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New Member

Hi everyone my name is Adrianne, I'm very excited about being apart of this club. I was unaware that such community's existed until now. Just some background info from me, I'm about to be 21, from LA, got my pacemaker in 2022 for Bradycardia and complete heart block. 

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Update - Sorta..

Hello,

I hope this message finds everyone well. I had written a post in the Coping section on June 16, 2023. It was called vasovagal syncope, and pacemaker.

 Just to recap it, I went to a second opinion in June 2023 because my first cardiologist in May 2023 said I needed a pacemaker. The second opinion agreed with him that I also need a pacemaker but between the two, I still felt very much in the dark. All I knew was that I had vasovagal syncope and that when I expe...

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Going in for Groin Cardiac Ablation

Hi Everyone, I hope this message finds you well...

Last year I had a pacemaker implanted and now due to Afib factors I am going in 10 days for Heart Ablation through my groin.

Does anyone have advice on what I should expect?

In regards to average hospital stay, pain following procedure and recovery...

To be honest I am stressed about this and when I spoke with Surgeon I mentioned I also had Fybromyalgia so pain is a concern and his answer was "We will give you mor...

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Newby

Hi. Just got a pacer on Sunday night.  Had no clue I had any issues with my heart. No conduction issues I was aware of.  Was bradycardic Saturday evening, didn't feel well so went to the er .  Progressed to a third degree block by Sunday evening. Had surgery at 930 pm with a half hour notice. Not a hospital that had an electrophysiologist there.     My question is, is it normal to feel like I've skipped a beat when I've taken a bite of food, chewed and swa...

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Cost of ablation

Anyone have experience with the cost of an ablation? I viewed my bill yesterday online and was blown away at the amount. Anyone have any guesses or experience?

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Antidepressants and QT prolongation

Hi everyone, 

Still a newbie. Got my PM on July 18 of this year.

Went for a check up yesterday and my cardiologist said that my pacemaker is pacing way more than he expected. I'm supposed to be at less than 10%. I have tachy brady syndrome. And he's very concerned because my QT prolongation is worse.

Taking any prescription meds is a huge deal to me. But earlier this year I realized that I was becoming quite depressed. And having trouble sleeping. I started...

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Pacemaker since 3/2021

I've had my pacemaker since 3/2021. It was sudden, my husband noticed one night out of the blue that my speech was off, I wasn't making sense. He quickly dialed 911. The paramedics came and found my heart rate to be plummeting to 27. I was quickly transported to the hospital and given a temporary pacemaker to "buy time" and then roughly 4 hours after I was in the OR again for the placement of my permanent pacemaker.  I woke up feeling drunk. I don't drink, nor smoke...

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covid 19 vaccine

I have a Metronic pacemaker since 2019.  I had the covid 19 vaccine yesterday  Oct 4,2023, called Spikevax by Moderna US, inc.   Had it at my local gocery stores pharmacy.  The pharmacy tech ask which arm , I said i have a pacemaker.  She then said the right one.  Felt a tiny pinch an she said all done.

On the really short drive home wondered if I got the full amount.  Well i have to tell you about an hour later, had a metalic taste in m...

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Medication

Hi, I am on a waiting list for a biventricular pacemaker and have opted to have the ICD as I was given that choice. Hopefully this will be done before Xmas.

My question is regarding the medication I am on, I am diagnosed with Dilated cardiomyopathy with a left bundle branch defect. I have been on Entresto, Dapagliflozin and Eplerenone for 18 months now. The Entresto dosage has just been upped to the next strength. What do these medications actually do for my heart? I was told that...

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Monitoring device

Am going on holiday 3 weeks and wondering how the device monitors as I am away for such a long time. 

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Cycling

Had my pm 4 years ago not cycled since. Anything to be aware of?

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Bedside monitor

I have a Medtronic Azure pm with a bedside monitor.  A restless sleeper with sciatica, I frequently get up during the night, walk around, and end up on the living room couch for half the night.  Am wondering whether my monitor can do its thing if I'm in the next room about 30 ft away.  Anyone know the range of these monitors?  Thanks!

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Which manufacturer and what can a pacemaker do to help?

Hello everyone, one member has suggested it would be helpful to have a discussion about 

what a pacemaker can and cannot do to help control an arrhythmia?  

I would like to add 

and if we had a choice, which pacemaker manufacturer should we choose to help with the task? 

We know already our pacemakers successfully treat Bradycardia and Heart Block and help with conditions like Heart Failure.  We also know that...

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After effects of transcutaneous pacing

Hello all, almost nine months on from the installation of my flux capacitor and the mental road has been rocky of late. Working through the feelings and emotions with my psyche at the moment and looking to move forward. Recently saw my cardiologist and he has assured me everything is working as it should and 'normal' life shouldn't be a goal, rather a given. Easier said than done it seems.

Now, my 'recovery' question is regarding 'transcutaneous/external pac...

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Rate Adaptive Pacing (Accelerometer) for Orthostatic Hypotension (OH)

Ive been suffering from orthostatic hypotension for the past couple of years. Had my pacemaker put in 1.5 years ago for 2:1 block but it didnt help with OH. I saw a new EP (dept chair) a couple of days ago. Unfortunately his fellow did most of the workup so cant say Im all that confident in what he did.

From what he described it seems he turned my accelerometer sensor on to max. So much for fine adjustments and a light touch lol. Now when I stand my heart rate jumps from set point of 70...

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Base Rate and Rest Rate Settings

As a larger athletic person, I've always had a lower than average resting heart rate. When I got my pacemaker in August, they programmed it for a base rate of 60. I thought, that's fine, let's just let it go while my heart gets adjusted to having a PM. Later I determined the PM (St Jude/Abbott Assurity) also has a Resting Rate feature that is disabled. After a 30-day interrogation I see that my atrium is being significantly paced, about 25% of the time, but virtually only at...

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Beta Blocker, Switch back

Hello All, 

I would like to thank everyone for their kind messages and advice over the last few days. 

My cardiologist finally replied this morning and advised that I directly go back onto nadolol which i was on before. It is very annoying as I could have just syayed on nadolol in the first lace, but never mind. I have taken todays dose of nadolol so hopefully that should be it for the symptoms. 

The beta blocker change was due to an increase in fatigue, which...

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Vaccinations

I had my double, Covid booster and seasonal flu, jabs yesterday.

I'm keeping ectopics at bay at the monment with 10-mg Bisoprolol daily and so far, it seems to work.

Until last night. Heat rate dropped to below 40-BPM and oxygen showing 70%..

I'm not going to jump to conclusions, but it is rather coincidental.

I'm erring on the fact that with two sore arms, sleeping was going to be difficult and stressful. I did take one optional amitripyline tablet so can&...

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Pacemaker

Anyone had trouble with Biotronik setting on evity 8 duel chamber pacemaker?

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Pacemaker

I have Biotronik evity 8 duel chambered pacemaker does anyone know if it shocks my heart if it slows up or is that only defibrillator 

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You know you're wired when...

You need to be re-booted each morning.

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