Most Recent Messages in Coping

Multaq

I have a hard time breathing on 400 mg Multaq.  I did take 200 mg last year before my pacemaker so i am thinking of cutting my Multaq in half again.  I told the EP Nurse that i can't breath and she told me to take more Lasix.  Does Lasix have anything to do with my Multaq and breathing problems.  I don't see how.

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The connection between complex emotions and our heart

Living with a chronic heart condition, particularly after a heart attack or cardiac arrest, often requires major adjustments and changes, perhaps resulting in a loss of independence.  Anxious, depressed thoughts may surface at these times, stressing the heart further.  The heart can be so affected by our feelings that it can physically change shape when we suffer emotional trauma.  You may care to look up the broken heart syndrome (Takotsubo Cardiomyopathy) to co...

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Can anyone relate?

Hi everyone!

Lately after minimal activity I sometimes feel what I call "blown out" in my chest. It typically happens after standing up or using my legs a lot. It's like this deep, winded blown out feeling in my chest that lasts anywhere from 1 minute to 25 mins or more. I'm not short of breath or dizzy, but it feels terrible. I check my Apple Watch ECG and it looks completely normal. Right now HR was 62BPM and ECG looks just fine. I would think this is what an arrhyth...

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How do you manage worrying?

First of all, I appreciate that I'm relatively well among members in this club. I have an AV block but otherwise a structurally sound heart and in good general health.
 

That being said, getting the pacemaker is still something I'm processing mentally. I've known of my AV block for decades and the possibility of a pacemaker in the future but I thought that would be decades yet to come until recently when I was told that the risks associated with my condition now we...

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Forever marked

I want to get a tattoo near my scar to honor the pacemaker. Any suggestions?

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Just been "done" new PM

This might sound odd . A few days ago I had a PM fitted in Plymouth. As a job I am a vocalist . i have a job with a Big Band next Friday which entails me being involved with around 8 numbers. Would I be ok to carry that out ? no lifting etc involved. Just dont want to let people down. I told you it was an odd one !!. Bern

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Heart flutter

7 years dual paced. No issues at all

now getting regular heart flutters. Single flutters that don't hurt but cause a second of discomfort. Happening regularly. More in the evening and weirdly more when I'm lying on my back 

Any ideas?

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Getting back to normal

While searching for answers I ran across this message from BY EAP 2017-09-28 01:37:13  it's now 2023, and I am curious if she/he ever got back to some sense of normalcy.  I had my implant in October 2018, I feel worse now than I did then with my low heart rate. I actually went in to the clinic for a strep test, and a week later I have a PM for 2nd degree heart block and bradycardia. No history of heart issues prior.  My doctor has made numerous...

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Shortness of breath

Hi

I am 5 weeks in and I am noticing that I get short of breath from bending over.  I did a bit before as I have a bit of a belly, but now I can barely bend over and afterwards I stay out of breath ofr a while.  Will this settle down?

Thank you for any comments

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PM moves while asleep!

Hi all, I sleep on my right side, PM is on left but I'm being wakened with it having moved and on edge, sticking out. It's really uncomfortable. Just had my 6 week check today and was told this sometimes happens but should settle when internal heating is complete! How long does it take?

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I have my answer! FINALLY

Hi everyone! 

I finally have my diagnosis. Thanks to member CrustyG for pointing me in the right direction and UCLA for believing in me. I now have have my WHY! 

In late December 2022 I had an invasive Cardiopulmonary Exercise Test. It revealed cardiac pre-load failure but they did not know why.  After doing some research I found an obstructive heart failure preserved ejection fraction phenotype caused by NAFLD. I presented this to UCLA and they agreed with me. So y...

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Anxiety and overall recovery

Good morning-

New to the club.  I received my pacemaker two weeks ago and am in the recovery process.  I am struggling with some anxiety over this new addition.  So many questions on what can I do, what can't I do and even how long will I live?  This came out of the blue for me, and I am realizing I have some self work to do.  Prior to the pacemaker I was not having any health related issues, but ended up with a series of fainting espisodes and then an episo...

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New to the club

Hi All

I'm 65 and had a PM installed 5 weeks ago due to an AV Block. First 3 weeks everything was fine, just the limitations and the healing process. However, 2 weeks ago I experienced a brief flushing sensation in my head and upper chest.  I spoke to the cardiologist but as the symptoms left quickly he wasn't too concerned.  Yesterday, I had the same thing happen in the afternoon but this time I felt lousy all night.  Barely got any sleep as when I closed my...

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Bras

Right after I had my implant, when I wanted to wear a bra to go somewhere, I wore a strapless bandeau type. It was stretchy so I could step into it then pull it up and I didn't have to reach over my head. Now I'm looking for other bra types because that one doesn't do much for lift and support. I found with sports bras the straps are softer and less chaffing but I always feel smushed with those. I think for looks and support the front fastening push up type bras are the best. With...

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special bra after pacemaker implant?

is there a special recommendation for a bra after having a pacemaker fitted?   I still have problems with the strap 3 months after having the pacemaker.   Cardilogists are all male and have no recommendations.

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Dealing with this new ICD

I got my Biotronic ICD put in June 14th, and physically am doing well. I work a a produce clerk at a grocery store and do allot of lifting and moving around. When I spoke to my cardiologist before surgery she said I would be out close to 3 months due to the type of work I do which I have no problem with. 

 But before I went out I told everyone at work I was going out to have surgery, but told no one what I was having done. I am not sure why I didn't want anyone to know. It...

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Pain in the shoulder

Hi ya'll! I'm new at this site.I had my pacemaker installed about three months ago. I am experiencing some pain in my left shoulder area for the last few days. When I take a hot shower and take Tylenol and apply Biofreeze, it seems to go away for a few hours. Other than this new development I am feeling OK. Has anyone experienced these symptoms? I do not have a fever and feel fine otherwise. How concerned should I be? Thanks for your input! 

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Vasovagal Syncope & Pacemaker

Hey Everyone !

I am so relieved to have found this website! I have been reading so many stories and it helps to know that there's a community for this!

A little about me; I am 29 years old and this past week I was told that I needed a pacemaker ASAP. To give some background; I have been fainting since I was six years old for various reasons and no medical professional has ever been interested in explaining why to my mother. So this year I decided to take action for myself beca...

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Deficiencies corrected, symptoms remain

Hello All,

 

As some of you are aware, for around 6 months now i have been constantly fatigued, lathargic, and getting very fed up. With constant exhaustion and pains all around my body, things are becoming very frustrating. 


I had a blood test in march which showed vitimin D and folate deficiencies, but my recent blood test last week show these have been corrected, but my symptoms are exactly the same! 

I am really sure what to do anymore, as my G...

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Tachycardia and anxiety

I have had my pacemaker for three months now for complete heart block. It was a big surprise emergency surgery.  I have had some episodes since then of sinus and atrial tachycardia and am taking a low dose of metoprolol. Although I have been told this is not a dangerous rhythm problem I am having anxiety about going places and doing things. I'm scared of having an episode of tachycardia and not being able to  turn it around. I have stopped caffeine and that has seemed to help. B...

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You know you're wired when...

You prefer rechargeable batteries.

Member Quotes

I am just thankful that I am alive and that even though I have this pacemaker it is not the end of the world.