Most Recent Messages

Pacemaker

How your pacemaker has affected their lives in positive or negative ways? 

Read More...

Garmin Chest strap heart rate monitor

I have had my devise for just over a year. In this time I have had a real issue getting it dialed in to support my running, Biking and swimming. Although I think we are finally making some progress I had complications with sarcoidis.

I am finally at a point that I can get back to exercise. What I am finding is that my heartrate is staying extremly low and I go anarobic imediately. 

prior to this happening I was an avid triathlon and trianing was a huge part of my life.

...

Read More...

yearly check up

Last week had my yearly appointment with my EP and it was nice to hear some refreshing news. He said the pvcs were benign and have now subsided considerable now that im not on the night shift.He then tells me that again that i didnt need the PM because he said my last cardiologist jumped the gun. I was uneasy and a little upset but its in ther and i wont let it hinder mylife. He told me my PM at night is used only 25% and other then that its my own heart working. He also lowered my heart...

Read More...

New PM muscle twitch/spasm with each heartbeat

Hi. I just received my first PM, a Medtronic Percepta Quad biventricular 3 lead CRT-P device. It was implanted this past Wednesday, Sept 22nd. Since I woke from the surgery, I have noticed that every heartbeat causes my abdomen and chest to twitch or jump. I had mentioned this to the nurses while I was in the hospital, and none of them seemed concerned. Today, after poking around online, I don't think it's normal. So I contacted my EP this moring to ask if this was normal thing or not...

Read More...

Electric bikes

Wondering if electric bikes are safe for our devices?  I've read that electric cars are, but the battery packs for the bikes are out on the open and have to be charged by standing by them.  Please help, don't want to invest the big bucks if I can't use. 

Read More...

What Can It Be?

Had a dual pacemaker fitted to atria in 2014 due to persistent AFib, followed by an AV node ablation, and have enjoyed up until late last year without a trace of trouble.  Now starting to get periods of what feels just like AFib again, pulse feels irregular, and it leaves me exhausted, but the pacemaker tracing shows nothing at the times I noted the disturbances.  I got so concerned over a prolonged episode of about 6.5 hours, I contacted an an NHS advice line, who un...

Read More...

pacemaker replacement

My first pacer was implanted 6/11, and the battery is now reaching end of service.  At the point that its "elective replacement indicator" was activated to enter ERI mode, I made the decision not to have a second implant.  At that point, my cardiologist of six years "fired" me and refused continuing care.  Further, the Abbott Lab technician also refused to provide me with any battery status testing.  I now am in hospice without any cardiology oversight...

Read More...

Icd removal

  • by Johnl
  • 2021-09-24 19:55:29
  • ICDs
  • 308 views
  • 2 comments

Has anyone been able to convince their doctors to remove your icd or pacemaker?

I'm 28 years old, I got my icd put in at 25 due to 2 random collapses, since having the icd I haven't had any other episodes

The icd has caused 2 blood clots which led to 2  heart attacks and a few episodes of AF

i was on rivaroxaban with the second clot, changed to warfarin which made me feel sick and tired everyday, changed to eliquis which was fine for a year but now struggling to...

Read More...

new to the club

long time lurker, first time poster

i'm a 37 year old woman who just underwent a pacemaker implant 3 days ago for severe sinus bradycardia. overall, i'm feeling okay- sore and tired, but i know this was the right move for my best life (i'm a single mum to a  8 year old boy, i need all the energy i can get)

i have some general anxiety about the whole thing, there are lots of thoughts running through my head (is the dizziness norma...

Read More...

St Jude Defibillator/Pacemaker

Had pacemakers since 2004 Boston scientific brand ,in 2017 had defibillator/pacemaker put in due to heart infection i had picked up due to checkup not done properly , It is a St Jude Defib, This one is not working as well as the Boston scientific one, I have had light headedness, dizzyspells, fatique, mood swing, short of breath , been to a number of Doctors but get very blank answers from them, I only just found out that a little while ago thatbSt Jude had a problem with there pacemakers for...

Read More...

