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To Josie - How are you doing?

Hello Josie, It has been several days since you posted. You have been on my mind so just want to ask how you and those 2 sweet babes doing? You have been through a lot and it is very frightening. I hope you have gained some support and encouragement from everyone in this club. You are very busy with 2 little ones so don't expect you have a lot of computer time. When you do have a chance send us a post to let us know how things are. Take care, my dear, and God bless you and your family.

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Continuing the beeping episode

Thanks for all the comments. I rang Hobart, my Technician (EP) and asked if my pm could beep. Was informed no. But an icd would. So as I feel ok, my blood pressure and heartrate are ok. I will wait and see and wonder if it will happen again. I am so lucky I have continuous support. The Pacemaker Clinic is so good. Any worries and I just ring them and if they are busy the Techs will get back to me. I really bless those people. It is great to go down and see them for checkups.
Cheer...

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bike ride

Hi, My name is Marion I have had my pacemaker for the last 5 years, I am 58 years old. In fit of madness I have applied and been excepted to ride the London to Brigton bike race on 15th June, the distance is 54 miles. Am I heading for disaster, any tips and comments would be greatly appreciated. Llok forward to hearing from someone x

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bi valve pacemaker defibrilator

Hello all; i am very happy to find this site.. i am a 72 year old male . i have a guidant pacemaker tha woks well for the last 6 years I am a symptomatic but I have a low ejection fraction of about 25% My cardiogolisrs office , called me friday and told me he wanted to send my records to st barnabus hospital in livingston new jersey and is recommending that I have a bi valve pacemaker defibrilator implanted in me..I am very hesitant to have this done because of all the recalls of medtronic lea...

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Pacemaker interference

Okay, I know this sounds whacky, but I'm going to ask anyway.

When my pacemaker is pacing...is it possible for it to interfere with my laptop's wireless network?

Thanks for your thoughts.

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setting off the anti theft sensor in the store

hi everyone,

I just have one question! Every time I go to the store or the market and they have the anti theft sensors well, I've always seem to make them go off with my pacemaker. They go off every time I go in and out. I was wondering if that would do anything to me. If I set them off anytime would that effect my pacemaker in anyway possible. If any one can has any idea please let me know, i would really appreciate it. I have another doctors appointment on Wednesday so i'm going to...

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Can a pm beep?

Hi Pals

I was lying in bed and I heard a beep. I thought I had left my mobile under the pillow. No mobile no walkabout. I lay there thinking about where the noise had come from and I am sure it was my pacemaker. Am I going nuts? The noise was like the fire alarm when it is running low on battery.

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Trial Studies

HI Everyone,

I was wondering if anyone on here has been in a study for your condition with your Pacemaker/ICD? Here is the web site http://www.clinicaltrials.gov/ct/gui/c/a1b/screen/BrowseAny?recruiting=true&path=%2Fbrowse%2Fby-condition%2Fhier%2FBC14.b&JServSessionIdzone_ct=7gc6qxqwa1

You can find all types of trials going on. I was thinking about doing one thats why I was asking if anyone else has done it.

Thanks and have a Great Day !!!
Gloria

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twitch fixed for now

i had my icd implanted feb. 18. i returned to heart lab march 18 because 1 of 3 leads in heart had moved. the ep doc opened up the incision, removed one lead and replaced it with a lead from a different company. (i have a st. jude unit and now have a boston scientific lead).
i went back for a 2-week checkup and told the ep doc that i was experiencing a "twitch" on the left side of my stomach. he said i had a diaphram fibulation? the tech people worked on the settings for more than an hour....

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Surgery/dislodged pacemaker/anesthesia

My surgery has been can postponed for another week - since my pacemaker has been in for 8 years and has to come out - all the tissues and the pouch are inflammed and stretched since the displacement ( the 3 surgeries on the same area due to incorrect pacemaker insertion in 2000) - I am now going to New York City to my cardiologist/surgeon who needs to use a laser to remove the one lead that was not screwed on and to remove the scar tissue. Has anyone has surgery to remove a lead due to inflammat...

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Firefighter fights back, With the help of brother firefighter.

