Most Recent Messages in ICDs
Anxiety, Depression and Fatigue
Hello lovely Pacemaker Community,
I am 34 and had an ICD/Pacemaker inserted two weeks ago after recently learning I have Left Ventricular Non Compaction, I've had recurrent syncope with asystole. My recovery is going well except I'm feeling extreme fatigue every day, as well as intermittent anxiety (which is normal for me). I took 3 wks after work (I'm a Certified Nurse Midwife), and expected by now to be feeling so much better, I go for a 30 minute walk every day and t...
U.K. based - NHS query
- by JudgeJodie
- 2023-07-23 12:37:15
- ICDs
- 501 views
- 5 comments
Good afternoon all, been reading this forum for a couple of weeks now, and I have to say it's all very informative and supportive. In particular I love the funny and motivational quotes at the end of each post.
I know no one can answer for sure but I'm hoping someone might have some insight into the criteria for an ICD on the NHS. Apologies in advance for the lengthy post.
I (46F) suffered a STEMI on 5th June and was released home 9 days later with an EF of 21%....
Angiogram and pacemaker/defib wires
- by chip-almost-human
- 2023-07-20 19:27:58
- ICDs
- 388 views
- 3 comments
hi people
what happens if during a angiogram they come across my wires and have to install stents.
do they install stents pushing wires into walls of viens or artieries and if so how does that effect future device changes or wires erviceing. or are the stents intstalled in another location away from all wires and device. thank for info. hope i wasn't to confusing.
New to forum- Medtronic Cobalt patient
- by Boltman92124
- 2023-06-01 16:12:17
- ICDs
- 499 views
- 5 comments
Hi folks,
I hope everyone is doing well today! I have one of the new Medtronic Cobalt ICD's since Oct 2022. I have CHF and Afib. I also had the AV Node Ablation done at the same time. I felt better immediately after the procedures!!
I had an EF of 20 and it has gone back up to 32 since Oct. Just had a recent echo. Afib is gone. My low setting is 70bpm. I am young for a device. Just turned 60. I do have the bedside monitor device which reports every 90 days I guess...
an undercover question - Sub Cut ICD
since 2007 I was fitted with a St Jude ICD. Following a recent opperation I got an infection, as a result my device needs to be changed to a Sub-Cut ICD. A sub-cut device is fitted in the under arm area where a bra normally fits. Can anyone advise on which bra you have found comfortable to wear with a sub-cut ICD?
pain after 6 years
- by MamaMeowMeow
- 2023-03-23 22:26:40
- ICDs
- 463 views
- 1 comments
i got my icd implanted in may 2017. for the last 2 weeks i've had tenderness around the device near the bottom where it's near my breast tissue. i haven't hit it or done anything out of the ordinary with it. never had this issue before. my ep retired a few years ago and the new one has months until next available appt. the skin is not red or hot. but i am still concerned. i am not sure if i should be or what i should do.
Gamma radiation and ICD
Hello. I'm recently diagnosed with HF. Can go back to work in Nuclear Medicine as a technologist if I have an ICD. Will it reset?
Tomorrow is the day
Getting my ICD implant tomorrow. Did all the research I could but would love to hear from anyone with direct experience as to their procedure and recovery.
Traveling With an ICD
Hi!
I had a Medtronic ICD implanted in 2020. So far, when I travel, I've been packing the Carelink Monitor in the box it came in. The box is beginning to get banged up, and it's a bit bulky to travel with. I haven't been able to find a specificallt travel case for my Carelink monitor. Does anyone use any hard case for their Carelink monitor that they would recommend for travel?
Arm pain
- by dirose0422
- 2022-12-23 03:27:58
- ICDs
- 655 views
- 3 comments
I had a Pacemaker placed Oct 31,2021. Since then I've had 2 revisions, heart failure and recently, September 2022 had a new pacemaker with defibrillator placed. Throughout all of this I have had left arm pain. I thought it would subside after recovery from my procedures but it has not. One nurse told me it could be scar tissue. (Wouldn't that be near the incision?). I've mentioned a few times to different cardiology people and they don't seem concerned or know why I have...
