Most Recent Messages

Urgent advice

Dear members

I have a VDD pacemaker implant since 2011 but I have paced  3% since then.  The problem  is Its now  pacing diaphragm,  I get pvcs and severe cough. drs here have confirmed  I don't need it anymore, They wanted to switch it off but the battery life is too low  to change the settings. It was on VDD mode but automatically changed the mode to VVI. 3rd day now i get severe cardiac events. The pacemaker   request immediate replace...

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Accepting Your Heart Condition

I had a 3rd-degree complete heart block on February 8, 2021, with two stents and a dual-chamber heart pacer, implanted.  It is now 6-months on and I have had some issues with pacer pocket infection and my pacer removed pocket clean and dead tissue remove and my dual chamber pacer reinstalled in the same pocket.  Since the infection, my pacer tends to move in the pocket and gets hung up on my chest muscle that tends to hurt but it will pop back out.  Doc says it will heal a...

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carotid arteries

Saw the vascular specialist today for the last time. Been with him since 2014.  He said carotids should  not have anymore plague in them.   Both are now at 45%.   Which is quite good. 

Told him since i see the cardiogist once a year now.  She can make that determination if i need anymore ultrasounds on them.  Had been seeing him every two years.  He wanted every 5 years,  His office staff said every 2 years so i would stay in the sy...

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running - pacemaker upper limit and vtach

Had my pacemaker put in for bradycardia/sic sinus syndrome earlier this year. I run a lot, so was eager to get back to it as soon as possible. On follow-up visits, they noted that my pulse had gone above 200 on a few occasions. 

Comparing to my Garmin tracking, it looks like when I run my HR quickly gets up to 140, which is the upper pacing limit for the Pacemaker. Then, it is pegged at 140 for most of my run. BUT, sometimes towards the end of the run my heartrate suddenly cli...

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Arm swelling

My husband had a duel chamber pacemaker inserted nov 2019. Just after Covid vaccine ~ april 2021 he noticed swelling around the elbow. When we checked the whole arm (on pacemaker side) it was an inch bigger than the other arm. He had CT scan , venous and arterial Doppler. All negative. It is a mystery. We saw the pace maker dr who said he has seen arm swelling but usually shortly after pacemaker insertion. We THOUGHT it could be from Moderne vaccine.

please let me know if anyone has exp...

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iPad Pro/IPad Air

  I know there are a lot of smart ppl on here and I am hoping someone can help me. I got a new IPad Pro 6 months ago and noticed no effects from the magnets involved with the device or the case at all. Then I got a new IPad Air a week ago and when I use it I feel light headed. I have an iPhone 12 Pro phone and that has never effected me. 
  I want to try to make the IPad Air work, does anyone know of a company that makes good IPad Air cases that do not have magne...

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How much dieting is too much dieting?

I am wondering what everyone thinks about dieting. I know, I know, I shoulld be asking my doctor. We did discuss this a year or so ago, and I was given the standard heart-healthy diet, which was OK. Limiting sodium & fat was not difficult for me, and I became a label-reader & (for a while) kept a daily tab. I lost about 15 lbs in the first few months, then hit a plareau & stuck there. I'll admit, that I got discouraged & stopped being as diligent as I should have been &...

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Covid vaccine

I'm getting my first Covid vacine on Friday, a little anxious because of bradycardia and pacemaker. Has anyone had Pfizer shot with pacemaker? Any side effects? 

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Metal Mickey’s time’s up.

Check today and replacement in next week or so. Put in 2009, pretty good effort for my metal mate. St. Judes Zephyr. 
thanks for all the support and advice since 2009.

cheers,

Lizzie

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Pacemaker Club - post Pacemaker/ICD implant Pain Survey

Dear Members,

Over recent months, several members of the Pacemaker Club have expressed a wish to know how many of us experienced pain following implant of our devices, the nature and extent of that pain and how it affected different age groups and gender.   

