Cardiac syncope

Hello friends
I have not been on here for a while due to my computer falling sick on me and had to be doctored he he, but my son has now been diagnosed with Cardiac syncope. He has to have a Reveal Monitor inserted in 3 weeks time, but after 5 years of feeling poorly and a leaking heart valve, he is just about ready to give up, at the young age of 38 years. He has been told he will eventually have valve replacement but are they waiting for one foot in the grave before anything is done, he is getting weaker by the day.
He has just spent 6 days in hospital with total exhaustion and sent home with no extra medication.
We live in England at is times like this that i wished i lived in the States as you seem to be far more advanced . I have been told that this Reveal monitor is new year, but according to the net it is a common procedure in the states.
Any info would really be most useful
thanks a lot guys and girls in advance

5 Comments

Syncope

by Fluzy Suzy - 2009-07-30 05:07:27

Hello Cabg Patch
I would like to thank you for replying so quickly. This is why i feel this site is excellent at putting peoples mind at rest most of the time, knowing that there is always someone out there ready to listen and lend a shoulder to cry on.
And yes the medical care and treatment in the U.S is far superior, sometimes i wonder if it is because you have to pay for whatever you have and our national health pays for ours, and you only get what is available on the n.h.s. here if you get the drift.
I will let you know what happens if you dont mind later on
Take care
Fluzy Suzy

syncope

by dottodot - 2009-07-30 07:07:49

Suzy, I had a Reveal Monitor implanted for 5 months before my pm. It was a minor procedure to have it placed and I had almost no postop pain and no problems. In my case they were looking to see if my atrial fib episodes were the primary problem because I have a lot of other rhythm issues also and have had since I had a myocarditis at age 30. I don't think I would have had the pm done so soon but they found that my tachy/brady problem with long pauses was a significant issue and they didn't want to wait any longer. My new pm has a lot of ability for reports and we don't know if I will still need an ablation but I'm much better with a faster rate. I also has a friend whose young daughter has one and she has syncope but rarely so they're hoping they will find the problem. They told me they could be in up to 3 years (the newest ones). Anyway I think a good tool when the cause of syncope isn't easily found or doesn't occur frequently. You and your son would only know why they don't want to fix the valve issue as they are two separate things.I live in the US and I've had excellent medical care. Sometimes I have to wait awhile to see my primary but I haven't had that issue with my cardiologist or EP doc. Actually any concerns or questionsI have I just call the clinic and they have gotten back to me within the day. Maybe I've just been lucky. If you would like to email me privately feel free to do so. Good luck dottodot

Hi

by Karen - 2009-07-30 08:07:04

I had a pulmonic valve replaced. They were going to wait on me too but a heart cath. told them I needed done as soon as possible. My oxygen level was way down. I had the sugery iin Jan.09

Reveal Monitor

by scadnama - 2009-07-30 08:07:40

Hello!

I had a Reveal Monitor implanted just before I got my pacemaker. My syncope episodes were hard to catch with other monitors, so the Reveal was implanted. Within 2 weeks it had recorded several episodes of very low heart rate. It was then decided that I needed a pacemaker asap.

I had the monitor implanted during an EP study. I would have been allowed to go home the same evening, but I had a few complications after the study.

Hopefully this device will give the doctors the info they need to know so they can get things taken care of.

Amanda

YOUR SON

by pete - 2009-07-31 03:07:52

I live in the UK. Unfortunately we have the worst heart services in Europe. You are right to say that they will wait until he has one foot in the grave. You must fight your corner, both of you. I would go to the hospital and start a complaints proceedure. My strongest advice I can give you is to never phone the out of hours service if he is unwell- never ever. Always phone for an ambulance. There is nothing to stop you phoning for an ambulance every week. They will soon get fed up with the constant admissions and sort your son out. You need to put pressure on the NHS in every way possible. If you send me a private message I can give you a document which will show you the trouble I had. I have nothing against the doctors nurses and technicians, they are marvellous. They simply are not being given the opportunity to do the job as they should as our health service is now effectively run by politicians. Cheers Peter

You know you're wired when...

Your pacemaker receives radio frequencies.

Member Quotes

So, my advice is to go about your daily routine and forget that you have a pacemaker implanted in your body.