Most Recent Messages

Leads

Who has the oldest leads?

My top lead has been turned off as it had lots of noise on it, apparently I never really needed it,  I have been told it was normally practice to put two leads in 23 years ago.

Just wondering if my pacing ventricle lead will last let's say another 20 years?

Just want to know who has the oldest

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2nd degree heart block

I have 2nd degree heart block mobitz ii and will have dual chamber pacemaker placed in about 4 weeks.  My question if you have had same how much did it help you with things like shortness of breath, muscle fatigue and weakness, etc

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Edibles for sleep

My cardiologist says it was safe to take thc edibles for sleep with a pacemaker .I take no other heart meds anyone els have experience with this?

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Head rush/pressure

When I lay on my stomach I get an immediate rush of head pressure.  This lasts for about 20 seconds.  I've mentioned this to my Dr., but he acts like he's never heard of such a thing. Anyone ever experience this?  I've had my PM since 2011.  Thanks

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pacer lab

I have had my Boston Sci. pacemaker since Jan 2015 and have always been called in for Pacer lab once a year along with appt. with Dr. Seems I have been forgotten this year as I was last year. I have had no problems with pacemaker. I am 76 yo. How often should I have a pacer lab appointment? 

Used to be on monitor and received bill every three months then the bill stopped so I unplugged it.

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Defib

I'm not posting this to concern anyone because I' sure it's rare, My defibrillator shocked me 8 times a little over a week ago duueto a malfunction. I'm having a very hard time calming down over this as it was very traumatic sitting there knowing it was going to happen again and again. It has since been shut off so I was told but my anxiety is still very high and the doctor has put me on medication to calm me but I still cry a lot. Any advice or anyone who has been throug...

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Rate Response

Hello everyone!

I wanted to get thoughts on the rate response setting on our PM. I have a Biotronik Edora 8 DR-T dual chamber PM. With that said I've learned that it has different rate response features. Initially I had the CLS setting and it capped at 140BPM but it kept going off and made me feel awful. They lowered it to 120BPM and it made a difference but I'm not sure if it helped me or not. Anyhow they've turned that feature off and activated another which responds to my...

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Pad for Backpack Straps

Has anyone found a good solution for padding a backpack strap over their PM? I packed my son around in a carrier for 30-40 minutes and it wasn't uncomfortable, but I don't know how it would feel after multiple hours. I also just want to protect my device a little more. Thanks!

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Getting ICD

I'll be getting an ICD in two weeks. I just found out about having heart problems in February. I'm kind of nervous about the surgery.

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CRT pacemaker

In January I was fitted with a dual lead pacemaker as I had a very slow heartbeat. All was well until May when I collapsed. In hospital they discovered that the left side of my heart was out of synchronisation with the right side.  I was then fitted with a 3 lead pacemaker( CRT)This happens in 1 in 100 cases. I wonder if anyone else has had this experience?

 

 

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Exercise & Diet with a PM

Had a good 3month follow up with my EP this morning. I'm 30y/o, HIS pacing, PM placed April of this year. A few questions for y'all:

 

1) my wife and I are considering a plant based diet. Have any of y'all found that to be optimal for cardiac care and performance? Or have any other diets you've tried or research you've done? 
 

2) I asked if I could get back to doing push-ups and he basically said that if it doesn't make my life le...

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Well - That's me done!

I have been in hospital for five days after being admitted via A&E / ER.

I had a feeling of a heavy weight on my chest and started to find it difficult to breathe. I was given GTN and aspirin and the weight disappeared overnight.

I have been moved to the coronary care unit after several tests, all of them looking at my heart. They found nothing out of the ordinary that they did not already know about. It was not a heart attack.

I am now being assessed for possible heart...

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Walking vs steps

Good morning. I can walk a quarter mile with not breathing problem (my legs get tired), but when going up a flight of stairs, I get winded.

Is there that much difference in how much energy used, or is something else going on? - Mike

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Micra and Old PM

Hi, I have posted lately because my PM went into end-of-life mode. My surgeon had to (inexplicably) cancel his surgeries and they found an EP to replace mine; the new surgery date is this Friday.  In the mean time, this pacing is horrible!  Anyway, I was reading previous posts about the Micra.  What do they do with the old battery?  Does it have to come out or can it be just turned off and left in?  I am wondering because I am scheduled for major surgery a week after...

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Corlanor

I had been on Corlanor after a cardiac arrest/shocks from my ICD in Dec 2019.  I had complained about vision problems after starting the med, but my EP didn't say much about it and I didn't make a big deal of it, as it was listed as a side effect and I figured it was more important to take the med for my heart.  He called me recently and told me to stop the drug immediately.  If you are having vision problems on Corlanor, or if you are taking Corlanor, please speak to y...

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Views on Antibiotic prophylaxis before surgery or a dental procedure

Hi there

I just wondered your views and experiences on using antibiotics before surgery or dental procedure as a precaution to prevent bacterial infections with PMs to reduce risk of infective endocarditis? 

With my PM op they used antibiotics, with my loop recorder insertion they didn't. I've been told by a dentist that it's not normally recommended for teeth extractions, root canal, filing teeth to create space (part of orthodontic treatment) etc, but...

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Questions for Dr Follow-Up

Hi all! I have my 3 month checkup tomorrow with my Dr. (who is amazing btw; Dr. Mandrola; hope it's okay to share his name). Are there any questions y'all would recommend me asking? I'm 30 with HIS pacing. 

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Blood Thinners

Any one use Tumeric (Curcumin) as a blood thinner? Been using it for inflamation and it also is known to thin the blood. Thought about a PT test to see the effectiveness. Taking drugs Xeralto does not excite my wallet, unless it is absolutly necessary! Have flutter off and on. No diabetes or high blood pressure, not Fat! Areobic (serious) Exercise two hours every day but Sunday been at this for 40 plus years, thanks now a pacemaker. Bradycardia  My stroke risk factor is very low. Just a...

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Using crutches?

I'm scheduled to have a PM put in next week, in the midst of having a knee injury and being on crutches.  It is occurring to me that I may not be able to use crutches for some time after the implant.  

I didn't think to ask the EP about this.  Does anyone know?  

And when he said, "You shouldn't move your arm forward or backwards or reach up, and no pulling or tugging," (I think for 4 weeks) does that mean things like playing the pian...

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ICD shock

Hi all. 

I had a shock this morning and had to go to hospital. Thing is I have a 2 week old baby and now I am frightened to hold him incase it goes off again whilst I am holding him. 

I really don't know what to do or who to talk to about it. 

I can't go on just looking at my baby and worrying about not wanting to hold him. 

Any advice would be much appreciated. 

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Member Quotes

Try to concentrate on how you’re able to be active again and feel normal, rather than on having a machine stuck in your body.