About Pacemakers/ICD's in PLAIN English

Hi everyone I came across this very good article explaining in PLAIN English how Pacemakers work etc. Hopefully it will help many newbies & those about to get a Pacemaker. Often people ask about magnets as we are advised to keep clear if them, this article explains exactly how it affects your device, well worth a read even to those who have had theirs for years. Best wishes everyone. https://www.printfriendly.com/p/g/MHHpTS

Read More...

Still waiting it out

I'm still waiting it out until my October 7th appointment to follow up since starting the meds. I felt like real crap yesterday though. My BP was 117/70 and pulse 102 before taking my morning dose.

About an hour later I started feeling very lightheaded and nauseous folding laundry. Sat down for about 10 minutes and checked again and BP was 88/44 pulse 115. My BP came up a little bit(105/56) after awhile but my pulse stayed in the 90 to 115 range for about two hours ju...

Read More...

Replacement PM

Just had my 11 year old metal mate replaced. Simple procedure. Waiting to go home now.

Read More...

Fatigue feeling when running and increased asthma

Hi, I have had my PM now for six months now. I am 46 and pretty fit, running and cycling regularly. The PM was implanted as a response to episodes of bardycardia. I have noticed recently feelings of heavy fatigue when exercising and that my asthma has flared up more frequently. I don't know whether this is directly related to the PM or is due to some other elements but am interested if anyone else has experienced similar.

Read More...

Recovery & Granddaughter

My first PM is schedule for Nov. 1 for bradycardia.  My husband and I (65 years old) watch our 4 year old granddaughter after school (2:30 to 4:30 PM) two-three days a week.  My question is would I feel well enough to have her here about 2 days after the surgery?   My husband would drive to go get her.     My husband will be here for any lifting and other things I may not be up to doing.   I figured as long as he is here it shou...

Read More...

Medtronic MyCareLink Mobile App?

Hello all,

Just reaching out to anyone specifically using a Medtronic PM that might be either using the MyCareLink Heart mobile app (Android or Apple devices) or perhaps the at-home monitoring device known as the MyCareLink Relay Home Communicator.

When I was in the hospital after my PM surgery, I tried downloading the app and was having issues (I work in IT, therefor was running a beta version of iOS, which wasn't compatable with the Medtronic app) so I opted for the at-home...

Read More...

Am I the only one?

So, for the past week or two I've been feeling this weird bubbling/fizzing feeling at my pacemaker site.I've tried (in vain) to look up and see if there was any information on what it could be. My model number is part of the FDA recall of Abbott Assurity pacemakers. Just not the serial. I have a check up tomorrow, but has anyone else felt this before?

Read More...

Staph infection - 4 days in the hospital

What a week. Oh, wait, it's only Tuesday. So I noticed a bit of drainage at the top of my pacemaker site. I took a picture, showed it to the doctor who sent me across the street to be admitted to the hospital (Emory in ATL) and I just got out yesterday. It is not showing in my blood nor are there any indications that the infection is internal. Still, I am stressing as my pacemaker is making me feel great. I need to keep it in there! I have a CRT-P bi v.

Just sharing. Love the moral...

Read More...

Pacemaker Club - post Pacemaker/ICD Implant Pain Survey

Dear Members,

Over recent months, several members of the Pacemaker Club have expressed a wish to know how many of us experienced pain following implant of our devices, the nature and extent of that pain and how it affected different age groups and gender.   

A survey has now been set up with the kind help of Club members and the link to the survey is given below.  The survey is confidential and will not be used for marketing.  All members irrespective of w...

Read More...

Re: weight liftin

Hello,

I am 55 year old male who recently had a pacemaker implant in May of this year.  Its been nearly 4 months since the procedure.  Prior to  that, I had been lifting some weights.   Will I be able to resume weightlifting by benching (smith machine), doing dumbell curls, and Lat pulldowns?

Read More...

You know you're wired when...

“Batteries not included” takes on a new meaning.

Member Quotes

I had a pacemaker since 2002 and ever since then my life has been a total blessing.