Most Recent Messages

URGENT ADVICE

Hi All

The last couple of years have been mostly up with some downs. I am fitted with dual chamber PM since 2019 for Heart Bloc 2:1

However the last couple of weeks have been pretty rough. I am suffering from lethargy & tiredness, occasional night sweat,  muscle weakness in calves & thighs (when not exercising & exercising), discomfort in the chest, headaches & dizzness. 

I attended hospital yesterday, had a PM integration (some bouts...

Read More...

Unusual Heart Rates

I thought I would share my current issue with you. My CRT-D fitted in September is set at 55bpm and this is mostly my actual pace when I check with my home monitor. However the last couple of weeks I have been having spells of higher rates of 85 to 102 which usually occur when, but not exclusive to, moving about. My BP also increases. At the higher heart rates, I get chest flutters and feel unwell and I have to lie down. I usually then go back to 55. As advised by my GP I have increased...

Read More...

How many of us are happy with our PMs?

I was just wondering what percentage of PM recipients might be more or less happy with the way their particular device performs?

This Club is a massively helpful hub for us all, especially those with tricky heart problems and those with issues with their PMs. The level of knowledgeable technical and emotional support on offer is superb.

One understandable consequence of this is that postings tend to be dominated by those with serious questions to ask about their own health, or the...

Read More...

FITBIT

Does anyone have a fitbit?

Read More...

Yay! Site working better now!

Well, I can check the site again on my mobile phone.  Seems to be running smoothly, at least on my end.  
Thanks! 

Read More...

Private message notifications

Morning everyone

I really must apologise to all those who have sent private messages recently and wondering why I haven't answered.

Quite simply I never had any notifications.

I was also wondering why I hadn't heard from people.

I used to rely on the email notifications of private messages but I won't any more.

I haven't been fully well the last week with a heavy cold so haven't been looking into the message section as much as usual.

The...

Read More...

Ablate or not Ablate... that is the question

My last 7 days Holter monitor showed very low burden of Afib/Aflutter (0.17%) and AV Node irregularities: AV Block 1, Mobitz 1, BBB. Just back from my appointment with EP, expecting my ablation to be scheduled soon. I understand that early ablation intervention in Afib is recommended, however, i am very concerned that AV issues i have can be made worse as a result of ablation and require PM as a result. I only had 2 episodes of Afib in the last year, one lasting 2 hours and another...

Read More...

update to spine surgery

Just wanted to update my previous spine progrosis.  Just saw a second opinion Spine Doctor.  This one said no to surgery until i correct my underlining problem of Osteoporosis  That if he puts the glue in one fracture.  Another fracture can occur and more glue.  Plus he thought i might be allergic to the glue used.

Said i should see an Endrocronologist or a Rheumatologist.  Also said their might be new drug or something that could help me grow bone.

H...

Read More...

MyCareLink Heart App

I had my pacer implanted in 2021. I use MyCareLink Heart as my remote tracker anyone else out there tha uses the same App on there iPhone. The app does for the most part work well but I do have one problem. On the dashboard of the app the is a tile for physical activity. It tracks for daily weekly and monthly. My problem is every 2-3 weeks it will go blank and after a day or 2 comes back. I like to see it and trust it. My fear is if it goes blank how am I to know the rest of the apps working....

Read More...

Rock concert

Hello. I have a Biotronik implanted in April. I went to a Bryan Adam's concert three weeks ago, sitting near the front. As soon as the music started I realised it was a bad idea. I felt very disturbing vibrations coming up from the floor and got a marked tachycardia. My cardiologist thinks this was due to the pacemaker mistaking the vibration for extreme activity rather than an electromagnetic effect. 
Has anyone experienced similar?


 

...

Read More...

Beta Blocker

I am wondering if anyone has or is taking a beta blocker and has trouble sleeping. Since being being dx with LBBB and getting my ICD in 2018. My cardiologist put me on bisoprolol and I have had trouble sleeping. I wake up at least 2 or 3 times during the night.l quite often have trouble going back to sleep. I also have dreams every night and often wake up tired. Before my heart issue I would very rarely remember dreaming. I also have fatigue which I think is from not getting enough sleep...

