Most Recent Messages in ICDs
Hello and nice to meet you all
Hi
Im 47 and from Blackpool UK. I've just had an ICD fitted due to VT heart rhythms and diagnosis of hypertrophic cardiomyopathy.
Weeks prior to knowing this outcome I was swimming at a competitive level both in pool and open water. I was an active member of a triathlon club and walking the Lake District Wainwright summits.
I know it's early days, 2 weeks post op, but I'm trying to look what I may be able to do in the future after I get the fir...
What does this mean?
My test results said the therapy that was applied was 35J ×6, does that mean I was shocked 6 times??? I sure hope not! I sent a message to my doctor to ask him, no response yet.
I got shocked and now I'm scared
Yesterday, after feeling really good for over a month and having no issues, I was just resting with my feet up and started to drift off to sleep when I noticed my heart having an oddly irregular beat, rather fast and concerning. Before I could even think about it much, I blacked out. I don't know how long I was out, but it wasn't but maybe a few seconds. When I came to, it felt like a struggle; I immediately knew something strange happened and the area around my device was tight and p...
Weird sensations in device area last few days
Hi. First time posting, thanks for letting me be a member of the group. I have a Medtronic ICD for nonsustained polymorphic VT and electrical storm in the setting of stress. Stable, taking flecainide and nadolol daily. Recent checkups and stress tests have been A-OK, and I have mostly forgotten the ICD is there. But, over the last 4-5 days, I am getting random tickles in the ICD area. Sometimes below the ICD, sometimes to the side, etc. These weird sensations only last 1/2 seco...
Palpitations & unwell
- by Graham Harry
- 2023-10-08 16:15:38
- ICDs
- 544 views
- 6 comments
Dear all, I want to share my current situation as I would appreciate your comments. I am 24 days post op a CRT-D and things were going well for a couple of weeks as I put in a previous post. Then I started suffering from high heart rates of 85-90 with palpitations which made me feel unwell. On the advice of my cardiologist by email, I went to my GP and she advised that I increase my bisoprolol to 7.5mg (and 8.75mg if the HR didn't drop). I stayed the same for a couple of days and this is...
New CRT-D
- by Graham Harry
- 2023-09-23 07:25:16
- ICDs
- 539 views
- 1 comments
Hi, I have just joined this community. The information on it is very helpful. I am a retired 66 male in the UK. I had a CRT-D installed 9 days ago. Initially the HR was set at 40 but yesterday they reset it to 55 due to being poorly for a week. I suffer from AF and low heart rates and some pauses. The longest pause was 6 seconds which although I wasn't aware of it, seems a scarcely long time. Since the adjustment to 55 yesterday, I had a couple of light headed moments both whilst sitting...
Earthquake and ICD
Hi Everyone!
I got a ICD implanted 18 months ago, never got a schock. I am 53.
Recently I have been in the Alps and climbed the Montblanc without any incidence or ICD issue.
Before the climb I was of course following a somehow demanding training. No problems have arisen.
Two days after the summit I was riding a e-bike, doing 1/3 of the fatigue I did in previous days, having no symptoms of tachy, breathing normally and nevertheless I got a shock. My first...
ICD Pain
I've had my ICD for 5 years now (after two years with a pacer); and I've been experiencing pain in the area of my icd. Does anyone else experience this? I am also having problems with CAD with a 50% stenosis. I've not been feeling great but this pain is really bothering me. It feels like a sharp, cutting pain. Please let me know if anyone experiences this! Thanks so much!
Life with an ICD
Hi - I recently experienced v-tach while practicing brazilian jiu jitsu (BJJ). One of the outcomes from my visit to the ER is that I will need an ICD. In fact, it will be installed this Friday.
While trying to come to terms with how this is impacting my life, I found this site while searching for information about training BJJ with an ICD. Overall, this site seems super helpful and I'm happy to have a forum where I can connect with others. It's very isolating being 37 and being...
