Most Recent Messages

Adding another lead

Edited to correct...

Hi all.

It looks like I am almost 5 years in and I will need another lead added.

Can anyone tell me what their experience was having one added to their existing installation.

Was it as invasive as the first? Recovery time? Etc.

Thanks in advance. Was hoping to not see this day for a long time. However, onward and upward 

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working as a nurse with a pacemaker

My daughter will be having a PM inplanted in March (I am not sure what type as yet). She is an RN and I was just wondering if she will still be able to work in the hospital on her Med Surg Floor, being that there is a lot of lifting and pulling with her post op patients

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Torsades

I went to the er aND had an episode of torsades having no heart issues beforehand was giving cpr transferred to a different hospital had another episode of torsades heart rate was over 200. They shocked me 3 times gave me to much of one med which caused a seizure which comprised my airway put on ventilater. Surgery next day for pacemaker and defibrillator installation just wondering if anyone else has ever been though this 

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Flouroscopy Risks during Implant Procedure

My EP has recommended that I get a CRT-D installed, and the more I read about it the more nervous I get about the whole thing.  I was reading about the implant procedure, and it sounds like fluoroscopy is always used when implanting pacemakers, ICDs & CRT-Ds.

From what I am reading, fluoroscopy exposes the patient to a huge amount of radiation that can lead to skin burns or even cancers later in life.  Has anyone discussed this risk with their EPs, and if so, what were you...

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Incision

I just posted a picture of my incision on here.  Someone on Facebook said it looks infected to her.  Can someone look at it and tell me what you think please.  I have no fever or drainage or pain.

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teeth cleaning

does a ultasonic scaler interfere with the pace maker Edora 8 DR-t

Went to the dentist they said some pacemakers are not compatable with the ultasonic scaler?

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pacemaker and vibration therapy

Hi everyone. I have had my pace maker for one and a half years now. My problem is that I developed neuropathy while I was in the hospital. Can I receive vibration therapy with my pace maker?

Any help would be much appreciated! Thanks!

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CRT-D fitted

Hi all, here's my story.  In September last year, at 47yrs, I found out that my GPs diagnosis of Asthma 7 years ago was in fact heart failure!  I had an EF of 20% (most likely cause was a virus) and no other heart/valve problems but lets face it thats enough!!  I had a Boston Scientific CRT-D fitted on December 18 and my EF with the help of meds had gone to 32%.  I thought I would bounce back after the operation much quicker than I have.  I am able to do more as e...

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Question regarding increased pacing

I’m currently short of breath and read lots of the other forum posts about what it could be.  I’m 2 days out and have had several echos that showed no issues. Is it normal to be short of breath with a change from 70 to 80?

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Leads

Hi  How far do the leads go in to the heart,and of course the leads are inserted via a vein which I would think ensures safety against dislodgement.

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declining pacemaker

Once again, thank you to those who answered my question.  It's so comforting to know others have grappled with this issue.  My life is OK, and I'm not depressed, but I do not want to end up in rest home care, and I know that if I want to choose a peaceful death, waiting till I have to be put in a home is waiting too long - I'll no longer be capable of taking action.  I don't want to turn this post into an end-of-life discussion, as my original question was...

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New to the club!

Hey everyone! My name is Mattie and i am 20 years old. Yes, pretty young to have a pacemaker. I get reminded daily! But after lots of research im learning that its much more common than i thought! 

LONG LONG story short, i have passed out several several times throughout my life starting at age 7. After seeing dozens of doctors and dozens of normal tests they just kept reffering me to psychologist and upping my Anxiety medicine. This past year things have gotten much worse for me....

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Pulse at collar bone

Over the last couple of days I have developed a noticeable pulse just above my pacemaker to the left hand side of my left collarbone. I can feel the pulse in my arm depending on how I am standing or sitting. Anybody had this before. Feel fine apart from it being annoying. 

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Working out with a pacemaker

Hi everyone ! Im new to this club and this is my first post. I am 19 years old and have a pacemaker since i was 6. I had a pacemaker change when i was ~14, but still have the original leads, wich are now 14 years old.I started lifting weights when i was 17, with my doctor permission, but i was cautious with chest training. Recently i noticed that when i elevate my arm above my shoulder with a certain angle there is extracardiac stimulation of my chest, basically my pacemaker is stimulating my...

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shocking

I had my pacemaker put in i 2012 it is now shocking me  worried what can I do?  Don't feel like my doctors care.  I have 1yr left . What can I do ? 

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Settling in

I had my PM fitted 5 days ago so is there a settling period,Iam suffering anxiety which sometimes makes me feel lightheaded is this normal.Ihave this ongoing fear of leads dislodging and have had this fear ever since I was diagnosed and a PM  suggested.Doctors these days don't give out prescription for calm me downs they prefer a visit to the Phsycologist they don't work with me having suffered with anxiety etc for years.

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His-Bundle Pacing

I am interested in patient/doctor/nurse experiences related to "His-Bundle Pacing" in which a single lead is directly connected to the nerve bundle that normally handles pacing of the heart.  There is an experiemental study in L.A. and I am getting ready to join it.  So far, I am convinced that His-Bundle Pacing offers many, genuine benefits if one needs to have a pacemaker.

Is there anyone out there who could weigh in on this?

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Icd

Does anyone else have the St.Jude ICD with the defective battery? It could go any time and be dead within 1-2 days. They said it is not necessary to change it out early, but makes me nervous about traveling and being far away! Thanks!

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New EP

Hello,

My pediatric EP of 20 years is retiring and I’m being transferred to a new doctor in the adult device clinic.  I have my pacemaker due to CCHB and am still using the original leads, with one in unipolar mode due to a small fracture that happened a few months ago.  My pediatric EP’s philosophy about lead replacement is to cap off the old leads and put new leads in.  The new EP specializes in lead extraction.  I’m meeting him for the first...

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Playing with my meds

Spent 3 days in hospital last week for pneumonia.  Didn't sleep much on that crappy hosp. bed. Upon discharge, I developed some type of inner ear thingy.  I could "hear" the air rushing past my eustachian tube openings in my windpipe.  If I bend over, issue resolves itself withi a few seconds. When I sit upright again, it returns. At least I can sleep at night.  Part 2: I got into the car few days ago - wife driving - and we headed down the street.  Sudd...

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You know you're wired when...

You have an excuse for gaining an extra ounce or two.

Member Quotes

Your heart’s electrical system has a manmade helper. A helper that only knows to do what it is programmed to do and will perform that function day in and day out, without fail. Now, go enjoy your new grip on life.