Most Recent Messages in ICDs

Did your CRT-D improve your health

My EP is going to try, for the third time, to get my third wire in place in my CRT-D. I am hoping that the third time is a charm and it will work this time.

For those of you with a CRT-P or CRT-D, did your numbers improve, or did you feel better? Just hoping all of this is worth it.

 

Thanks

 

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Digital Life

I feel more digital when I am reminded not to behave normal. Sometime I feel frustated but I know my loving fellows care for me and dont want to lose me again. Some people asked me how you felt when dead and how you felt when you came back. What was there when you went out of life and how was the experience. I find it funny and a bit imaginative, but the most important thing was that I came back for ICD to be inserted as a life partner to me. Now I have two spouses

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Ejection Fraction and Pacemaker/ICD

My cardiologist is concerned that my EF, over the past 5 years, has gone from 44 to 33 to 28. She talked about being on the downward slope and is talking about needing a transplant down the road, etc. Happy conversation (not).

I feel great, an considered Class 1 with no symptoms.I have a pacemaker/ICD in place, but it needs a third wire connected so it performs as a CRT.

Question for the group is if a pacemaker has inmproved EF in your case.  or if you have seen your EF incre...

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CRT - D placement of third wire dilemma

My EP had difficulty placing the third wire of my CRT-D. He mentioned that my options were either having it placed surgically or explore HIS pacing as an alternative. I met with a surgeon yeaterday  regarding placing the wire and he discouraged it right now since I am Class 1 (no symptoms). He also mentioned that I should wait until I really need one when I am showing symptoms of HF. At this point, the reward does not equal the risk (he mentioned that the wire only lasts 3-4 years a...

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Hard blow to ICD

In Mid December of 2018, I went to the San Diego Airport to pick up family from England coming for  Chistmas. I got an Aiport Baggage Cart to help out. Whilst pushing this cart, a piece of baggage fell of it and I tripped on it. When I was on my way down, the Baggage Cart had turned upwards as I had my hands on the crossbar. The result was a very hard blow directly on the ICD which was extremely painful. It had been installed in April of 2018. Pretty soon, an Ambulance appeared...

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electric wheelchair and electromagnetic area near wheels

will the pacemaker/icd be affected by an electromagnetic device near the wheels of an electric wheelchair? Do all electric wheelchairs have it in their motors?

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Colonoscopy

Going to FINALLY get the dreaded colonscopy.  Saw the doctor for the pre-interview appointment.  He looks at my list of "problems," turns to me and says, "Boy, you look pretty good for having all this!!"   So he then proceeds to tell me they have to look at my last ECHO before procedure date in April.  I'm still stuck on his "you look pretty good" comment, so I don't ask why the need to see ECHO.  I understand they put you ou...

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Entresto and EF with ICD

I recently had an ICD implanted when my EF dropped a bit to 33. I was also put on Entresto. Has anyone seen a significant increase in EF with the ICD or Entresto?

 

 

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skydiving

Hello!  I need some help!

Can (am I able to) go skydiving with my Defibrilator/pacemaker with the leads and device still being in tact and safe enough to go without being damaged from skydiving in any way?

 

CAN I GO ?!?!?!?  

Any help will do!

thanks guy's!  I love you all!

-Peter

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Lead fracture

i am currently on my second device. A biotronik implanted over 2 years ago. This replaced my original Medtronic device which I received in 2010, when it reached the end of its battery life. When they did the swap, they 're used the original Medtronic leads. A week ago I received a jolt from my ICD while at work. it knocked me off of my feet. No warning. Not pleasant. I had never experienced my ICE firing previous to this. I assumed it fired for cause. Well a 911 call and an ambulance...

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Ripping sensation/pain

Hiya, 

i had a S-ICD places 10 days ago. It’s been healing lovely and I was finally stopping having pain. However yesterday evening and now today, I get a small painful tearing sensation about an inch from my wound site on the front. This is only if I move my boob or stand up too quickly. It doesn’t linger but I’m worried about it as I haven’t had the pain before. I have my first check up in 2.5 weeks. Could this pain be the wires embedding themselves or hav...