I thought I was invincible, but 4 weeks ago the Department Doctor took me off the engine because I was missing a heart beat, Slow heart rate below 30 BPM, and then it would race to 144 BPM. On a Friday night I got a call, (Friday afternoon 4:30 PM) from my new doctor who said I needed a pacemaker and he would be doing it next Monday. To say the least I had a lot of questions and did not have time to get them answered ,the most important ones would I ever ride an engine again (32 Years on the j...

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Ablation

Hello All!

I just came home from the hospital after having an AV Node Ablation. I went in for an EP Study last week, and nothing was found to ablate, but then on Wednesday night I had one of my episodes of fast heart rate and it didn't slow down on it's own like usual.
I called my doc first thing Thursday morning and she wanted me to go to the hospital for treatment and observation. When I got to the hospital, I was taken straight to Diagnostic Prep where my doctor was waiting f...

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some can...

So a man went to jail, and he was in his cell, when someone said 34, and the whole hall erupts in laughter. The man asked his cellmate what was so funny. he answered, '' Well, weve all been here so long, that instead of telling the jokes, we numbered them. try it.''. so the man says ''72'', and everyone is silent. the man asked his cellmate what was wrong, and he answered '' well, some can tell 'em, and some can't''.

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high ventricular rates

Hallo,
I received a copy of the EGM yesterday that my pacemaker recorded. It was recording for 32 days. It showed 8 episodes of ventricular rates between 125 -133 pm. All of them fell into the same time period of a few days, and they happened in the evenings. Strange thing is that I never felt any of them.
I have sick sinus syndrome and have a pacemaker for bradycardia, but I never had tachycardia until after a ear surgery on Jan. 16th.
At that time my cardio put me on Metoprol...

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PM motion detector in 1 year old

Our son is about to have his motion detector turned on in his PM next week. Currently he has CHD which required pacemaker implant at 10 mos of age after two open heart surgeries at 4 days and at 4 mos of age. Over the past month he has not been very active when awake and we think that it is because his active heart rate has been between 80 - 100 bpm. His current PM is set to respond at 80 because he went bradycardic when he slept.

Is there anything that we should be aware of from...

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How to read EGM

Hallo my pm friends,
I had my cardio appointment today. Thanks to all the great posts on this site, I was able to ask him a lot of questions and he spend more time with me as usual.
when i was hosptialized end of January , the techs turned on the EMG function of my PM. It was read a month later, but nobody explained to me what it meant or how to read it.
If someone has some knowledge about this, could you please sent me a private message. Perhaps someone can help me figure it out....

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Positive renforcement

Hey guys! I know everyone is tired of hearing this, but I just absolutly LOVE this site! Everyone here has their own interesting story and we have all survived an almost certain death. So if there are any doctors or nurses out there, I just want to say thank you. Oh, I am still looking for quote "donations", so if you have any good ones, please drop me a line (no pun intended). Here's one to ponder:

"Know the true value of time; snatch, seize, and enjoy every moment of it. No idelnes...

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Pectoral placement

Hi all,

I am 44 and was diagnosed with AV block at end of Feb. Had my pacemaker placed the day after consultation with my primary cardiologist. He referred me to the electrophysiologist in his practice. She recommended (while I was on the table being prepped for the implantation) a "pectoral placement" since I am "so young". I consented and now my PM is over my right pectoral muscle, near my armpit. I am starting to wonder how great an idea that was. Do any of you have similar p...

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Four Months

I had an appointment yesterday with my EP - it was basically to discuss recent changes to my medication but of course we also downloaded my PM and did a bit of data examination. It is advantageous to the patient if you can somehow position yourself so you can see the computer screen. My EP is more than willing to discuss what we see, but if only he has access to the screen he tends to get lost in the data and stops communicating with me. Almost all features of my PM are turned off. It is bas...

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Child with ICD

  • by Anita
  • 2008-04-04 03:04:14
  • ICDs
  • 2057 views
  • 5 comments

My 14 year old son has had an ICD for 15 mos. In june he had a ICD storm and was shocked 8 times in 20 min. He has ventricular tachycardia. He had 4 open heart surgeries before he was 6 weeks old. He has tachycardia from scar tissue from multiple heart surgeries. His heart rate goes over 300bpm. He has had a total of 9 shocks and it has charged up on several occations. He has always been shocked when he was playing; therefore he doesn't play . He has alot of anxiety and has panic attacks.He is s...

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You know you're wired when...

Your device acts like a police scanner.

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