Most Recent Messages

Post Message!

Aerobic Exercise

Hi. 61 yo, received pacemaker just over 2 weeks ago due to several cardiac arrests from SND. Also managed to get cracked ribs and sternum from CPR and an aspiration induced pneumonia on the way to getting my pacemaker (Medtronic W3DR01 Azure S) so not a fun time. How long before I can start doing non-weight bearing aerobic exercise? Am walking reasonable distances now (up to 5 km) but not tackling any hills.

cheers

Read More...

Pulmonary Vein Isolation (PVI) for Afib with Complete Heart Block and PM in place

Hello everyone I hope your day is going well.

I had initial cardioversion in 6/22 that reverted to Afib by 10/22, and finally got dual chamber  PM 3/23.  Another cardioversion in 7/23 reverted to Afib after a month in mid August. Talks of ablation began which is now scheduled for 10/24/23 two days from now. It’s a little frightening to think they will be on the left side, where any small particle could cause a stroke in my brain. One of the thing...

Read More...

Maximum pacemaker leads

Hi all

 

new to the forum and wanted to ask if there is anyone out there that has the maximum amount of leads fitted for their pacemaker? I have four sets of leads following 10 implants over 37 years. I'm 52 now and have four years left on my pacemaker battery. Just wondering if anyone has experience of having four sets of leads! And whether a different procedure has taken place to put new leads in so a replacement can be implanted.

hello, so the pacemaker is to my...

Read More...

new recipient of a pacemaker

Hello I am 4 days in to my Dual Chamber  pacemaker .   I had bradychardia, no fibrillation The procedure went well and the discomfot is improving.  I wear an Apple Fit bit watch and as expected I have noticed   my HR has increased from 45 BPM to 49 BPM.  I have done a gentle walk  and I think my breathing is easier but it is eaarly days. I guess I am a bit anxious and over checking things but  I have 2 questions which some of you mig...

Read More...

NEW TO CLUB

Getting a pacemaker on 11/10 for bradycardia. Have had a slow heart rate for 40+ years. Now that I'm 67 my electrophysiologist is recommending a PM. Also had some asymptomatic Afib and Aflutter. It'good to find an online group to chat with. Looking forward to exchanging experiences.

Read More...

9 year old with heart block

Hello there, my lovely little girl who's 9, born with complete heart block has been at a steady 56 bpm unpaced since she was born! However on Saturday she was crying and I asked what was wrong and she said that she was worried she was going to die in her sleep because her heart was too slow. 

Monday morning came and I phoned the consultant just for reassurance really, her appointment was due in November, they were lovely and just said could I bring her in on Tuesday and they wi...

Read More...

How many leads do you have?

Hi, I am very curious in this group how many leads everyone has that is past 2 pacers, and how many got extractions.  Thanks so much.  Trying to determine my next steps and fact gathering.

Read More...

Node & ablation and Afib

Hi I will probably end up having a node and ablation but I have a question please for anyone who has had it done.

I know any atrilfibulation will still continue in the left atrium but can someone tell me what this will feel like and how it effects you if your ventricles are driven by the pacemaker?

Thanks, Graham. 

Read More...

Exercise & Rate Response

Hello, had my pacemaker replaced in January of this year (27F, 3rd degree heart block, based in UK), got a Boston Scientific one, had the rate response adjusted but still feel like I am getting out of breath when walking (not only on hills just out in general if trying to go fast), trying to do spin classes at the gym. I am going to see my tech next week to see if I can get some adjustments but not sure what I should ask for, am I wanting  them to increase the rate response? I also...

Read More...

fitness watch

Hi everyone,

My PM is two weeks old now, and I'm happy to have found this site.

I have read here and elsewhere that the Fitbit Versa 2 does not contain a magnet. I have also read that wearables containing magnets or using bioimpedance technology might conflict with a pacemaker. Problem is where to obtain the tech specs?? 

I tried chatting with two different fitbit reps over two days, but the best info they can give me is to check with my doctor. Fitbit must possess...

Read More...

Missed Beats?

