Most Recent Messages

Lightheadedness

I'm 7 months out and having periods of lightheadedness. My BP is always around 114/70. Tried to do a 2 mile hike yesterday and once I got started, my pulse got up to 115. Varied between 115-90. I am set at 60 bpm. I try to keep from being dehydrated, but the fluids don't seem to stay with me. Is there any secret to staying hydrated? I called the device clinic to see if they could tweak my adjustments and they said there wasn't one for lightheadedness. Told me to go back to the EP...

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Fast heart beats

Two weeks in from having Pacemaker .past couple of days I have been experiencing being very conscious of my heart beating quite fast this settles  after a short time then   reoccurs . Unsure if it's because I'm anxious about the Pacemaker working properly or is this what is suppose to happen when heart beat goes too slow and Pacemaker kicks in.  Wondering if anyone else has this. Trying to stay positive and take it all in my stride .... but  emotions are takin...

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Alternate ectopics with paced beat

For the past few days I have been getting long periods of  alternating ectopic and paced beat.  As I have had an AV node ablation I am paced 100%, and my rate is set at 80. But when these ectopics start it means that of the 80 bpm I am only getting 40 effectual ones as the ectopics do not pump blood properly. It is very stressful as I feel quite breathless and cannot do anything. The pacing clinic have looked at a download and said there is nothing they can do and my heart...

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The longest working pacemaker

The longest working pacemaker (present day) belongs to Randy Kasberg (USA) which has been working for 36 years and 337 days, after it was fitted on 30 September 1977 in Gainsville, Florida, USA, as verified on 2 September 2014.Sep 2, 2014

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Signs of low cardiac output?

Hey all,

I go for right heart catheterization on the 18th to check my cardiac output and other values.  Doc says if it is below 2 he will start me on inpatient inotropes.  I don't have signs of congestion except very mild lower extremity edema (but I am heavily diuresed).  So far my lab values aren't bad, creatine is 1.00 up from 0.7 3 months ago, and mildly low potassium.  Other than that everything is in normal limits.  I am curious if anyone has perso...

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Sub-pectoral PM Recovery

I am due to have my first replacement PM in 3 weeks, the first one was placed sub-pectoral and lasted 12 years with no problems. 

As it was so long since I had the inital implantation, my memory of the recovery is a little hazy. I was 15 years old and a competitive gymnast at the time and I remember it taking around 6 weeks to lift my arm up above my head and even longer to hang off a bar and pull up etc. 

I am incredibly fit and active and...

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Newbie

Hi am a Newbie as only had my PM 1 week. Advised due to SS Sydrome .        
After I 'crashed' on a short training run 1 month ago. Also as well as pausing 3 seconds at 40 bpm they identified  fibrillation at the top end.   Cardiologist strongly recommended I start taking Blood Thinning drugs.  As I am not on any drugs I am hoping there might be other more 'natural methods' which might be an alternative to drugs...

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1 lead not working, doctor suggesting adding a 4th lead (patient already has 3 leads)

Hi, My father has had his pacemaker for over 10 years now, he is 66 now. We just learned that 1 of the leads that goes in the right heart chamber is not working properly and has to be replaced. The doctor is suggesting not to remove the lead but rather add a new one. My biggest concern is that he already has 3 leads passing through the vane (1 lead to the right, one to the left chamber, and a defibrillator), and adding a 4th one might cause issues with the circulation in that vane if it...

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BREAKING LEADS SO EASILY

I'm 44 years old. I got my 1st pacemaker when I was 24 years old. Since then, I habe broken my leads 3 times and no doctor know why. 

I got my last pair almost 3 years ago, they are still holding but I can feel them pushing my skin above by scar. I just hope they will last a little bit more as this surgeries are so painful due to the pushing and probing trying to get the old leads out.

No surgeon has being able to take 3 of my old broken leads. They are impossible to take...

