Most Recent Messages

Hello, new here.

I got my pacemaker Oct 9. I was supposed to have a meeting with dr and a rep from the company but I had complications and was in the hospital and rehab for 3 weeks. So I really don’t know what to expect. The device has not been checked. That is scheduled for the 21st.  I get this heartbeat that hurts. It comes and goes usually when I am active but sometimes at rest too. People keep asking me how it is doing but I have no idea.unfortunately, I have a lot of other medical problems,so...

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Feeling weak

Good evening pacers! ! today has been a rough day, I am 36 days post opt, I am really weak, shaking inside like a sugar drop but I checked my sugar it was perfect, checked my blood pressure it was perfect. I am having irregular heart beats. just don't know what's going on. Has anyone else experience this. 

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high atrial rate event

hello for those who don't know me I have had my dual chamber pacemaker since 2008 I had my second battery put in about two years ago for bradycardia and complete heart block, recently I have been experiencing this strange sensation almost like a balloon filling up inside of my chest and pressure went to the e.r  my pulse was 135 so they did the standard d-dime blood test and basically sent me home so I followed up with my cardiologist and he did pacer interogation but that's all...

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Any triathletes out there?

Hi.....just received by dual chamber St Jude Pacer after 68 years as an athlete.  5th in the world in IM 70.3 in my age group 3 years ago.  Any other practicing triathletes out there with a Pacemaker?

Steve

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Health insirance

Hello. Wondering if anyone has found an affordable health plan with decent coverage. I will be in need of a new device next year and as it stands I will be at least $10,000 out of pocket on top of my premiums :( any input would be wonderful .. I am presently residing in Nevada ... thank you

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Change in Resting Heart Rate Three Months Post Pacemaker Implant

Received pacemaker in December because sotalol (for afib) was causing my heart rate to drop too low (50's during the day and high 30's during the night). Pacemaker implantation went well and after six weeks rate was set at 60 bpm. My heart rate consistently was beating at 60 bpm since then even when doing light exercise.  But this past week my heart rate has increased to 68-70 bpm most of the time. Only time I get 60 bpm is early morning upon arising. Wonderin...

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Over reach pain severe

This is my 2 pacemaker , is not to deep how Dr implanted .. it got i implanted 1 year ago..i was driving and from sitting position I reach all the way down on car carpet while sitting and I felt this severe Sharp pain on my pacemaker area and felt like a stretch muscle I do also have history of shoulder tendonitis ..any thing tyo be concern about ? Did I move the pacemaker or leads I got scared pain was severe ..

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Exhausted at 45 years old, sure there should be another option?

Hi all, 

sorry for the long post...

I have a complicated medical history, I have a rare genetic syndrome called Carney complex. I have had open heart surgery 3 times to remove myxomas from my chambers. I no longer have any adrenal glands as they were misbehaving. 

I had PJRT which is generally a childhood disorder but was ablated in 2014. 

I have always had a bonkers heart rate, well as long as I can remember. After the last surgery it kicked off because...

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Ventricular paced from 11% to 100%

I had a check up today, 5 months out on a dual lead ICD for 2:1 block. I felt great the first day and was paced 67% while having the block,  then didn't have the block and went to 4%. Don't know why the block went away. not feeling much better since the first few days. Dr. changed settings today to pace ventrical 100%. Said some pts. with Hypertrophic Cardiomyopathy, respond better to v- pacing. anyone hear of this?

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Pacemaker beeped twice?

Earlier today at around 10:20 am my pacemaker made two distinctive beeping noices, I made sure that it wasnt my phone nor was there anything else in the room that would make the beeping. It came from my left as well. I called the heart doctor and also sent in a report on my pacemaker reader, I dont remember what its called, the heart doctors called back and said that my pacemaker wouldnt make beeping noises. Is this true? Im confused, i know what I heard. I was worried that my battery mi...

