Most Recent Messages

Cardiomyopathy & Ventricular Tachycardia

Back in April 2016, I gave birth to my sweet baby boy. My first baby. 2 months later I had gotten really sick. I was coughing up blood & having shortness of breath. I immediately went to the ER. Of course, did xrays and other tests & that's when I found out I had postpartum cardiomyopathy. My OB & Cardiologist both recommended that I get on birth control right away because it was too risky for me to go through another pregnancy. And so I did because I was so scared that if I d...

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Medtronic monitor

Just got pacemaker in Aug. Monitor has now lit up twice , weeks apart, in middle of the night. What to do when that happens? Couldn’t find answer on web. Couldn’t log into Carelink website. Materials I have were so inadequate for answers. Also, what if anything to do  re monitor if I go away for a few days? Somebody should have given me info before leaving hospital.

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Looking for information for my mom (97)

Hi everyone,

Verna is my Mom. I'm Sally. Mom is 97 and has had a pacemaker for a couple of years. Last week we were at her cardiologist's and after some testing and getting a Medtronic rep involved, he told us that her heart's electrical system had stopped and that the pacemaker was the only thing keeping her alive. 

We were really taken aback and didn't ask the right questions, probably. I figure like any forum, ya'll cant give medical advice, but would s...

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FATIQUE (year+ after implant)

I am over 1 and 1/2 years post 2-lead pacemaker implant.  Last device check showed it was working as intended.  However; in the past 6 weeks I have suddenly developed extreme fatique.  For example, I went to bed early last night (9:30ish) and slept through to 7:15 this morning, with only 3 or 4 awake periods that I remember.  This morning I was completely fatiqued by 10:30 and by 12:00 I had to nap.  I woke up felling a little more energy, but by 1:30 was extremely fa...

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Who gets what

Just noted that former VP Cheney received a heart transplant when he was 72? - 73? If a like procedure were needed by anyone here, think it would happen?  

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Officially a member

Hi, people.  Second posting.  CRT-P implanted 10/3, with AV nodal ablation. 

It's pacing at "100 percent" which I take to mean it's making my heart beat all the time.  So happy not to have the tachycardia and/or brachycardia anymore -- it was really wearing me down, and looking forward to having my life back after years of struggling.

Only one night in the hospital -- yay! (Last ablation I was in the ICU for 6 days, which seriously sucked.) Am...

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New PM patient

Received my pm 2 days ago. Looking forward to end of recovery period. After 3 cancer surgeries over the last 30 years, heart/pulse issues are a new wrinkle in my life. Glad to have found this club. I’m sure I’ll learn a lot from it. 

 

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How long have you had your pacer!

Ok. Apologies if you have seen this before but I couldn't find my email when I checked for any replies ( if any) 

Just curious to see how long people have had their pacers. I'm going into my 54th year.  Endless pacer changes and problems here and there.  However, I've managed to lead a normal life. I live in Sydney, have been married for 36 years and have 4 children. (All normal deliveries I might add)  I was 8 when I received my first and I'm 62 next...

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Ph Testing

Can Ph monitoring  be carried out if you have a pacemaker device. Has anyone had the Bravo or Heidelberg test done. They involve small electronic devices to be swallowed or inserted in chest area so I would guess they are not allowed????

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More tired than before implant

Hi I had a pacemaker implanted 8/28/18 so it’s only been about 5 wks.  I went for a 15 min walk to get lunch today and I am pooped now. I have also started taking 25mg metoprolol at bedtime. Not sure if it’s associated w my tiredness. I am pacing 97% lower chambers and 14% upper. All new to me. I go in for my 6 wk check up next wk and the surgeon will b there to make adjustments if necessary. He said @ surgery if I don’t feel any better (more energy) @ my 6 wk check up...

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Thank You

Thank you Konal Lawrence, Queen 50, and Swangirl for your responses to my posting. They were very helpful and I appreciate that you took the time and share your experiences

Have a great day

 

George Aynilian

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Nothing has changed

I'm a fairly active 84yr.old and last year during a short break in a spinning class at the Gym, the instructor asked if anyone had a heart condition.  There were a few gasps when I mentioned my Pacemaker.  

To me it is a safety device which adjusts my heart rate as necessary to compensate for increased exertion but several others seemed to think that I should be 'taking it easy'  but Gym exercises and swimming are just a weekly routine to me.

I...

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New Memeber of the PM club

Hi Everyone, 

I am New to the PM world. Implant date 9/10/18.

I am still having some pain and discomfort around the implant area.  I have gone to my F/u and everything is normal but I am still feeling soreness around the area. Please tell me this is totally normal and it takes a few months for the muscle to heal. 

Thank you so much 

Monica 

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St. Jude Monitor

I have a St. Jude Monitor and plan to move soon. I have been using a landline connection for it.I just had a thought. Will my monitor work in my new place?  It is a brand new building. When I get my phone service hooked up will I continue to be able to use my monitor? What to do? Worried Help

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should i worry??

i woke up this morning by my husband because i tried lifting my left arm over my head. it was the first itme since the 28th. i even wear a sling at night. it wasnt too far up. i lay slightly elivated and it was put up to about my neck. would my leads still be down where they should be or should i be concerned and call my cardioloist when they open?

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12 volt batteries

Getting close to retiring and having a van conversion done to do some traveling. The folks doing the conversion want to put the storage batteries (2 12 volt) under the couch/bed. I am paced almost 100% of the time while at rest. Is there a problem with being near large batteries or current?

 

Thanks

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Beeping sound

I have a Medtronics model C4TR01, today I heard a beeping that I’m 99% sure came from my pacemaker it was 3-4 faint beeps. Than about 10 mins later it’s happened again. I was near my printer at the time and I have since tried everything I can to make the printer make this sound and have not be able to recreate it. So I’m pretty sure it came from my pacemaker. Is this possible with this model ?

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New Pace maker /athlete

Dear pace maker friends

I was diagnosed 12 years ago with sinus bradycardia due to Right brachial Branch block. Lived and exercised regularly with resting HR 42bpm, at night 38bpm. Max HR during exercise was 100bpm. No light headedness, no fainting. Recently I  had severe breathing problems. At ER my resting HR was 32bpm. Next day (Sept. 4), a Medtronic pm was placed with two leads. 

I started walking on treadmill after two weeks. I was not happy with my HR on treadmill....

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I thought I was all done with arrhythmias

For the past few days, I've been having quite unexpected periods of arrhythimia.  They have to be PVCs but I've never had them before and have no escape rhythm, so PVCs don't seem to make sense either.  They'ree pretty consistent when they're present.  The symptoms are either one strong pulse followed by a weak one at a "normal" heart rate (~70-80bpm) or two quick beats (fairly even in intensity) followed by a gap, also at a
normal(ish) rate.<...

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new twist on a medical id

Or maybe it's not new, but I just saw it today so it's new to me! It's a little sleeve that goes on the band of your garmin/fitbit/apple watch with a QR code that goes to your full medical history. I may get one because I've been running more distance and become more of a slacker about wearing my medical id bracelets. 

https://shop.getmyid.com/collections/myid-products/products/myid-sleeve-medical-id

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You know you're wired when...

You have a $50,000 chest.

Member Quotes

I am just now 40 but have had these blackouts all my life. I am thrilled with the pacer and would do it all over again.