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Coping

Hello Again, I am 12 days from receiving my Pacemaker and still trying to process all the information and mostly trying to absorb the news that my condition prior to operation was much more serious than I knew . I believe I am recovering ok but have very little energy ,today especially .Promised myself I would have a walk but just cannot muster up any enthusiasm ,wondering if this is just me or am I expecting too much . 
    Maggie 

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Lead Punctured My Left Ventricle

Hi, this is my brand new entrance into the Pacemaker Club! I just turned 60 on March 5. I received a Medtronic pacemaker on March 24. Less than 48 hours later I  began to have sharp stabbing chest pains.  The pains were not related to the suture site or the skin around the pacemaker.  I called my cardiologist's office and they said it was related to post-surgery discomfort. For the next week they would come and go. My cardiologist scheduled an appointment & he said all...

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mastectomy and pacemaker?

Hey ~ has anyone had a mastectomy since having their pacemaker placed? I'm potentially facing the situation right now and my PM is actually implanted sub pectoral so I don't know that it would be affected??

Anyone have any experience with this?

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Aortic stenosis a pacemaker.

Sorry this is long...I went  in with symptoms of heart problems and get diagnosised with bradycardia and murmur. I received a 2 lead pacemaker then 2 months later a 3 lead in 2012. I have had random symptoms a pacemaker checks, asked questions and now just had generator replaced 2021. My murmur has never been addressed. I find out at that time just pre surgery that the 2 lead had put me into congestive heart failure..the 3 lead took me out of CHF and that 1 year prior ago  I was mod...

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Insurance

Hello all

i dont know if this is the right spot to post this question but here it is.

who has insurance that pays every single medical bill 100% including medince 

even if experimental procedure?   So that you inever see a bill for anything.

 i know we perhaps think its a dream but my gut tells me its out there.

who  or what company offers it.

 

signed the dreamer

mike

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Adjustable beds with message

I was hoping someone here has an adjustable bed with message. Husband decided to buy one he has a bad back, but I have a CRT-D and not sure if I can sleep in this bed and use the message , I don't need to use the message just want to be able to sleep in it. Thanks

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Dizziness and fatigue

I have had a pacemaker for about 3 months. The first two months were several setting adjustments and then I started to feel like myself again. Recently I have become dizzy, tired and feeling chest pressure after working out. I have shared my symptoms with the techs from Boston Scientific and they couldn't really adjust the pacemaker to accommodate for these new symptoms. I was told that a 44 year old active female like myself is a difficult patient to figure out. It seems like they don...

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New To Me Boston Sci. Pacemaker

Hello,

Just now getting on with my recovery after recent implant. I was told initally the only time I will hear from the PM is when my pulse drops bellow set threashold. I have SSS with Syncope last past two years due to LBB. Finally the Dr. was able to see what was going on with a Bio-Tel Remote monitoring. Anyway that is the background. When I started to have symptoms Post Surgery of heart palpitations, hard to breath etc. The Dr. was not sure, maybe tacycardia but I said I was going...

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broken lead

I am an extremly active 72 year old.  I do a variety of exercise, with swimming being a prominent one. I have had a PM for about 2 1/2 years to address SSS, bradycardia etc.  Before the initial surgery I was told the the device would sense my motion and respiration.  Then they gave me a Medtronic with just the motion chip.  I was told later by one of the device techs that it was because of the hospital's "business plan".  This device does not work w...

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Medtronic Carelink Monitor

Last August I was given a Medtronic Carelink monitor and contacted by the hospital to carry out a manual download.  I have not heard any thing since then and it now sits unplugged in its box.  How do I know when to make another download ? TIA 

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Oops

I am sure that almost everyone here has had an experience similar to mine today--but it has caused me some slight concern that I know you can address.

At the grocery store, my favorite iced tea (12 pack of cans) was for some reason stocked only on the top shelf. I reached up--I'm 3 months post-implant, but I still reached mainly with my right arm, using my left to support the box on the way down. The box had gained some momentum & landed instead precisely on my pacemaker! I...

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