Most Recent Messages

Post workout reaction day after exercising?

Hi All,

I haven't been on the site for a long time...after working two jobs for many years, I realized I've gotten very out of shape. I was concerned about returning to a regular exercise routine so I hired a personal trainer to guide me. The first work out went well. I had the usual muscle aches from working out, was a bit tired, but otherwise was fine.

So, the trainer suggested I do more on our next session. The day after the second session I felt sick...was tired, achy,...

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Anyone else with HFrEF (Heart Failure with reduced Ejection Fraction) have trouble keeping BP up, but lower extremity edema down?

I am in this constant battle of trying to get my systolic over 100mmhg.  On 80mg furosemide, middle dose entresto (sorry can't remember what the numbers are but it's the middle out of 3) twice daily, 25mg spirolactone, 5mg ivabradine 3xday.  After raising my dosages of entresto and ivabradine a couple months ago my bp tanked again.  Now I average 90mmhg sometimes dropping in the 80s.  At which point I assume I have lost too much fluids so I drink water all day, but...

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Adjusting Isn't What I Thought It Would Be

Background: Hip replacement Jan 5, 2021. Double lead Pacemaker April 15. 2021. 76 year old Male, Hamilton, MA. 2nd degree arterioventricular block.

I had been trying to get back to normal after my January hip replacement and was working out and doing yoga.  No symptoms from that at all. When the weather broke here, I thought I do some cycling. Bear in mind I had zero symptoms that I noticed up to this point. maybe a little winded doing yard work which I attributed to being inactive...

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Left arm troubles

Hi All,

I am three years out from my pacer implantation for heart block and artial tachycardia. I got a sharp pain in my left clavicle last summer and was found to have a subclavian dvt. Saw a hematologist for a work up that included a dx of brachial vein stenosis. Was referred to a vascular surgeon who did not endorse any intervention for the vein. My left arm gets really sore and swells and has not improved. Was recently diagnosed with venous insuficiency in the left arm without...

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Pacemaker Makes Me Feel 15 Years Younger

After a continuous bout of Bradycardia (35bpm) I was hospitalized for a full week. The first half of the week was spent having Cardio docs see if eliminating my Diltiazem (Cardizem) would fix the problem. It did not - so they had to thicken my blood back up and then they installed a single-lead Medtronics unit. Now at 60bpm (minimum) I feel great and can walk over a mile without feeling like I had depleted blood in my legs. I will be 81 in June. I thank God regularly for the blessing of this...

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Device beeping

I got a call from my cardiologist office on yesterday that my device was beeping. I heard a beep but I thought it was coming from something in my house. I did not realize  it was me. I got my device in 3/2009 and this is my first battery change. I went in today and they turned the beeping off and I will schedule a precedure to change the battery. I was just wondering is their anyone besides myself that did not realize the beep was them.

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Post op

Hi all,

I am 4 weeks post second pacemaker. My first pace maker was put in on December 28th 2020. It was a single lead. Never felt good after that. Three cardiologist later found out that I was in second degree conduction heart block which lead to them upgrading me to a two lead pacemaker. I am a 41 year old female who was healthy up until August of last year and started passing out and having irregular heart beats. My question is this new pacemaker has been in four weeks. About a week...

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Coping with transition to having a Pacemaker

Hi all well I'm doing well. However the transition from no pacemaker to having one is strange. 10 days today since I had a twin lead pacemaker fitted. I'm 53 this year in the Army and still serving. Not able to deploy now but I'm fit and worried with what I'm going to be able to do.

Good family and friends around me. That helps.

The thing is I feel the leads inside me it's strange and the pacemaker well I'm just feeling it move.

Looking forward to rid...

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Sleep apnea and PM.

Hello all,

Received my PM 1/19/2021

I just had a sleep apnea test . (two day home test)  I requested it due to my diagnosis of SSS.  I heard sleep apnea can cause isssues with your electrical system.

Sure enough it came back that I have severe sleep apnea.(AHI 52.9)  Now I wonder if this was the issue all along.  Any one have a pm implant due to sleep apnea? 

On the test result it stated that my HR lowest reading was 38.  My pm i...

