Most Recent Messages

Feeling weak

Hi everyone. I am a 59 yr old female, had a pacemaker placement 9wks ago this Wednesday will make 10wks. I am still so weak it's all I can do to do the basic task. I feel like I should be feeling better by now. I am am very disappointed in the progress that I have made in 9wks. I am wondering has any of you pacers experience this. I will see the cardiologist on Friday hoping they can give me some answers. they keep saying they are going to adjust the settings. but they have not done so. I...

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Throbbing sharp pain above collar bone by neck

my pace maker was put in Jan 3rd 18. 

I ended up in the ER Friday 12th from this throbbing pain above my collar bone by my neck. On the same side pacemaker.  I started to feel very sick to my stomach. They gave me something for nausea. 

Earlier that day my grandson noticed how huge my veins looked. I figured it was because my heart's beating the blood. 

They got everything calmed down in the ER. Went home tired. Spent the next two days asleep could no...

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Sub Pectoral Placed PM Issues

Hi everyone!

Im 32 years old (female) and had my first PM placed Dec 2017. I ended up getting the PM because I was bradycardic, ended up with low BP, and almost no SA node function constantly. I’m pacing about 20% of the time (in two weeks it paced 777 times). The cause seems to be idiopathic or genetic (I’m adopted so no way of knowing). I have a few questions and hope some of you can help me out. Thanks in advance!

1. My PM was placed sub pectoral - I...

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New Pcemacker

I am a 52 year old male thar two years ago thought he was healthy till feb 9, 2016. Since then I have had 5 Catheterization’s and 4 stents implanted in my  mid LAD. I’ve had 3 blockages over 80% due to scar tissue restenosis. During the last 20 months I have had an irregular heart beat that dr thought were due to blockages or medicine. After my last stent on dec 22. They implanted a loop monitor. Two weeks later they decided to give me a dua...

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Heart rate following Biventricular pacemaker / ICD and AV node ablation.

I began my journey with the onset of severe AF on Christmas eve 2008. I was treated for an MI then had an angiogram confirming no blocked arteries.

The AF episodes continued, I was diagnosed with HOCM at London Heart Hospital in 2009, then had a septal myectomy and ablation in early 2010.

The AF continued so had a further ablation. With the AF still occuring, I had a biventricular pacemaker/ICD in late 2014 and then an AV node ablation.

Once all had settled down, i have had...

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Heart rate too high when walking

I had my pacemaker surgery last week for Sick Sinus Syndrome and Chronotropical Intolerance. I’m 44. I love to run, so I was interested to see what the rate would be when I went for a walk (I’m not allowed to run yet). I started out slowly and felt my heart beating rapidly. I checked the heart rate zones after the walk and the average was 145 with a maximum of 175. I wasn’t walking fast and didn’t get a sweat up. I usually get these results from a general run...

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pain

I have a tear in my bicep muscle which is extremal painful, have tried pills creams physio,. no joy, would it be safe to use a tens machine, i know it states  not to use with a pacemaker, just wondered if any peeps on here have used one  

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Atrial pacing is consistently increasing. Thoughts?

Hi all!

I suffered complete heart block back in 2014 and was fitted with a dual-lead pacemaker.  In 2017 I was diagnosed with cardiac sarcoidosis. First cardiac PET showed slight inflammation and fibrosis; follow-up PET six months later showed inflammation had resolved. (I've still got the heart block, of course.)  I'm basically asymptomatic and am not on any meds.

My PM interrogations over the past few years show that my atrial pacing is consistently i...

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I have cardiac sarcoidosis. Should my grown children get checked?

Hi all!

I suffered complete heart block in 2014 and received a dual-lead pacemaker, which I'm now 100% dependent on. Three years later I was diagnosed with cardiac sarcoidosis.  As some experts say, "the first presentation of cardiac sarcoidosis is often the last presentation" (i.e. sudden death), so I'm  wondering:  As sarcoidosis is believed to be partially genetic, should I get my 27-year old twins checked out for sarc?

Thanks! Your advice...

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Positioning

Good Sunday Everyone

So I’m feeling good and I’m starting to get used to my PM. 

