ST. JUDE PACER
- by AHONEYBUNNY
- 2010-04-05 01:04:45
- ICDs
- 2271 views
- 3 comments
HI ALL,
DOES ANYONE OUT THERE HAVE A ST. JUDE PACER WHO HAS BEEN DIAGNOSED WITH LONG QT SYNDROME ?
I HAVE HAD THIS PACER FOR 6 YRS AND I FEEL WHEN THE PACER GOES OFF. DOES ANYONE ELSE FEEL WHEN THE PACER KICKS IN ?
I EITHER LET OUT A LITTLE GASP, RECENTLY IF I AM HOME I YELL, OR I BABBLE LIKE THE THREE STOOGES !
I DO NOT KNOW ANYONE HERE THAT FEELS THEIR PACER GO OFF. JUST WONDERING...............
THANKS
3 Comments
kicking in
by botto - 2010-04-06 10:04:14
I have had a pm (Medtronic) for a sodium channelopathy (not LQT, but the same sort of thing. ) for 3 years. I am 40. Everytime it kicks in I get a tickle inside and it makes me cough uncontrollably for the duration of the pacing session. Fortunately these are usually short and i only pace about 8% of the time. The coughing arises because the ventricular lead also stimulates my phrenic nerve . ( i think!). Apparantly some small people (like me) get another nerve stimulated and get hiccups. So, my heart slows down when i hear deep long low frequency noises - lorries passing, organ playing, road noises or if i get a shock like the phone, when I am asleep - cough everytime!
At least i know it works!!
st jude defib/pacer
by crumbcake - 2010-05-15 09:05:53
i have long qt (3) and just had a st. jude defib/pacer implanted on the 12 of may. i have bradycardia so the docs set my pacer to keep me above 70 bpm where my normal waking rate was about 45 bpm. i have been having a little bit of a hard time sleeping with that high of a heart rate, but haven't had any problems yet. i know that when they alter my hr w/ the machine and wand dealy-bob i didn't really notice it too much. don't feel the pm kick in at all.
You know you're wired when...
Your heart beats like a teenager in love.
Member Quotes
I had a pacemaker when I was 11. I never once thought I wasn't a 'normal kid' nor was I ever treated differently because of it. I could do everything all my friends were doing; I just happened to have a battery attached to my heart to help it work.
Pacer "kick in"
by Blueaustralia - 2010-04-05 05:04:19
I got my pm six years ago. When it started I would feel it kick in just under my ribs on the left hand side. I mentioned this to the tech When my pm kicked in I woould have to get up and walk around if I was sitting down when it happened. The tech altered the setting and no problem for the past four years plus.
Hope this helps
Sincere regards from downunder.