Most Recent Messages in ICDs

Replace or not

  • by DMJ
  • 2020-04-25 14:02:01
  • ICDs
  • 1481 views
  • 3 comments

If you can see you have had not reason for a ICD in 4 years, no shocks and it is time to replace it would you downgrade to just a biventricular PM without the ICD?  I will be almost 70 with CHF and EF of 15% right now.  I don't want to deal with it if I'm dying.

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Pacing SVT

I received a call the other day from a technician looking at my remote monitoring results telling me that my heart rate went to around 200 and I was paced out of an arrhythmia/SVT. No shock received. 

I was just wondering if a  SVT that is paced out of by a pacemaker is less severe and not as serious as an SVT that one has to receive a shock from your ICD? 

Is it uncommon to have your pacemaker pace you our of these SVT? More common than being shocked?

&n...

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warnings??

just wondering if you guys received any prior warnings to getting shocked or if it was unexpected? in my experience i actually thought i was punched in the chest and had no idea what was going on until the 2nd shock, i had no warnings at all (other being out of breath and my heart being all over the place) but honestly for me that's pretty usual 

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Previous experiences?

Hey :)) i'm a 17 year old kid who has been recently diagnosed with a condition called ARVC. Got pretty unlucky with that one, for someone my age the chances are 1/10,000 lol. It's pretty serious, they are looking at a heart transplant :/ obviously i had to get an S-ICD put in aswell grr. Unfortunately in april my stupid self decided to participate in my schools swimming carnival and that did not go well. After swimming my heart rate was already high (around 170) but then my heart kick...

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What is the role of an ISO consultant for an ISO certification!

Question itself suggest the role of the consultant and process of complete ISO certification is to provide the consultation for the organisation in each and every step-in order to become ISO Certified company. The fundamental qualities that a consultation must possess are particularly specified based on the implementation of different types of ISO standards. ISO is a Non-governmental and non-profitable organisation established on 23rd of February 1947, by a group of delegates across the count...

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checking icd

HOW OFTEN DO YOU HAVE YOURS CHECKED

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Waking up with weird feeling in chest

Hi All - I recently posted this on FB as well.  I have a weird question. I have had my ICD (pacemaker & defibrillator) for about 2 years. Since I have had it, I am woken up at night with a weird feeling in my chest. It's very hard to describe but I'll try. It's kind of a crawly, tingly, hummy feeling.At first I thought it was anxiety (considering I could of died : ), but after all this time I am just wondering if that is really it. I found out they only download/test my d...

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EMI

HI!

I am a semi retired welder, and have just been implanted with  an ICD.  Are there any welders out there with ICDs and are still working? What precautions do you take?  I use both inverter and "old school" iron core welders.  I also sometimes have to use 3-phase industrial mills and lathes.  Is there any modifications I can do to the machinery in order to continue to use them?

Thanks,

Monday

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Trackless rides

Hello  I was just wondering if anyone with a pacemaker/defibrillator has been on any of the newer trackless rides at any of the Disney parks. I'm going to Tokyo Disney and Tokyo Sea in June and want to get an idea what is ok to go on.

Thank you in advance! ♥ 

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A Fib set off my defibrillator

Saturday morning at 4 am my ICD started to shock me for a period of 7 fires due to an A Fib issue. I have been awake now for over 24 hours. Have been admitted to hospital. I have been put on Amiodarone and a blood thinner. I am so exhausted yet so in fear of another shock.  As I am grateful my ICD certainly did it's job, a mess I am. I am out of A fib now. My ICD was implanted almost 8 months ago and I went through a rough period of depression. A virus attacked my heart was the reaso...

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Dot physical

Should I disclose that I have a pm on a dot physical for work?

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I have an ICD & I just gave birth to a baby boy!

Hi everybody! I'm 34 years old, survived a cardiac arrest (Dec 2018), was diagnosed with Arrhythmogenic Mitral Valve Prolapse, got an ICD (Jan 2019) and...I just gave birth to a healthy baby boy on January 28th, 2020!! I'm one happy and grateful first-time momma!

It's kinda surreal to think that the same heart that my baby listens to (and finds comfort in), is the same heart that failed me just over a year ago!

I just thought I'd put it out there in case there'...

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ICD vibrating

Is there a function that makes them vibrate occasionally? I'm not sure if it's in my head or if it's really doing it. I was never told it could happen

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ICD MISFIRES FOR NO REASON

  • by rf
  • 2020-01-29 12:23:43
  • ICDs
  • 1782 views
  • 3 comments

aNYONE HAVE AN ICD FIRE FOR NO REASON AT ALL?

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New to the ICD world

Hi Everyone,

About 3 1/2 weeks ago I was fitted with a CRT-D. The reason for the device was, I had a bad episode of 3rd degree heart block with a 33.7% EF. The doc was saying that I may have ARVC, which I was told is a genetic disease. The doc also said that he is not entirely sure if I have ARVC. No one on any sides of my parents had  SCA, pacemaker, or have dropped dead from a heart problem, so that's why the doc is uncertain about the ARVC diagnosis.

I notice that when...

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Has anyone ever been a super responder

I was diagnosed with heart failure in April of 2019. My ejection fraction what's 31 and after 14 weeks of the drug therapy my ejection fraction did not change. So I had a crt-d device implanted on September 4th. On the 13th of December I get a call from my electrophysiologists saying that my heart was normal and my ejection fraction was that 50. Was diagnosed with non ischemic dilated cardiomyopathy with an enlarged left ventricle. Has anyone else been a super responder in such a short. O...

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Surgery Recovery

Just had surgery on Tuesday.  I feel super tired and even when I lay on the opposite side of my ICD I feel like there is pressure where the ICD is located.  I go back to the doctor on Wednesday.  Is this normal???  Also, how long did people take off of work?  

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ICD seems to be getting hot

I received my ICD 5 weeks ago as a preventative measure.  I have CHF with EF of 25%  I have been healing very well but the past 2 weeks i have felt burning around one end of my ICD.  I chalked it up to possibly nerve pain. But it is now getting hot to the touch, and will swell quite a bit.  Its gotten so uncomfortable that ive put ice packs on it. I also get quite strong palpitations when this happens. My electrophysiologist said he has never heard of this and wants me to...

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Laser hair removal

Hi there! 

This may be a silly question, but I haven’t thought about it until now. I’m getting married in 2020 (woo!) and Me and my friend wanted to get a laser hair removal system to get us both looking good before the wedding. Just one of the shop bought ones. 

I have a subcut ICD so it’s on my side rather than my front chest. Is it safe to use a hair removal system with the ICD as it’s close? I’ve no idea if it even interacts or...

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where are they now

For those wondering what happened to the ICD Support Group the new address and name is www.myicdheart.com/board

Not sure why they lost the domain name but don't be fooled the icdsupportgroup.org name has been sold to someone else and who knows what the content will be.

 

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You know you're wired when...

Friends call you the bionic woman.

Member Quotes

Yesterday I moved to a new place in my mind and realized how bad I felt 'before' and the difference my pacemaker has made.