Most Recent Messages

Patient app

Does anyone use the "Patient App"?  I tried putting it on my iphone through Biotronik, but it always says the server is having problems.  I would like to use it if it could help me.  I'm new to all this pacemaker that I had put in at the end of December.  Santa said I was naughty, so he gave me surgery for 2023.  Actually, I'm very thankful for this modern technology.  Does the Patient app only work on Android devices?  Thank you for your h...

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Interesting interview

Saw these two items on the news today about a footballer's experience of heart failure on the pitch.

https://www.bbc.co.uk/sport/av/football/68346705

https://www.bbc.co.uk/sport/av/football/68346337

I didn't catch if he was still playing though.

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CRT-D question

  • by R2D2
  • 2024-02-19 21:15:11
  • ICDs
  • 210 views
  • 10 comments

I was just reading some information about the difference between a CRT-D and a CRT-P or ICD and was interested in the treatment part of it in regards to the mild little shocks it gives to cause the heart to beat in both sides. I'm making this generic, but from what I understand, it's more than just regular pacemaker stuff like making your heart go faster when it needs to. If I read it right, this provides an extra bit of therapy that no other device does. It actually gives me some new...

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58 day Biotronik Report from ANDREw75

BIOTRONIK REPORT FROM 12-11-2023 TO 2-7-2024 (WITH FLECAINIDE)

58 DAYS. Key points noted.

 I feel much better with no symptoms from the medication. I can take deep breaths and have no dizzy spells on exertion. I have no trouble exercising and feel vital again. The only drawback is with High Intensity Cardio since my CLS settings are set for 130 bpm max. My EP is reluctant to raise this, and I made a joke to him about not being able to “run for a bus” anymore. He i...

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not receiving email notifications

Now not recieving email notification's when someone posts an answer to my query.  Have to keep checking this site to see if any adds to my post.

Also only spell check in the subject line not in the message.

new to pace

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Echo test

I am due to see my cardiologist , March  28 for my yearly checkup.  Had an Echo last May should i ask her for one for this year.  Nothing had changed from the previous year.  This past year have not been contacted at all about any A-fib or other high epsiodes.

Should i ask for anything else.?

Pretty sure she will again suggest a prescription drug, am prepared to say the side effects scare me, espically the one about "could cause problems with my...

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report on 1.4.2024

I just received a detailed report of the 1.4.2024 remote interrogation.  Kinda wish I didn't get this because it makes me not really trust the whole healthcare/insurance system. (2nd time in my life I have felt this way)

 It says I had 3 months left on the battery and 23 days later it switched to ERI. Then I had to wait 12 days for the surgery with weakness, shortness of breath, dizziness, and inability to take care of myself. 

Have yet to find the wri...

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New role health questionnaire

Hi.  I have an Abbott Gallant ICD for Cardiac Sarcoid.  Health wise things are stable. Work has not been easy though with the pandemic and generally being in a competitive business. 

I have just been offered a excellent opportunity with a new role that I am super excited about. They have though sent me a detailed health questionnaire asking a range of questions which include - Have I ever had a heart problem and have you ever been on medication. I hate sharing information...

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One year update

Assuming you can read my earlier messages, you'll know I was implanted a year ago in March, and had my AV node ablated in June. All this the result of a long term paroxysmal afib condition which had decided to no longer spontaneously self correct within a 30 hour period. This required 6 cardioversions in a 9 month period. 
 

Since June of '23 post AV node ablation, the world has looked VERY much better. Complete stability of my heart rate and as promised, whi...

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Mitral Valve repair

Can anyone share an experience on Mitral Valve repair and the "back to normal" life that I am led to believe will result after the operation. I can barely walk across a room without getting exhausted. I cant bend over without nearly passing out, I sleep with an oxygenator to combat waking up gasping for oxygen (it works beautifully) I suffer from sever E.D., my toes are tingley numb, fingertips too, and I force myself to walk any distance. I was diagnosed with moderate regurgitatin...

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Pacemaker hurts!!

I had my pacemaker surgery 8/31/2023, I have told my doctor at every visit that it hurts and it's not in the same place as it was, he completely ignores my complaints, the nurse writes everything I say about the pain but after the visit the doctor writes patient has no complaints. I even have someone with me at each appointment that knows I have mentioned this many many times. Now it feels like an area is going to literally poke through my skin, it was never like this before, I know most...

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Pacemaker pulsing me when on left side

I had my pacer installed in 2009. I only use it during sleep when heart pauses. Last year my use went down to only 4 episodes. I am currently on vacation and in the last month I've noticed when in bed if I lay on my left side it triggers the pulsing 6 times each time until I shift off that side.  Is this normal? I've never had this issue before.

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Tricuspid Valve repair

Has anyone had their tricuspid valve repaired or kinow of any Centers of Excellence that does this repair?

Tony

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Pacemaker

Will big sony headphones interfere with my pacemaker? I have just had one fitted. I have a Medtronic Azure MRI surescan. Thanks 

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Study highlights risks of anxiety and depression after cardiac device implantation

 

I counted today over 100 entries, using the search feature on the Forum, with the word “anxiety” in the message.  Many other posts had words like “stress” or “fear” or depression” in the messages.  Anxiety, fear, stress and, even, depression are incredibly common issues amongst us.  Who hasn’t experienced a moment, especially when the device was new to us, where we didn’t stop and think to ourselves “wait,...

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Experience with extraction

Hi Indy77, Sorry to hear you have to be dealing with this stress and worry.  I would be worried with extracting a lead that old also.  I had a lead extraction done, but it was for a fractured lead that had only been in for about 5 years.  It came out ok, but I also have a clotting disorder, but sounds like the opposite of your problem.  I tend to clot to easily.  So after they extracted the lead, I clotted my entire subclavian, innominate and even into my jugular...

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Lead extraction 28 year old leads

Hi all,

Congenital complete heart Block patient, 46 years old, female. I am currently on my 3rd device, a medtronic crt-p. Currently have estimated 9 months left on device. Original implant for this one was 2014. I am paced 100% in ventricle and between 50-60% in atria- so very dependent. 

My Original right ventricular lead had to be switched from bipolar to unipolar about 4-5 years ago due to "zapping" feelings. General feeling was that it was due to age wearing th...

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Atrial Flutter

After 2 months of atrial flutter, I saw the cardiologist yesterday and am having my fourth ablastion this MondaY. THANK YOU NHS.( 4 days wait). Bloods and swabs etc. taken for a general anaesthetic in out patients.

I have had a flutter ablation previously on rhe right side. I have had two fibrillation ablations.

What did I learn?

Atypical flutter  - this time in the left atrium. Why? residual effect of the two fibrillation ablations. Still some electrical activity in th...

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Low pulse

I had a new pacemaker in November 2022. My nightime resting pulse (rhrough my ear) is 39, although pacemaker is set to 60. With my old pacemaker the same pulse was a rock-steady 60. I feel fine. Should I  be concerned?

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magnetic scanners

I pace 100% of the time.  Is it safe for me to walk through a magnetic scanner at a sports event?  Ii've noticed many PVCs since I did it the first time and since (about a month).

Will my at home monitor pick this up?

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You know you're wired when...

Your pacemaker receives radio frequencies.

Member Quotes

I wasn't really self-conscious about it. I didn't even know I had one until around six or seven years old. I just thought I had a rock in my side.