I do have another question though. Hopefully someone here will know or understand what I’m ralkibg about. 

So 95% of the time I can not feel my PM or my leads but sometimes when I lean forward or rest on my left side I can feel the leads in my heart when it beats. It’s not painful but simply a very weird feeling. 

The best way I can describe it i...

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hiking with a backpack

My wife and I are planning a trip to Zion NP and the area this September. I'll be wearing/carrying a backpack. I'm looking for advise on how best to not suffer any negative side effects from the strap. Thanks, Bob 

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Av block and falling EF

  • by Mars
  • 2018-01-14 06:19:42
  • ICDs
  • 90 views
  • 5 comments

Hi, I am now on here, I had a CRT-D fitted November 30th 2017.

I had an echocardiogram September 29th 17, which showed my EF was 49% which was an improvement over my post MI echo of 34%, five years previous. At a routine appointment on the 27th of November, my pulse was checked and was found to be low and skipping beats. I was sent for an ECG which showed 2nd degree AV block type 2. 

Does anyone know of a reason why I would get AV block 5 years after my MI? And why my EF drop...

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pacemaker

I bought a electric toothbrush on the directions it said check with your cardiologist to see if it is save to use it if you have a pacemaker.   Is anyone using a electric tooyh brush that has a pacemaker

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Heart rate not increasing

Hello everyone,

My mother (aged 79) recently moved in with me. She has a medtronic pacemaker - relia red01 (DDD). She was diagnosed with sinus bradycardia 11 years back for which the pacemaker was done. First replacement was done around a year back.

The lower rate is set at 70. What i have seen is her heart rate never increases in response to any activity. I measured it right after she finished her walk and it was 70. She gets exhausted and out of breath very fast, and has to take...

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PACEMAKER RATE

My Pacemaker Rate is set at 50bpm i was wondering if this is very common. 

I still get feelings of severe fatigue some days and my heart rate sits in the low 50's. 

Technician mentioned last visit that it isnt actually pacing much at all due to the low rate it is set on. 

would it be worth asking Cardiologist about increasing the rate? 

I have also had issues with one of my leads oversensing which gives you a feeling of missed beats, they c...

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New to this

This has happened very quickly for me despite an accident ten months ago. It took the doctors a long time to find out what caused my accident - I fainted at the sink and fell back onto a slate floor, sustaining a cracked skull and some brain damage. I believed it to have been caused by hiccups and my jumping up to get water, sending a ‘rush’ to the head but eventually it was traced to an asymtomatic  sinus node. Three weeks after the diagnosis, I’m in hospital for the i...

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Hand swell and Arm swell

Since my pacemaker implant on my left side 2 years ago, my left arm, leg and hand have swelled up quite a bit. Reading and research has shown many people with implants, either side, has experienced the same. My doctor and heart specialist who implanted the device, both do not agree the device implant could have caused such a thing to happen. There is alot of eveidence that shows otherwise. My question then is has anybody reading this experienced the same symptoms and has there been any treatm...

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New technology

Hello all my names mark , my daughter pearle has a pacemaker , 3rd degree heart block since birth she is now 5. Pearle is on her 3rd pacemaker which is now a Medtronic dual pacemaker abdominal. In her last operation they tried to extract lead from vein as was showing wear due to growth in doing so the vein collapsed so that can't be used now and they don't want to use the vein on other side until she is bigger , Hence why in abdomen now , on plus side she is now has a d...

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ER Again

I’m 3wks Post implant today. I was feeling good all day and then once again my HR went up to 150 then about 20 mi urges later to 170. I’m in the ER and they have received the info from Medtronic. My question is the ER Dr doesn’t seem concerned?! I’m very concerned!! Has this happened to anyone else? Thanks for the support! 

Linda

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Pacemaker checks

When they say you are pacing at a certain percentage..do they mean daily, weekly, or monthly? Thanks in advance..

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You know you're wired when...

“Batteries not included” takes on a new meaning.

Member Quotes

My eight year old son had a pacemaker since he was 6 months old. He does very well, plays soccer, baseball, and rides his bike. I am so glad he is not ashamed of his pacemaker. He will proudly show his "battery" to anyone.