I'd like to consult the group wisdom on what I assume are missed beats. The symptoms happen at night. I feel ‘beat, beat, pause, beat, beat, pause’ and this can go on a bit. I sometimes feel underlying atrial arrhythmia. Both are intermittent and don't happen every night. I wake up feeling groggy and a bit nauseous when they happen. Can anyone shed any light on these ‘missed heart beats’ and whether they could be settings related or progression of what has...

Read More...

Flecainide for Arrhythmogenic Mitral Valve Prolapse?

Hi all! I'm 37 and I have Arrhythmogenic Mitral Valve Prolapse (and an ICD). I saw my cardiologist for my annual visit today and he recommended to change my medication a bit...because he has seen other female patients (with the same condition) do well on the combo he's recommending. The idea is that I would change the medication and then do a Holter in 3-4 months to see if there's any improvement with my arrhythmias. He's mainly concerned because at my last device check (which...

Read More...

Insulation break of lead & antibacterial envelope

Hi

i Recently underwent my 5th generator change.

this one was different in so many ways:

1. My pacemaker went into battery power save mode: this is terrible! I started feeling crappy on a Friday and come Monday I got a call from the doctors that my pacemaker changed into this mode on Friday.

2. I then had an urgent generator change on Tuesday (the following day from finding out about the battery save mode being on) By urgent I showed up at 11:30am (as told too) but did...

Read More...

California lead extraction surgeons?

Has anyone had any leads removed by doctors in California? 
 

going out of state is not an option for me with my insurance. I am self employed... not sure if any insurance offer out of state care (that is not emergency based)?

 

thanks!

Amy 

Read More...

Dizzness and tightness feeling in heart after pacemaker implantation

Hi,

My father, implanted a dual chamber pacemaker (pm) to treat atrial flutter and atrial fibrillation 2 weeks ago, but ever since he is not feeling ok. He still feels dizzy when stands up, when walking normally in flat surfaces and of course when walking on stairs. He feels strains and tightness in the heart occasionally as well. He needs to stay for a while until his situation normalizes. During this symptoms he feels he is having arrhythmia as well. He descri...

Read More...

Holiday insurance

Hi, I know holiday insurance has been discussed on this forum before but as I plan to go to Thailand in January I thought I'd see if anyone can offer any advice. I had an ICD implant 5 weeks ago and as I suffer from AF and cardiomyopathy I went on line for some quotes. I want to be fully covered against all eventualities. Staysure quoted £594 for a single trip whilst M&S quoted £245. The insurance details are very similar but I can't understand the difference. Any thou...

Read More...

New pacemaker

Not too bad a complication. Before the pacemaker I never had insomnia, but now I have trouble getting to sleep roughly every other night. Wondering if anyone else is experiencing insomnia after implant. 

Read More...

Halloween

Hey all, just wanted to come on here and ask if anyone, (particularly from the U.S.) was going to be celebrating Halloween. If so are you going to wear a costume? I'm aware this club is more of an older crowd, but just thought I'd ask. The holiday is less than 2 weeks away, and I have no idea what i'm dressing up as.

Read More...

Life post pacemaker

Hi everyone, I'm new to the forum and I've had my pacemaker since March 2023. I'm 34 and adjusting to life with a PM and more surgeries to replace the battery going forward.

I jwant to share my story. I was quite fit in my 20's but I always felt like I had something wrong with my heart. There were times when I couldn't control my heart rate with breathing and at other times I had strange feelings and 'auras' where I felt unwell, like a general feeling of doom...

Read More...

Replacement

Thank you 🙏🏻 Penguin and Piglet 22 for your reply's 🙏🏻

Piglet22....your experience leaves me feeling disappointed with Medical fraternity past and present 💝 

I leave in Australia and I  feel lucky that this things {medical} are the best you can hope for in this volatile state of humanity! I was born in Slovenia....came here when I  was 20🌼

My "event" occurred in 2016 basically out of the...

Read More...

You know you're wired when...

You trust technology more than your heart.

Member Quotes

We are very lucky to have these devices.

About Us

Pacemaker Club is an online community for pacemaker, implantable cardioverter defibrillator (ICD) and cardiac resynchronization therapy (CRT) recipients.

Contact Us

Saving Lives

We proudly support Heartbeat International, a global charity who provides free access to pacemaker therapy to disadvantaged patients. Learn more.

Site content and design © 2000-2023 Pacemaker Club Inc. All Rights Reserved.