Any suggestions?

My pm was put in because of total av block 1,5 years ago, but the reason for the block remains unknown. The doctors tested a lot of things including hemocromatosis, lyme's disease, sarcoidosis, dcm, connective tissue diseases, systemic (or systematic, don't know the correct term in english) diseases and rheumatic diseases, but everything was (fortunately) negative. I was wondering if anyone has initially had a block for unknown reason and found out the reason later (if so, what was it?), or has anyone any suggestions for additional tests? Also, has anyone else first been only partially dependent on their pm and then suddenly become 100 % dependent? If one becomes 100% dependent, do they stay that way, or can the heart recover?

2 Comments

About family history

by pupu - 2009-07-08 08:07:18

The doctors kept asking me about family history, but the only pm patient was my mothers old uncle at the age of 80+. So family history does not explain... I do not think that my heart could fully recover, I was just wondering if it stays at 100%, or can it go back to 70% and so forth, or is the 100 permanent? And does it make any difference in practise? The doctor did not explain anything, he just stated the fact. Thank you for the comments!

ok

by pupu - 2009-07-08 11:07:50

No changes were made before (or after) the last checkup where I was told the 100% thing.

But I see your point. I heard this only recently and haven't yet gotten used to it. Before I was thinking that the pm is helping my heart, now I fear it is all up to the pm. But as you say it is just working fulltime instead of part time.The problem is more on the emotional side. I guess I will stop worrying when I see that it doesn't really make any difference to my everyday life.

You know you're wired when...

Your kids call you Cyborg.

Member Quotes

Do feel free to contact the manufacturer of your device. I have found them to be quite helpful when I have had questions and concerns.