Blood Pressure

It's me again!
I just posted yesterday about the strange feelings that I have been experiancing. Well, now I am really frustrated.
Again, let me remind you that I am very sensative to pacing, so I can distinguish my natural heart beat from one that is initiated by my pacemaker. All day today while up and moving around, my heart was working without the assistance of my pacemaker, staying aroung 80 bmp. During these times, I was extemely light headed, dizzy, and nauseous. My blood pressure was very low...80/40, and I found it very difficult to even get up and walk after a while. Then I noticed that when I sat down and the pacemaker would take over, I felt fine.
It's almost as though my own heart rate is no longer able to sustain a normal blood pressure.
I was diagnosed with Neurogardiogenic Syncope about 7 months ago, but it has been well controlled with the pacemaker and medications. I believe that this all has something to do with my recent ablation and my heart's own abilities.
Anyone have any advice or suggestions?

Amanda

1 Comments

Dear Blood Pressure & Wants to have a Baby

by lamazeteacher - 2008-06-25 01:06:06

This sounds very familiar for me. Pacemaker was inserted in Feb 2008 for the first time. I had SSS and after pacemaker implant felt great, started to get energy until two months ago the same dizzy/lightheaded low BP symptoms started. After many ER visits and debate, my cardiologist now mentioned the Nuerocardiogenic Syncope. I asked if the trauma of all I had gone through in Feb with the new implant could contribute to this new diagnosis and he did not want to answer. I too have been made to self-doubt myself with this new condition and have not been treated well by some medical "professionals". This I feel is due to lack of education and lack of willingness to work with other MDs (ego) when one does not know the answer.

Secondly, since the PM implant, I have had continuous shoulder pain which makes it hard to sleep at night. I see this listed by a number of people and my cardiologist won't answer to it. I also have "sparks" and pain at the implant site and weird keloid type healing. My other physician's believe that is due to either my diabetic neuropathy or connective tissue disorder. But cardiologist is wary of commenting. I don't like how one profession will not address another profession's concerns.

For the future expectant parent, I would look at www.childbirthconnection.com and also contact Lamaze International for leads on midwives, FPs and OBs who are reassuring and open to helping you with your pregnancy. You need someone with an open mind who will keep you calm, allow you to trust your body which is the biggest battle which in turn can keep your heart happy during the labor and birth process. I would also contact Dr. Michel Odent at www.birthworks.org and he should be able to help you with any studies regarding pregnancy and pacemaker if there are any out there. Best wishes and I will pray for a beautiful birth. I would hope living in the UK would be more progressive with childbirth than in the US.

God bless each of you on this journey and I pray for good health and peace of mind for all.

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