Most Recent Messages in ICDs

Low EF not always best indicator for ICD placement....

Just came across this article for those considering an ICD and those wondering what, if any, benefit they may get:

Implantable Cardioverter-Defibrillator Implantation

Reduced left ventricular systolic function (LVEF ≤35 %) remains the sole arbiter in international guidelines for implantable cardioverter-defibrillator (ICD) therapy in heart failure patients.9,10 Paradoxically, 70–80 % of those who suffer sudden cardiac death (SCD) have an ejection fraction (EF) o...

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CRT-D Installed July 17th. Not Feeling Better

LVEF of between 15% and 30%, depends on which test they read. Anyway, went to my GP because of shortness of breath, where the PA did an ECG and found a LBBB. She freaked and told me she was going to get me an ambulance and take me to the ER. I drove.
I entered ER in February with shortness of breath. Many tests later and I have LBBB and a slightly enlarged LV with the low LVEF. I have no blockage, cardiomyopathy is due to chemo therapy for cancer in 2008.
I am taked Entresto, C...

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Getting my ICD...

Hey All, 

Posted about 4 months ago when I was diagnosed with endocarditis and was informed I'd likely need an implant... Had a follow-up Echo and Nuclear Stress Test last week. Echo showed I still have a low ejection rate of 20. Stress test showed no signs of heart disease. 

I see the Electrophysiologist this coming Tuesday. 

Anyone have suggestions of things I should ask the doctor?  

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ablation

  • by lb151
  • 2018-07-11 22:36:51
  • ICDs
  • 539 views
  • 4 comments

my doctor has recently been talking about doing an ablation and making me totally dependent on the pacer. I have been very resistant to the idea. I would like to hear any stories and ideas you guys have on this. Im scared of the idea and need some help

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implant location

I need a CRT-D implanted. I am left handed and the EP mentioned that having it implanted on my right side may cause a problem because the lead will be longer. He is recommending it to be on the left side even though I am left handed. Anyone else had it on the right side?

I also asked to have the implant below the muscle. Has anyone had issues having it below the muscle vs. in a pocket below the skin?

 

 

 

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Not keeping to set speed

  • by dalep
  • 2018-06-28 20:45:24
  • ICDs
  • 510 views
  • 10 comments

Hello I have a 2 lead St Jude set at Miniumum of 6o BPM fitted 2 weeks ago, for the first week and a half all has been fine , and my lower heart rate has been a steady 60 + / - 1

For the last 2 or 3 days its been dropping to 50 +/- 1 instead of 60

I initially thought my Apple watch has having a senior moment, but i tried using a medical grade monitor, same thing.Last night 49 for 30 mins, the 50 for 2 hours, only went back to 60 when i sat up.

I called the hospital and...

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CRT-D choice

My EP has suggested two companies and models for my implant this coming Monday...He installs about 60% Medtronic and 30% St. Jude...the other 10% are replacements where the implant dictates the same equipment as original...he has made it clear that he has no preference in the two models and feels they are both great technology and the the others are also good he just likes to go with what he knows best which are Med and StJ...The two models are Medtronic Claria DTMA1Q and St Jude Assurance MP...

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ICD, Roller Coaster

Hello!  I have an ICD by Medtronic implanted since 2016!  No problems so far.  I am wondering if I can go on a BIG, FAST Roller coaster!  More specifically, the ones at Cedar Point, Ohio!  I have already booked a tour of the park with my best friend this September.  I am more concerned about the ones using magnetic force to slow/speed the rides up and down.  My cardiologist who installed it said I should be ok but I did not mention the magnets with him. &nbs...

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99% paced

What does it mean when they say I'm 99% paced?

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ICD

In August of 2016 I had an emergency pacemaker implant.  All was fine and I was back to myself very quickly.  In January of 2018, my pacemaker was removed and replaced with an ICD because of ventricular tachycardia.  The recover was not so easy.  I had major swelling at the sight.  Now the swelling is all down, but the site is painful.  Also, You can see the device and what looks like leads.  I’m not so concerned about the look of the site, but the con...