A survey has now been set up with the kind help of Club members and the link to the survey is given below.  The survey is confidential and will not be used for marketing.  All members irrespective of w...

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Delay during exercise

I seem to have a continuing issue with PM not increasing heartrate during exercise without a delay.  I walk a steep hill which would have caused HR to be 110, and my pulse is now 78 and I am out of breath.  It catches up in 3-5 minutes.  It is very annoying.  I am an avid hiker and I hate pausing for PM to "catch up"  Is there a fix for this?  Anyone else have this issue?

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Currently in hospital - Sudden case of Slow VT ?

Hi all i have had a PaceMaker for 20+ years and was recently diagnoised with ARVC (acute right ventrical cardiomyopathy) - As fellow PM's know, i felt that my heart was not acting normally as i felt that it was racing for small bursts. i contaced the device care team after a transmission and asked them if they noticed anything during those specific times . they confirmed they did notice a fast HR but nothing being reported as abnormal by the PM.

Long story short i went to my El...

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Tricuspid leakage due to pacemaker wire.

My husband has tricuspid leakage due to pacing wire. Has anyon else had this, and am interested as to what there electophysiologist had to say about valve replacement.

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Elevated RV capture

I was in the hospital for heart failure. I have a duel chamber pacemaker that was adjusted by the rep while I was in the hospital. Elevated RV capture changed to unipolar capture threshold of 1.8v@0.5 ms, Anyone know what that means?

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Vaccine for Covid

After my initial Covid vaccine and then second shot, I had to have a pacemaker implanted!  I was 76 and very healthy.  Fainted and had implant.  Another friend, same age, had the same experience.  Several people began having atrial fibrillation following the vaccine.  I have read of the vaccine affecting the heart muscle but no doctors take it seriously.  I am concerned about the booster and wondering if the vaccine could cause my heart weakness??  

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Ventricular lead pulsing

Hi, I had a dual chanber PPM fitted November 2019. For the past 10 days or so I have very regular strong pulsating from the bottom lead. I was having this 1% of the time when I had check ups in January/February.....now it is more like 40% of the time. Does anyone think this is clinically significant? I have been having some SVT's...thank you for your thoughts.

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At home transmission

I have had my pacemaker for 3 years and it  in the his bundle.

Saturday I sent over a transmission. I know this probably sounds weird. But when I did the transmission, it almost felt like my pacemaker was getting hot. It took a while as where I live doesn't have good cell reception. 

After that I felt what I thought was pvcs. Did a 1 lead ecg and no pvcs. in fact almost all my ecgs I take come up as bad recordings. I've been doing these ecgs for a long while and...

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Pacemaker migrated...alot

Good morning. I had my pacemaker placed on May 11. Since then I have had numerous issues with the settings that are still not resolved (I am one of the lucky ones who feels this thing working/not working properly), but now have a new issue. My PM has moved considerably. It has gone from under my clavicle about 4 inches lower into my breast. I was feeling breast discomfort and went in for my annual mammo and there it was, right in the middle of my boob. 

I have gotten push back abou...

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Recovery HR not going down fast enough

Hello everyone...

I just got a dual lead Medtronic Azure XT DR MRI SureScan implanted (they removed the older single lead PM so that I can have synchronicity between upper and lower chambers.) I have a working SA node but am suffering from a complete heart block because my AV node isn't working right. My PM has been configured so that the SA node drives the AV node. 

I went for a 2 mile run for the first time yesterday. The run felt normal but I realized after the ru...

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ICD vs. Pacemaker

On my second ICD as the battery was about to expire.. Have noticed a few posts here where considering changing out Pacemaker for an ICD. I have to wonder why not get an ICD to start with.....since they also have pacing feature? Both treat similar arrhythmia issues which got us here to start with. Seems this would be preferred as you might be better protected and save the need to switch. Sure there must be a good reason and I would be curious to know..

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You know you're wired when...

You have a $50,000 chest.

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