Most Recent Messages in General Posting

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Very discouraged

Hello Everyone,

A few weeks ago I posted looking for anyone else out there like me and no one responded with a similar situation. I am getting very discouraged and worried. I am back at Mass General once or twice a week because of problems with my PM. They just can't seem to get the settings right. My problem is my heartrate dropping dramatically when I exercise but this week, as I was exercising my heart went the other direction. I have a very high heart rate to begin with when...

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Pacer's in Boston MA

Hi!

I hope everyone is doing well and enjoying the start of summer.

So I was wondering would any Pacers in Boston, MA want to do like an outing! Such as a picnic near the Charles River or at a Park near Harvard Square. I think it would be cool to have a Pacers Unite thing...

Please let me know if you have any thoughts or suggestions... Come one come all and I'll try and set something up...

Have a great day!
- Alexis

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Pacers to best friends in less than a year

Hi All,
Just to say what a great time we are having here,
Susan and Tim are wonderful people,I still can't believe they came all the way from the States to see me......and thanks to all of you that gave me the encouragement to get fit again .I would like to say that I did manage to meet them on arrival in the UK so mission accomplished!!!!
Even the English weather has been kind to us it has been warm and sunny so far this week.
This has been an experience of a life time for m...

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Static electricity shocks

I read the message from Starrider about the shock from a laptop which made me think about this. I feel that after I got my pm I get more static shocks and that they are bigger than before the pm. Sometimes it even feels like the pm stops for a few seconds - I am 100% paced and the feeling I get is like when the pm is turned off by the tech who check the battery on the pm.
Anyone else have the same experience?
Thanks

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Help!

I know i've already talked to some of you and how so many of you have helped me with everything lately. I had my appointment today to see what else they can do for me the options aren't so exciting. My SA Node seriously has a mind of it's own. The SA seriously thinks that it can overpower everything else.
I go in for another ablation on June 19th. I feel like i'm a pro now at these. The doctor said that they see that having two happens some but three times doesn't happen as often. Has a...

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Don't worry Blake...

...for all of our thoughts and prayers will be with you during your ablation on Wednesday!
So that comes to a total of one zillion thoughts and an infinite amount of prayers. That should hold you off till then :)
May God bless you and your family.

Take care!
~valerie
P.S. send us post cards......well,...okay, how about just an update when you are feeling in tip top shape (or "tick tock" shape). I added that corny joke just for you.

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when is the best time to get paced

This is my second time trying to post this, so apologies if the last one went through and I am repeating myself.

Hello Everyone,
I am looking for thoughts or advise from mums with pacemakers on when is the best time to get a pacemaker.

I have a complete congential heart block, but to date I am relatively asymptomatic. I have been doing alot of reading re congenital heart block and it has scared the living daylights out of me. On my last visit to my cardiologist we de...

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when is the best time to get paced

This is my second time trying to post this, so apologies if the last one went through and I am repeating myself.

Hello Everyone,
I am looking for thoughts or advise from mums with pacemakers on when is the best time to get a pacemaker.

I have a complete congential heart block, but to date I am relatively asymptomatic. I have been doing alot of reading re congenital heart block and it has scared the living daylights out of me. On my last visit to my cardiologist we de...

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Today's Special Pacer:

Todd.

HAPPY BIRTHDAY TODD!

Todd Harris (tah1432): May 22, 1970

37 in 2007……you wouldn’t happen to be born at 7am or pm would you? Because that would be cool:

Born at 7, and now your 37 and its 2007
All these 7s! I feel a lottery number coming on….

May you have a wonderful birthday and perhaps win the lotto :)

Take care,
~valerie

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felt electrical shock from laptop?

Hello folks...

This laptop has been overheat and shutting down...And this morning i got a shock in my left hand while lifting one corner of it. Actually got shock a couple of time.

I did call up the manufacturer...and checked the web site...seems this particular model does have issues...and was advise to bring it in...

In the meantime...still typing on it ...how ever wearing a rubber glove on the left hand.

Opinions...Smitty?...anyone...

