Most Recent Messages in General Posting

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new recipient of a pacemaker

Hello I am 4 days in to my Dual Chamber  pacemaker .   I had bradychardia, no fibrillation The procedure went well and the discomfot is improving.  I wear an Apple Fit bit watch and as expected I have noticed   my HR has increased from 45 BPM to 49 BPM.  I have done a gentle walk  and I think my breathing is easier but it is eaarly days. I guess I am a bit anxious and over checking things but  I have 2 questions which some of you mig...

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9 year old with heart block

Hello there, my lovely little girl who's 9, born with complete heart block has been at a steady 56 bpm unpaced since she was born! However on Saturday she was crying and I asked what was wrong and she said that she was worried she was going to die in her sleep because her heart was too slow. 

Monday morning came and I phoned the consultant just for reassurance really, her appointment was due in November, they were lovely and just said could I bring her in on Tuesday and they wi...

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Node & ablation and Afib

Hi I will probably end up having a node and ablation but I have a question please for anyone who has had it done.

I know any atrilfibulation will still continue in the left atrium but can someone tell me what this will feel like and how it effects you if your ventricles are driven by the pacemaker?

Thanks, Graham. 

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Holiday insurance

Hi, I know holiday insurance has been discussed on this forum before but as I plan to go to Thailand in January I thought I'd see if anyone can offer any advice. I had an ICD implant 5 weeks ago and as I suffer from AF and cardiomyopathy I went on line for some quotes. I want to be fully covered against all eventualities. Staysure quoted £594 for a single trip whilst M&S quoted £245. The insurance details are very similar but I can't understand the difference. Any thou...

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Halloween

Hey all, just wanted to come on here and ask if anyone, (particularly from the U.S.) was going to be celebrating Halloween. If so are you going to wear a costume? I'm aware this club is more of an older crowd, but just thought I'd ask. The holiday is less than 2 weeks away, and I have no idea what i'm dressing up as.

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Replacement

Thank you 🙏🏻 Penguin and Piglet 22 for your reply's 🙏🏻

Piglet22....your experience leaves me feeling disappointed with Medical fraternity past and present 💝 

I leave in Australia and I  feel lucky that this things {medical} are the best you can hope for in this volatile state of humanity! I was born in Slovenia....came here when I  was 20🌼

My "event" occurred in 2016 basically out of the...

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Replacement’s

Hello all,

it's been a while😊

I have my pacemaker now over 7 years....Medtronic dual chamber Ensura DR MRI {EN1DR01}.....pacing 25% of the time....check up every 6 months with my ET Cardiologist. Occasional  "thud" or PVC. Very fit 72yo woman with zest for life....and  avid reader of the Club no one wants to be part of...but,hey LIFE is okay....lets enjoy it while we can 🙏🏻

So far so good 😊 ...my question is in regards of eventual replacement ⁉️...

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Merlin2home EX1150

Does the blue light on the cellular adapter only come on when transmitting or is it suppose to stay on all the time?

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Avenir Dual Chamber Leadless?

Has anyone got one of these or is scheduled to? I would like to know more about the procedure and battery life, complications?  Thanks so much.

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Check up

Had my 3 months check up 2 weeks ago at the pacemaker clinic, cardiologist and family physician. I have a BS dual leads top chamber at 17% and bottom 0%. Doing ok , been dealing with anxiety and confidence. Doing better since then walking daily 30 minutes, getting out more to friends and family. Starting physical therapy next week for frozen shoulder and arm pain. Cannot drive yet. Went walking at a pumpkin farm  50 minutes was exhausted and not doing well with hilly walking. My Dr. Said...

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Seem to have lost my taste for Alcohol

As soon as I was dianosed with heart failure my cardiologist nixed drinking. Recently since doing better and have my CRT-D I've tried a glass several times. Couldn't finish them and immediately felt sick.

I'm not to concerned if I don't have another drink but curious to know if anyone else has lost the taste for booze. Tried googling if it's a side effects of my medication but nothing comes up.

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Weird headaches

The last few days I've been experiencing these strange little headaches. It's been almost 3 months since my device was implanted, and for a few weeks I have actually been feeling better. So I'm perplexed about the short headaches, mostly in my temple but not always. They only last for a few minutes at most, some are almost like ice pick headaches. I'm not doing anything different besides the fact that my energy level is definitely better. Is my body just adjusting to better bl...

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effect of pvc's

We often talk about pvc and pac affecting what we feel as our pulse, that it can throw off the count. Here's just how MUCH it can throw it off! My dad had a reading of 36 the other day. His bp monitor and O2 monitor both said 36, he counted manually and got about the same. He has covid and his O2 sat was 82 so I flipped out and demanded he get someone to take him to the ER before I called 911. On the ekg at the hospital, his pulse was actually in the 80's. 

If you want to k...

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Demonstrating strength of magnetism in MRI machine

I stumbled on this on you tube, Incredible the strength of the magnet in a MRI machine.

Thats a steel key ring on the end of a piece of thread. At the end that s an aluminum plate falling over in the magnetic field. 

Like he says ite like falling thru mollassas

Just incredible the strength of the magnet.

https://youtu.be/I6OHy3MipS4?si=-szvizGDevZdyfkf

Its no wonder they are hesitant about putting a pace maker thru and want everyone to sign off.

 ...

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Keto Diet

Anyone able to do Keto with their PM? 

I have problems with low blood pressure, but that seems to be my only problem.

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Flying

I have had my pacemaker for a year and a half. I was wondering is safe for me to fly. I know that there are certain precautions I have to take. Still a little nervous about flying. 
greennova

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High threshold RV

I had my cardiologist appointment today. I was supposed to get my six month pacemaker interrogation as well. When the pacemaker tech saw my RV pace threshold, she got the cardiologist.  I already have a note in their records not to test the RV lead because I have already had my pulse undetectable during that and it makes me feel awful. 
 

The cardiologist told the tech not to test my leads at all. He told me that my pacemaker battery is used at a high rate most likel...

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Thanksgiving

Happy Canadian Thanksgiving to all. 
 

🇨🇦🍗

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Question regarding website

How do you reply to other peoples comments on your own forum?

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New Member

Hi everyone my name is Adrianne, I'm very excited about being apart of this club. I was unaware that such community's existed until now. Just some background info from me, I'm about to be 21, from LA, got my pacemaker in 2022 for Bradycardia and complete heart block. 

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You know you're wired when...

Titanium is your favorite metal.

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Life does not stop with a pacemaker, even though it caught me off guard.

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