Most Recent Messages

SSS/ vasovagal syncope without atrial lead attached

Hi,

This may be a bit long so please bear with me. Does any one have expertise with Sick Sinus Syndrome, sinus pause and vasovagal syncope without the atrial lead hooked up?

i got my third pacemaker implanted 3 weeks ago, I'm 34 years old. The plan was to get the new PM along with remove the old leads. The old leads had been in 15 years and we knew at least the atrial lead was very damaged. When the surgeons got in there it turned out it was much more complicated than they exp...

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Vibrations

Hello,

My name is Santiago and i've had a pacemaker (Medtronic) for a while now but i still don't fully understand the limitations that this implies. As my cardiologist always told me, i have to keep my cellphone away from my chest and on the other side pocket of my pants, i don't know why is this but i do it anyways.

Today i've bought a fitbit that tells me my heart rate all the time but it vibrates with notifications, i wear it in my left hand and i'...

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Nursery Toys

Hi everybody, I'm pretty new to this club. My little boy (10 months) has a Pacemaker fitted and is starting nursery next week. They have asked for some advice on toys that he shouldn't play with, our cardiologist said nothing electronic. Does this mean nothing at all with a battery? 

Thank in advance for any advice at all. 

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RE Low HR

Hi I'm 54 and have had a dual chamber Meditronic PPM in place since Dec 2018 which was inserted for 2:1 heart block. The same week I had an Occlutech occluder device inserted via my groin to block a 3cm hole between my two upper heart chambers. I had some residual right sided heart failure and my cardiologist started me on a tiny dose of Bisoprolol 1.25mg.

In September 2019 I found out I had an inheritable form of high cholesterol (Familial Hypercholesterola...

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It really is failing

Well, I had a remote test last Sunday. I knew something was wrong.  BP went out of control on Saturday. No matter what I did pulse rate was 65. I forgot how tired I was pre PM. Monday morning call to the Dr that is replacing my PM.  Before Dr office called me back the device center that I sent my test to on Sunday called me.  She said my pm was at end of life. I said that was not news to me. Dr office called back have my appt to replace on 9/3 .  I was really dreading this...

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Rate Response

3 months into my St Jude dual lead PM.  Bradycardia with total heart block. I had some problems that seemed to be too sensitive RR.  The tech changed my settings to less sensitive today.  He said if that didn’;t work better for me he would just turn it off.  My question is what difference will I notice if the RR is turned completely off...big deal or no big deal?  Input appreciated!

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Heart rate and excercise

Hi

Last week I had a telephone appointment with a cardiologist I haven't seen before and I explained that I am still suffering with breathlessness and fatigue, so his response was you need to improve your fitness levels. 

I have done a couple of brisk power-walks on the treadmill and I still experience the issue of my heart rate getting to about 120bpm and then crashing to the base limit of 60. It then will only recover by about 20-30bpm thus meaning my workout is ex...

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Does anyone use the Medtronic iPhone app (MyCare Link smart or heart)

  • by WIK
  • 2020-08-24 22:03:25
  • ICDs
  • 189 views
  • 6 comments

Is either of the two apps better than the other, or do they even work with an ICD?  Evidently they potentially could replace my bedside monitoring equipment, which would be beneficial for travel.  Are they reliable?   Thanks!

Bill

 

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Can Heart Rate Actually Drop Below The Base Rate of a Pacemaker

The Heart Analyzer app on my iWatch (Series 5) reports daily occurrences of heart rate in the low to mid-40s even though the base rate on my pacemake (St Jude PM2240) is set for 50. Is this an artifact of the app or is it an indication that my pacemaker is not functioning properly?

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Rate response settings

After no settings changes after 90 day check up on my dual lead St Jude PM, I had a video appointment with my Cardiologist the next week.  He decided to tell the tech to raise my HR from 60 top 70 and make rate response more sensitive.  It seems my legs have more strength and I’m less fatigued.  But, one of the changes or the other has me wondering.  I was just riding in my golf cart not playing just watching...I followed my buddies foursome about 4 holes and it was...