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ICD AND WORKING IN A POWER PLANT

In the fall of 2016 I under went surgery for a broken finger and shortly afterward I went into cardic arrest. The next week I had an ICD put in (The model I have is by Medtronics and it is a Visia AF MRI style) I have had no issues with this unit. The only problem that I have is the company I work for said that if you have a ICD you can't work at the power plant. There have been studies completed and some area's do have a high EMF. I have to stay out of area's that...

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ICD and Amateur Radio distance

  • by AB55
  • 2019-02-18 11:40:36
  • ICDs
  • 272 views
  • 4 comments

Hi,
A member of the family who is 80 is about to have an ICD fitted.

I noticed that the leaflet we have from the hospital mentions HAM/Amateur radio as 'special consideration - maintain 2 feet/60cm from ICD' 

I assume that it means the distance from the antenna and not the radio itself but does anyone know for sure?
He will typically sit pretty close to the radio, probably 1 foot away, but the antenna is half way down the back garden essentially in a tree ab...

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Head

  • by El
  • 2019-02-16 20:02:39
  • ICDs
  • 250 views
  • 1 comments

Feeling in head several times a day of movement that lasts a second or two. Not dizzy and not related to exertion.  Usually while sitting calmly reading or watching tv. Had daily episodes 2 weeks ago  went  now back daily    Biotronic defibrillator/ pacemaker.

 

 

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BP NOT GOING DOWN

  • by GARYD
  • 2019-02-15 11:35:44
  • ICDs
  • 273 views
  • 2 comments

Hello,

I am new here, thank you for having me.  My ICD implant was done 01/18/2019. In brief, I had a heart attack 12/26/17, remained on Brilinta and associated stomach, HBP meds. Echo revealed the 30 % and ICD implant was the route.  Previous to the implant, I was at 12.5 MG of Metoprolol as the 25 was too high. My BP before the surgery was getting higher - Doc put me on 25 once a day. I had stability in my BP initially after the surgery but readings have been 165/117 and not...

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sympathectomy side effects

Hi All:

I have been throught the progression of medications to control my ventricular tachycardia.  Sotolol lasted 2 1/2 years without an episode until a month ago.  Had 9 icd shocks in 45 minutes.  Doctor took me off sotalol and put me on amiodarone.  Nothing since then.  He has suggested doing a sympathectomy to control the VT and thus the shocks.  Does anyone know the downside to a sympathectomy?  Reserch on the internet suggest that most are happy...

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House Insurance

I know I am at risk, having the gene associated with a certain channelopothy linked to sudden cardiac death and my ekg shows what could be called a slight abnormality so I have been recommended by a great expert to get an ICD. But I cannot find any cases of ICD's saving anyone. I have found lots of people getting shocks from their implanted cardioverter defibrillator but know one seems to be sure if it was needed therapy or a malfinction. Niether on line or from my doctors...

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Beeping

Had my ICD fitted in Novemeber.had Cardiac Arrest in December and have felt fine.  The last few days it has been beeping at 10.10am.  I phoned the Cardiac Dept.  to be told it is probably a build up of fluids.  Anyone else had this problem ?

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CRT-D fitted

Hi all, here's my story.  In September last year, at 47yrs, I found out that my GPs diagnosis of Asthma 7 years ago was in fact heart failure!  I had an EF of 20% (most likely cause was a virus) and no other heart/valve problems but lets face it thats enough!!  I had a Boston Scientific CRT-D fitted on December 18 and my EF with the help of meds had gone to 32%.  I thought I would bounce back after the operation much quicker than I have.  I am able to do more as e...

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Dolphins, dolphins, dolphins

Hi All:

Couple months ago I asked the "dolphin" question.  There was quite a relay back and forth about different species of dolphins, and some of you actually gave me some good advice on whether I could or should swim with a dolphin. .  I went to the Dominican Republic in January of this year.  I kissed a dolphin.  I shook "hands/flippers" with a dolphin and I hugged a dolphin.  They said I couldn't swim with one, but I did what I though...

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You know you're wired when...

Friends call you the bionic woman.

Member Quotes

I am no expert, but I believe that without the defibrillator that I have, I would be dead.