Most Recent Messages

New pacemaker/AICD feeling hard strange beats

My husband (37y hx PTSD- fmr Military, RBBB, new HF disgnosis NICM of unknown origin- still having tests done) had a StJude PM/dual chamber ICD placed Monday for periods of low HR(low 30’s) and heart failure (36%RV 49%LV). He’s been having what feels like small shocks that he can feel that matches his HR and occasionally “hard beats that make me feel like I am going to pass out”. Has anyone experienced either of these and if so, what was it? Was the...

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Pacemaker Induced Cardiomyopathy

Anyone have more info on this subject?

--Dave--

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Edema

Hi all, 

A question about edema. I recently took off a pair of socks That left a really deep indentation in my lower left calf. Now I know that socks leave indentations but this one freaked me out. It was super deep (thugh not painful) and lasted for a really long time. The thing is, my feet and ankles are not swollen at all and when I did the thumb test it didn't leave an indentation. But when I tried a pen cap or anything hard, it leaves a deep indentation that last a long ti...

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February is Heart Month.

There are many ways to celebrate heart month.  For example, 

- walk more
- join the gym
- eat healthier
- wear red
- donate to yout local heart association

Share how you're celebrating Heart Month.

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Arm Sling

What is the proper orientation of my arm in the sling? Horizontal or hand rasised to just below opposite shoulder?

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Pacer and walker

Just wanted to find out if anyone else had this experience.  For several weeks I’ve been pushing a walker due to arthritic knees.  I can actually walk just fine; the walker helps me get around more confidently.  A few days ago I was  visiting my husband at a really large hospital.  While I was walking with his entourage who were moving him to a new room, we stopped to wait for an elevator.  It was then that I felt light-headed and “funn...

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Exercise

I wanted to get back to using my treadmill but an concerned about overdoing my exercise routine. First is it safe for me to use a treadmill. Are there any guidelines? I don't intend to run on the treadmill. I have knee replacement so I am limited in that respect. Any help would be greatly appreciated. Thanks. Bob

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I've always wanted a pacemaker...

said no one ever, but I am grateful, amazed, and delighted by this wonder of technology.

I am a 50yo newbie here (first post) and thankful for this community of cyborgs.  

My story started recently in December. Every time I would go for a run in the morning I felt like I was going to pass out. Over the next few weeks my resting heart rate dropped from 65 to low 40's. I had a massive cardiac work-up, including an angiogram, but they found nothing odd, except a few ary...

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CRT-P

Looks like I may have pacemaker induced cardiomyopathy. EP couldn't definitively tell me that's what is causing cardiomyopathy (40% EF) but I've been ventricle pacing at over 90% for a few years and I have a wide QRS (>150ms) so ventricles are definitely outta sync.  EP recommends a CRT-P and I'm set to have it placed in less than 2 weeks.  This will be my 3rd PM in 4 years:(

Any thoughts?  What kind of battery life would I get vs a standard dual lead P...

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Subclavian venous stenosis at the level of pacemaker leads

Has anyone experienced this?  Just got results (mentioned in subject) of a CT scan w/contrast which was done to determine cause of circulation problems in R arm (same side as PM).... arm swelling, aching, discoloration, pronounced vessels, etc.  Next step I'm told is to discuss with an "Interventional Radiologist" who would possibly go in and try to dilate vessel.  Really don't want to live like this, and don't know if it will get worse.  Being told i...

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Pacemaker

Hello,

Recently my father had a pacemaker implantation like 8 months ago on his first vist to doctor his pulse was 90 and on second vist his pulse dropdown to 70, but now he just fainted and admited in the same hospital they did a regular checkup now the pulse droped down to 60. Doctors conformed every thing is fine with pacemaker working as usual but here we have a question related to pulse dropdown is this going to be an issue? or pulse is based on heart beats.

Thanks in Ad...

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sympathectomy side effects

Hi All:

I have been throught the progression of medications to control my ventricular tachycardia.  Sotolol lasted 2 1/2 years without an episode until a month ago.  Had 9 icd shocks in 45 minutes.  Doctor took me off sotalol and put me on amiodarone.  Nothing since then.  He has suggested doing a sympathectomy to control the VT and thus the shocks.  Does anyone know the downside to a sympathectomy?  Reserch on the internet suggest that most are happy...

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Industrial Elevators

Do Industrial type elevators the ones that can carry large stuff cause problems with pacing devices and if so should I worry if their is an Interferece. I had to use one twice today. After I came back up I felt like their may have been an Interference but it only lasted about a second or two.

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Pace maker obvious

It has been 4 weeks since PM implant, is it normal to have half of it protruding quite a bit?  Will it be less obvious in time?  Thanks for info....

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Pacemaker

My husband almost died and I’m a full time caregiver... only had my pacemaker a year.  Took me awhile to accept but was ok till August when he fell and gone downhill..... my problem now is stress!  I am also having flutters or palpitations 🤷‍♀️ And constantly thinking the worse ,  that something is wrong with me. Just had it remotely read ... all is fine, no episodes, so how do you stop the worrying and live a normal life?

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Congenital Heart Defect Awareness Week

Shoutout to all the congenital folks out there! 

https://www.facebook.com/MendedLittleHeartsNationalOrganization/photos/a.10153292065615473/10161508644925473/?type=3&theater

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Advice

Hello, had a pacemaker fitted October 2018 question is can I have a blood test ? 

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pacemaker placed

If I was unclear before I'm sorry. I did get the pacemaker. I was brought to the ER and my cardiologist happened to be working at the hospital that day. He said tommorow you get a pacemaker. No time to discuss, or even think about it. I did remember them giving me two shots of something trying to get my heart rate up.

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Evaluation for Pacemaker

Hi Everyone,

I was diagnosed with Complete Heart Block at age 2 and haven’t experienced any symptoms or had any interference with my daily activity.

Each year I complete a 24 hr holter and regularly have echo’s and/or stress tests to monitor my condition.

Now at age 30 my recent holter reading about 3 months ago showed an increase in PVC’s from about 4 a day to 87. Based on this my doctor has requested I meet with him next week to discuss a pacemaker, My st...

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Battery life warnings

Hi all, I have a Biotonic Evia DR-T Pro-MRI pacemaker implanted 2013. I have been told that this model does not give off a warning alarm for low battery like a lot of other pacemakers do ie a beeping sound . Do I have to rely on the clinic to know when a change is needed ?

Any input would be appreciated.

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You know you're wired when...

“Batteries not included” takes on a new meaning.

Member Quotes

My cardiologist is brilliant and after lots of trial and error got me running. I finished this years London Marathon in 3hrs 38 minutes.