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Nervous

Hi Im new on here my name is Marie Im 58 years old and just got a pm in last week, I just dont know how its supposed to look now, you know if its doing what its meant to be doing or looking can someone please tell me how my wound is supposed to look after a week, thank you 

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V-Tach Storm

  • by nefus
  • 2017-12-05 02:14:50
  • ICDs
  • 64 views
  • 1 comments

I just got out of the hospital yesterday. I had received 32 appropriate shocks during a VT Storm. It was terrifying. 

What was your VT storm like? Or shock storm (inappropriate shocks)?

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Running after PM

Hi all,

I am 21 years old and I had my PM implanted 2 weeks ago for High Grade AV block (I used to faint frequently and complete heart block would occur for 40 seconds or longer). I am a cross country and track athlete in college, and I was wondering if anyone has had any experience in getting back into long distance running after surgery. Today was my first time attempting to really run instead of just bike, and I feel very out of shape, short of breath, and tired when attempting to ru...

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Arm numbness

Good evening pacers, I was wondering if anyone has had problems with their arm getting numb and aching, feeling concerned! 

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Muscle spasms?

I was wondering about pacemakers and muscle spasms and if they have any relation? I started to get some very painful muscle spasms this year, i was given muscle relaxers and pain medications but now, about 3 months later, I am gettimg another muscle spasm. Can pacemakers cause this? Or possibly Neurocardiogenic syncope? I have no clue why I am getting them. Maybe i damaged something with my many falls throughout the years from fainting. Any one have these issues? Thank you 

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New pacemaker help

Hi, I am very new to this I am 6 days post op. I went home the day after surgery and havent felt good since. I have a "pulse" in my stomach, very strong it looks like I have a baby kicking inside my stomach. My BP is now 150/110 which I was always normal pre-op. My heart rate runs around 86 but I feel the pounding all the time, the kicking is worse when I am sitting, so I dont sit now. I have 3 calls into my Dr. The nurse called back last week I told her what was happening, she...

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Issue with leads

Hell my name is Geoffrey I have a dual pacemaker I've had a pacemaker since 2004 and never had a problem then in 2014 I had open heart surgery and had new leads put in.in 2016 I began to feel a weird feeling and it felt like I was getting shocked I was telling my doctor's what I was feeling for about 8 months straight and they did nothing then just in April of this year I told them again and had the Boston scientific guy come in and check it  he then told them it was fractured th...

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The month after my implant

Well I am now a Pacer.   Had the implant 3 days ago and am feeling really good considering.  So now I have the month long requirement of not lifting the elbow of  my affected arm above shoulder level, or putting it behind my back.  I want to follow these rules but have inadvertently lifted my arm too high a couple times and put it behind my back.  Does anyone have suggestions on how to help me remember?   A friend suggested putting some tape on tha...

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Hi from Loopy Lou!

It's been a while!  *hangs head in shame*!!

I am on Pacemaker No. 2 now!!  Doing ok!  

New puppy this year, who makes me get out there and do lots of walking - so health wise, not too bad!

Hope you are all ok, and the 'USUAL SUSPECTS' - you know who you are - are doing well!

xxxx

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Anyone with neurocardiogenic syncope

Hello! I have neurocardiogenic syncope. I have had it sense i was 5 and got my pacemaker at 20 years of age because i was misdiagnosed with epilepsy for 15 years. While I am very happy that my heart doesnt flatline anymore i still get sick on a daily basis, ( near fainting, weak, shakey, heat flashes, cold sweats, dizzy, light headed, nausea, blurry vision, and more unexplainable symptoms.) I also have a anxiety and panic disorder and depression. I know they aggravate syncope but also i will...

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You know you're wired when...

You have a shocking personality.

Member Quotes

I'm 35 and got my pacemaker a little over a year ago. It definitely is not a burden to me. In fact, I have more energy (which my husband enjoys), can do more things with my kids and have weight because of having the energy.