Anxiety, Depression and Fatigue
Hello lovely Pacemaker Community,
I am 34 and had an ICD/Pacemaker inserted two weeks ago after recently learning I have Left Ventricular Non Compaction, I've had recurrent syncope with asystole. My recovery is going well except I'm feeling extreme fatigue every day, as well as intermittent anxiety (which is normal for me). I took 3 wks after work (I'm a Certified Nurse Midwife), and expected by now to be feeling so much better, I go for a 30 minute walk every day and t...
U.K. based - NHS query
- by JudgeJodie
- 2023-07-23 12:37:15
- ICDs
- 568 views
- 5 comments
Good afternoon all, been reading this forum for a couple of weeks now, and I have to say it's all very informative and supportive. In particular I love the funny and motivational quotes at the end of each post.
I know no one can answer for sure but I'm hoping someone might have some insight into the criteria for an ICD on the NHS. Apologies in advance for the lengthy post.
I (46F) suffered a STEMI on 5th June and was released home 9 days later with an EF of 21%....
Angiogram and pacemaker/defib wires
- by chip-almost-human
- 2023-07-20 19:27:58
- ICDs
- 454 views
- 3 comments
hi people
what happens if during a angiogram they come across my wires and have to install stents.
do they install stents pushing wires into walls of viens or artieries and if so how does that effect future device changes or wires erviceing. or are the stents intstalled in another location away from all wires and device. thank for info. hope i wasn't to confusing.
New to forum- Medtronic Cobalt patient
- by Boltman92124
- 2023-06-01 16:12:17
- ICDs
- 596 views
- 5 comments
Hi folks,
I hope everyone is doing well today! I have one of the new Medtronic Cobalt ICD's since Oct 2022. I have CHF and Afib. I also had the AV Node Ablation done at the same time. I felt better immediately after the procedures!!
I had an EF of 20 and it has gone back up to 32 since Oct. Just had a recent echo. Afib is gone. My low setting is 70bpm. I am young for a device. Just turned 60. I do have the bedside monitor device which reports every 90 days I guess...
an undercover question - Sub Cut ICD
since 2007 I was fitted with a St Jude ICD. Following a recent opperation I got an infection, as a result my device needs to be changed to a Sub-Cut ICD. A sub-cut device is fitted in the under arm area where a bra normally fits. Can anyone advise on which bra you have found comfortable to wear with a sub-cut ICD?
pain after 6 years
- by MamaMeowMeow
- 2023-03-23 22:26:40
- ICDs
- 519 views
- 1 comments
i got my icd implanted in may 2017. for the last 2 weeks i've had tenderness around the device near the bottom where it's near my breast tissue. i haven't hit it or done anything out of the ordinary with it. never had this issue before. my ep retired a few years ago and the new one has months until next available appt. the skin is not red or hot. but i am still concerned. i am not sure if i should be or what i should do.
Gamma radiation and ICD
Hello. I'm recently diagnosed with HF. Can go back to work in Nuclear Medicine as a technologist if I have an ICD. Will it reset?
Tomorrow is the day
Getting my ICD implant tomorrow. Did all the research I could but would love to hear from anyone with direct experience as to their procedure and recovery.
Traveling With an ICD
Hi!
I had a Medtronic ICD implanted in 2020. So far, when I travel, I've been packing the Carelink Monitor in the box it came in. The box is beginning to get banged up, and it's a bit bulky to travel with. I haven't been able to find a specificallt travel case for my Carelink monitor. Does anyone use any hard case for their Carelink monitor that they would recommend for travel?
Arm pain
- by dirose0422
- 2022-12-23 03:27:58
- ICDs
- 763 views
- 3 comments
I had a Pacemaker placed Oct 31,2021. Since then I've had 2 revisions, heart failure and recently, September 2022 had a new pacemaker with defibrillator placed. Throughout all of this I have had left arm pain. I thought it would subside after recovery from my procedures but it has not. One nurse told me it could be scar tissue. (Wouldn't that be near the incision?). I've mentioned a few times to different cardiology people and they don't seem concerned or know why I have...
You know you're wired when...
You participate in the Pacer Olympics.
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