently I began experiencing tingling and burning sensations in my toes and ankles. Also, I feel a strain in my neck muscles and pressure right below my shoulder blade. Occasionally there is a some swelling on the right side of my neck. I was told the ICD implant could be the cause for the swelling. Has anyone ever experiene these problems? Your response would be greatl...

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nostalgia

last but not least patch who with a sense of humour helped many of us to cope with our new devices..karen pookie says hi susie pacergirl says hi and says she decided to retire and is doing well. he aslo helped me  many times to have hope to go thru the horrible billof goods my husband got dealt...thanks i can never repay..

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going back to 2006

in 2006 i was very close to death and for a few months it was missed when i would appear for tests. i fainted in the funeral home where we had visited to make arrangements. finally one day with a pulse of 28 i was invited to have an emergency pacemaker. after a few days i returned home and that night i felt so low and my supportive husband said you will feel like this for a year.i went on to find this club that evening where i met wonderfully supportive people who i consider friends forever,...

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Pacemaker

Has anyone ever had problems with a burning sensation in both arms? Everything I read says a nerve problem, I was just curious!

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Cycling

I’m 5 week’s post implant, Medtronic Azure HIS Bundle pacing. I have chronic Afib so I’m 100% paced. Resting rate 50bpm, max 140 and ADL set at 95 and accelerometer set at low.  I’ve been riding my spin bike for several weeks with HR of 85-105...to go much higher I would need to spin at a quicker rate where my PM would realize I’m exercising....more rocking.  Today I went for first ride outside.  The roads in my subdivision or very rough...chip sea...

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Cardio MEMS

Any CARDIO MEMS users here?

--Dave--

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Digital dryer

I have recently had a pacemaker fitted ( 7 weeks ago) and every time I go near the dryer in my kitchen,  it lights up and makes the noises it usually makes when programming it. Is this normal? At the moment my children find it quite amusing but I am starting to worry that it will interfere with my pacemaker 

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Pulling wires

My dd had her pacemaker when she was 3.5 in 2016.  We own a trampoline park and she used to go all the time but one day I freaked out that would jumping on the trampoline pull the wires?? Her doctors are not worried but I think it may happen... has anyone had a similar experience? 

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New medication

Has anyone else been given Midodrine as a subsitute for pacemaker implantation?  I was prescibed this by my cardiologist and he swore that it would help my slow heart rate and low blood pressure.  I took it for a couple of weeks and was dizzy and disoriented as soon as I started.  I am 84 years old and the symptoms were debilitating. The doctor claims that the symptoms were not caused by the drug, but I was convinced that they were.  I have now gotten the pacemaker (o...

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Dizziness 4 days post implant

Hello all,

I just joined as I had a pacemaker implanted 6/21/18 for a slow beat.

I have been feeling dizziness, a little all the time and a significant amount when I get up after laying down or crouching down.

I also feel some tiredness.

Is this normal, or is it something that I should call about before my appointment in 3 days?

Thanks for your help!

FasterBeat

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Kardia Mobile--Is it for me?

I've looked at the Kardia Mobile from AliveCor several times, wondering it I should get one. I've been put off by two things

1. the ads stress it's usefulness in A-fib which I don't have

2. the ads specifically state that it's not for use by people with pacemakers which I do have.

The reason I want the device is that I have some sort of arrythmia that has started up in the last couple of months. It doesn't feel like anything I've had before. It mi...

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Working in high voltage electrical equipme nt

Dear fellow members,

Anybody out there having a permanent PM with MRI compatible and working in high  voltage switchgear room, electric motors, power turbines, welding activitied, and UPS system?. I have just my PM (MRI COMPATIBLE) implantation last 2 weeks and I was been declared unfit by my  company Doctor to work again as I will  considered to be a high risk in working environment.

Thank you in advance for all the comments.

Henry

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Fitness device

I am currently using an Apple Watch, and for a few years prior wore a Fitbit. I saw in a prior comment that someone could tell when their heart was in flutter from their Fitbit. I often get alerts from my watch that my heart rate is high, often only 105 or so, or rarely low, 41. How can you tell that it’s not artifact. I know that I will sometimes have a fib. My pacemaker is set to pace all the time. I would love to know if there is a way that my fitness tracker is indicating a fib...

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Whirlwind

I turned 33 on June 7th. 

I stayed at home because I was extremely fatigued as I had been for what felt like months. 

The fatigue and lightheadedness got worse and worse and I went to Urgent Care June 16th because I missed half a day Thursday, all of Friday, and didn't feel I was going to have the energy to return to work on Monday either. I was directed to go to the ER for a head CT.

My ER visit turned into admission, which turned into over 25 vials of blood,&...

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Complete Heart block

Does anyone here have a pacemaker due to complete heart block? I do and want to know what the circumstances of others are.

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Best Pacemaker for Young Adult

Thanks to everyone for their advice to my previous posting on getting a pacemaker.  It looks like that is the route I will be going. Now I'm going through the final decisions, including the type of pacemaker to get.  The doctor with whom I'm currently working recommends a Biotronik.  It seems like a good one, but it's hard for me to say for sure. Medtronic also seems good.  Any specific recommendations on what pacemakers are best?  Thanks for everyone'...

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ICD, Roller Coaster

Hello!  I have an ICD by Medtronic implanted since 2016!  No problems so far.  I am wondering if I can go on a BIG, FAST Roller coaster!  More specifically, the ones at Cedar Point, Ohio!  I have already booked a tour of the park with my best friend this September.  I am more concerned about the ones using magnetic force to slow/speed the rides up and down.  My cardiologist who installed it said I should be ok but I did not mention the magnets with him. &nbs...

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neurocardiogenic syncope

Please can antone out there give me advice on NCS.  This has been a very frustrating journey for me, with my cardiologists at a loss as what to do for me.  I have a PM but still haveing episodes after exercise. Any help is welcomed.

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unfit for work

I am a 56 years old, offshore worker working as Elect'l and Inst. Technician in oil and gas installation with a symptomatic slow heart rate which will go down to 25BPM. Usually my working environment are mostly in switchgear room with 35KV power supply, welding environment, Unterruptible power supply and oil and gas platform. Two weeks after my PM implantation ( MEDTRONIC, MODEL ENSURA DR MRI SURE SCAN, MRI COMPATIBLE. I undergo for my company required annual...

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Site pain

I’ve had my pacemaker 4 months now with no problems and little to no pain after the first few weeks.  I feel great and have been very active.  I’ve been side sleeping just fine, etc. 

Here’s my question.  Last night, while on my right side, I had a terrible pain and jolt at the implantation site (muscle).  It literally took my breath away for a few seconds.  After that, it was sensitive all night no matter what position I tried. It still s...

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