Most Recent Messages

Paced Out with Pacemaker

I received a phone call from someone monitoring my ICD remotely and she said that I "paced out" yesterday at 2pm. I asked her what that meant and she said I had a rapdi heasrtbeat.

I told her I was running on the treadmill and she asked If I experienced anything. I did not. It was also the first time I ran relatively fast (for me) on the treadmill.

The question is what does it mean if I "paced out". Does it mean the EP should increase the upper limit of my pace...

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I have arrived!

Well, somehow I woke up this morning feeling very happy!  I was sitting in my recliner with my pug sleeping on my lap as I sipping my hot coffee.  I came to realize why I was feeling so happy.  I'm getting a new PM on April 22 because this one is running out of juice a year early. I've been scared and worried and well, feeling sad.  Today, it's the old me back again! hahahha, I'm getting a new PM! I'm not going to die, I'm not going to be sad,...

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Kite surfing with a pacemaker

Hi, I'm new to the group so sorry if this has been covered before but has anyone out there had experience of kite surfing with a pacemaker?  If so did you have any problems?  I had mine fitted last September and have got back into snowboarding and cycling as well as non-upper body gym work, now I want to get back out on the water.  I have some concerns but feel with a harness will not have any problems.  Just looking for anyones experiences for peace of mind and for my...

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Lypmh nodes enlargement at both arm pits after fixing the PAcemaker.

I got the PM implant fixed on 7th March. Yesterday I noticed Lymphglads enlarged at both arm pits, only slight pain. Is it of concern or I can just forget it? Did anybody had this problem??

Regards, DILIP.

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Diagnostic scales and ICD

I'm thinking of getting a diagnostic scale to check my body water.

Is it safe with my ICD?

 

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Earbuds and ICD

I'm thinking of getting wifi earbuds to use in my walks.

Is it safe to use with my ICD?

 

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Pacemaker "overheating" reduced pacing rate

I had my pacemaker implant on 01.30.19 I have had a positive recovery until this weekend; following a brisk walk the pacemaker and area around the PM were warm to the touch and the heat only subsided later that day. Saw the pacemaker team today and they felt the unit was overworking as my natural heart rhythm has improved. Thay reduced my right atrium pace from 100% (70bpm) to a lower amount (they didn't say how much!) I'm now feeling quite lethargic and more breathless. Has anyo...

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AFIB

Pacemaker implanted feb 13, 2019. Minor short 2 hours of AFIB three times until Friday March 22, 2019. Have been in and out of AFIB with probably 98% in AFIB. Heart rate has been 100+ at rest. Prior since feb 13 rate has been 60-70 at rest. Taking rate reduction meds. Pacemaker set at 60 bpm. 

Any experiences with this. 

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Amiodarone, Valsartan, Carvedilol

Hi. Has anyone out there experienced legs feeling like lead and unable to climb stairs? Implant was done Nov 2018 and I still have not returned to work as a mail carrier. The cardiologist and the EP keep changing my meds and I am wondering if my new combo could be causing my feeling of “heavy legs” and my inability to climb stairs without being severely winded and exhausted. I was fine before the heart failure, is it the meds causing my situation or is it the pacemaker?

Any...

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Battery life

how do you know when your battery is getting low what signs do I need to watch for 

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Medtronic Pacemaker Vibrated

My pacemaker just did a slight vibration. Does anyone know what that’s an indication of? I searched the internet and it’s confusing.

 

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YEAR AFTER PM AND MY LEFT SHOULDER, LEFT ARM, NECK HURT.

 A year later and having pains in my left side.  Cant even sleep on my left side. The pain radiates on occasion from the pacemaker area, to my neck, to my left arm.  Sometimes its just nuts.  Any on else??

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Needed help sleeping the first few weeks

So I'm 3 months post op and I was just remembering that on the first weeks after the surgery I had to put some show on netflix so I could go to sleep. To give a little background, I've never been someone to need a nightlight or sounds to fall asleep, but if I'm sleeping with someone and they wanna watch tv while I sleep I've never had an issue with it, even though I'm a relatively light sleeper. Also for the surgery I was extremely calm, despite everyone around me bei...

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Pacemaker protection

Has anyone tried the vital beat protector?

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CRT

3 months on LifeVest. Beginning 4th month. Awaiting nuclear scan, then to meet Cardiologist for decision. I have more frequent weakness, tiredness. Spend so much time having to lie down. HR very up and down, even low 30’s. BP very up and down, can go very low. EF mid 30’s varying. NICM. Subendocardial damage low to mid left ventricle, not transmural. Septum not squeezing, but hopefully, this is electrically correctable. PVC’s many, IVCD’s frequent, LBBB. 

...

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Are you being hacked ?

There is yet another hacking scare in the UK press this morning.  This one concerns a security flaw which affects 16 separate models of Medtronic defibrillators. It seems that these faults mean that the MYCareLink Monitor enables a hacker to intercept the radio frequency communication to your implanted device.

Nothing to worrry about though it only means that a hacker standing no more than 20ft from your home could give you electric shocks or drain your defibrillator battery ! &nbs...

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Overdrive pacing

Does anyone have overdrive pacing on their pacemaker and why should it be on? 

 

Liz

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ejection fraction

My latest news is a well connected and working CRT device BUT poor jection fraction still 25-30%...how should I interpret this..any views appreciated..?

 

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Micra Placement

Who out there has this device and what is your experience so far?

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ID card

I went on holiday to the Canary Islands recently, going out ok as I could passed through surcurity ok with no problem but coming back I had to show my pacemaker medical card which as you know  the uk is a dog eared card the longer you have it the more dog eared it becomes. Has anyone found a company that will produce a plastic I’d card for pacemakers

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You know you're wired when...

You have a little piece of high-tech in your chest.

Member Quotes

I am very happy with mine. I am in the best shape of my life. I lift weights, compete, bike, golf and swim.