Most Recent Messages

Curious

How many here "play" with their Rx drugs?  An example: A year ago, I was taking drug "C" at 12.5mg - I then signed up to try the drug "Entresto" - didn't work for me a major dizzy (or was it vertigo?) event occurred. Next in line was "Metoprolol" @ 100mg. Gave that up recently. Back to "C" @ 3.125mg 2X daily - until I am "stable."  What does "stable" mean? - Don't know yet.  Maybe the dosage...

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Pacemaker implant

Hello everyone - just joined you.  I have had Paroxysmal AF for nearly 20 years.  I take medication have had five ablations.  In the last three years the episodes have become more frequent, but I could handle that if only the episodes were not so debilitating. 

In my particlular case the AF starts and from then on I dare not move, because my pulse will soar to frightening rates - 250 plus.  So I pretty much always go to hospital, where I feel safer and it usuall...

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I am bummed out

Hi Guys,

I had a stress test last October. I felt that I had aced it, notwithstanding a bout of post-exercise asthma (I am NOT asthmatic - I just overdid it). My cardiologist called me afterwards and asked me how I was doing - unusual for him. I said I felt fine, and that was the end of that. A couple of days ago, my GP got a hold of the report and said he wanted to see me IMMEDIATELY. He has concluded that I have angina and prescribed nitro. He wants me to see my cardiologist and insis...

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Bum deal

Hi

Had an ICD fitted march 2018 and have been ticking along nicely untill jan2019.had a colonoscopy discoverd a polyp that needs to be removed and I have to go back to have this done.the doctor at the time said I have to have the ICD switched off because of the equipment used.has anybody had this done? There seems to be no pre discussion about this.what are the pitfalls?

Thanks in advance.

 

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House Insurance

I know I am at risk, having the gene associated with a certain channelopothy linked to sudden cardiac death and my ekg shows what could be called a slight abnormality so I have been recommended by a great expert to get an ICD. But I cannot find any cases of ICD's saving anyone. I have found lots of people getting shocks from their implanted cardioverter defibrillator but know one seems to be sure if it was needed therapy or a malfinction. Niether on line or from my doctors...

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Reasons for replacement

Hi!

I just want to ask if there are any other reasons for replacement besides low battery?

Thank you!

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Does every candidate for pacemaker have all these tests?

EKG, echo, heart cath, mri, chest x-ray, stress test, tilt table test, ep study, and afterwards, muga test?

Some of these more than once. 

Does everybody have all these tests?

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Kids say the funniest things

I'm a grandma of 6 wonderful amazing little humans. My oldest alissa (13) who has down syndrome and whom I'm raising asked me if my heart was broken. And the my grandson clay (6) asked me if my heart hurt and I said no I have machine that helps my heart. he said what is it? I told him it's called a pacemaker and he says to his brother Easton (2) nanny has a spacemaker isn't that cool. I almost died laughing. My main reason to keep pushing forward 

 

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Wenckebach

If AV WENCKEBACH is less than 130 bpm. 

What does that mean?  My heartbeat is about 40 bpm. Perhaps it means that SA Node can generate less than 130 pulses per minute? Doc then concludes I will pace more than 40% of the time, and would implant CRT (pace both ventricles) rather than dual chamber pacemaker (R Atrium & R Ventricle). 

They are going to do an EP test, and must have concluded I have Second degree type 1 heart block, since they are determining Wen...

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Pacemaker optimization

I've posted something like this in the recent past.................not many responded.   Who has had their pacemaker optimized and did you notice an improvement?  I'll be having mine optimized next week.  EP's nurse has stated, "It's not unusual to need a PM optimization to get the PM operating at top efficiency."

--Dave--

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new here

I went to the ER because I had a back spasm. The muscle under my shoulder blade felt like it tied itself in a knot. I have DM1 so I've had this happen before. I called 911 because I couldn't even walk, that's the worse it's ever been. When the ambulance came they took me away, they couldn't give me any pain meds cause my heart was 33 BPM. I was in excruciating pain for hours, finally the muscle relaxer. The next day they said I needed a pacemaker, I'm only 34 ...

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Huawei band 2 pro

Hi im wanting to buy my husband the huawei band pro 2 can he wear it with wear it with his pace maker? 

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Beeping

Had my ICD fitted in Novemeber.had Cardiac Arrest in December and have felt fine.  The last few days it has been beeping at 10.10am.  I phoned the Cardiac Dept.  to be told it is probably a build up of fluids.  Anyone else had this problem ?

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Broken lead

Good morning pacers! I had my pacemaker implanted 7mo ago, now they're telling my lead has either broken or come loose. wondering has any of you had this to happen so soon. Now I have to have my pacemaker taken out and replaced very disturbing to me. This pacemaker has not been right from the beginning. Need to find out if there has been a recall on these leads.does any know where I might obtain such imformation? 

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Post ICD implant pain

I just had my first ICD put in a little over two weeks ago. In general I feel SO much better than I have in the past 2 1/2 years (diagnosis is heart failure) but I've got pain up at my collarbone where the leads are going into the carotid artery. I expected pain from the muslce trauma where they inplanted the ICD but not where the leads are. It feels tight there and like they're "pulling", even if I'm not moving around.  I'm a leg amputee and walk with fora...

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You are never alone

Hello wonderful Pacemaker Friends.

It's been one year since my heartbeat paused and a pacemaker was implanted. That was one year after I underwent a voluntary cardiac ablation, hoping to free myself of occasional AFib episodes.

That first surgery was followed by a cascade of issues. If I could go back I would have declined ablation. I will always wonder if that worsened my situation. As a note, I was of good weight, BP, cholesterol, exercised regularly and maintained a he...

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Cardio MEMS

Any Cardio MEMS device users here?  Whatcha think?

--Dave--

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Fluttering started again

2 years into a Medtronic pacemaker due to stage 3 block. Befor pacemaker I felt fluttering which I assumed to be Arrhythmia  post pacemaker it disappeared. It has now started again. Feels more under ribs than heart. No pain. Just feels weird. Also having what I can only assume to be angina ish pains but only very occasionally. Any ideas anyone

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Life after pace & ablate

I had the completion of a pace and ablate .  I will be seeing the EP as he said this procedure would make me better and it has made me worse at the time he said in 30 years he had on 2 that got worse.  I have been told at the A&E that I have left sided heart failure. How is this? I now feel sick most time and with severe shortness of breath would taking Digoxin help?

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Vascular thoracic outlet syndrome

I'm experiencing what I think is Vascular Thoracic Outlet Syndrome in my left arm, same side where my PM is located.  Appears to be a circulation problem vs. nerve impingement at this point anyway (swollen arm, some aching, weakness/fatigue especially with any use, very visible/raised blood vessels in areas (new/unlike other arm), discoloration (arm is different color than other).  My PM got replaced end of June with a larger one and this one has always bothered me (itching, occ...

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You know you're wired when...

Your device acts like a police scanner.

Member Quotes

Your anxiety is normal. It takes some of us a little time to adjust to the new friend. As much as they love you, family and friends without a device just cannot understand the adjustment we go through. That is why this site is so valuable.