Read More...

TATTOS

Can I still get  a tattoo? I was planning a trip to Norway to visit my Tattoo Artist who use to be in California but he moved back to Norway. I plan on getting a tattoo on my right chest of a portriat of my Son, who passed two years ago

Read More...

ARC Welding, MIG Welding, Plasma Cutter

Yesterday, I received my pacemaker. My hobby is restoring old cars, so there is a fair amount of welding and cutting. 

I've read about faraday T-Shirts and Hoodies, does anyone have a view concerning how effective a faraday T-shirt/Hoodie would be at protecting a pacemaker.

Another thing I read was "...twisting the wires together...." so does that mean you're twisting the ground cord and the welding cord around each other?

Read More...

So discouraged and deflated

I'm not a trusting person, especially doctors. But when I started to feel better after my ICD implant surgery, I began to hope. I let my guard down and just accepted the positive reports and my life had a green light to go again. It felt amazing. For a month I was so elated, and I finally let go of 10 years of negative thoughts about my condition. 

Then I got the shock from my defibrillator on Monday. I had the idea that unless I did something physically demanding, I wouldn'...

Read More...

Update and a reminder

Today I am fully recovered from the bout of diverticulitus and feeling the best I've felt in months--really since I don't know when. Happily, the improvement in mental clarity is keeping pace with the physical, and it seems reasonable to hope, i.e. within the realm of possibility, that more improvement is coming.

Let this be a reminder to us all, that yes, you have a heart condition, and yes, you have a pacemaker, but not everything that happens is being caused by the...

Read More...

What does this mean?

  • by R2D2
  • 2023-12-05 20:39:33
  • ICDs
  • 274 views
  • 7 comments

My test results said the therapy that was applied was 35J ×6, does that mean I was shocked 6 times??? I sure hope not! I sent a message to my doctor to ask him, no response yet. 

Read More...

I had a helpful pacemaker check today . . .

They were training so there were two technicians present.  I told them about a few near fainting spells I have been having recently as well as some breathlessness and they confirmed non sustained VT episodes had been recorded.

We discussed the possibility of a second lead to the left ventricle, since I only have a single lead to the Right Ventricle at the moment which is now dilated, as are my two upper chambers.  They have requested another echocardiogram and are referri...

Read More...

I got shocked and now I'm scared

  • by R2D2
  • 2023-12-05 16:15:18
  • ICDs
  • 304 views
  • 4 comments

Yesterday, after feeling really good for over a month and having no issues, I was just resting with my feet up and started to drift off to sleep when I noticed my heart having an oddly irregular beat, rather fast and concerning. Before I could even think about it much, I blacked out. I don't know how long I was out, but it wasn't but maybe a few seconds. When I came to, it felt like a struggle; I immediately knew something strange happened and the area around my device was tight and p...

Read More...

Surgery

I have sick sinus syndrome with bradycardia and infrequent tachycardia. I'm 76 and very active. I filed horses hooves yesterday and wonder if there are magnets in a side grinder. 🧐 I'll get my Biotronik pacemaker next Monday. There are so many things to learn. I've been reading as much as possible from unhappy campers as well as those who have been relatively complication free. I think mental attitude has a huge influence and I'm optimistic because I'm asymptomatic mostly....

Read More...

Pacemaker Heartrate

I had my third pacemaker installed last November. They told me it is set so that the pulse cannot go below 60. However, I have a new cuff at home, also an oxi-pulse finger device which many times record a HR of as low as 38. Has anyone else had this problem?

 

Another thing is they were going to change the 2 lead wires which are now 22 years old. But last minute they decided not to, due to my age (88) and possible bleeding etc. The one wire is known to give off &quo...

Read More...

You know you're wired when...

Your signature looks like an EKG.

Member Quotes

I have a well tuned pacer. I hardly know I have it. I am 76 year old, hike and camp alone in the desert. I have more energy than I have had in a long time. The only problem is my wife wants to have a knob installed so she can turn the pacer down.