Most Recent Messages

Infant with pacemaker

Long post ahead...

While at my routine 20week ultrasound OB appt, we were blindsided with the news that our baby Anna was very sick and in critical condition. My OB immediately called the high risk OB and got us in within a couple of hours for further diagnostics and testing. After that appt, he immediately called the director of Pediatric Cardiology on his cell phone to get more ultrasounds and tests since she was in such a dire status. They concluded she has a complete heart block and...

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I Want To Know What Your PVCs Feel Like So I Know If Mine Are PVCs

I understand that a PVC is an "Extra Heart Beat" that disrupts your regular heart rhythm and this is what the defininition is. I've talked to a couple of nurses and my "Pacemaker Tune Up Girl" about my heart suddenly stopping and then starting up again and they stated they are probably PVCs. I even mentioned the PVCs to my primary and he said my pacemaker most likely did nothing to stop them. 

My worry is when I have one my "Heart Completely Stops"...

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Things are different

Prior to late Nov, 2018 I functioned just fine with my Medtronic CRT-D PM.  I performed well on a treadmill pulmonary function stress test last Nov 15. Due to low battery indication, my PM was replaced with a Medtronic Claria MRI CRT-D Surescan on Nov. 30, 2018 and I've not been the same since. Weary, weak and less able to do things.  EP has blamed my condition on the following events that happened a month afterward: Diverticulitis, C-Diff infection, then a pnemonia event. ...

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Little dizzy really noticeable when sitting straight and feelling tired

Hi im 19 years old male and I got my Pm on june last year and i suddenly beggin experiencing this dizzy feeling it started on early january this year and my doctor said to go to an ENT I Dont know why they didnt talk to me about settings on my pm before suggesting me to go to an ENT idk(i havent gone to a ENT doctor btw).though my hearing is fine and my vision is good. and so after the end of january it dissapears maybe because they change some settings and then it came back again on april I...

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HIIT training and swimming

Thank you again for the great information Ar-vin. I hope you see this message. I’m not certain if the only way we can comment on info given is by PM? It was reassuring to hear your experience. I’m probably much older than you but I feel even if it takes me longer than 6 weeks to get back to pre pm exercise, at least I will be able to do it.  You’re note was very encouraging in a week where I’ve been discouraged. Muchísimas gracias!

 

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HIIT training and swimming

I will receive a pacemaker in July for sick sinus syndrome. I swim daily and wonder how long it will be until I can get back in the pool after pm.

i also do HIIT high intensity interval training both in the pool and while walking. Does anyone have any info on whether this can be continued after pm? 

I’m 72 this month and have always been really active. I still care for 2 horses and ride. My doctor told me not to stop what I’m doing now but will I have to stop afte...

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Asymptomatic

I don’t have any symptoms except for 2 instances when I felt a bit dizzy. However, I’ve been diagnosed with sick sinus syndrome and have both bradycardia and tachycardia indicated by a Holter. I have a smart bracelet that vibrates when my heart rate exceeds 100. Some days it vibrates only twice in one day, other days more frequently but goes back down immediately. I will get a pacemaker for the bradycardia and medication for the tachycardia. I’ve been reading emails on the s...

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Tiny magnets on cpap mask

New cpap mask has 2 magnet less in size thn 1 cent coin. Is this safe to use with pacemaker (not a MRI one)..am trialling one, not bought yet

 

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Medtronic Pacemaker

Has anyone else had an early battery failure with the now recalled medtronic pacemaker? 

I am joining a class action lawsuit

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Presyncope due to low settings?

2 questions for you guys:

Have had my PM (dual lead PM) for 3 weeks. 32 years old. Bradycardia and syncope were why I got it. 

My settings were 50 bpm (low) 130 high, with rate response turned off. 

Over the last week I had 3 presyncope episodes (more than just feeling weird), thought I was experiencing syncope and at the last moment my PM would kick in and bring me back (pretty scary stuff!!). First one I thought "Oh well, that was weird, but everything is we...

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Pain dull ache & depressed

Hello there im new pacemaker recipient 3 & half weeks now, i dont feel any different in fact im starting to think i was better off without it, ive had a bit of stress from work @ 2 weeks & depression from that, & decided if i'm still employed, i wil get my fitness back & find another job, anyway sometimes when depressed i feel an ache in my heart (this distresses me more) now im feeling heart burn, it scares me, i go & see the cardioligst next week i wil be t...

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PVC's after AV Node abaltion

Hi everyone - I had an AV node ablation on 28th March, having had the pacemaker implanted prior to this in February.    After the AV node was ablated the rate was set to 80 - this I understand is to prevent develpment of Ventricular Tachycardia.

All was going ok - except I was getting a fast rate on increased movement - but this was remedied at my pacemaker 6 week check.  One of the sensors was lowered and all was well.  The rate was reduced to 70 at this point.

<...

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Warfarin

I've had a pacemaker since 2011 with the usual adjustment hassles but it all works so :) However, I am now being awarded a double valve replacement (atrial and mitral) via OHS. My Cardiologist was talking about natural valves because I was active and young (relatively speaking - 55). My Cardiac Surgeon went with suggesting artificial ones as natural wear out quickly which of course means Warfarin. I'm not too fussed about the regular testing and I'm happy to buy a home test machin...

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Do you pack your home monitor in your suitcase or your carry-on?

I'm going out of town for the first time since getting a biventricular pacemaker.  I'm trying to decide between packing my home monitor in my suitcase or my carry-on.  I'm leaning towards taking it in my carry-on, but it's pretty bulky, especially if I bring it in its box, and I don't want to have one more thing to deal with at the security screening.

On the other hand, if I put it in my suitcase, it could get lost.  (If it got delayed, it wouldn&...

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PM at 36

Hi all. I'm new here. Was told yesterday that I had a blocked left bundle and a right branch that is functioning at a very bad level. I will have to have a pace maker fitted but as I'm only 36 they want to run more tests. Not sure why. 

Can anyone tell.me what happens next? How will I feel after? Will it affect my life style? Will I live as long? My youngest is only 2! I wanted more kids. Can I still do this?

Thanks. Basically have no idea what's happening so any...

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Settings

Hi All,

Hope someone can answer this query for me,

Device in VVI,  Ventrical sense >99%

Ventrical pace <1%.

Thanks if you can let me know, 

 

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Complete SVC Obstruction due to Pacemaker Leads- now have Enlarged Collateral Veins

I am 79 y/o & am now totally dependant on Collateral chest veins carrying blood back to my heart, due to Pacemaker Leads completely blocking SVC.  My choice is to do nothing & depend on my collaterals, or have SVC By-Pass Surgery.  Has anyone been able to successfully live years without a patent SVC, or must I have By- Pass surgery?

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Time off

Hello all, 

I’m scheduled to get my pacemaker at the end of this month (June). I was just wondering how much time off from work people took for recovery. Thank you in advance for your help!

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Tanning Facilities

I am the recipient of a dual chamber PM just 5 weeks tomorrow.  I understand that I can never utilize a tanning booth again, but my question is, can I utilize a tanning bed just for my legs only?  If my body is outside of the tanning bed from waist up, is tanning just the legs okay?

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IRHB with pacemaker dependence

I had AV node ablation and I am pacemaker dependent. My pacemaker is dual chamber. I have prolonged periods of irregular heatbeat. I understand that my atrial  tachycardia persists, but I thought the pacemaker was supposed to keep my heartbeat regular. Any insights?

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Member Quotes

Just because you have a device doesn't mean you are damaged goods and can't do anything worthwhile and have to lie down and die. In fact, you're better and stronger. You're bionic!