Most Recent Messages

How does it know?

RE: The programming of any PM device...............depends on what it is "told."  If the ventricle(s) are not completely filled, is it sort of a wasted effort, esp. in regards to an A-V Node ablated person?  Seems the only "workaround" entails a talented Doc who can acurately "read" the sonograph and give proper directions.

--Dave--

Read More...

Tickling feeling in my heart

Hello everyone,

I am new to this site, also to the new journey of being a patient of an ICD. Currently going on 6 weeks of my ICD being implanted.

This has been quite a life changing experience at my age.

Since my implant I have noticed and also talked my cardiologist and EA nurse about feeling some tickles in my heart. They seem to happen when I laugh or move certain ways. Has anyone else experienced this before?

Thank you,

Melissa

 

&...

Read More...

New to this PM community

Hi everyone!

I am really new to this PM thing and hope to find some advice from this great community.

My story is quite short and started on the 3rd of November this year.

On this day I fainted the first time and had no idea why...

5 days later I already received a PM due to 3rd degree av block.

I am 33yrs old and was very active (Crossfit, mountain biking) before this heart block thing happened.

Since today I lost the trust in my body and have problems to...

Read More...

Electric heated clothing

I'd like to buy my father a heated scarf and/or vest, is it ok or is it intefering with normal operation?
Is there another way to heat up the air prior to inhaling? He also has lung problems, cold air is his nemesis #1.

Read More...

My head feels like my body is slowly moving.

I was not experiencing this until the 2nd time my dr adjusted my pacemaker after 1 week I started feeling like my head feels like my body is slowly moving or a slight earthquake is happening.is this normal?and my heart rate is like 90 to 100 even though im just sitting.and my next interogation is after 4 months.

Read More...

life

yesterday morning i delivered my husband to emerg for a sore foot. no bloodclots. thank god. he did go in to cardiac arrest. he was only dead a moment when he sat up pushed everything away and carried on. he was transferred to london on by his cardiologist in toronto so a bed was waiting. he had full sirens going the whole time to london as he was an unknown quantity. i have always thought that as well. anyway lets hope he can be repaired. i say repair as that's what it is .to be able to...

Read More...

Left arm and shoulder pain

I'm now 2 months out from my implant of a pacemaker and I've really started to notice a lot of pain in my shoulder and left arm. To the point it is a burning  pain. My left arm is often weak or not as strong as previously. When I ask my docs, they just tell me to take otc pain meds. I've also noticed that on really cold days, I ache more in my shoulder and site area. I have been in weather temps the last couple days of temps under 28 and the pain gets really bad and will ling...

Read More...

Hello, New to PM

I got my medtronic dual chamber PM on 12/7/18 due to sick sinus syndrome.  I just turned a young 66, and have been a type 1 diabetic for the past 54 years.  Fortunately I am now retired.  I used to exercise regularly by walking 6 miles 4-5 days/wk.  The symptoms came on slowly, and were compounded in getting a diagnosis because of another issue that affected my diaphragm.  But once I got referred to an EP doc the diagnosis was simple. I really need to get back to exer...

Read More...

Fed up

Hello all.... This sounds stupid, but I am fed up right now.  I have the stupid recalled St Jude unit that my doctor would not replace until it started vibrating.  Well, saturday night it vibrated, and it is probably due to a need for replacement.

It vibrated Sat night, twice on Sunday, so I thought I would wait until Monday and see if they contact me to ensure Merlin works the way it is suppose to.

Monday - no vibrations - I suspect the vibration part was turned off at...

Read More...

Post-Op

Had a CRT-D placed October 2, 2018. 9 weeks out now. I still have some soreness around device area. After waking up in moenings the area is sore and tight, is this normal? What should be the total recovery time until the soreness subsides? TIA

Read More...

Mammography and oacemakers

In late 2013 I had a mammogram done in the facility where I have had most of my mammograms - the Tech was especially aggressive and when I cautioned her that I have a pacemaker her pat answer was “ mammograms do not interfere with pacemakers”. Starting in January of 2014 I began having pulsations in my left anterior chest wall intermittently.  However due to the fact that my pacemaker still had at least or over a “year of battery life left”. I was advised tha...

Read More...

Svt

I have been told that ablation is really safe. My doctor is pushing for this, I suffer from supra ventricular tachycardias, my doctors concern is that my icd will mistake this for v-tach and shock me. I am looking for input.

Read More...

Surgery

Hi there. I have a dual chamber MEDTRONIC Pm. I possibly might need surgery, however not anything related to my heart. My question is will they need to switch off my Pm for the duration of the surgery? Is it necessary? I look forward to some feedback. Thank you. 

Read More...

Feeling in body

I have a SCU with difibuator.  At times, if I sit a certian way, I can  feel my heart beat down by my stomach and it actually feels like a baby kicking inside if i were pregnant.  Any one else experienced a feeling like this???  Maybe I am going crazy..happens when I lay down too... b

It has 3 different leads...

 

 

Read More...

remote control

my new hearing aids come with a remote control  will the use of this affect my pacemaker

Read More...

PM Timing

This post is a companion to my earlier one where I posted a search for talent:  At that get together, the Doc would watch the sonograph, then instruct the device clinic nurse to do this, or that in regards with the "timing" of when each ventricles lead would "fire."   The PM I had implanted at the time (as well as its replacement) featured "Cardiac resynchronization therapy" (CRT).  Shouldn't this feature have automatically performed...

Read More...

Can people feel symptoms of hb sometimes even with a pacer?

I am wondering is it possible to feel symptoms while the pacing device is working. For example giong in and out of a stage of hb.

Read More...

Death & pacemakers

question when we die is their anyway too donate it to someone who may not be able to afford or something 

Read More...

Pacemaker Removal

Hi Everyone

I am 15 years old and have had a pacemaker ever since I was a few months old. After a few years my first pacemaker stopped working. It was placed below my ribs. That pacemaker was removed and a new one was put in on the left side of my chest. I have hypervagatonia which caused my heart to slow down when I was young for the smallest things such as accidentally hitting myself with a toy I would pass out. As I have grown up my symptoms have gone away. There has always been a co...

Read More...

Inr

This a question for anyone out there who is on warfarin I’ve noticed since the weather has turned cold my inr levels have been getting lower is this normal ?

Read More...

You know you're wired when...

You have a T-shirt that reads “Wired4Sound”.

Member Quotes

I am just thankful that I am alive and that even though I have this pacemaker it is not the end of the world.