Most Recent Messages in ICDs

Shocks and babies

Getting an ICD as soon as I decide the time is right - next week or in 3 months. 

 

I survived until now I figure I will last a while longer. 

 

QUESTION

If I have the ICD in and for whatever reason it gives me a shock and I am holding a child or a baby, is it strong enough to harm the baby or child I have contact with?

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ICD moved?

So I just noticed it seems like my ICD has moved a bit south.  Wondering if it's okay to wait until the next business day to call my doctor?  

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9 months later

Thank ypu for your advice. I went to the ER was there for several hours. They told me they dont know whats wrong only the dr who put it in can say whats going on and they made the appt two weeks away. Sometimes i really regret the icd being put in because has been in total alomst 2 years of problems and i am tired. when you get these you cant just get rid of it. The heart becomes dependant and gets lazy so if they take it out it'll cause problems. This just isnt living its more like a bat...

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9 months later

For 9 months i complained of pain swelling after 9 months the dr said the icd had to come out due to corrosion and thinning skin. They replaced the icd because during surgery they discovered it was defective. Now they put a different one in subpectorial and i have had no problems for 9 months until this past week. The area is swollen red mark one can feel the unit where i couldnt 3 weeks ago. When i bend over or move my body it feels like its falling. They looked at eray and appears everythin...

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Third ICD implanted yesterday

Howdy All,

I had my ICD replaced yesterday, for the third time overall, and the second time down here in Myrtle Beach. They also replaced one of my leads at it was one of those recalled ones and he had enough room in the artery to add it. He cut and capped the original flaky one. Since I play golf about three times a week my EP wanted to get this done before I got any older as the risks tend to increase with age. The only downside is that I’m shutdown from golf for two m...

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ICD newbie

I am 48 years old, and I just got my ICD for idiopathic ventricular tachycardia in November.  I received my first defibrillator shock yesterday.  Just saying hi.

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omg the itching

when does the itching stop? it's like a cast and with all my blood thinners it's not a good idea to scratch so anyone else have itching from thier site and how long till it went away? it's been 2 full months I'm hoping once me scar goes fully white it will go away

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ICD

Today makes 9 weeks post op of my ICD. The last few days I’ve been experiencing some pinching sensation around my ICD. Even when turning my neck, I feel the pinching. I would like to think this far out it should be settled in. 

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Possibly having an ICD implanted after my 27 year old sister died suddenly

My sister and i are two years apart exactly (she just turned 27 and i just turned 25). We have both had seemingly random syncope episodes our entire lives. We both have had extensive cardiac workups that showed nothing. She died suddenly a couple weeks ago, presumably a sudden cardiac death as her heart stopped beating for no apparent reason. Everything looked normal on her autopsy too. I went back to my cardiologist and he has mentioned potentially putting an ICD in sometine soon. Even...

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20 year old female with pain

My 20 year old daughter was diagnosed with a left ventricular  aneurysm at birth and followed by a pediatric cardiologist for 20 years. In these 20 years she never had any substantial symptoms (besides some dizziness) that would lead us to believe that her heart condition would cause her any problems in life...until recently. She was waitressing at a small  restaurant in town when she went into sudden cardiac arrest. Luckily there was a first reaponder nearby who pref...

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Jobs

Well I'm back again. Just had my checkup after ICD implant and all is good.  Sorta. Been told I can go find a job but with only half a working heart finding that my options are pretty limited. Nothing too strenuous is quite a gray area. So am asking if anyone can relate and what kinds of jobs can I do. Feeling pretty stressed about now Thanks for any imput, I would appreciate it.

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Pinching & Tenderness 7 post implant

Currently going on 7 weeks post implant. My dominant arm is the left, while at work my arm and around the ICD was sore. I feel that the next morning the implant seems a little more pretruding than usual. Also feel some pinching sensation mainly around top the ICD. Is that normal?

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Soarin at Disney

Has anyone with an icd done this ride!

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Facial burns from shock therapy

  • by LoriF
  • 2018-12-17 05:56:30
  • ICDs
  • 228 views
  • 4 comments

Hello. Has anyone experienced “burns” and bleeding after receiving shock therapy? My device shocked me but it also sent a shock thru my face and lips that left me bleeding and red streaks on my upper lip and cheeks. 😱. I have received one other shock in the past 17 years and it was nothing like this one. I have the same leads for 10 years but just received a new device 3 months ago .

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Tickling feeling in my heart

Hello everyone,

I am new to this site, also to the new journey of being a patient of an ICD. Currently going on 6 weeks of my ICD being implanted.

This has been quite a life changing experience at my age.

Since my implant I have noticed and also talked my cardiologist and EA nurse about feeling some tickles in my heart. They seem to happen when I laugh or move certain ways. Has anyone else experienced this before?

Thank you,

Melissa

 

&...

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Diaphragm Twitch - After Adjustment

Is it normal after installation and adjustment of your ICD to still get the occasional diaphragm twitch? Or, are there people out there with one installed and never get a twitch of any kind?

In the week I've had mine, I always get one when seated (especially at funny angles) and lying down but never standing.

Any advice much appreciated. 

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Home monitor

I have a Medtronic with a home monitor and last night the screen just lit up by itself it has been jus a blank screen before any idea of why it lit up? I have had the ICD for 3 months and the home monitor for 2 months. ICD fitted for VT.

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ICD Fitted 8 Hours Ago - Stomach Spasms

Hi everyone,

Just joined the site after having a quick Google for symptoms. I have just had an ICD fitted literally 8 hours ago and was put in a room to rest. Ever since I have come out of the op, the left side of my stomach / area below my left rib has not stopped twitching. It is now doing hard spasms and will not stop. I can't even sleep because the spasms are that hard. I have drunk plenty of fluid and just took some paracetamol but none of that has changed anything.

They...

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Device Experience

When I got my ICD in 2013 my BP became extremely low. My normal, even when healthy, is pretty low.  I insisted they change my settings (I got ignored until my cardiologist read EP the riot act!) & I had significant improvement. Eventually I was at 45EF up from 20. Now 5 years later I have a new device. I was disappointed to need the new battery so soon but I pace at 100%. 2 years after my great succes, I declined to 35, now a year later I am 20EF.  I am VERY DISAPPOINT...

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Low BP after ICD

CB  please let me know how your appt. goes.

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You prefer rechargeable batteries.

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