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ICD extreme tenderness & pain

I am 45 years old. I have had Hypertrophic Cardiomyopathy since birth but, was not diagnosed until I was 13 yrs old.  Been on meds since then. I got an ICD on Jan 23, 2018 & am experiencing  EXTREME tenderness, pain in area & below of ICD. Can not barely touch it without pain & I get tingling & pain there. It is extremely bulged out.  Is this normal to be hurting there still after 4 months??  I am so sick & tired of it. I a...

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iCD in power plant

New to the forum, first post.  After having an ablation done for a fib a few years ago, two weeks ago I suffered a ventricular tachycardia and had an icd implanted. I am an engineer in a power facility with two 4000 KW steam turbine generators as well as transformers, electrical breakers, diesel generators, etc. I am having trouble finding out if it’s safe for me to go back to work or if I have to retire two years early. If anyone has any input regarding th...

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ICD Fired this morning 4:10 AM

Implanted Feb 28, 2018. I was told most people live a complete life with it never going off.

I called 911 and was taken to the local hopital, xray blood tests and sent home with. Well it did exacly what it was supposed to do and good luck, these things go off all the time.

I will call my GP and cardiologist on monday, but now I'm worried that things are just going to go downhill from here. When will if fire next, what can I expect? How can I go to sleep tonight?

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1st day of cardiac rehab

My mom: CRT-d implanted March 2018.  Being tested for heart transplant due to ef of 20% along with NYHA class iii symptoms. Cardiopulmonary stress test seems to indicate transplant is in the future. Let’s prove them wrong! 

Started cardiac rehab yesterday. Bp was a bit low 84/49. She felt fine so they let her start. 10 mins walking on treadmill. Kept her hr below 106bpm. She said afterward that she was disappointed in her performance - I reminded her that it was onl...

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CRT-D verses meds

I had a CRT-D implanted Dec 2016 after an electrical storm I was also put on 200 mg of ameoderon a day.

My question  is isn't the Crt-d doing the same as meds why do I need both.  Will the Crt-d keep my heart beating at the proper rate without the meds

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Ameoderane

Has anyone stopped taking ameoderane after having a crtd implanted

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Pacemaker may have saved my life

I am brand new to this forum, though I have been an avid reader. I decided to join because of what happened to me very recently. 

I received a pacemaker after I went to the emergency room with erratic heart beats. Three weeks prior, I had a crash on my bicycle that included me blacking out. At the hospital, a cardiologist monitored me for 4 days and together we decided a pacemaker was what was needed. 

Problem was, it wasn’t. 

I went through al...

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boston scientific model g247 CRTD

Hi.  Im new.  Just had device installed this past Monday.  Have a few questions.

Went to mall yesterday. In and out 5 stores and heart was uncomfortable  Rate went crazy. Husband wit me and pulse reader on. Tried driving my car. Both bluetooth in car and phone off  same results. 

Was just sitting watching tv felt a few pvcs and then a small pop  not painful center of chest 10 minutes later another small pop.

Saw EP yesterday said all ok but...

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Driving?

Ugh.  My ICD just fired -  first time for this device -  second "appropriate" shock in 11 years -  (one other when  a recalled Medtronic lead broke, and two when a Boston scientific  device failed a mere five weeks after implantation - and the techs were messing around to see if they could get it to do anything - all they accomplished was shocking me twice before determining I needed a new implant..........)  -  any way -  I cannot f...

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Nausea

My 61 year old mom has had her crt-D for almost two months now and recovery is going, just slowly. One annoying thing that keeps happening is every morning (usually earlier in the morning but there is no set time), she seems to get really nauseous. Sometimes she’s able to breathe thru it and other times she’s not. If not, she ends up vomiting and feels better after that, then goes about her day.

 

Has as anyone else experienced anything like this? I can’t fi...

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You know you're wired when...

You run like the bionic woman.

Member Quotes

I love this new part of me, and very, very thankful that this technology exists and I know that it's all only going to get better over time.