Most Recent Messages in ICDs

Review of pulse rate monitoring gadgets

Thought I'd throw this out for other ICD user's that have had the same issue as me. Ever since getting an ICD 6 months ago I've been overly concerned with keeping track of my pulse rate while exercising. Prior to my single VTac episode earily this year I was a daily 4 or 5 mile jogger. At this point I do a long daily walk and include a shorter jog with it.

At first I purchased a Fitbit HR to keep track of my pulse rate. Worked fine for everyday life but when exercising...

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"Minor" shocks from ICD

My father, who is also on kidney dialysis, received a pacemaker and ICD for CHF at the end of September 2016, and I am so very glad to find this message board. I live out of state, but I am currently at his house during his recovery from surgery.

Today and this evening, for the first time, he has felt what he describes as "shocks," which we assume are from the ICD. Most were mild -- more like twinges -- but enough to make him exclaim. We called his cardiologist, and they told...

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Bi-V Defib vs. Subcutaneous Defib

I have a choice between replacing my current 3 lead pacer with a defib model, or adding a subcutaneous defib instead. Thoughts?

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ICD

MY LAST PRINTOUT SAID 17 MONTHS. I KNOW IT'S A GUESTOMATE BUT AT 17 MONTHS DOES THE WARNING GO ON SAYING I HAVE 3 MONTHS LEFT?

 

WILL THE ALARM GO OFF BEFORE 17 ?

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Scared to death

I just got home yesterday I have been coughing since and everyone I cough my chest feel like it's about to burst and I'm constantly coughing up flem out my throat , I can feel some beating in the front I feel like my life is going to end I feel like I'm on my death bed in crying as I sit here and write 

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Just had my icd put in and I'm scrared

I'm new to this I just came home from

the hospital from getting icd and I'm feeling pain everywhere I'm scared to death

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Daily Self check

Hi everyone

i normally have my self check at 12:57am every night. However some nights it happens at 1:27pm instead. I was wondering if this happens to anyone else? I have a two lead ICD pacemaker by the way.

Thank you

Lana

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Chest pain related to my ICD?

Hello - I'm brand new to this site, but have had my ICD for close to seven years now due to HOCM post myectomy.  Over the past few months, I have had very sharp pains close to my ICD.  The pain seeems to me to be below my ribs and is very sharp and intense.  Today, the pain brought me to my knees it was so intense.  It did pass and I feel OK now, but I also am aware of something still causing minor discomfort.

Just wondering if anyone else has had this experience...

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ICD ONE YEAR LEFT BEFORE CHANGE ?

WITH ONE YEAR LEFT DOES MY ALARM GO OFF 90 DAYS PRIOR ? WHEN ARE THEY SET FOR ?

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setting up communicator

I do not have a land line. live in the country. how can I use this communicator?. I had a pacemaker put in on 8-8.

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Warning a defibrillator is about to shock, so that you can:

Does anyone know if there is a phone app with a patch (that monitors your heart) you can wear, that informs you when a defibrillator is about to shock? Something that would basically give you 1-15 minutes of warning?  If it existed, would you be interested to use it in order to modify your activities or perhaps take a beta-blocker that could prevent the arrhythmia/therapy from happening?

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CRT-D

What are the side effects of defibrillator shock,soreness etc.

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Abdominal Placement

Hello
I just had my ICD placed in my abdomen on Tuesday and have a few questions...
Because I am small boned, they felt it would be too irritating and hard to place, because of its size, near my collar bone. I am 54 and it doesn't seem to be a common thing anymore and wondered if anyone else has theirs placed like mine and how they feel when exercising, etc.?
Also, I am taking Savaysa for possibly just a month to prevent blood clots. Anyone on this drug? Any side effects?
Fi...

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thoughts n questions

im 37 got a double barrel icd on monday this is sunday so six days ago, was thinking its alright to start moving my arm but i see people talking about doing things 8 weeks later and having complications, i only have a few ideas, 1 is it ok for me to be using my arm already it doesnt hurt, 2 when is it ok to sleep on my side again...3 why is it everyonce in a while i feel my heart in my throat and it freaks me out a lil....4 should i still be hurting, i was sent home without a single pain pill. n...

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I can feel my ICD inside of me?

I had my ICD implanted when I was 16 years old. I have a very slim structure (currently standing at 6ft and weighing 125 lbs) so my doctor and parents made the decision to implant my ICD under my pectoral muscle. I'm now 19 years old; August 1st of this year will mark the 3 year anniversary of my device being implanted. I weighed a bit more the first year and a half after getting my ICD (around 140 lbs), but due to other complications with my health, I lost weight, and have been at 125 lbs for t...

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New ICD

Hi,
Im a 59 yo physically fit female, until 9 weeks ago, SOB, taken to the ER diagnosed with CHF with an EF of 19%. Scary stuff to someone who walked/hiked/biked everyday. Cardiologist found LBBB, no artery disease, no kidney disease, no diabetes, nothing. Started on meds for 6 weeks no improvement in my EF. Had an ICD implanted one week ago. Im sore but back to work full time, taking care of all my daily responsibilities and walking up to 7 miles a day. But I do find myself, up and ex...

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Palpatations

Does anyone else have palpitations still ever so often with their ICD. Just wondering how conman this is.

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Sotalol

I had a ICD implanted 6 years ago. Always done well on my sotalol. About Feb mine ICD paced me 2x and my doctors increased me from 80 mg 2x a day to 120 mg 2x a day. Still having some fluttering so they have increased me to 160 2x a day. I am doing fine I just do not like to still feel the palpitation. I am sure I am causing a loot of this added stress to myself. They have put me on Paxil for anxiety Anyone else have this issue.

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Commercial driving

Ive been a vdl driver my whole life. At 43 i had my first attack. At 44, my second. The dr. pushed the icd and i wasnt getting any cooperation from multiple cardiologists because i refused the icd. I was told i needed a triple bypass, however, after 4 seperate second opinions i couodnt find a surgeon who would do it. I finally got the icd.....knowing it would disqualify me from earning a living so i applied to ssdi. In the mean time i also found that id need at least a 40% ejection fraction to p...

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Surgical site healing question

This might be the same for both PM and ICD people. I had an ICD implanted just under 5 weeks ago and everything has healed up nicely and I feel 100% but the surgical site above the ICD is still redden and discolored from the rest of my skin color.

It's not infected or anything, just darkened from the recent surgery. Does this discoloring go away eventually or does it stay discolored because of the ICD underneath? I realize the scar itself will never go away totally.

I've ne...

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