Most Recent Messages in ICDs

Guess im getting a defib in a week

Hello all, just found this site. Ill give you my bio. On July 13,2008 I went to urgent care as i thought i had broncitis, dr gave me some antibiotics, the next two days later woke during the nite not being able to breath, went back to dr he ordered a chest xray as he thought i went into pnenimoia, called and said i had had congential heart failure started me on some heart medicine and water pills went in monday and had a eckocardigram, dr calls wants me to see a cardioligist, friday july 25th ha...

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interesting info on ICDs

I am always researching and found this interesting article on ICDs:

http://www.webmd.com/heart-disease/heart-failure/news/20080903/heart-device-may-not-hurt-life-quality?ecd=wnl_nrn_090308

it was just published today!

Pookie

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my icd feels like it moved..

hi im Cristal, i recently had an icd implanted on July,21,2008 for me it was a little complicated due to the fact i also had to recover from giving birth..=/ yeah i know woo hew, but the thing is Ive been a month with the icd and yet still feel slight pacing not as much as when swelling went down my cardiologist told me i was feeling that because i was just a little extra aware of it..but see now my arm hurts like hell and sometimes i feel like a little stabbing/squeezing in my heart also it mov...

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OK Next Question

Is there anyone that likes their ICD? It seems that everyone hates being defibrillated by it. Does it leave you completely stunned? If you got zapped while driving, could you continue to drive? Is it painful as in ouch or as in screaming agony? Do you eventually get used to it? Is the technology improving so that soon the ICDs may not be so uncomfortable?

The closest I have come to regularly submitting to pain is when I got allergy shots twice a week for three years. At least I knew...

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Excuse me but...

What exactly is an ICD?
Implanted Cardiac Device?
Internal Cardiac Defibrillator?
Is it different than a Pacemaker? I am new here and don't get a lot of the jargon.

Thanks

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Do ICD's restart themselves?

  • by sis
  • 2008-08-28 12:08:32
  • ICDs
  • 1922 views
  • 0 comments

I have had my ICD since April of this year and have been fortunate that it has never went off yet but Monday night I felt something for the first time that felt like 3 or 4 big heart beats that felt like they were coming out of my chest! I called my Doctors office the next morning. The nurse called me back asking how I felt and told me I could come in but I was feeling fine and didn't think I needed to go in. I have an appointment on Sept 10th and just jotted down the date and time it occured...

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One year no shocks

  • by Anita
  • 2008-08-26 07:08:12
  • ICDs
  • 2021 views
  • 3 comments

Hi my son Devin was shocked 8 times in 20mins in June 07. He has ventricular tachycardia and his heart rate goes over 300bpm. We have been going to the Mayo Clinic in MN where the doctors feel they have fixed his tachycardia. He has alot of aniexty and everyday things can be very difficult. He still has his ICD and lives with fear everyday. Just wanted to share our good news with you.... one year with no shocks.... thanks to the good doctors at the mayo... all other hospitals did not give...

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How does rate response work

I have an ICD and have problems with getting the rate response settings adjusted correctly. A small level of activity or road vibration results in my heart rate increasing significantly and I feel pretty awful. Could someone please advise how an ICD works, in particular the sensing of activity and how it increases your heart rate. Thank you

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Road vibration causes increase in heart rate

I have ARVC and was fitted with an ICD approx 7 years ago. I suffered many VT's and subsequent shocks untill last October when I was treated with ablation. Since then my heart rythm has been fairly stable except when travelling along a bumpy road in a car with fairly hard suspension. This has got worse since my pacing technician adjusted the Rate Response, Activity Threshold from Medium Low to Low. She adjusted the setting because I complained that I need a bit more "go" when exerting myself or...

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PM change Aug 19th

Hey. Just wondering if any of you had a PM change yet? Im booked in for mine on the above date n im terrified. If any of you have had this done can you put my mind at rest please? Their not changing my leads just the PM but any form of procedure scares me lol - any help and advice would be great!

Marcia xx

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Exercise, How much & when

Hi,
Thank you all for this wonderful site I visit it a lot and find your messages very inspiring. On 7/7/08 I had cardiac arrest in my local gym. Luckily the staff there had the training and an AED and they revived me. I now have an ICD (put in on 14/7/08 and my cardiologist has told me to continue as soon as I've recovered from the surgery with an exercise program as there wasn't any significant damage to my heart. At the moment I'm walking and I feel great. I would like to go back to my...

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Swimming protection

Can anyone tell me what they use on their scar for protection against the sun.

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ICD's in a factory setting

Hi
I am diganosed with hypertrophic cariomyopathy and have been told for sometime I should have an icd as a preventive measure. I am unsure whether or not to proceed with one. I work in a factory (shipping and receiving) actually it is a foundry. There are coreless furnaces in the building that probably put out somewhat of a magnetic field. I do not work directly with the furnaces but pass by them periodacally.This is good paying job and I don't want to do anything to jepordise i...

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pacemaker change

Hi

Just wondering if anyone else here is in a similar situation to me.

I was really poorly in 2002, my heart failed and i was on ICU. Dialated Cardiomyopathy was the diagnosis i was given. Leter that year i had two ablation procedures performed but to no success. I actually ended up with burns on my back - has this happened to anyone? I then had my pacemaker fitted. I work in a hospital and see my technician around quite regularly, on thw wednesday i asked when she thought...

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Catheter Ablation

My husband is scheduled for a catheter ablation for ventricular tachycardia. His ICD has gone off approximately 5 times in the last three months. Has anyone had this procedure done and if so, what were the results. There will be three EP's in attandance as well as a representative from the mapping company. I am worried sick and would appreciate hearing from anyone who can provide some insight into the procedure. Thank you very much.

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biventricular pacemaker

  • by njh
  • 2008-07-13 10:07:11
  • ICDs
  • 4382 views
  • 4 comments

Hi everyone,

I've had my biventricular pacemaker (a 3rd wire was added to my ICD) for four days. I'd love to hear success stories. Tell me about why you're happy with yours and how wonderfully your life has changed. Thanks!

Tulip

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Thanks everyone

For the responses. My husband has an appointment tomorrow with his EP. He's not had any more events since last Wednesday...knock wood. I wonder if maybe the surgery of having the old ICD replaced didn't aggrevate his heart. And the virtuoso is a much more advanced ICD. I don't know just guessing here, hopefully things will calm down and go back to where we were pre ICD replacement....Cissie

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Tapping Noise

Hi.... occsionally i hear a tapping noise made by my ICD. does anyone tseem to have any ideas as to whats this could be as a result off.

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Hello

I do not have a ICD but my husband does and I hope it is still appropriate for me to post on his behalf. He had a medtronics ICD placed in 2003, in all that time he had 7 shocks. Last month that ICD was replaced with the new and improved medtronics virtuoso, he has had 2 shocks and 1 pace with this ICD in less then a month. Both shocks put him unconscious and scared me beyond words. He feels them coming on and gets to the floor as fast as he can. Now the only thing that has changed is the ICD,...

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what to expect when i go in for battery change

hi everyone! my name is michelle and i think i'm going to have to have my battery replaced soon in my icd. i'm kinda stressing out about it a lot..i read that it's not really that big of a deal and it seems like a pretty easy surgery but the thing is i was shocked 8 times back in 2005 (they all were "unnecessary" whatever that means) when i first got this thing in me & i still have not gotten over it so i'm kinda freaking out about getting my battery replaced because i fear this is going to happ...

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You know you're wired when...

Your pacemaker receives radio frequencies.

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