Most Recent Messages

Covid Vaccine

Has anyone experienced any side effects who have Bradycardia and and a dual lead pacemaker after having either of the two vaccines? Job has mandated that all employees have to be vaccinated by December 8th 2021. Tried applying for a waiver but it appears that no cardiologist or care physician will touch the subject for fear of reprisal from the medical field. Please share thoughts or concerns.  Thanks

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Questions for surgeon

Hi everyone,

I think this is the greatest site ever for those of us who have or plan to have devices to help them. I'm 91 years old and on my 4th dual chamber pacer. The last one was placed in March, 2020. Recent cardio testing (Echo's etc) have shown the need for a biventricular pacer. I'm convinced this may help because I do have shortness of breath, sweollen legs and ankles and the tests show 45 percent fluid in my lungs. I have cardomyopathy and controlled glaucoma and k...

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Exercising with a pacemaker

Hi I am new, 41 year old female, just got approved for a Biotronik pacemaker which will be fitted on 30th Nov. Nothing wrong with my heart itself, but had a brain injury 7 years ago which left me with severe autonomic dysfunction. I pass out and am presyncopal much of the time due to low HR and low BP althouth the latter is relatively normalised on fludrocortisone. 

Exercise has been my saviour since my accident, paradoxically I am more active than before it, and feel best whe...

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Child with pacemaker

Hi All,

I am new to this group. My 11-year old son was diagnosed with CCTGA 4 months ago, and subsequently had a pacemaker inserted for complete heart block. He is finding it exceedingly difficult to accept his condition and his pacemaker. I know that he is young and it will take time to get used to it, but I was wondering if there is anyone on this forum that can offer advice to me as a parent to help him cope and accept. If there is anyone with a child his age with a pacemak...

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Boston scientific & covid vaccine

I'm looking for someone whose gotten the covid vaccine that's had a Boston scientific 3 lead icd with defibrillator in longer than 3 years.  

 

Did you get the vaccine? 

Any complications?

Thank you

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booster for Covid19

Had the Moderna booster this past Saturday, Oct 23,2021. Had the shot in the left arm in case had problems.  As i sleep on the right side because of Pacemaker.  Also right handed.  Glad i did as had severe pain at shot location.  Also had a giant thirst.  Sunday, Oct.24, fianlly the pain was gone around 4:30am est.  But was quite tired and slept off and on all day till about 4:30pm est.

Now i can lift my left arm up without  much pain.   Stil...

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Biopsy scheduled

My EP has scheduled me for a biopsy in mid November.  My heart function and echo has changed since mid June, including additional thickening and stiffening and a change of movement in the septum wall.  He spent 2 hours doing the echo, working with the tech and many times doing the imaging himself, having his med students write down areas to biopsy.  What a difference with him doing it at the hospital, as when it is done in the office he will pop in and out between pat...

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Adding comments/questions to older threads

While doing daily checks for spam messages, I often come across new Pacemaker Club members who have left comments/questions in older threads that may be weeks, months or even years, old.  Unfortunately, the Original Poster may never see these late comments/questions, so they often go unanswered, leaving the new member disappointed and without support.  

If a new or established member has a question or wishes to make a comment after reading an ...

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Has anyone ever felt this funky strong vibration/pulse feeling out of nowhere?

Hey everyone! I hope you're all doing well.

I got my St. Jude Pacemaker June of this year due to third degree heart block and I'm a 31 year old female.

Well this past Thursday around 8:50pm I was relaxing as I usually am at this hour and I reached over on the couch where I was sitting to grab the remote. At that moment I felt this VERY strong pulse feeling towards the bottom of my throat. This is new to me. The feeling went on for about 1-2 minutes but it was really weird....

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Hate having ICD

I'm 35 and had to get an ICD in May of 2020. I had 3 heart attacks at age 19, 2 Bell's palsy attacks at 18 & 19, a heart infection in 2017 and then found out I have heart failure when I was pregnant with my son in 2019. I have been shocked 4 times as of yesterday and they even changed my settings a week or two ago so that hopefully it wouldn't happen again or at least give me more of a heads up that it was about to happen. I hate this thing so much, I never feared my heart bef...

