Most Recent Messages

Post Message!

Pacemaker for Cyclist (Outdoor Cycling)

I have been diagnosed with Sic Sinus Syndrom and recently had a successful ablation procedure for flutter.  My resting heart rate is in the low 30's.  When cycling, I have difuculty getting my rate above 100.  Planning to get a Boston Scientific Pacemaker with Minute Ventalation.  I have read many of the posts here and this seems like the best choice for cyclists.  I am looking for advice on what to do and not do as part of this process.  

I h...

Read More...

airport scanners

Beware when traveling from the Provincetown,Mass. airport.(very small airport, only Cape Air flies there).  They only have a metal scanner. Because of my pacemaker was not allowed to walk though. Am pretty sure my shoulder, elbow and other marker i had would cause the machine to beep, madly. I  had to have a full body scan.  Pat down from head to shoes.  Was told i had to take off my shoes, told the gal i did not want to.  Said if she found something i would...

Read More...

Laser Surgery

I am going to have Diode Laser surgery for my glaucoma.  Will my pacemaker be affected ? 

Read More...

ELIQUIS & Jardiance

Hi all,.

I was recently prescribed these two outrageously expensive meds. Can anyone recommend a legitimate, reliable Canadian (or other) mail order pharmacy?

I have Medicare and a supplemental, and an Rx plan, but copay is still Sky high. 

The TAVR, pacemaker and Stent didn't Cost a dime, but, the meds-wow. 

Many thanks, 

Fred 

Read More...

I am Blessed

I had a pacemaker implanted in June of 2008

I have had no issues infact I know it saved my life 

I was lucky enough to have a great surgeon and everything went well when they replaced the battery 

My current cardiologist is amazing it makes life so much easier when your surrounded by competent medical people 

I never even think about it 

 

 

Read More...

24/7 MCL Heart Monitoring on iphone

Has anyone pursued the route of having the iphone determined a DME? I have 100% heart block. On my 3rd pacer and 1 new lead in 20 years. Cardio surgeon says I must keep my phone with my 24/7 though  transmissions are sheduled at 90 day intervals and occur seamlessly. As such, it seems I must have an iphone to use the monitoring app which means it is a DME. Anyone with insurance experience in most recent times know how to pursue this avenue so needed phone replacements are a covered expen...

Read More...

Medtronic my care link

Is anyone familiar with how to get info about transmissions?

 

I am trying to figure out the dates for all my transmissions I sent this year and also what hospital the transmissions were sent to...

I am dealing with insurance (and filing an appeal) as a certain hospital is saying they got my transmissions and charged me a lot for them (yet the transmissions should not have been sent to the clinic/hospital) as I switched doctors and hospitals this year.

&...

Read More...

Bradycardia??

Just had my annual check up and was told that I'm now 100% reliant on my pacemaker and they said that's fine. Thing is I feel really upset and I'm not sure what to do, is this common? 

Read More...

Nervous Scare

New here. 63 yo, married 35+ years.  
 

Got woken up at 3am Saturday.   Wife was having some issues. We were having some coffee and my heart starting skipping beats. 
 

Defintily freaked me out a bit.   I'm less than a month out of surgery for a CRT-P.  3rd degree block 
 

Ended up calling the on/call, pushed the data.  They didn't see any event.  I guess it wasn't significant enough to tr...

Read More...

Pacer Safe Mode

I just had my biannual pacer checked and asked the tech a question about my upcoming thyroid removal surgery.  The tech told me since my pacemaker is close to where the surgeon will be using an electronic knife to remove my thyroid gland they will put a donut magnet over my pacemaker to speed my heart up since I have 3rd degree heart block.  The reason given is the pulse knife could interfere with my pacemaker and the magnet will be place my pacer putting it in safe mode during surg...

Read More...

Conduction system pacing

I had a follow up with my EP today to let her know I decided I will be having my lead extraction (4 leads) and new generator as well as two new leads placed  in Los Angeles (Cedar Sinai) by a cardiac surgeon opposed to with her and her team locally.

she highly recommended that I ask that the cardiac surgeon for left bundle pacemaker (conduction system pacing)  

she said that's all she does now and if he can't do it hopefully he can bring an EP in that can. She sa...

Read More...

Medical alert systems with cell call capability.

My sister and I, in different locations, both each recently got pacemakers.  Both live alone, in our 70s, considering getting medical alert systems.  I researched  and found they are all safe with pacemakers, but only seem to consider home-based systems that have pendant that connects to base to home phone via bluetooth.  Since we both are still active and get out, we were considering the on-the-go models that have built-in cell call capability with GPS and and fall-detect...

Read More...

My pacemaker is shifting around suddenly

Hi, I'm new here. I found this forum looking for help with a problem I'm having, thanks so much for allowing me to join. Looking around, I can see lots of things that would be helpful, and I also hope to contribute whatever I can to help others.
About 6 weeks ago, I noticed my pacemaker turning onto it's side.... I could see and feel it sticking up.... as soon as I gently placed my hand over it, it laid back down in place. Over the next few weeks I noticed it slipping out of...

Read More...

help i've fallen pendant

Am wondering did try the search engine, but nothing came up.  As a pace maker user can i have someone who wears a "help I"ve fallen pendant" hug me.

new to pace 

Read More...

No shortness of breath, Why?

6 weeks ago I got my 5th dual chamber Medtronic pm. I also had my ventricle lead extracted and replaced. Since having pm's I have always been short of breath after going up a flight of stairs. But since getting this new pm and new lead, I can climb stairs and not be out of breath at the top. I asked the Medtronic tech and she said it was probably the newer (better) lead. My cardiologist, he's also an EP, says he has no idea. My settings are the same as they were with my former pm...

Read More...

Blood Donation

Hi I am in Australia my pacemaker op-1 hr straight to ward dischared 24hrs back to work 2 weeks later-how soon can  I give blood-thanks

Read More...

Fibrillation/impulse under scar

Hello, hope you are all fine. 
I am having an issue with my pacemaker.Its a dual lead and i feel many times throughout the day fibrillations or impulses as you may call it right under the scar that last for about a minute. Touching my chest i realized the leads go under the scar and i can feel them with my fingers. Electrophysiologist told me the PM is in perfect condition and parameters are correct and stimulation is perfect. I had the PM implante...

Read More...

posting of an olde poll

do not understand why now there is an old poll about arrhythmias  where  442 members have already answered.  Of course hopefully those of us who posted our answers will remember we did.

new to pace

Read More...

3 Years Pacing and All is Well

It's been a while since I've even been on the forum which says a lot about how little the PM has affected my life the past couple of years.  Had some initial difficulties with rate response on my Biotronic Edora.  It was eventually turned off and I have had no issues since.  I forget that I even have the PM.  Just wanted to thank everyone here for the good advice in year 1 and encourage others to keep advocating for yourselves.  This forum is a great resource!...

Read More...

Taps on :41 of every hour

HI Everyone,

I am new here, though I have had a Boston Scientific Pacemaker with a Lattitude since July 8th, 2020.  It was inserted for an A/V block and I am 100% paced.

Just wondering if anyone else has experienced what I am experiencing.  From July of 2020 until November of 2023, I had no issues with my pacemaker.  Then, immediately after my appointment and a slight adjustment in November of 2023, I started feeling little taps from the pacemaker.  Strange thi...

Read More...

You know you're wired when...

You participate in the Pacer Olympics.

Member Quotes

I'm 44, active and have had my device for two years. I love it as I can run again and enjoy working out without feeling like I'm an old man.