Most Recent Messages

Here I go again...

Here I go again. Cardiologist wants to do another stress test. Wanted to do the Lexiscan. I refused once again as I had Lexiscan and immediately after IV..ended up in cath lab. They did not know if it was the Lexiscan that caused my stent to collapse or whether I was a walking accident ready to happen. At any rate I refuse to try it again. Had another stent put in 2 years ago. Then..during that stent placement woke up when they were in the vessel (per my doctor) and the pain was excrutiating....

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Quality of Life

 I was diagnosed with six sinus syndrome and my doctor has recommended that I get a dual chamber pacemaker. I’m only 42 years old so this came as a bit of a shock. But my grandfather and aunt died of this in their sleep, both before the age of 50. So I know it’s something that must be done. My question is, has anyone else with this condition had a pacemaker and then had improved quality of life? The reason I was diagnosed with this was because I was exhausted, short...

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Pacemaker technology wired vs wireless and single vs dual chamber (i don't want to be physically restricted)

I am due to have a dual-chamber pacemaker implanted on 20 July. I have slow sinus disease - bradiacardia. My resting heart rate during the day is in the 40's and lower over night.

My cardiologist said i would get more benefit from a dual-chamber pacer then a single chamber but didn't really explain this. I am interested to hear peoples experience and thoughts.

I am also considering a wireless pacemaker (micra wireless) but this is not yet available in a dual chamber.

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Medtronic Home Monitor

Is it necessary to take the monitor along on a five day trip?  I will have access to wi-if at destination, so transmission would be possible.  Or just call cardiologist and let them know I will be off line for a few days. First trip since implant, question only occurred to me today.

 

 

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Popping and twitching in sternum

All, I had my PM placed this week and have found that when I bend over I get a rapid popping sensation and I can see a visible twitching in my chest just under my sternum. This lasts a number of seconds prior to subsiding. Is this normal? Should I wait for my next interrogation to address this or should I get an appointment sooner? Thanks!

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balance

I am having a severe balance problem 6 weeks post pacemaker implant.  Anyone else had this problem.  Is my low set point possibly set to low.

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Expectations as a military member

Hi all, 

I was diagnosed with SA Node Dysfunction this week after several syncopal episodes, and had a PM placed. I am an active duty Air Force Captain with 5+ years remaining on my commitment. Are there any members of this community who have insight about what to expect in terms of medical review board and what my prospects are for being retained for service?

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Still suffering pain and can’t raise my arm up

Hi, was just wondering if anyone else has this issue.....its only 2 weeks tomorrow since I got my 2nd pacemaker implanted but it’s still sore when I’m lying in bed and when I turn on my right side it’s like someone pulling down on my pacemaker,,,, also can’t raise my left arm fully , is this normal ?

 

 

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Problem with stairs?

Lately, I have been having issues while hiking. Steep inclines are not an issue, but once I start climbing stairs, I get all the signs I am about to pass out. It takes about 20 minutes for my symptoms to cease and I am left incredibly shaky. I have not lost consciousness yet, however. I have not had this issue since before I had my PM implanted in 2011. This last episode, I had the foresight to bring a BP cuff. While my vision was too blurry to read, I am told it read 129/30. Will be see...

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Palpitations and light heaviness

I've has my pacemaker a little over a month. I have been doing really good feel great but the last couple of days I've been having some palpitations and a little light headed. Is this normal or do I need to get in touch with my doctor

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Post surgery excercise

I'm new to the Pacemaker Club and figured who better to ask, then people who actually have one. What should I expect when I return to weight lifting and any advice? Prior to surgery, would lift 4 times a week plus 20 minutes cardio. Since surgery, been limited to 40-60 minutes cardio. I'm 57 years old and miss that part of excercising and have been counting down the days (12) till I can start. Thank you!

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Transfer of care /monitoring

I had a bi-v St. Jude’s ( Abbott) pacemaker inplanted 1 year ago. I have the Merlin home monitoring system and follow up regularly with primary cardiologist and ECP annually. I just changed companies and insurance, now I am setting up care with cardiologist in new insurance network,( Kelsey Seybold). I’m curious as to who and how monitoring of my device will be changed. I’m still fairly new to all of this and was not expecting a job change. I have had one fairly long episode...

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Electric Frank

OMG, I just read a response by DonR to someone regarding a pacemaker and how they work, and while dozing off from the lengthy, scientific, though accurate response suddenly realized he's ElectricFrank reincarnate.

Welcome back Frankie !!!

Can Smitty be next?

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Boston scientific biventricular pacemaker

Hi - 

I had a biventricular pacemaker placed 8 years ago due to low EF of 32% and prolonged QT.  At the time I had just gone in for a screening echo, was feeling fine, and was frankly shocked by the findings.  I was immediately taken for the 3 lead pacemaker and placed on 100% disability.  In the next 8 years I never had another EF of less than 50% and no adjustments were ever made to my device or even discussed with me.  I didn't know tweeks could be made.<...

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??

had a pm put n on june 21st  not on any meds  is it ok to drink an occasional beer??

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USMC Discharge for PM

Hello! I am new to the site and have been reading around for a bit. I decided to join because why not?

Hope you are all well! Just had a question. I got my pacemaker 3 weeks ago during AT. I am a reservist in the Marines. From what I have been told, I am getting a medical seperation. I am not sure what to expect from any of it, or what the timeline looks like. Ive accepted it already, I just hate waiting around and want to move on with life. Does anyone here have any experience with mil...

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Pacing

Anybody have any idea of the effect of pacing 100% on the ventricle...I have heard some say no problem, others say it may lead to congestive heart failure , I have had my device 2 years just started packing 100% the last three months, each check the pacing percentage got higher for the last year until I reached 100%..would like to hear what others say about this. Currently 71 years old with two lead st Jude’s device.

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Doctors different opinions

New EP just recommending battery and lead replacement. Says due to recalled wires, noise. Former ep said surgery too dangerous for my husband, due to scar tissue, 10-15% ej. He's 65, had two ablations, 7 heart attacks, quadruple bypass, 8 stents. I'm worried. Old ep retired. Maybe I'm just not sure of the new one yet, or maybe old ep was putting surgery off cause husband died on table 3 previous times? Advice please

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Anyone get "poking" sensation where lead attaches to heart?

I have a Medtronic single lead ICD which was implanted January 2017.  From day one it has given me strange sensations but doctors wrote it off as "healing".  In March of 2017 I contacted medtronic and told them that I was getting poking sensations at 12:30am every day.  After a few minutes they came back and told me it was probably the device recalibration and "we hear that alot".  They also told me to contact my EP to have it turned off, which I did.&n...

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Pacemaker rate

Hi everyone,was wondering if anyone had any info,my baby is 4 months old and has congenital complete heart block,he had a pacemaker fitted one month ago and the rate was 120 since then the doctor has turned my sons pacing rate down to 60bpm and if baby’s asleep it will drop down to 50bpm,my son struggled with a heart rate in the forty’s,does anybody understand why the doctor keeps lowering it,thanks

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You know you're wired when...

Like the Energizer Bunny, you keep going.

Member Quotes

A properly implanted and adjusted pacemaker will not even be noticeable after you get over the surgery.