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cardiofocus

Hi Everyone,

Someone suggested I check out cardiofocus.com.(I think in response to my questions about stroke).It is very negative and
scarey. It portrays Afib as a progressive disease with stroke twice as likely as the regular population even with anti-coagulants-otherwise 5-6 times more likely.It states that our quality of life is severly reduced-the equivilant of severe rheumatoid arthritis.Not very comforting. Anyone have a different perspective ( I have a pacemaker for bra...

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24 yrs old and tired of being tired!

Hello,
I'm brand new to this site and this is my first post. My short story is that I'm going in on June 5th to consult about/get instructions/and schedule pacemaker implant. I am 24, married with 2 elementary school aged children.

Here's the longer story: I have what my dr. calls a severe case of NCS or VVS (neurocardiogenic syncope or vaso-vagal syncope) with the extra kicker of >5 seconds asystole (heart stops when I faint), and thus he has been pushing the pacemaker for a...

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We're here ;-)

Hello everyone! Well we have good news... My husband and I are here at Peter and Nina's home. We are having a wonderful time! Peter is doing fine and Nina is beautiful!.. We are so thankful for the wonderful friends we ave made here in the UK. How very lucky are we.
We will keep you posted of our exciting activities as our visit progresses.
Hope everyone has a wonderful day.
Pacergirl and Peter .... Timbo and Nina ;-)

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Pace Maker Advice

Hello from Central Arkansas. I'm Angela, the big 50 on July 13th. I really would appreciate your advice knowing what you know now and your experience now. For two years I was misdiagnosed as having simple seizures because I couldn't wake up and my EEG was abnormal. Finally the doc discovered my heart rate was too low and took me off the seizure meds which were causing my problems. Thank God that is over with.

After lots of tears and tests we know I need a pace maker. My heart does no...

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We are at the Airport ;-)

Hello everyone,
For those following our journey, (others please disregard) we have arrived at the airport and we have made our way through airport security. It's been a while since I have had a stranger touch me like that! No problems traveling with the pacemaker. The journey to meet Peter and Nina is going to be worth every mile we travel. My husband and I are very excited about the trip! I'll keep everyone posted as the day and miles go by. Presently in Wichita, Kansas..... Soon to b...

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IPod MP3 Interferes with PM

I just read a post on an Apple site which documented some research done in Michigan by a student.

He discovered that the IPod interferred with patients' PM in 3 different ways:

Oversensing of events
Telemetry interference
Inhibit of PM occurred in 1.2% of study group.


I am taken aback by this finding, but I do believe it is correct.
For more info, google "IPod interferes with pacemaker"

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Help! Is there anyone out there like me?

I am so frustrated. I recieved a PM on Mar 23 at Mass General Hospital where my Doctors don't have anyone else like me. They can't seem to figure out how to set my PM. I have second degree heart block and a very high hear rate when I exercise. Before my PM my heartrate would drop from 160's or so to the 80's and stay there for a couple of minutes causing me to become dizzy and light headed. Then my rate would jump back to the 130's even though I was resting. Now that I have my PM it seems it...

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Question re Leads

This may be a very stupid question, but I'll ask it anyway. I know someone in this very helpful group will have the answer. If I had a different brand of PM implanted, would the leads also have to be replaced? In other words, could the existing leads still be used? Betty

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Skipped beats

Hi everyone,

I just wondered if anyone could help me with a problem I've never seen on here before.

When I crouch down and bend over e.g. when looking under something, or cleaning the floor, my heart pauses. It feels like it's skipping a beat and doesn't do it any other time.

I've had my pacemaker (for heart block) since January and have had many settings problems but I'm worried that this is more of a placement issue as it only happens in those positions. My p...

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knowledge seeker

Anyone recommend a good book on AF that is really helpful?

any members in greater Boston who know about the bestg AF Dr's around here? Jim in Newton, MA

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You know you're wired when...

Titanium is your favorite metal.

Member Quotes

I have had my pacer since 2005. At first it ruled my life. It took some time to calm down and make the mental adjustment. I had trouble sleeping and I worried a lot about pulling wires. Now I just live my life as I wish.