Most Recent Messages in ICDs

Pregnancy/giving birth with an ICD/pacemaker

Hi! Soooo...my husband and I were trying for a baby before my unexpected cardiac arrest in December 2018. It has been 5 months (today) since my SCA (4.5 months since my ICD/pacemaker implant). My diagnosis was: Arrhythmogenic Mitral Valve Prolapse. I know this is a personal question, but do you think it's too soon to start trying for a baby again? I'm pretty stable emotionally, I think my ideal beta blocker dosage has been figured out (I'm on 5mg of bisoprolol - which is supposed...

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Pacemaker vs ICD

Hello, I was just wondering if someome could 'dumb down' the difference between a pacemaker and an ICD. Who would need an ICD? 

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S-ICD to ICD ?

The current discussion I'm having w/ my doctor is going from an S-ICD to an ICD because the device is picking up too much "muscle noise" when I play drums.  I'm wondering how common this sort of mis-reading happens.  Not neccessarily with just drummers, but with people who partake in activities that really work their chest muscles & lats.  Anyone here who's had to have their device changed?

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Dick Cheney

Dick Cheney got a heart transplant @ 71 after several heart attacks. He doesn't have an ICD anymore, he's got a fully functioning healthy heart.

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From pacemaker to CRTD, Mitral valve replacement and tricuspid valve repair.

Hi, I've been here before. In 2015 I had an hybrid ablation for persistent afib. After the ablation I received a pacemaker. Because my heart trouble conintued genetic screening was done and I found out I am the carier of a LMNA defect of the heart muscle. I have LMNA or Lamine A/C cardiomyopathy. This puts me in a high risk class for cardiac arrest so my pacemaker will be replaced by a biventricular ICD by the end of June.

The operation is performed during open heart surgery. My mit...

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New to the club!

Hi all! I'm new to the club! I got a Boston Scientific ICD/Pacemaker implanted January 2019 because I had a SCA at work in December. It was a huge shock (no pun intended) because I'm a very healthy 33-year old woman. I'm so, so, so grateful that I survived. The doctors believe that I have 'Arrhythmogenic Mitral Valve Prolapse.' I've known about the "mild" MVP ever since I was a kid (and I saw a cardiologist once a year, just in case) but there was n...

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Did your CRT-D improve your health

My EP is going to try, for the third time, to get my third wire in place in my CRT-D. I am hoping that the third time is a charm and it will work this time.

For those of you with a CRT-P or CRT-D, did your numbers improve, or did you feel better? Just hoping all of this is worth it.

 

Thanks

 

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Digital Life

I feel more digital when I am reminded not to behave normal. Sometime I feel frustated but I know my loving fellows care for me and dont want to lose me again. Some people asked me how you felt when dead and how you felt when you came back. What was there when you went out of life and how was the experience. I find it funny and a bit imaginative, but the most important thing was that I came back for ICD to be inserted as a life partner to me. Now I have two spouses

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Ejection Fraction and Pacemaker/ICD

My cardiologist is concerned that my EF, over the past 5 years, has gone from 44 to 33 to 28. She talked about being on the downward slope and is talking about needing a transplant down the road, etc. Happy conversation (not).

I feel great, an considered Class 1 with no symptoms.I have a pacemaker/ICD in place, but it needs a third wire connected so it performs as a CRT.

Question for the group is if a pacemaker has inmproved EF in your case.  or if you have seen your EF incre...

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CRT - D placement of third wire dilemma

My EP had difficulty placing the third wire of my CRT-D. He mentioned that my options were either having it placed surgically or explore HIS pacing as an alternative. I met with a surgeon yeaterday  regarding placing the wire and he discouraged it right now since I am Class 1 (no symptoms). He also mentioned that I should wait until I really need one when I am showing symptoms of HF. At this point, the reward does not equal the risk (he mentioned that the wire only lasts 3-4 years a...