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Pacemaker Always Jolting

So I've had this new pm for about a year now and recently on some days it jolts for about 5-10min at a time. I feel a little tired afterwards when it stops but other than that feel normal, should I be concerned? 

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Post PM Implant

Hello all,

I'm a newbie to the club. Just had my PM implanted two weeks ago tomorrow. April 9, 2021.  Still trying to process all of the events that lead up to it.  I'm a 58 year old woman and NEVER had any issues at all with my health. A two days leading up to my ER visit, I felt as though I wanted to pass out.  The night before my ER visit I passed out in bed and came to.  The morning of my ER visit, I told my husband what had happend the night before. He a...

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Heart rate settings

What rates are you PM's set?   Mine is at 60 and 120, have a neighbor that had hers raised to 70 and says she has a lot more energy, any experience with that?   I've never been given that option or advice.    TIA

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Very bruised left nipple

Two years ago I had a basic pm after AV node ablation, but I soon developed permanent Atrial flutter and  my LV function became moderately impaired. I also had two VT episodes a year apart. The latter in January, conveniently as I was walking up the stairs to the Cardio dept.   Cardio advised an upgrade to a CRT-D.  Had this done two weeks ago.  Have had a bumpy recovery so far and feeling pretty exhausted.    When I was allowed to s...

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Opinions on medical jewelry

Hi everyone. I am looking for opimions on a topic of very little importance! When I first got my pacemaker, 3 months ago, I thought it would be a good idea to get a medical information bracelet. I figured that, if I experienced an accident or illness & was unonscious, it was important that medical personnel know of my pacemaker before doing certain tests or procedures. Now that I think about it, at that point damaging my pacemaker would be the least of my worries! Also, since undressing m...

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Pacemaker

I  a 72 year old,  fit female. In January this year I had a PM fitted and I was discharged the same day not having an x ray which I had been told to anticipate a few days previous.  After 10 days the one lead was suddenly  stopped  working to full capacity. I was told the problem was either a faulty lead or the consultant had screwed in the lead too tightly. Another procedure was needed a few weeks later.The lead was tested and found to be o.k.   I was not t...

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the power of being optimistic

A cardiologist reviewed 15 studies - over quarter of a million patients between all of them- on the relationship between health and optimism. I think a lot of us know this intuitively but it's fun to see the science overwhelmingly back it up. 

"Rozanski called the data 'consistent' across the studies. 'In every case, there was a strong relationship between optimism and a lower risk of disease,'"

"Biologically, pessimism is associat...

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papers that show a potential link between covid and acquired heart block

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7311354/

https://academic.oup.com/europace/article/23/3/451/6085830

Here are two papers suggesting that some people with COVID have acquired heart block.

 

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beta blockers

Hello everyone,

 

How is everyone doing? I just wanted to make a quick post too see if anyone has had similar issues too me. I have been on 80mg of Nadolol now for 4 months for issues with non-sustained vT and anxiety. 

For a really long time now i have felt tired, drowsy and had really achy, tired legs, all everyday for quite a while. I think this could be related to the medicine (not sure if achy legs could be caused but maybe). Has anyone else experienced this o...

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Hello! I am rather new here, thanks for being here!

I had a PM inserted last August. It appears I am having Pacemaker syndrome issues. My electrophsiologist wants to put a third lead in and says there is a 40% chance of improvement. Since the implantaion I have had post-exertional malaise, edema and fatigue. Has anyone gone back for a third lead?  Did it help?  Any information is greatly appreciated.

 

Thanks!!

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Hard Lump at Incision Site

I am 65 and received ICD surgery on April 2. The level of pain, for the first 3 days afterward, took me aback. However, I am no longer in pain. I am pretty sure that there was no infection. The scar line has healed very neatly, no leakage, no discharge and the bruising has almost completely disappeared. 

My concern is that there is a hard mass (bulge) under the incision area which has not gone away. Is this a cyst, a keloid or the device itself? Will this go away o...

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You know you're wired when...

You need to be re-booted each morning.

Member Quotes

My pacemaker was installed in 1998 and I have not felt better. The mental part is the toughest.