Most Recent Messages

How do I know if I've pulled the leads out

I had my first PM installed seven days ago and I have to say, it's been uncomfortable since about day three. Runs of tachycardia (about 10-15 per day) - and I was bradycardic before the PM! I may have stretched my arm up a little high. How do I know if I've pulled the leads out?

Thank you in advance. 

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Pacemaker settings

I have a few questions about my pacemaker settings and alerts.

1. What is a high ventricular alert? 

2. What is an AMS entry?

3. Under the diagnostic summary what is the AP and VP % mean?

Thank you so much!

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Prostate cancer and pacemaker

Just been diagnosed with prostate cancer.  My pacemaker seems to be complicating treatment.  Surgeon says I'm a good candidate for radiation, radiation oncologist says I'm a good candidate for surgery.  Has anyone gone thru this?

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Pain from Pressure (PM location)

Hi, I got my PM 7mo ago. Have recovered nicely, (although it’s weird to have a device in me.) My seatbelt has agitated it, etc, but nothing big.

 

Was moving Friday, up some serious steps, and the full weight of a heavy box hit me right in my lump. Now it aches and seems slightly swollen. Pressure hurts.

 

I’m guessing this is all normal? I’ve got quite the scar, but the PM doesn’t really show normally (ample...) 

 

...

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RV Lead Perforation

Has anyone been diagnosed wtih lead migration, lead perforation?  I'm having issues with RV pacing/performance with my BS Accolade L301 (put in 2018, which replaced my first PM, a St. Jude, which was put in 2011), which uses my original St. Jude leads from 2011.  Have always had issues with SOB with exercise and condition has worsened in past year (SOB with minimal exercise).  Current EP has reviewed my case, trying to adjust PM settings to improve performance during aerobi...

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Battery Life of CRT-D

I am going to have my third wire placed on Thursday in my CRT-D. They are going to try for the third time to do this.

Do you know if adding the third wire will shorten the life of the battery?. Not sure if the third wire continuously paces the heart thereby using more battery power  of if it does it periodically.

 

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Biologic Treatment for Psoriasis with PM

Since my cardiac issues began in mid-August 2019 and pacemaker placement I've also developed significant psoriasis on about half of my body. I'm taking antibiotics, using a steroid cream, and getting phototherapy three times a week. The psoriasis seens to be getting worse, not better. I want to have a conversation with my dermatologist and cardiologist/EP about biologics or other systenic meds to treat the psoriasis. Has anyone dealt with this? PM implications? Cardiac side-effexts?

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Icd

Hi. I had my ICD fitted 6 weeks ago for long qt. The past few days it has felt like my heart has been fluttering, I have been to the doctor and ICD clinic, the device has been checked and all ok, I have also had a monitor to wear all weekend. Is this normal? 

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Heart failure people?

Hello friends! I got my pacemaker/defibrillator when I was 29 because I am in heart failure and my heart was only working 20%. It now works 27% so I'm happy! Is anyone being considered for the heart transplant list? How long have you been in heart failure? And how are you feeling now days? Thank you for commenting! 

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Exercise after PM

I've walked for exercise for decades - never with any pain whatsoever.  Now, four days after PM implantation, I have chest pain when I walk for a very short distance.  WTH???

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medicare and pacemakers two

See URL     

https://www.cms.gov/medicare-coverage-database/details/nca-decision-memo.aspx?NCAId=267%20

 

If the pacemaker is for non reversable case it is allowed.  But I have been on sotalol since 1980s.  This is not really reversable bur Menicare considers it to be reversable so no dice.

 

Curiousd

 

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type two block

Is there anyone on this list who has a pacemaker for a type two block?

Curiousd

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Cooking

Every time I cook on my electric range I get palpitations and get weak, are my days cooking with electric over😢.   I have had my little friend for 5 weeks

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Pacemaker for type two block

Medicare does not allow a pacemaker for type two heart blocks ,  Say I bought the pacemaker myself. Almost all cardiologists depend on a medicare practice and will lose their ability to have medicare if they proceed with such a pacemaker, purchased by the patient.

 

How can one get around this problem?

 

Curiousd

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Anyone here had their icd removed?

Im 26 yeara old, I've had my ICD for 20 months now, since having the icd I have had problem after problem, 

1 Month after surgery I got a blood clot in the lung, followed by a heart attack.

4 months post surgery I got another blood clot which blocked most blood flow to my left arm, which is now in constant pain, I can't hold anything longer then 10 seconds or my arm gets very weak and swollen (yes I still have the clot there, doctors say it will never desolve)

F...

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Ablation for Afib

Hello! I had a pacemaker put in July 30th. I have Sick Sinus Syndrome and Afib. My first electrophysiolgist said an ablation wouldn't help. I sought out a 2nd opinion because I am on a large dose of sotalol, still having issues with my Afib and chronic fatigue. I'm young (41) and really want the quality of my life to improve. The new doctor wants to do an ablation and thinks she can get get my medication lowered or remove the need for it. I am wondering if anyone has experienced...

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cold or reactions to what ever is in the air

Since having PM implanted end of Aug.   I now either have a cold for the first time in over  10 years or reaction to something in the air.  I do live along the coast in Fl.,where we have the bloomin Red Tide.  Which is a killer if you have breathing  problems.  Which i do not.

   Am now wondering if the PM is causing me to react to what ever is in the air.  Have been taking my allergy supplement now, which lasts 3 hours before the s...

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DOT Physical

I failed my DOT physical today due to having an ICD.  Doctor says I need to find another job that doesn’t require any driving.  

Didn’t think it would come to this, so depressed.  What to do.

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MRIs with a MRI safe device

Has anyone had a MRI with a MRI safe device?  How big a deal was it?  Did you have to have it near your cardiologist's so they could reprogram the device?

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Blood thinners

Is anyone taking blood thinners. I was recently told by my pacemaker/defibrillator reading said I had an Afib episode. Very upset and disappointed because I have a pacemaker and did not think that could happen. Thoughts? Comments?

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