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Hard blow to ICD

In Mid December of 2018, I went to the San Diego Airport to pick up family from England coming for  Chistmas. I got an Aiport Baggage Cart to help out. Whilst pushing this cart, a piece of baggage fell of it and I tripped on it. When I was on my way down, the Baggage Cart had turned upwards as I had my hands on the crossbar. The result was a very hard blow directly on the ICD which was extremely painful. It had been installed in April of 2018. Pretty soon, an Ambulance appeared...

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electric wheelchair and electromagnetic area near wheels

will the pacemaker/icd be affected by an electromagnetic device near the wheels of an electric wheelchair? Do all electric wheelchairs have it in their motors?

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Colonoscopy

Going to FINALLY get the dreaded colonscopy.  Saw the doctor for the pre-interview appointment.  He looks at my list of "problems," turns to me and says, "Boy, you look pretty good for having all this!!"   So he then proceeds to tell me they have to look at my last ECHO before procedure date in April.  I'm still stuck on his "you look pretty good" comment, so I don't ask why the need to see ECHO.  I understand they put you ou...

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Entresto and EF with ICD

I recently had an ICD implanted when my EF dropped a bit to 33. I was also put on Entresto. Has anyone seen a significant increase in EF with the ICD or Entresto?

 

 

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skydiving

Hello!  I need some help!

Can (am I able to) go skydiving with my Defibrilator/pacemaker with the leads and device still being in tact and safe enough to go without being damaged from skydiving in any way?

 

CAN I GO ?!?!?!?  

Any help will do!

thanks guy's!  I love you all!

-Peter

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Lead fracture

i am currently on my second device. A biotronik implanted over 2 years ago. This replaced my original Medtronic device which I received in 2010, when it reached the end of its battery life. When they did the swap, they 're used the original Medtronic leads. A week ago I received a jolt from my ICD while at work. it knocked me off of my feet. No warning. Not pleasant. I had never experienced my ICE firing previous to this. I assumed it fired for cause. Well a 911 call and an ambulance...

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Ripping sensation/pain

Hiya, 

i had a S-ICD places 10 days ago. It’s been healing lovely and I was finally stopping having pain. However yesterday evening and now today, I get a small painful tearing sensation about an inch from my wound site on the front. This is only if I move my boob or stand up too quickly. It doesn’t linger but I’m worried about it as I haven’t had the pain before. I have my first check up in 2.5 weeks. Could this pain be the wires embedding themselves or hav...

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ICD AND WORKING IN A POWER PLANT

In the fall of 2016 I under went surgery for a broken finger and shortly afterward I went into cardic arrest. The next week I had an ICD put in (The model I have is by Medtronics and it is a Visia AF MRI style) I have had no issues with this unit. The only problem that I have is the company I work for said that if you have a ICD you can't work at the power plant. There have been studies completed and some area's do have a high EMF. I have to stay out of area's that...

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ICD and Amateur Radio distance

  • by AB55
  • 2019-02-18 11:40:36
  • ICDs
  • 320 views
  • 4 comments

Hi,
A member of the family who is 80 is about to have an ICD fitted.

I noticed that the leaflet we have from the hospital mentions HAM/Amateur radio as 'special consideration - maintain 2 feet/60cm from ICD' 

I assume that it means the distance from the antenna and not the radio itself but does anyone know for sure?
He will typically sit pretty close to the radio, probably 1 foot away, but the antenna is half way down the back garden essentially in a tree ab...

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Head

  • by El
  • 2019-02-16 20:02:39
  • ICDs
  • 308 views
  • 1 comments

Feeling in head several times a day of movement that lasts a second or two. Not dizzy and not related to exertion.  Usually while sitting calmly reading or watching tv. Had daily episodes 2 weeks ago  went  now back daily    Biotronic defibrillator/ pacemaker.

 

 

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You know you're wired when...

You forecast electrical storms better than the weather network.

Member Quotes

I am just grateful to God that I lived long enough to have my ICD put in. So many people are not as lucky as us; even though we sometimes don't feel lucky.