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New to PM

Hi,

I'm new to PM and wanted to say Hi to everybody.

I just got my Edora 8 DR-T installed 10/21 in a local hospital.

It was not an easy impantation since they found out that my electrical conduct to the lower body is weak and keeps degenerating. That's why they tried to connect it to a specific spot which leads to the lower body.

The whole procedure including checking "voltage" to extremeties took around 3.5 hours.

My symptoms were/are brady/tac...

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G Force - V8 super cars

Hi All,

I hope everyone is happy and healthy. I just thought you guys would be the best person to ask. I am wanting to do a V8 Supercar hot lap around Mount Panorama New South Wales Australia.  The car will go up to 200km to 300 km an hour, it will pull two G's around corners.

I am 50 years old female,  100% paced, complete heart block,   leaking mitral valve and Hashimoto's disease . My cardiologist said I can jump out of an aeroplane. B...

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CRT D hard copy settings not given to patient ?

When my CRT D was placed I was told that my HR wouldn't go below 60 so I was concerned when I saw it at 51. I called the hospital and asked for the settings on paper so I knew what they were and was told they are not given to the patients? I find this very strange. I was told a similar thing when I had a Holter monitor in June so I have no idea of the results. 

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Biotronik pacemaker monitor

Hi everyone,

I'm monitored every night and so is the data being sent when I have about 30 seconds sensation of slightly elevated and thumping heart beats? 
If so then this is getting slightly earlier every night and at this rate in a few months time it'll be happening when I'm not even in bed 🥴

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New Bruise

All of a sudden today a brusie or red blob showed up under left breast.

Hade PM installed two weeks ago today.

Sent to Cardiologist a picture just now, but it is night here, so will not hear back probably until tomorrow.

Surgeon did say something about blood settlng down below the incision, but this does not sound like what he meant

Has anyone else experienced something like this

Thanks

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NON SUSTAINED VT

Hi hope everyone is well and enjoying the late sunshine in the UK.

 

I only pop in here occasionally to say hello as I am generally well, heading up towards 70 now, 13 years pacing and on my second device.

 

My bedside monitor was assessed recently, I've not seen a doctor for about 18 months, since I had my device replaced.  Today I received a copy of a letter from the hospital to my GP stating that I had one episode of non sustained VT lasting 23 se...

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Medicare stand alone drug plan

Was wondering if anyone from the U.S. who has regular medicare with a  stand alone drug plan.  What plan you have that covers any anticoagulant, incase i need in the future.  The plan i have now(Silver Script,Atena) does not cover any.   Does not even cover the antibiotic, i need to take because of my shoulder replacement for teeth cleaning.

  thanks

new to pace

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Replacement

My old pacemaker needed replacement as the battery was almost run down. I was lead to believe it would be simple. My Cardiologist got called away to an emergency when my procedure was due so a replacement surgeon was called in. When my GP checked my wound a week later, he told me the PM was in the wrong place: too  close to my clavicle and it was restricting my arm movement.

My Cardiologist agreed and scheduled a repositioning procedure. However, unlike the othe...

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ICD

Had my 3rd ICD implanted in 2019 and recently underwent 3 heart procedures in the past 6 months. Today was an ICD check. The technician/RN Nurse turned up the ICD really high to the point I was begging her to stop it because I was getting so dizzy. The next thing I knew, she was shaking me asking me if I was okay. My head had fell backwards and hit the wall. It was obvious I had passed out and she tried to tell me I fell asleep. Knowing I could not have fallen asleep under such a painful...

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Pacemaker Club - post Pacemaker/ICD Implant Pain Survey

Dear Members,

Over recent months, several members of the Pacemaker Club have expressed a wish to know how many of us experienced pain following implant of our devices, the nature and extent of that pain and how it affected different age groups and gender.   

A survey has now been set up with the kind help of Club members and the link to the survey is given below.  The survey is confidential and will not be used for marketing.  All members irrespective of w...

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You know you're wired when...

The mortgage on your device is more than your house.

Member Quotes

As for my pacemaker (almost 7 years old) I like to think of it in the terms of the old Timex commercial - takes a licking and keeps on ticking.