Most Recent Messages

New PM

My husband recieved his PM on 4/20. He passed out and was flown to nearest major hospital with a HR of 30-33. He recieved a 3 wire Medtronic CRT Percepta. He is a 77yro with a 32 yro mechanical aoric valve. His heart could not sustain a HR beyond 33BPM without a PM. This was a sudden onset and the EP said it was an electrical bundle failure. Prior to his PM his HR usually ran around 60 BPM. His situation is muddled with orthostatic hypotension from Parkinson's, causing his blood pres...

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Digital scale

Please respond.I have read confused information about digital scales. Are there. Any safe ones people with pacemaker can use.

jennycraig

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dealing with anxiety

Hi everyone, im having such a hard time dealing with my anxiety. Im writing to you from my desk and for some reason today is unbearable so much i needed to take a lorazpham. It feels like im having a heart attack and it really sucks the feeling im in. HOW DO SOME OF YOU COPE WITH THIS DIBILATING FEELING. It just really does a number on me.I first experienced it six months afetr my implant and boom! my first panic attack. Im on 10mg of lexapro but im also 6' 240lbs in decent shape. i try t...

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Massage Guns

I just order a massage gun for pain from full body neuropathy. Does anyone have one ? I wonder if it interferes ? I bought an electric one. 

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pain

My dif/pacer started beeping a week ago and I went in this past thursday for them to turn the beeping off. I did not even realize it was me that was beeping until they called and told me. I have to have a battery change in a couple of weeks but my questions is that tonight I had a pain where my device is and it rain down my left arm. It was a sharp and tingling pain and it stayed around for a few minutes. Is that normal after they turn the beeping off.

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Prophylactic ICD therapy

1 month ago I had a cardiac mri, and they found myocardium scarring (most likely from a pervious virus), and now my cardiologist is considering 'Prophylactic ICD therapy', after trialling medication for 3 months to see if my 45% EF improves. What I don't understand is why he would be considering this therapy when I don't have any arythmia's (had a holter monitor test). I am a 57 yr old  masters cyclist (former professional in the 80's), and suffer from shortness o...

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how often the Pacemaker works

Went to the doctor today for my 9 month check up. i have a 2 leed Pacemaker for Syncope. i found out that the upper leed works 8 percent of the time and the lower part of the heart 1 percent. can someone in simple terms explain this to me.

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Air Purifier

Hi,

Does anyone know if Air Purifiers interfere with pacemakers.  I have just bought a Dyson Cool Me purifier, and the first thing on the leaflet is a warning that both the device and the remote contain magnets.  Obviously I am not going to put the remote in my pocket, but will this affect the pacemaker.  They do warn you not to put credit cards on top of th eunit or the remote, but don't say how strong the magnets are..

I do get a bit jumpy when new gadgets are...

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NSVT issues again

Hello again everyone,

I have been having a few issues with NSVT in the past and have spoken about it on this forum in the past. Back in october I had a treadmill test which showed a short 7 beat episode of Non-Sustained VT. This was quite worrying for me, as an anxious 17 year old. And I have been closely monitored since. 

I have had a new pacemaker implanted since (in january) and we expected this to help calm the situation. I have been having palpitations everyday for a lon...

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Feeling pacemaker?

Hi everyone, 

I'm 19 and just had my pacemaker implanted on April 16 after a positive tilt table test and a diagnosis of vasovagal syncope I think. My EP was really split on whether or not I should get the pacemaker because of my age and since I've had very few episodes, but my heart rate was practically 0 for about 15 seconds during the test and I didn't have any obvious triggers to when I've passed out in the past. After talking to my family and weighing...

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New to forum

Hello , I had a pacemaker fitted last week ,feeling very sore,bruised and a little unsure of what to expect at this stage ...a bit scary ..a mixture of trying to be positive but also in need of support from others on do's and dont's .I found the procedure quite traumatic ,took 2 hours and relaxant didn't kick in at all .Just pleased its over . Emotions are a little bit all over the place at the moment ,did others experience this ? Sorry if I sound a bit of a wimp but sure once the...

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needs a gold plated pacemaker

I am posting the following for a friend who is in the ICU, she just had her 3rd ablation and she is going in and out of her heart rate.  She has been passing out quite a few times and they need to put in a pacemaker but she is allergic to titanium and nickle and silcone, i guess she can get a special make pacer but it will take time and she has to get a pacemaker soon as she is going in and out of passing out.  Does anyone know of any kind to pacer that doesnt include the above meta...

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Jardiance in non-diabetic HF patients.

I made a post about jaurdiance for HFrEF several months ago but my insurance denied my claim for the medicine. Well at last, and I have nooo idea how, my HF doctors staff got it approved for me (who knows maybe they just lied and said I had diabetes).  Anyways only day two so I can't tell y'all if it's working yet for my HFrEF, but I wanted to put a post up since this is a newer use for the medication and others may want to know about it later.

So far side effects are n...

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How to manage

Hello everybody

Just a chit-chat post, but I could have selected "coping"...

I had my CRT-D installed 2 months ago. (My Chf was diagnosed in November 2020)

Healing went fine, scar is ok. No bruises, no problems... I have a control échographie end of may, and I'll see my cardiologist beginning of June.

I still find it a little bit frustrating that I need to wait so long, but, it is what it is...

I may have mentionned that I live in France. Luc...

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ATS

The pacer techs are relunctant to tell me anything about check-ups other than expected battery life and I don't see doc until July to ask him. I do get an online report so I am seeking help on understanding it. 

There is a line called Atrial Tachy Statistic Percent Time in Mode Switch. On my remote check report from today it says 10%. Is this the amount of time I am in atrial fib? My underlying rhythm is sinus rhythm, second degree Type 1 block with an underlying...

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stress test

I am going to have a stress test. they will be using a regadrnson injection. they say it is very safe. has anyone else heard or had this. thank you all for you your advise. stay safe

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A very simple question

if you have some level of AV block from long PR interval to full heart block does anybody know how it is decided what the Paced AV delay should be set at?

Is it individual or is there an agreed optimum Paced AV in general?

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Best pacemaker brand for athletes?

Follow on question to my inquiry below.  

I am going to need a new pacemaker this fall.  Which manufacturer has the best pacemakers for use by athletic types?  They are like any other product, with differences in software and firmware, so I assume one brand may be better than the others?  Is this true?  I'd be curious to know which one.

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Looking for a Northern CA specialist

I have an a/v block and I am now 100% paced by a Boston Scientific Advantio K063.  I am also an active cyclist, hiker and periodic skiier.

Over the years, I have had a difficult time working with my doctors office and the Boston techs to get my PM settings optimized for cycling (my main sport).  The doc's don't seem to have the time and the techs don't seem to have the experience.

Can anyone out there suggest the name of a SF Bay area cardiologist or other pr...

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Post PM fitting underarm bruising

Hi all. I'm so grateful for this group, it's put my mind at rest on so many issues! I had a dual lead Medtronic PM fitted on 16 April, for AV heart block and a very low pulse. All seemed to go well, and I feel so much better than I have for months! However, I've noticed that since the procedure, my left underarm looks  discoloured. As I can't lift my arm properly at the moment, I can't tell if it's bruising or some weird skin problem. The texture of the skin feels...

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