Update of Repositioning
- by islandgirl
- 2022-12-04 00:23:24
- ICDs
- 620 views
- 5 comments
I had some good news from the surgeon followup after the CT scan. My leads are not damaged from the CRT-D dropping and flipping 90 degrees when I lie on my right side. He said the leads are very vulnerable and I am lucky. I breathed a sigh of relief and said I guess it wasn't going to be complicated, but he quickly answered where the CRT-D is it is very complicated and he only does complicated cases. The CT scan had amazing 3D images, adjusting filters and being ab...
Repositioning of Device experience?
- by islandgirl
- 2022-11-06 16:40:07
- ICDs
- 693 views
- 5 comments
As many of you may remember, I had my ICD replaced last January due to battery life and upgraded to a 3rd lead. Shortly after it was replaced, it dropped down into my breast and turns 90 degrees when I lie on my right side. I've had to wear a bra 24/7 to keep it from turning. It has continued to be very painful and when it flips back it feels like it gets caught. After months I was hoping it had scarred down, but it has not. My 'new' EP said he d...
Time frame
- by Janet Sullivan
- 2022-09-14 17:13:59
- ICDs
- 893 views
- 6 comments
I've been living and traveling in my motorhome since I retired 4 years ago and sold my house. In May I had a heart attack while out West, got a couple of stents and went though cardiac rehab, lost a little more than 30 pounds and went to the gym twice everyday too. But my EF didn't improve enough, I need an ICD. So I'm back in my hometown to be near family and for help after implantation.
My new cardiologist has confirmed my need and sent me to...
6 Hourly Bleeps
Evening Guys
I have been hearing some bleeps while pottering around the house over the last week or so. Thought it was one of my daughters toys or the dishwasher. Until I heard it at them same time everyday 7.41am 1.71pm 7.41pm and 1.41am it bleeps for 16 bleeps
i have been having issues with my ICD leads after my ICD was replaced last year. They have told me there are eroding and might need replacing. So I'm booked in on Tuesday for a scan and X-ray.
<...
CRT-D
This is my first post.
I am scheduled to have a CRT-D implanted on September 15th.
I have a couple of questions and would appeciate any and all advice.
I am curious about other's experiences with how they controlled swelling/pain after surgery. I have aslo read numerous comments about avoiding frozen shoulder issues afterwards. Perhaps someone could offer some suggestions about range of movement and "gentle" excercises. I would also be interested in...
Barostim Therapy
Hello all,
I have heard actually on this site that the Barostim therapy has been authorized by the FDA and is now available to patients with HF. I spoke to my cardiologist and he doesn't have a lot of information about it other than it is a clinical trial and to qualify for it you need to be basically dying.
I have had my Biventriculator for a year and a half now and my EF still at 20-25%, my heart is enlarged a bit and I think I will need to persue this treatment, I am...
Fever
- by kphsilvert
- 2022-08-16 19:01:30
- ICDs
- 638 views
- 2 comments
Is it common to get a low grade fever of 99.4 after ICD placement. Mine was placed yesterday on
8/15/22. Thank you.
abdominal pain
Hi has anyone experienced almost constant twitching on the left of your stomach and severe abdominal pain after being breathless, the pain lasts about 10 minutes then subsides and goes away. This has happened 4 times in the last 3 weeks my doctor is baffled. I have read that this can be caused by a ICD lead dislodgement.Any help/advise would be appreciated
Impedance increasing
- by islandgirl
- 2022-07-29 19:20:40
- ICDs
- 790 views
- 2 comments
My heart failure doctor seemed concerned that my impedence was continuing to increase. My fluid level continues to stay the same--top of the normal range.
She said she was going to have to do some research and check with my EP. Does anybody have any ideas? There was a concern last year with my former EP that I had a lead that had variable voltage and a lengthy phone call with Medtronic determined it may be failing. It was never addressed after that appt and...
You know you're wired when...
A thirty-day guarantee is not good enough.
Member Quotes
Im healthy as a horse because of the pacemaker.