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Tape and pacemaker covered

Was at my GP thurs and he started to remove the purple tape that covered my surgery , I asked him to stop because when he pulled it hurt a tad.  It's been 18 days since my new pacemaker was  put in and the tape is coming off by its self. Wow when I saw the incision it was small and looked better then I thought. How long did most of you wait for your tape or what ever was covering your incision before you took it off? Thank you for any info.

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Heart rate

I'm in my 80's and am on my second pacemaker which is now in its 13th year. Consequently the frequency of my checkups have gone from one year to six months down to three monthls for the last two. In March I was told the battery had 18 months. My next check was delayed ( presumably due to Covid) until last Friday when the technician told me the Battery had one year remaining and they would see me in six months. Later that day I noticed on my Apple Watch that my heart rate was around 60...

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Micra pacemaker

Hello!

i had my micra pacemaker fitted nearly 6 weeks ago,at 44 yrs ol. I know it is a fairly new type of pacemaker.

just wondering who else has one & for how long,your experiences etc.

be good to meet fellow patients like myself!

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Post PM

Thanks to all of you who responded  I didnt say I was happy to be a reciperent of a Pm.  Like most of you, it is necessary    I got home today about 2 pm.  still have some dizzines but what concerns me is my fast pulse  Just sitting I run around 100-108 but it I get up for anything, it will go to low 120 s.  Pre pm I was 70-93 at rest.  I have to return to the Doc on the 26th.  The Doc said he will give me blood pressure med that slow the heart &nb...

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new to pacemaker

Good morning, all.  

Less than a week has gone by from diagnosis to implanting of my pacemaker two days ago.  I'm a 75-year-old woman in (otherwise) good physical condition, an avid walker and hiker.  Now I'm trying to process what's just happened to me and what it all means for my future activities and life style.  I'd appreciate any advice anyone has to share on adapting to life with a pacemaker, what to watch for, how to deal with the emo...

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Blood pressure

I posted yesterday about my HR being changed on my 90 day review from 60 to 70.  I had already been having what I thought was the most common form of syncope, though I hadn’t yet fainted I feel like I’m going too when I get up from my recliner just about every time and it seemed more prevelent after the change in HR.  Everything else has seemed to be better with the change to 70....I’’ve had more energy and my legs felt less fatigued.

I had a good...

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Pacemaker and mobile using induction

Hello,

I went to the store with my girlfriend earlier to buy an iphone 11, and the seller told us that all recent phones from any maker use induction... the last iphone without it is the iphone 7. I know that we have to stay away from induction stove, like at least 50 cm... but, what about mobiles with this new technology? If it is not connected on the charger, the induction is probably not working (and the mobile case use induction as well...!)?

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Bodybuilding with Pacemaker

Hello all,

I got my pacemaker on 07/06/2020. Prior to the pacemaker, I was an avid weightlifter and competitive bodybuilder. My doctor cleared me to exercise about a week ago, but told me I should avoid any intense weightlifting or repetitive movements ( which exercise is a series of). Has anyone had any issues with the device or leads when lifting? Also, if there are any bodybuilding competitors on the forum, how has this changed the way you prepare f...

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New pacer. Exercise issues

Thank you Crustyg. Since decreasing the ADL sensitivity my tachycardia with minimal exertion has resolved. I am still perplexed as to why my HR remains at 130 (maximum ventricular pacing limit) long after I crest a steep hill and then gliding for a significant amount of time. Today this occurred on road bike on smooth pavement. It eventually comes down but I do not need 130 going down a hill!  I wonder about the deceleration adjustment. I think it is set at 10 minutes. What is...

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Resume Biking

I'm post dual lead BostonScientific PM implantation device for 6 weeks now.  Been going well so far!  I'm very eager to start and try to reassemble my previous life to the PM. Cycling is very important, so I'm curious about how long it took others to resume this activity (mountain biker and road/gravel rider, serious about it but it's still all about the fun).  Some of the post-op directions/suggestions were no strenuous activity for 3-6 months. What have you be...

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Your kids call you Cyborg.

Member Quotes

My ICD/pacer is not a burden. I still play tennis and golf.