thanks for the info..

hey everybody, thanks for the info and responses to my posting. My mother always told me I should have been a lawyer for some cause because I get so fired up about issues like this I promise that I will do what I can to get the ball rolling to help us get anwers that we are legally, morally, and medically intitled to. Those of us who are in the med. prof. see everyday the struggles that the public go thru with their doctors, ins.co., ect. and it takes a very proactive approach upon the pt or family to get things done sometimes. unfort. a lot of people just don't have the strength to fight the system. they are limited on the knowledge on where to look for help and frustrated when they are looked at as "here they come again" by the medical staff. There is a big difference in someone who milks the system for what it is worth and someone who really needs help. For those of us who are in the med. field, we know that these doctors and pm companies have to know about the complaints people have. We also know at the price it costs to be sick and have a pm placed is unreal, somebody is making a lot of money and when that much money is involved the "little people" ie pts. get ignored. We need a collecive voice to get our points across. I am not looking for a legal battle here, I am just looking to find answers and maybe some possible solutions to help the millions of us who are not having a good response with pm/icd. I have tried to help in causes before but nothing on the scale of this. I am going to look into finding out how to have our voices heard , we need to have our health in the best shape we can, that is why we got these devices. I am sure many of you have children, trying to take care of parents who are ill(such as myself),jobs and relationships that have been affected, not to mention our own feelings,confusion and frustration. I will be dawg gone to let this one ride. Please feel free to chime in with any ideas, suggestions or any other any others who you think would be willing to network with me,
Thans
sistermary7

2 Comments

I'd love to help

by VonnieVern - 2008-02-24 07:02:04

I got a pacemaker in October. I wasn't feeling bad, but was told I needed it because of slow heart rate. I expected discomfort after surgery, and other than one really bad time that sent me back to the hospital, took it all in stride, until December, when my pain started increasing rather than decreasing. I won't go into the details, but I'd love to be a part of helping others not to have to go through what I've just experienced. Let me know what I can do, please.
Vonnie

what can we ask?

by aldeer - 2008-02-24 08:02:11

So glad you are part of our group. What you are saying is so very important. We all know how difficult it can be to get answers to our questions from some of the doctors.
Perhaps it would help a lot if we knew just what we should ask when we have our pm checked by the tech and then go into see the doctor. My doctor is one of a few words and I often go home wishing I had asked. If you can give me any ideas, I will certainly print it out and take it to the tech and to my cardiologist. It is very difficult to travel to see my ep that put the pacemaker in because of my age (80) and the distance I would have to travel. I have had several in hospital problems as bi-lateral knee replacements, bi-lateral subdural hemotoma surgery (on Coumadin for many years) and now in Aug 07 my av node ablation and pacemaker. So you see, I am so glad whenever I find there is a nurse that has seen both sides. Welcome to our club and lots of good luck ahead.... aldeer

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